Med Lagen som Verktyg

ILI congratulates ULOBA on their 30th anniversary.

Den sorgliga nyheten om förlusten av en våra mest betydelsefulla medkämpar Kapka Panayotova

Independent Living Institute är ledsen att meddela den sorgliga nyheten om förlusten av en av våra mest betydelsefulla medkämpar i vår rörelse – Kapka Panayotova från Sofia, Bulgarien. Hon är som min syster, tillsammans har vi delat gemensamma projekt och kampen för Independent Living sedan 1998. Vi har delat engagemanget, frustrationer och roliga stunder som drivit oss att fortsätta kämpa för jämlikhet tillsammans. Det är en sorglig och grym verklighet hur liv och död, glädje och sorg, går hand i hand, säger Jamie Bolling.

The sad news of the loss of one of our important fellow activists Kapka Panayotova

The Independent Living Institute is sorry to share the sad news of the loss of one of our important fellow activists in our movement – that of Kapka Panayotova from Sofia, Bulgaria. She is like my sister, having shared projects and the fight for Independent Living since 1998. We shared our commitment, our frustrations and fun moments allowing us to continue the battle for equality together. It is sad and a cruel reality how life and death go hand in hand, happiness and sorrow, says Jamie Bolling. I will miss Kapka and her power, giving us all strength and support in the work that we do.

Internship in Independent Living Center in Stockholm

Komanická, Daniela.  2021.  Internship in Independent Living Center in Stockholm.
English

(Daniela Komanická)
Stockholm 21st September 2021
Daniela Komanická

Joint ILI and UNHCR initiative to empower refugees with disability in Sweden

 

ili logo      UNHCR logo

Remissvar över betänkandet SOU 2021:37 Stärkt rätt till personlig assistans

Independent Living Institute, Sweden.  2021.  Remissvar över betänkandet SOU 2021:37 Stärkt rätt till personlig assistans.
Swedish

1 oktober 2021

Till: Socialdepartementet

Diarienummer: S2021/04587

Vår kontaktperson: Jamie Bolling, jamie.bolling@independentliving.org

Remissinstans: Independent Living Institute

Independent Living Institute (ILI) är en ideell tankesmedja och projektplattform inom medborgarrättsrörelsen Independent Living av personer med funktionsnedsättning. Våra grundläggande principer är självbestämmande, självrespekt och empowerment (bemäktigande och bemyndigande). Vi lämnar här vårt remissvar på betänkandet SOU 2021:37 Stärkt rätt till personlig assistans.

Narrative Report ‘Disability Rights Defenders’/ ‘IL Nordic Network’ September 2020 – June 2021

Independent Living Institute.  2021.  Narrative Report ‘Disability Rights Defenders’/ ‘IL Nordic Network’ September 2020 – June 2021.
English

DRD-Logo

Disability Rights Defenders (DRD) / ‘IL Nordic Network’ is a project of Independent Living Institute (ILI)[1]. This report summarizes the activities, results and outcome of DRD from September 2020 to June 2021.

The Self-determination Circle - a study circle guide for article 19 of the Convention on the Rights of Persons with Disabilities

Erdtman, Emil.  2021.  The Self-determination Circle - a study circle guide for article 19 of the Convention on the Rights of Persons with Disabilities.
English

Material for a study circle concerning human rights in accordance with Article 19 of the Convention on the Rights of Persons with Disabilities By Emil Erdtman, 10/09/2019 Revised by Artikel 19 som verktyg, autumn 2020

The United Nations Convention on the Rights of Persons with Disabilities became legally binding for Sweden in 2009. Article 19 of the Convention concerns the right to a life with self-determination within the community.

Independent Living Institute Annual Report 2020

Independent Living Institute.  2021.  Independent Living Institute Annual Report 2020.
English

 

Independent Living Institute (ILI) works to promote opportunities for individuals with disabilities for more personal and political power, self-determination, full participation and equality through information, education, lobby and project activities. During 2020, ILI carried out several projects to reach its goals and visions which are described in this document. All the projects have their own webpage, Facebook-page and publish newsletters.

The structure of this annual report is as follows:

Independent Living Institute Verksamhetsberättelse 2020

Independent Living Institute.  2021.  Independent Living Institute Verksamhetsberättelse 2020.
Swedish

 

Independent Living Institute (ILI) arbetar för att främja möjligheterna för människor med funktions-nedsättning till mer personlig och politisk makt, självbestämmande, full delaktighet och jämlikhet genom information, utbildning, opinionsbildning och projektverksamhet. Under 2020 verkade ILI via flera projekt för att uppnå sina mål och visioner som beskrivs i detta dokument. Alla större projekt har egna webbsidor, facebooksidor och ger ut nyhetsbrev.

Stiletten Samlingen 1986 – 2010

Dr. Adolf Ratzka.  2021.  Stiletten Samlingen 1986 – 2010.
Swedish

Stiletten 3 1986Stiletten var STIL-kooperativets organ som gavs ut i pappersform fram till 2011. 1986 kom dåvarande verksamhetsledaren Bengt Elmén på idéen att samla våra frekventa utskick till medkämparna och medlemmarna och allmänheten i ett nyhetsbrev med detta vassa namn. Stilettens uppgift var att hålla dem informerade om

Personal Assistance for Disabled People in Germany and Sweden in the Context of the Independent Living Philosophy and the UN Convention on the Rights of People with Disabilities

Griesser, Selina.  2018.  Personal Assistance for Disabled People in Germany and Sweden in the Context of the Independent Living Philosophy and the UN Convention on the Rights of People with Disabilities.
English

Interviews with Personal Assistance Users and Independent Living Activists

Master’s Thesis

Abstract 

Article 19 of the UN Convention on the Rights of Persons with Disability (CRPD) states the right for disabled people to live independently and to be included in the community. The article includes the right to personal assistance as a tool for independent living. General Comment Number 5 on Article 19 of the CRPD criticizes the inadequacy of the implementation of this right and gives clear criteria, which define the term personal as-sistance. These criteria have to be fulfilled in order to call a service personal assistance.

Webinar 'Legal remedies through litigation for the rights of disabled people' November 2020

The ILI projects Disability Rights Defenders and Article 19 as a tool together with the ENIL - the European Network on Independent Living held a webinar on "Legal remedies through strategic litigation for the rights of disabled people"on the 17th of November 2020. The recording of the webinar can be watched on youtube.

DRD Kick-off meeting: the Nordic focus!

Disability Rights Defenders is in its third year now and in this current project period we put our focus on the Nordic countries. Therefore DRD held a kick-off meeting on the 5th of November, 14.00 - 17.00, to discuss the future development of the network and potential co-operations in the Nordic. The recording of the meeting can be found here.

Key speakers were Adolf Ratzka and Vibeke Melstrom who shared their point of view and vision as a basis for a discussion on what is needed and how the network should develop in general. Together with the 40 participants we discussed the Nordic focus, how and with whom to co-operate etc. To get some ideas we heard some voices from different Nordic countries about the situation and what is needed in their countries. The meeting was moderated by Jamie Bolling, director of ILI. The following report summarizes shortly the highlights of the DRD Kick-off meeting. 

Disability Rights Defenders Newsletter November 2020

In this newsletter, we share court cases and resources with you and others with an interest in disability rights. We inform about webinars, news and job opportunities. This time we want to highlight our upcoming DRD Webinar on “Legal remedies through strategic litigation for the rights of disabled people” that we host together with the project “Article 19 As a Tool” and ENIL, the European Network on Independent Living on the 17th of November, 14.00 - 16.00 CET. We invite lawyers, law students, disability and human rights advocates, disabled people's organisations and all persons with an interest in strategic litigation to join the meeting. We look forward to a fruitful discussion!

  1. Court Cases
  2. Resources
  3. Webinars
  4. Surveys
  5. News
  6. Job opportunity
  7. Request for information

Prof. Gerard Quinn’s Appointment as the UN Special Rapporteur on the Rights of Persons with Disabilities

2020-10-07
We at the Independent Living Institute (ILI) are very pleased to share the news about Prof. Gerard Quinn’s Appointment as the UN Special Rapporteur on the Rights of Persons with Disabilities. The press release from the European Network on Independent Living - ENIL is well worth reading.

Professor Gerard Quinn har utnämnts till FN:s särskilda rapportör för rättigheter för personer med funktionsnedsättning

NYHET: Gerard Quinn utses till FN:s särskilda rapportör för rättigheter för personer med funktionsnedsättning

Vi på Independent Living Institute (ILI) är mycket glada över att få dela med oss ​​av nyheten om att professor Gerard Quinn idag har utnämnts till FN:s särskilda rapportör för rättigheter för personer med funktionsnedsättning. 

Personal assistance in Finland, overview and external links

Independent Living Institute.  2014.  Personal assistance in Finland, overview and external links.
English

Finland (population 5.5 million) has personal assistance. In 2020 there were  28 000 personal assistance clients.

Links:

Disability Rights Defenders Newsletter July 2020

In this newsletter we collected important news and resources for you and others with an interest in disability rights. We share court cases and information about funding and training opportunities. Of course, there are also facts and news about disability inclusive responses in the current pandemic.

  1. Court Cases
  2. Participate and get active
  3. Funding and training opportunities
  4. Resources
  5. COVID-19
  6. Rewatch Webinars
  7. Employment and disability
  8. News from around the world

Survey Report on Remedies

Independent Living Institute.  2020.  Survey Report on Remedies.
English

DRD conducted a survey on remedies in cooperation with the project Article 19 as a tool. The survey was carried out with the aim to gain an overview of the topic of remedies, to see where and what law systems in general are lacking or which remedies can be transferred from one country to another for better effectiveness in using the law as a tool for social change and individual justice. The following report sumarizes the results of the survey and provides an overview of some legal remedies to enable interested readers to learn from other countries' experiences as well as to gain knowledge about other types of remedies which might be more effective for ensuring protection and enforcement of rights.

File attachments: 

Webinar 'Legal Clinics - a tool to promote disability rights' May 2020

Independent Living Institute.  2020.  Webinar 'Legal Clinics - a tool to promote disability rights' May 2020.
English

In cooperation with the European Network on Independent Living (ENIL), DRD held a webinar on ‘Legal Clinics - a tool to promote disability rights’ on the 26th of May 2020. This report summarizes the webinar. A recording of the webinar can be watched with subtitles on youtube.

Independent Living Institute Annual Report 2019

Independent Living Institute.  2020.  Independent Living Institute Annual Report 2019.
English

ANNUAL REPORT 2019

Independent Living Institute (ILI) works to promote opportunities for individuals with non-normative abilities for more personal and political power, self-determination, full participation and equality through information, education, lobby and project activities. During 2019, ILI carried out several projects to reach its goals and visions which are described in this document. All the projects have their own webpage, Facebook-page and publish newsletters.

File attachments: 

Independent Living Institute Verksamhetsberättelse 2019

Independent Living Institute.  2020.  Independent Living Institute Verksamhetsberättelse 2019.
Swedish

ÅRSBERÄTTELSE 2019

Independent Living Institute (ILI) arbetar för att främja möjligheterna för människor med normbrytande funktionalitet till mer personlig och politisk makt, självbestämmande, full delaktighet och jämlikhet genom information, utbildning, opinionsbildning och projektverksamhet. Under 2019 verkade ILI via flera projekt för att uppnå sina mål och visioner som beskrivs i detta dokument. Projekten har alla sin webbsida, facebooksida och ger ut nyhetsbrev.

File attachments: 

Webinar - Disabled Refugees and Liberty

3 smiling people demonstrating
Register here
5 May 2020 ⋅ 14:00 – 16:00 CET - European Independent Living Day

Organised by Disabled Refugees Welcome/Independent Living Institute and the European Network on Independent Living.

Guide: How to Webinar

DRD developed a guide on how to plan, organize and hold webinars. Webinars are a great opportunity to bring people together from all over the world to network, collaborate and discuss. Based on our experiences in organizing and holding webinars we created this timeline including all necessary steps to plan and hold a webinar. Different icons mark concrete tips and examples, steps where we recommend to pay attention and tips for more accessibility. We suggest going through your webinar plan with different ‘disability-glasses’ in order to identify and remove potential barriers for accessibility. Please feel free to download, use and share this guide with your colleagues and friends. 

English
File attachments: 

Disability Rights Defenders Newsletter April 2020

In this newsletter, you will find hand-picked resources on disability rights and information about the COVID19 pandemic. We draw your attention to webinars and other opportunities for (virtual) joining and mingling in times of social distancing and lock down at home. 

  1.  Participate!
  2. Resources
  3. Court Cases
  4. Covid-19
  5. Job Opportunities
  6. Funding
  7. News 

Webinar 'Aging with Disabilities in the Community' Febraury 2020

Independent Living Institute.  2020.  Webinar 'Aging with Disabilities in the Community' Febraury 2020.
English

In cooperation with the European Network on Independent Living (ENIL), DRD held a webinar on ‘Aging with Disabilities in the Community’ on the 6th of February 2020. This report summarizes the webinar. A recording of the webinar can be watched on youtube.

Webinar 'Law for Accessibility' November 2019

Independent Living Institute.  2019.  Webinar 'Law for Accessibility' November 2019.
English

In cooperation with the European Network on Independent Living (ENIL), DRD held a webinar focused on ‘Law for Accessibility’ on the 25th of November 2019. This report summarizes briefly the webinar. A recording of the webinar can also be watched on youtube.

Disability Rights Defenders Newsletter October 2019

  • Cases and Court Decisions
  • Resources
  • Participate
  • News and Articles
  • Webinar Announcement

Disability Rights Defenders Newsletter July 2019

  • Cases and Court Decisions
  • Participate!
  • Resources
  • News
  • Announcements

Understanding Independent Living in Sweden: An Overview

Janhager, Alexander Caputo.  2019.  Understanding Independent Living in Sweden: An Overview.
English

In our project Article 19 as a tool, we welcomed Alex Caputo Janhager as an intern. As a part of his internship and introduction to Sweden, he wrote a paper on the Independent living Institute and its activities, the Swedish political system and Sweden’s relation to international human rights norms. The paper is available at the end of this post.

Annual Report 2018/2019

Disability Rights Defenders (DRD) / ‘IL Nordic Network’ is a network started on the 30th of May 2018 by the Independent Living Institute (ILI). This report is on the project funded by the Bente Skansgård IL Fund between June 2018 to May 2019 which was carried out to continue the development of the network.

This annual report gives a short insight to why the network is needed and what goals it has.  It describes the activities carried out through the year which include: moderating the Facebook group, collecting and editing the newsletters and organizing webinars. DRD researched court cases to build a database of cases on disability-based discrimination. Furthermore, contact details of individuals and organizations were collected to widen the network.

English

Independent Living Institute Annual Report 2018

Independent Living Institute.  2019.  Independent Living Institute Annual Report 2018.
English

ANNUAL REPORT 2018

Independent Living Institute (ILI) works to promote opportunities for disabled people for more personal and political power, self-determination, full participation and equality through information, education, lobby and project activities. During 2018 ILI carried out several projects to reach its goals and visions described in this document. All the projects have their own webpage, facebook page and disseminate newsletters.

Independent Living Institute Verksamhetsberättelse 2018

Independent Living Institute.  2019.  Independent Living Institute Verksamhetsberättelse 2018.
Swedish

ÅRSBERÄTTELSE 2018

Independent Living Institute (ILI) arbetar för att främja möjligheterna för människor med funktionsnedsättning till mer personlig och politisk makt, självbestämmande, full delaktighet och jämlikhet genom information, utbildning, opinionsbildning och projektverksamhet. Under 2018 verkade ILI via flera projekt för att uppnå sina mål och visioner som beskrivs i detta dokument. Projekten har alla sin webbsida, facebook page och ger ut nyhetsbrev.

ILI under år 2018 var märkt med en stor förlust. Kalle Könkkölä, styrelseledamot i ILI, dog i september efter ett kort tids sjukdom. Kalle var en stark och viktig ledare av Independent Living med kontakter i de flesta länder runt världen. ILI saknar Kalle, hans ideologi, energi och innovativa idéer.

Webinar 'Disability Rights Defenders Network' May 2019

Independent Living Institute.  2019.  Webinar 'Disability Rights Defenders Network' May 2019.
English

ILI and the European Network on Independent Living (ENIL) held a webinar to introduce the work of the Disability Rights Defenders Network. The webinar took place on 20 May 2019.  This report summarizes the webinar shortly. 

Dags att rösta! EU-val 26 maj 2019. Vilket parti främjar bäst Independent Living

riksdagspartierna samt FI

Söndagen den 26 maj 2019 är det val till Europaparlamentet, EU-val, i Sverige.

EU val 2019, Intervju med Maria Johansson på Liberalernas lista för Europaparlamentsvalet

På söndag är det val! Då ska vi svenskar till vallokaler för att lägga våra röster på den politiker eller parti som vi vill ska representera oss i Brussels. Vi, ILI *, STIL**GIL*** och DHR****, i Independent Living rörelsen och den Europeiska Nätverket för Independent Living (ENIL) –- vill försäkra oss att vi väljer de som kommer att bäst främja vår ideologi och se till att EU skattepengar används på rätt sätt.

Nytt Projekt: "Artikel 19 som verktyg" med projektstart 1 april 2019

Arvsfonden har beviljat knappt 6,8 miljoner kr till stiftelsen Independent Living Institute för att i samarbete med Raoul Wallenberginstitutet genomföra det treåriga projektet Artikel 19 som verktyg.

New Project: "Article 19 as a tool" starting April 1, 2019

The Swedish Inheritance Fund has granted just under SEK 6.8 million to the Independent Living Institute in collaboration with the Raoul Wallenberg Institute to implement the three-year project “Article 19 as a Tool”. “Article 19” refers to the UN Convention on the Rights of Persons with Disabilities: Article 19 – Living independently and being included in the community.

Disability Rights Defenders Newsletter January 2019

  • Cases and Court Decisions
  • Participate!
  • Resources
  • Fundraising
  • Questions
  • News
  • Announcements

Independent Living Institutes (ILI) november-aktiviteter

Välkommen till ILIs aktiviteter under november - ordnade inom projekten Disabled Refugees Welcome och Lagen som verktyg, samt föreningen Med lagen som verktyg.

Access to Justice

Dr. Adolf Ratzka.  2018.  Access to Justice.
English

 

Dr. Adolf Ratzka, chair of the Swedish Association ”Law as a Tool for Social Change”

 I am here in this panel as the chairperson of the Swedish member association Law as a Tool for Social Change (”Med lagen som verktyg”). Our mission is to raise awareness of our group’s human and civil rights, and to increase our capacity in defending these rights against businesses and government agencies - if necessary in court. Thus, in this panel, my perpective is from the grass-roots level.

Disability Rights Defenders Newsletter October 2018

  • Kalle Könkkölä has left us
  • We are looking for partner organizations
  • Special topic: Law Clinics
  • Cases and court decisions
  • Questions from Disability Right Defenders
  • Announcements
  • Job openings

Kalle Könkkölä har lämnat oss

Kalle avled den 11 september 2018 vid 68 års ålder. Han var den mest kända personen med funktionsnedsättning i sitt hemland och har som sådan påverkat nationens inställning till funktionshinderfrågor. Vi som var Kalles vänner vet att han verkligen njöt av livet, älskade musiken, konsten och poesin, bra sällskap, goda samtal, bra skämt och god mat. 

Kalle Könkkölä has left us

Kalle died on September 11, 2018 at the age of 68. 

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