Disability Rights Defenders (DRD) / ‘IL Nordic Network’ is a project of Independent Living Institute (ILI)^[1]. This report summarizes the activities, results and outcome of DRD from September 2020 to June 2021.

Material for a study circle concerning human rights in accordance with Article 19 of the Convention on the Rights of Persons with Disabilities By Emil Erdtman, 10/09/2019 Revised by Artikel 19 som verktyg, autumn 2020

The United Nations Convention on the Rights of Persons with Disabilities became legally binding for Sweden in 2009. Article 19 of the Convention concerns the right to a life with self-determination within the community.

Independent Living Institute (ILI) arbetar för att främja möjligheterna för människor med funktions-nedsättning till mer personlig och politisk makt, självbestämmande, full delaktighet och jämlikhet genom information, utbildning, opinionsbildning och projektverksamhet. Under 2020 verkade ILI via flera projekt för att uppnå sina mål och visioner som beskrivs i detta dokument. Alla större projekt har egna webbsidor, facebooksidor och ger ut nyhetsbrev.

2023

• Remissyttrande till lagrådsremiss Vissa skärpta villkor för anhöriginvandring och begränsade möjligheter till uppehållstillstånd av humanitära skäl - Ju2023/00511
• Remissvar - SOU 2023:9 Ett statligt huvudmannaskap för personlig assistans (Diarienummer S2023/00990)

Interviews with Personal Assistance Users and Independent Living Activists

Master’s Thesis

Abstract 

Article 19 of the UN Convention on the Rights of Persons with Disability (CRPD) states the right for disabled people to live independently and to be included in the community. The article includes the right to personal assistance as a tool for independent living. General Comment Number 5 on Article 19 of the CRPD criticizes the inadequacy of the implementation of this right and gives clear criteria, which define the term personal as-sistance. These criteria have to be fulfilled in order to call a service personal assistance.

Finland (population 5.5 million) has personal assistance. In 2020 there were  28 000 personal assistance clients.

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ANNUAL REPORT 2019

Independent Living Institute (ILI) works to promote opportunities for individuals with non-normative abilities for more personal and political power, self-determination, full participation and equality through information, education, lobby and project activities. During 2019, ILI carried out several projects to reach its goals and visions which are described in this document. All the projects have their own webpage, Facebook-page and publish newsletters.

In our project Article 19 as a tool, we welcomed Alex Caputo Janhager as an intern. As a part of his internship and introduction to Sweden, he wrote a paper on the Independent living Institute and its activities, the Swedish political system and Sweden’s relation to international human rights norms. The paper is available at the end of this post.

ANNUAL REPORT 2018

Independent Living Institute (ILI) works to promote opportunities for disabled people for more personal and political power, self-determination, full participation and equality through information, education, lobby and project activities. During 2018 ILI carried out several projects to reach its goals and visions described in this document. All the projects have their own webpage, facebook page and disseminate newsletters.

ÅRSBERÄTTELSE 2017

Independent Living Institute (ILI) arbetar för att främja möjligheterna för människor med funktionsnedsättning till mer personlig och politisk makt, självbestämmande, full delaktighet och jämlikhet genom information, utbildning, opinionsbildning och projektverksamhet. Under 2017 verkade ILI via flera projekt för att uppnå sina mål och visioner som beskrivs i detta dokument. Projekten har alla sin webbsida, facebook page och ger ut nyhetsbrev.