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Heumann, Judith E.  1984.  Independent Living Movement: organizing for an active, disabled old age.
Judith E. Heumann explains what the Independent Living Movement is and what Independent Living Centres and how large numbers of other elderly disabled people could benefit greatly from services delivered by Independent Living centers. The World Institute on Disability's objectives in this regard are to work with appropriate organizations to raise awareness about aging and disability and to recommend policies which support elderly persons with disabilities. Internet publication URL: www.independentliving.org/toolsforpower/tools28.html
Evans, John.  2003.  The Independent Living Movement in the UK.
John Evans was one of the founders of Project 81 that marked the beginning of the Independent Living Movement in the UK. Since 1996 he has been the chair of the European Network on Independent Living (ENIL). In this document he gives an overview of the origin of the Independent Living Movement in the UK, it's development and evolution, as well as the current situation.
Frieden, Lex.  1980.  Independent Living Models.
In: Rehabilitation Literature, Special Article, July-August, 1980, Vol 41, No. 7-8, pp. 169-173. A-289. Internet publication URL: www.independentliving.org/docs6/frieden1980.html
Independent Living Institute.  2023.  Independent Living Institute Verksamhetsberättelse 2022. PDF icon Årsberättelse 2022 (205.31 KB)
Indpendent Living Institute.  2022.  Independent Living Institute Verksamhetsberättelse 2021. PDF icon Arsberattelse-ILI-2021.pdf (690.96 KB)
Independent Living Institute.  2021.  Independent Living Institute Verksamhetsberättelse 2020. PDF icon Arsberattelse2020IndependentLivingInstitute.pdf (847.52 KB)
Independent Living Institute.  2020.  Independent Living Institute Verksamhetsberättelse 2019. PDF icon Arsberattelse-ILI-2019.pdf (674.33 KB)
Independent Living Institute.  2019.  Independent Living Institute Verksamhetsberättelse 2018. PDF icon Arsberattelse 2018_Independent_Living_Institute.pdf (951.62 KB)
Independent Living Institute.  2018.  Independent Living Institute Verksamhetsberättelse 2017. PDF icon Arsberattelse_ILI_2017.pdf (491.57 KB)
Independent Living Institute.  2017.  Independent Living Institute Verksamhetsberättelse 2016. PDF icon Independent Living Institute Verksamhetsberättelse 2015 (375.59 KB)
Independent Living Institute.  2016.  Independent Living Institute Verksamhetsberättelse 2015. PDF icon Independent Living Institute Verksamhetsberättelse 2015 (356.89 KB)
Independent Living Institute.  2015.  Independent Living Institute Verksamhetsberättelse 2014. PDF icon Verksamhetsberättelse 2014 (361.24 KB)
Independent Living Institute.  2014.  Independent Living Institute Verksamhetsberättelse 2013. PDF icon Arsberattelse2013.pdf (343.32 KB)
Independent Living Institute.  2013.  Independent Living Institute Verksamhetsberättelse 2012. PDF icon Arsberattelse 2012.pdf (403.62 KB)
Independent Living Institute.  2013.  Independent Living Institute Verksamhetsberättelse 2011. PDF icon Årsberattelse 2011.pdf (404.37 KB)PDF icon Annual Report 2011.pdf (413.91 KB)
Independent Living Institute.  2011.  Independent Living Institute Verksamhetsberättelse 2010.
Independent Living Institute.  2010.  Independent Living Institute Verksamhetsberättelse 2009.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2009.html
Independent Living Institute.  2009.  Independent Living Institute Verksamhetsberättelse 2008.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2008.html
Independent Living Institute.  2008.  Independent Living Institute Verksamhetsberättelse 2007.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2007.html
Independent Living Institute.  2007.  Independent Living Institute Verksamhetsberättelse 2006.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2006.html
Independent Living Institute.  2006.  Independent Living Institute Verksamhetsberättelse 2005.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2005.html
Independent Living Institute.  2005.  Independent Living Institute Verksamhetsberättelse 2004.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2004.html
Independent Living Institute.  2004.  Independent Living Institute Verksamhetsberättelse 2003.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2003.html
Independent Living Institute.  2003.  Independent Living Institute Verksamhetsberättelse 2002.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2002.html
Independent Living Institute.  2002.  Independent Living Institute Verksamhetsberättelse 2001.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2001.html
Independent Living Institute.  2001.  Independent Living Institute Verksamhetsberättelse 2000.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2000.html
Independent Living Institute.  2000.  Independent Living Institute Verksamhetsberättelse 1999.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1999.html
Independent Living Institute.  1999.  Independent Living Institute Verksamhetsberättelse 1998.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1998.html
Independent Living Institute.  1998.  Independent Living Institute Verksamhetsberättelse 1997.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1997.html
Independent Living Institute.  1997.  Independent Living Institute Verksamhetsberättelse 1996.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1996.html
Independent Living Institute.  2009.  Independent Living Institute (ILI) Annual Report 2008.
Internet publication URL: www.independentliving.org/docs1/ilanrp2008.html
Independent Living Institute.  2008.  Independent Living Institute (ILI) Annual Report 2007.
Internet publication URL: www.independentliving.org/docs1/ilanrp2007.html
Independent Living Institute.  2007.  Independent Living Institute (ILI) Annual Report 2006.
Internet publication URL: www.independentliving.org/docs1/ilanrp2006.html
Independent Living Institute.  2006.  Independent Living Institute (ILI) Annual Report 2005.
Internet publication URL: www.independentliving.org/docs1/ilanrp2005.html
Independent Living Institute.  2005.  Independent Living Institute (ILI) Annual Report 2004.
Internet publication URL: www.independentliving.org/docs1/ilanrp2004.html
Independent Living Institute.  2004.  Independent Living Institute (ILI) Annual Report 2003.
Internet publication URL: www.independentliving.org/docs1/ilanrp2003.html
Independent Living Institute.  2003.  Independent Living Institute (ILI) Annual Report 2002.
Internet publication URL: www.independentliving.org/docs1/ilanrp2002.html
Independent Living Institute.  2002.  Independent Living Institute (ILI) Annual Report 2001.
Internet publication URL: www.independentliving.org/docs1/ilanrp2001.html
Independent Living Institute.  2001.  Independent Living Institute (ILI) Annual Report 2000.
Internet publication URL: www.independentliving.org/docs1/ilanrp2000.html
Independent Living Institute.  2000.  Independent Living Institute (ILI) Annual Report 1999.
Internet publication URL: www.independentliving.org/docs1/ilanrp1999.html
Independent Living Institute.  1999.  Independent Living Institute (ILI) Annual Report 1998.
Internet publication URL: www.independentliving.org/docs1/ilanrp1998.html
Independent Living Institute.  1998.  Independent Living Institute (ILI) Annual Report 1997.
Internet publication URL: www.independentliving.org/docs1/ilanrp1997.html
Independent Living Institute.  1997.  Independent Living Institute (ILI) Annual Report 1996.
Internet publication URL: www.independentliving.org/docs1/ilanrp1996.html
Independent Living Institute.  2023.  Independent Living Institute Annual Report 2022. PDF icon Annual report 2022 (247.09 KB)
Independent Living Institute.  2022.  Independent Living Institute Annual Report 2021. PDF icon AnnualReport2020-Independent-Living-Institute.pdf (815.1 KB)
Independent Living Institute.  2021.  Independent Living Institute Annual Report 2020. PDF icon AnnualReport2020-Independent-Living-Institute.pdf (871.27 KB)
Independent Living Institute.  2020.  Independent Living Institute Annual Report 2019. PDF icon Annual-report-2019-ILI.pdf (735.5 KB)
Independent Living Institute.  2019.  Independent Living Institute Annual Report 2018.
Independent Living Institute.  2018.  Independent Living Institute Annual Report 2017. PDF icon English_version_Arsberattelse_ILI_2017.pdf (574.98 KB)
Independent Living Institute.  2017.  Independent Living Institute Annual Report 2016. PDF icon Annual Report ILI 2016.pdf (537.81 KB)
Independent Living Institute.  2016.  Independent Living Institute Annual Report 2015. PDF icon Independent Living Institute Annual Report 2015 (357.41 KB)
Independent Living Institute.  2015.  Independent Living Institute Annual Report 2014. PDF icon Annual Report 2014 (419.49 KB)
Independent Living Institute.  2014.  Independent Living Institute Annual Report 2013. PDF icon AnnualReport2013.pdf (438.49 KB)
Independent Living Institute.  2013.  Independent Living Institute Annual Report 2012. PDF icon Annual Report 2012.pdf (491.76 KB)
Independent Living Institute.  2013.  Independent Living Institute Annual Report 2011. PDF icon Annual Report 2011.pdf (413.91 KB)
Independent Living Institute.  2011.  Independent Living Institute Annual Report 2010.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2009.html
Independent Living Institute.  2010.  Independent Living Institute Annual Report 2009.
Internet publication URL: www.independentliving.org/docs1/ilanrp2009.html
Martinez, Kathy.  2003.  Independent Living in the U.S. & Canada.
Kathy Martinez is International Director and Deputy Director of the World Institute on Disability, Oakland, USA. She gives an overview of events in the U.S. and Canada that made the independent living movement possible. She also covers the basic philosophy of the U.S. IL movement, as well as emerging issues and trends that challenge the IL movement. Internet publication URL: www.independentliving.org/docs6/martinez2003.html. In the forthcoming English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish).
Dr. Adolf Ratzka.  2003.  Independent Living in Sweden.
Account of the emergence of the Independent Living movement in Sweden, the social policy climate at the time, its struggles, achievements and challenges from the perspective of the person who introduced the independent living concept to Sweden. Internet publication URL: www.independentliving.org/docs6/ratzka200302b.html. In the forthcoming English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish, PDF, 1.46 MB).
Dr. Adolf Ratzka.  1998.  Independent Living in der Slowakei.".
1997 wann das Institut für Independent Living Projektverträge in der Slovakischen Republik im Rahmen des EU PHARE Programms für die Einführung eines Models für Persönliche Assistenz mit Bargeldleistungen an die Assistenznehmer sowie eines Models für ein rollstuhlgerechtes, der Öffentlichkeit zugängliches, Taxisystem mit Subventionierung der behinderten Reisenden. Der Artikel diskutiert die besonderen Schwierigkeiten und Möglichkeiten von benutzer-initierten und benutzer-betriebenen Lösungen in post-kommunistischen Gesellschaften. Internet publication URL: www.independentliving.org/docs3/slovakiade.html (In German.)
Dr. Adolf Ratzka.  2011.  Independent Living for People with Disabilities of All Ages.
Given the increasing number of older persons relative to the working age population, record level taxes and baby boomers’ demands for self-determination and quality of life, which changes might the Scandinavian welfare model have to undergo in order to deliver long term care to all who need it? In Sweden, direct payments for personal assistance are paid to mainly younger persons with extensive disabilities. In terms of perceived quality and cost per hour of service, direct payments have been found to be more efficient than traditional local government services. But would this favorable experience hold for all persons in need of assistance with the activities of daily living – regardless of age, diagnosis and minimum needs? What would be such a policy’s cost and effects on the labor market? How could it be financed? Would it threaten younger disabled persons’ relative favorable present situation? Today’s Swedish policy of cash payments for the purchase of personal assistance services might be of interest as a long term care solution for tomorrow’s older persons.
Dr. Adolf Ratzka.  2007.  Independent Living for people with disabilities: from patient to citizen and customer.
Keynote at the conference in Barcelona 22 October 2007 organized by the Catalan Party Convergéncia i Unió in commemoration of the 25th anniversary of The Spanish Law for Persons with Disabilities of 1982. Internet publication URL: www.independentliving.org/docs7/ratzka20071022.html
Dr. Adolf Ratzka.  2013.  Independent Living for people with disabilities: from patient to citizen to customer.
Bolling, Jamie.  2022.  Independent Living – för ett liv med självbestämmande.
Dr. Adolf Ratzka.  2005.  Independent Living Empowers People with Disabilities.
In: Development Outreach. World Bank. July 2005. Reprinted from www1.worldbank.org/devoutreach/article.asp?id=317. The World Bank's magazine "Development Outreach" in a special edition presents articles from governments and international NGOs, illustrating different perspectives and approaches to facing the challenges of disability, and addressing the connection between disability and poverty. In his article about Independent Living Adolf Ratzka defines the concept and its implications for disability policy. Internet publication URL: www.independentliving.org/docs7/ratzka200507.html
Dr. Adolf Ratzka.  2005.  Independent Living émancipe les personnes en situation de handicap.
Development Outreach. World Bank. Juillet 2005. Internet publication URL: www.independentliving.org/docs7/ratzka200507f.html
Dr. Adolf Ratzka.  1994.  Independent Living and the family: The context of Costa Rica and Sweden.".
In the context of the family, Independent Living implies participation in all areas of human life, especially loving relationships, sexuality and parenthood. Internet publication URL: www.independentliving.org/docs5/FamilyCRSweden.html
Belli, Raffaello.  2003.  Independent Living and some Italian Experiences.
Raffaello Belli presents an overview of the history of and current situation for people with disabilities in the various geographical areas in Italy with regard to the Independent Living movement and the availability of resources for Independent Living including direct payments. Presented at the European Network on Independent Living (ENIL) conference in Southampton, England, 7-9 March 2003. Internet publication URL: www.independentliving.org/docs6/belli200303.html.
Brichtová, Lydia.  1998.  "Independent Living and proposed Slovak social reforms.".
Lydia Brichtová speaks about the changes adopted in social/disability legislation since 1989. Internet publication URL: www.independentliving.org/docs1/hr8.html.
Dr. Adolf Ratzka.  1997.  Independent Living and Our Organizations: A Definition.
We are the last minority to fight for our rights and we will not go away. Even with the most sophisticated prevention, early detection and rehabilitation services there will always be people with disabilities and we have to build our societies in such a way that everybody can live in them with dignity and self-respect. Presentation at the conference "Our Common World" organized by Disability Rights Advocates Hungary in Siofok, Hungary, May 9-11, 1997.
Dr. Adolf Ratzka.  1997.  Independent Living and Our Organizations.
Internet publication URL: www.independentliving.org/toolsforpower/tools7gr.html (In Greek).
Dr. Adolf Ratzka.  1996.  Independent Living and Attendant care in Sweden: A Consumer Perspective.
Internet publication URL: http://www.independentliving.org/docs1/ar1986spr.html
PDF icon ar1986spr.pdf (111.55 KB)
Nadash, Pamela.  1998.  Independent Choices: Enhancing Consumer Direction for People with Disabilities.
Allowing consumers to manage and direct the long-term services they need acknowledges that they are the best judges of their own needs and the best decision-makers on how these needs get met - an acknowledgment seldom made. Internet publication URL: www.independentliving.org/docs4/ar3983.html
Wilner, MaryAnn, Wyatt Ann.  1998.  Independence Care System: Managed Care for People with Disabilities.
The goal of Independence Care System is to enable people with disabilities to remain at home or in the least restrictive setting possible by integrating the full range of primary care, acute care, and home and community-based services in a comprehensive, flexible manner. Internet publication URL: www.independentliving.org/docs4/ar3982.html
Wilner, MaryAnn, Wyatt Ann.  1998.  Independence Care System: Managed Care for People with Disabilities.
Målet för Independence Care System är att underlätta för folk med funktionsnedsättning att bo kvar i sina hem, eller åtminstone i en så fri miljö som möjligt, genom att integrera primära, akuta, hem- och samhällsbaserade vårdtjänster på ett utförligt och flexibelt sätt. Internet publication URL: www.independentliving.org/docs4/ar3982b.html (In Swedish.)
Fipper, Catalina, Hölter Nelly.  2024.  In Search of Links: Overview of the State of Research on Disability, Migration, Employment and Health.
Brown, Steven E.  1998.  In Freedom, Frank.
Dr. Steven E. Brown Co-Founder of the Institute on Disability Culture, in the United States, describes the life and work of Frank Moore, a Berkeley, California, USA performance artist with cerebral palsy. First published in Mainstream: Magazine of the Able-Disabled, June/July 1998. Internet publication URL: www.independentliving.org/docs3/brown98b.html.
Westberg, Kenneth.  2010.  In Flanders all personal care assistants are employed by the people they assist..
Miles, Christine.  2007.  Imran's Djinn, and Theories of Epilepsy.
This article and the review comment were first published in “EPICADEC News” (from the Foundation Epilepsy Care Developing Countries, Leiden), October 2000, pp. 9-10, titled “Imran’s Djinn”. They are here reproduced with permission, after slight revision. The article concerns an Asian boy living in UK. His family had trouble using the health services, because of different concepts of Imran’s illness. One of Imran’s teachers met the family half way, respecting their beliefs and giving them time to digest a different approach to epilepsy and its treatment. A scientific reviewer comments on the story. Internet publication URL: www.independentliving.org/docs7/miles-christine2000.html
Heumann, Judith E.  1998.  The Implications of ADA for Disabled People.
There is a strong need for civil rights legislation in all countries. To those who continue studying whether or not there is a need for anti-discrimination legislation, it is time to stop studying and to start legislating! Internet publication URL: www.independentliving.org/docs1/hr4.html
Siilsalu, Mari, McGrath Monica Klasén.  2023.  Implementation of the state party obligations under ICERD for migrants with disabilities in Sweden.
Nakanishi, Yukiko.  1999.  IL-rörelsen breder ut sig i Asien.
Yukiko Nakanishi reports on Independent Living seminars, workshops and exchanges that are helping to spread the philosophy across Asia. Internet publication URL: www.independentliving.org/docs1/dpidi299sv.html (In Swedish.)
Gaeremynck, Dave, Dr. Adolf Ratzka.  2010.  ILI participated in training session in Galati, Romania from Tuesday October, 19th until Friday October, 22nd 2010. PDF icon StepsRomania_DeInstitutionalization.pdf (207.97 KB)PDF icon StepsRomania_UserInvolvement.pdf (319.98 KB)
Gaeremynck, Dave, Dr. Adolf Ratzka.  2010.  ILI deltog i utbildning i Galati Rumänien, från tisdagen den 19 oktober till fredagen den 22 oktober 2010.
Könkkölä, Kalle.  2008.  IL 25 years Documentation - Kalle Könkkölä.
Westerberg, Bengt.  2008.  IL 25 years Documentation - Bengt Westerberg.
Könkkölä, Kalle.  2008.  IL 25 år dokumentation - Kalle Könkkölä.
Berggren, Henrik.  2008.  IL 25 år dokumentation - Henrik Berggren.
Internet Industry Association of Australia.  2000.  IIA Warns SOGOC: Disability Web Decision Puts Businesses on Notice.
In the wake of the court decision against the Sydney Olympics organizers, Australian businesses and authorities oversee their websites' access. Internet publication URL: www.independentliving.org/docs5/sydney-olympics-blind-accessibility-decision-press-release.html
Erdtman, Emil.  2008.  Iceland – Few have been granted personal assistance payments.
Brown, Steven E.  1995.  I Was Born (in a Hospital Bed) -- When I Was Thirty-One Years Old.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, gave a speech, later reworked into an article, in which he describes how he came to accept and even take pride in his status as a person with a disability and a disability activist, as well as other life activities, such as being a parent. First published in "Disability & Society," 1995. Internet publication URL: www.independentliving.org/docs3/brown95c.html.
Berg, Susanne.  2002.  I think I finally made the grade, I've become world's worst on empathy, by Susnnne Berg, June 2002.
Dr. Adolf Ratzka.  1998.  I kläm mellan laissez faire och den sociala ingenjörskonsten.
Skillnaderna mellan hemtjänst och personlig assistans - en diskussion med en granskning av de olika socialpolitiska instrument som finns på vårt område. Internet publication URL: www.independentliving.org/docs5/i_klam.html (In Swedish.)
H
Abadia, Regine, Sallem Ryadh.  2005.  Hungerstrejk för personlig assistans i Frankrike.
Lyssna-MP3-svensk (28:21 minuter, 26,6 MB). Marcel Nuss i Strasbourg i Frankrike behöver assistans dygnet runt. Gaby, hans fru, arbetade i 20 år som hans assistent utan ledighet. Det behövdes ett sprucket äktenskap, hot om hungerstrejk och tillkomsten av en militant organisation av assistansbrukare tills regeringen i Paris kände sig tvungen att komma med en lösning. Lyssna-MP3-français (29:30 minuter, 27,7 MB). Programmet i text (In English, En français).
Abadia, Regine, Sallem Ryadh.  2005.  Hunger Strike for Personal Assistance in France.
Lyssna-MP3-svensk (28:21 minuter, 26,6 MB). Lyssna-MP3-français (29:30 minuter, 27,7 MB). Programmet i text (In English, En français).
Majiet, Shanaaz.  1998.  Human Rights from Disabled Peoples' Perspective in Africa.
Shanaaz Majiet speaks on human rights and disability from the perspective of the African continent. Internet publication URL: www.independentliving.org/docs1/stlm19980823d.html
Nkeli, Jerry.  1998.  Human Rights Commissioner reflects on achievements obtained by people with disabilities.
In South Africa we have disabled people in leadership-roles and have achieved a lot but we have many problems to face in the field of human rights such as issues dealing with racial intolerance and a diversity of various issues that deal with colonialism. Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Stockholm, Sweden 23 August, 1998. Internet publication URL: www.independentliving.org/docs1/stlm19980823f.html
Montero, Federico.  1998.  Human Rights and Organisations of Disabled Persons in Costa Rica.
Despite positive changes in Costa Rica's social policies, disabled people still are denied certain rights to participate in all aspects of society. Internet publication URL: www.independentliving.org/docs1/stlm19980823e.html
Baha’i International Community.  1998.  Human Rights and Disability. Statement to the fortieth session of the United Nations Sub-Commission on Prevention of Discrimination and Protection of Minorities Agenda item 7: human rights and disability. Geneva, Switzerland, August 1988.
Internet publication URL: www.independentliving.org/docs6/bic199808.html
Nkeli, Jerry.  1998.  How to overcome double discrimination of disabled people in South Africa.
South African Human Rights Commissioner, Jerry Nkeli, outlines the country's history from the point of view of the Disability Rights Movement. Conference on Legislation for Human Rights Arranged by Handikappombudsmannen in cooperation with Independent Living Sverige, Stockholm, Sweden 24 August 1998. Internet publication URL: www.independentliving.org/docs1/hr5.html

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