After project Assistanskoll’s (approximately “control over your assistance”) financial support by the Swedish Inheritance Fund Commission (Allmänna Arvsfonden) came to an end in June 2010 the service has continued to increase its content and exposure. Assistanskoll offers information, facts and figures, analysis and advice to personal assistance users, their families and assistants in choosing a service provider and updating the public about the fast changes in personal assistance legislation, legal praxis and market development. Assistanskoll also supports municipal case workers in informing and advising personal assistance users and their families. Up to the end of 2011 214 private assistance providers had joined Assistanskoll’sprovider comparison. These providers together served a total of 8,235 customers/members which represents approximately 75% of the Swedish private market. Assistanskoll’s newsletter published approximately monthly, written by Kenneth Westberg, has gained a leading position in monitoring the development of personal assistance in Sweden. Our articles and other information are often referred to. The newsletter reaches almost 4,600 email addresses of which approximately 350 are assistance providers and 950 are local government case workers. Remaining subscribers are personal assistance users, their families and assistants, disability organizations and their periodicals, trade unions, civil servants and politicians at different levels. Assistanskoll’s homepage had 69,000 unique visitors (66,000 in 2010). The exposure has made Assistanskoll’s homepage and newsletter an interesting forum also for advertizements which cover the lion’s share of Assistanskoll’s running costs. Among the year’s improvements of Assistanskoll’s provider comparison service was our Transparency Index (TI), an index that measures a provider’s willingness to disclose information such as the amount available for a customer’s administrative expenses, for example, accompanying assistants’ travel costs or information about the provider’s administrative costs and profits.
ILI’s online full-text library offers authors publishing, exposure and safe archiving for their work, such as articles in scientific journals, reports, manuals and lectures on Independent Living and related themes. There are currently over 600 mainly English language documents in the searchable library including over 150 in Swedish and several in other languages such as Spanish, French and German. Due to our website’s good Google Page Rank the library is widely known and receives currently some 200,000 visits per year.
The Discrimination Ombudsman Reporting Service (Swedish language) assists individuals and organizations in reporting discrimination to the office of the Discrimination Ombudsman and the respective local government building permit board by offering multiple pre-formulated statements on its homepage that can be selected by a mouse click. An important tool for discrimination reporting campaigns organized by the annual March for Access (Marschen för tillgänglighet) throughout the country the service documents the extent of discrimination against persons with disabilities in a Google searchable public database. The DO Reporting Service has not had its own funding and we are looking for a more sustainable financial solution.
Accessible Vacation Home Exchange is our contribution to promoting travel abroad for persons with extensive disabilities. Our online service enables persons interested in home swapping to find interested partners by posting descriptions of their homes that are relevant for accessibility and usability by other persons with extensive disabilities. The service underwent an upgrade some time ago resulting in improved appearance and additional functions. While we have not been overly energetic in marketing the free service in 2011 over one hundred websites refer to Accessible Vacation Home Exchange which Miles Goldstick currently attends to on a volunteer basis.
ILI’s homepage continued also in 2011 to be the first search result for “Independent Living” in Google among a total of almost 11 million. The homepage had a total of 112,337 unique visitors in 2011
“With the Law as Tool for Social Change” (“Med lagen som verktyg”) is the title of a pilot study whose application was submitted to the Swedish Inheritance Fund Commission (Allmänna Arvsfonden) in October 2010. After a positive decision a year later work with the project began in December 2011. The study is to look at the feasibility of and the requirements for a larger project which would build up legal expertise among Swedish disability organizations on discrimination on the grounds of disability. The objective is to better utilize existing legislation and legal praxis at the Swedish, European, EU and United Nations level for defending the human and civil rights of persons with disabilities. A number of NGOs abroad that we have cooperated with over the years serve as role models for the initiative. The pilot study will end in fall 2012.
Project STEPS (Stimulate entrepreneurship in the provision of social services for people with disabilities) was started in August 2009 and finished in June 2011. Our partners in this two-year project financed by the European Union’s Leonardo Program were ADO Icarus, Belgium (lead partner) and Inima de Copil, Romania; Association Friends of the Home for Children, Bulgaria; and Academy of Management, Poland. The project was to stimulate a wide pan-European exchange of expertise among the partner organizations in former Eastern Europe and Belgium and Sweden through joint seminars and mutual study visits. ILI hosted a seminar in Stockholm in 2010 and participated in study visits and workshops in Flanders, the Netherlands and Romania with presentations on de-institutionalization and users’ self-determination.
ILI staff members took part in the following events
ILI’s staff was involved in the following publications.
Invitations with fully paid expenses which we could not follow
November 18–20 São Paulo City, Brazil as presenter on the impact of the International Year of Persons with Disabilities (1981) at the International Workshop To Celebrate 30 Years Of The IYDP: A journey Of People With Disabilities Towards Full Citizenship organized by the State Department Rights of Persons with Disabilities of the State of São Paulo.
Over the years ILI has developed into an information and contact referral hub which has allowed us to widen our network, deepen our cooperation with other organizations and to contribute to an increased rate of change in a number of countries regarding policy for accessibility, personal assistance, assistive technology, employment. Inquiries may involve projects, literature sources, referral to other organizations, experts or may regard individuals looking for support and advice. Currently we spend on average almost 50% of a full-time position on this activity – costs which are hard to recover due to our mainly project based funding structure.
The Board had its annual meeting on June 17, 2011.
Kalle Könkkölä Kapka Panayot Adolf Ratzka, chair Bente Skansgård
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