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2003. Independent Living, Politics and Implications.
Published in the English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish, PDF, 1.46 MB). Parts of the book available in English.
Colin Barnes is Professor of Disability Studies and Director of the Centre for Disability Studies in the Department of Sociology and Social Policy at the University of Leeds, England. In this chapter of the book he gives a concise explanation of orthodox thinking on disability and an a different perspective developed by disabled people themselves. He then examines the concept of independent living and its impact on policy development.
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2003. Independent Living and some Italian Experiences.
Raffaello Belli presents an overview of the history of and current situation for people with disabilities in the various geographical areas in Italy with regard to the Independent Living movement and the availability of resources for Independent Living including direct payments. Presented at the European Network on Independent Living (ENIL) conference in Southampton, England, 7-9 March 2003. Internet publication URL: www.independentliving.org/docs6/belli200303.html.
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2002. I think I finally made the grade, I've become world's worst on empathy, by Susnnne Berg, June 2002.
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1992. Introducing access legislation for architects and planners in Mauritius.
Avinash Bhandari, of the Ministry of Works in Mauritius, describes features to be included in the construction of buildings in order to ensure accessibility and safety for as broad a segment of the population as possible. He outlines the current state of accessibility in Mauritius and how it could be improved. Internet publication URL: www.independentliving.org/cib/cibharare2.html.
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2003. Inget om oss utan oss!.
Bollard, Joe. 2003-09. "ENIL:s Strasbourg Freedom Drive 2003". Lyssna-MP3-engelska (30:28 minuter, 28,6 MB), lyssna-RealAudio-engelska, download-RealAudio-engelska (4.6 MB). Internet publication URLs: www.independentliving.org/radio/bollard200309.mp3, www.independentliving.org/radio/bollard200309.ram, www.independentliving.org/radio/bollard200309.rm, www.independentliving.org/radio/bollard200309.pdf, www.independentliving.org/radio/bollard200309sv.html, och www.independentliving.org/radio/bollard200309.html
I september 2003 samlades nittio assistansbrukare från ENIL, det europeiska nätverket för Independent Living, i Strasbourg och marscherade till Europaparlamentets byggnad för att presentera sina viktigaste krav (se http://www.enil.eu.com/sfd/8demands.htm) för att personer som behöver personlig assistans ska kunna delta på lika villkor i samhället. Producent är den synskadade Joe Bollard från Dublin. Original titel "Nothing about us without us!" Översättning av Eva Linderoth.
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1998. It's MY life - An introduction to Independent Living.
Stuart Bracking and Ross Cowan (Gateshead Council on Disability) offer definitions and examples of the concepts independent living, personal assistance, and disability, comparing the medical and social models. Internet publication URL: www.independentliving.org/docs4/bracking1.html.
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1998. "Independent Living and proposed Slovak social reforms.".
Lydia Brichtová speaks about the changes adopted in social/disability legislation since 1989. Internet publication URL: www.independentliving.org/docs1/hr8.html.
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1999. Institutional Madness: Speaking out against institutionalism.
Dr. Steven E. Brown speaks out on institutionalism: "No one I know who has lived in a nursing home wanted to stay there. Institutions by their very nature constrict freedom; suppress life, liberty, and the pursuit of happiness." Internet publication URL: www.independentliving.org/docs4/brown1.html.
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1998. In Freedom, Frank.
Dr. Steven E. Brown Co-Founder of the Institute on Disability Culture, in the United States, describes the life and work of Frank Moore, a Berkeley, California, USA performance artist with cerebral palsy. First published in Mainstream: Magazine of the Able-Disabled, June/July 1998. Internet publication URL: www.independentliving.org/docs3/brown98b.html.
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1995. I Was Born (in a Hospital Bed) -- When I Was Thirty-One Years Old.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, gave a speech, later reworked into an article, in which he describes how he came to accept and even take pride in his status as a person with a disability and a disability activist, as well as other life activities, such as being a parent. First published in "Disability & Society," 1995. Internet publication URL: www.independentliving.org/docs3/brown95c.html.
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1998. Issues Arising from Genetics - Genetics and Disability.
In his presentation Dr. Angus Clarke, of the Institute of Medical Genetics at the University of Wales College of Medicine, discusses issues raised by genetics in disability, outlines the uses of genetic testing and his concerns about how it is developing, as well as the different uses for genetics in general and with regard to reproductive screening, and the problems surrounding this issue. Internet publication URL: www.independentliving.org/docs1/dpibethics2.html.
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1993. Integration of People with Disabilities: Accessibility - Universal Design.
The Council of Europe recommends disability policy guidelines for Member States and is currently preparing revolutionary accessibility guidelines: a specific recommendation to incorporate the principles of Universal Design (design that responds equally to the needs of everyone), including accessibility, into the curricula of all vocations that work on the built environment. Internet publication URL: www.independentliving.org/docs3/coeacc.html
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1999. Integration of People with Disabilities: Discrimination.
The Council of Europe recommends disability policy guidelines for Member States. With the knowledge that governments follow different approaches to achieve equal opportunity policies, the Council of Europe established a Working Group in November 1996 to elaborate a collection and comparative analysis of legislation against discrimination of persons with disabilities in member States. The final report will be published in autumn 1999. Internet publication URL: www.independentliving.org/docs3/coedisc.html
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1996. Integration of People with Disabilities: Employment of persons with disabilities.
The Council of Europe recommends disability policy guidelines for Member States and this report outlines past and current work and relevant publications in the area of employment of persons with disabilities. Their activities in the field of employment aim at completing or enlarging the provisions of Recommendation No. R (92) 6 on a coherent policy for people with disabilities. Internet publication URL: www.independentliving.org/docs3/coeempl.html
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1998. Issues Arising from Quality of Life. Seminar on Bioethics and Disabled people.
In her presentation, Dr. Sarah Cunningham-Burley, from the Department of Public Health, University of Edinburgh, looked at the way in which quality of life issues are affecting medical decisions, including decisions about genetic testing, and related this to a study of how the general public views these issues. Internet publication URL: www.independentliving.org/docs1/dpibethics3.html. In: Disabled Peoples' International (DPI). 1998. "Seminar on Bioethics and Disabled people." Internet publication URL: www.independentliving.org/docs1/dpibethics.html
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2018. International Conference: Using the Law as a Tool for Social Change, the 30th of May 2018, Stockholm. 
Invitation to conference and connected events May 2018 (1.68 MB) Overview equality and non-discrimination and disability in the Nordic countries (926.67 KB) Gerard Quinn Presentation (560.77 KB) Discrimination Legislation and Civil Society (541.27 KB) Conference Report (1.57 MB) Notes from Network Meeting 180531 (612.04 KB) Notes from Match ILI - IIDL 180528and29 (666.62 KB)
Invitation to conference and connected events May 2018 (1.68 MB) Overview equality and non-discrimination and disability in the Nordic countries (926.67 KB) Gerard Quinn Presentation (560.77 KB) Discrimination Legislation and Civil Society (541.27 KB) Conference Report (1.57 MB) Notes from Network Meeting 180531 (612.04 KB) Notes from Match ILI - IIDL 180528and29 (666.62 KB).
2003. The Independent Living Movement in the UK.
John Evans was one of the founders of Project 81 that marked the beginning of the Independent Living Movement in the UK. Since 1996 he has been the chair of the European Network on Independent Living (ENIL). In this document he gives an overview of the origin of the Independent Living Movement in the UK, it's development and evolution, as well as the current situation.
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1980. Independent Living Models.
In: Rehabilitation Literature, Special Article, July-August, 1980, Vol 41, No. 7-8, pp. 169-173. A-289. Internet publication URL: www.independentliving.org/docs6/frieden1980.html
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1998. The Implications of ADA for Disabled People.
There is a strong need for civil rights legislation in all countries. To those who continue studying whether or not there is a need for anti-discrimination legislation, it is time to stop studying and to start legislating! Internet publication URL: www.independentliving.org/docs1/hr4.html
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1984. Independent Living Movement: organizing for an active, disabled old age.
Judith E. Heumann explains what the Independent Living Movement is and what Independent Living Centres and how large numbers of other elderly disabled people could benefit greatly from services delivered by Independent Living centers. The World Institute on Disability's objectives in this regard are to work with appropriate organizations to raise awareness about aging and disability and to recommend policies which support elderly persons with disabilities. Internet publication URL: www.independentliving.org/toolsforpower/tools28.html
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2006. Independent Living Institute Verksamhetsberättelse 2005.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2005.html
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2014. Independent Living Institute Verksamhetsberättelse 2013. Arsberattelse2013.pdf (343.32 KB)
Arsberattelse2013.pdf (343.32 KB).
2018. Independent Living Institute Verksamhetsberättelse 2017. Arsberattelse_ILI_2017.pdf (491.57 KB)
Arsberattelse_ILI_2017.pdf (491.57 KB).
1997. Independent Living Institute Verksamhetsberättelse 1996.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1996.html
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2009. Independent Living Institute Verksamhetsberättelse 2008.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2008.html
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2011. Independent Living Institute Annual Report 2010.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2009.html
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2000. Independent Living Institute (ILI) Annual Report 1999.
Internet publication URL: www.independentliving.org/docs1/ilanrp1999.html
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2016. Independent Living Institute Verksamhetsberättelse 2015. Independent Living Institute Verksamhetsberättelse 2015 (356.89 KB)
Independent Living Institute Verksamhetsberättelse 2015 (356.89 KB).
2002. Independent Living Institute Verksamhetsberättelse 2001.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2001.html
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2020. Independent Living Institute Verksamhetsberättelse 2019. Arsberattelse-ILI-2019.pdf (674.33 KB)
Arsberattelse-ILI-2019.pdf (674.33 KB).
2005. Independent Living Institute (ILI) Annual Report 2004.
Internet publication URL: www.independentliving.org/docs1/ilanrp2004.html
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2013. Independent Living Institute Annual Report 2011. Annual Report 2011.pdf (413.91 KB)
Annual Report 2011.pdf (413.91 KB).
2007. Independent Living Institute Verksamhetsberättelse 2006.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2006.html
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1998. Independent Living Institute Verksamhetsberättelse 1997.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1997.html
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2008. Independent Living Institute (ILI) Annual Report 2007.
Internet publication URL: www.independentliving.org/docs1/ilanrp2007.html
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2001. Independent Living Institute (ILI) Annual Report 2000.
Internet publication URL: www.independentliving.org/docs1/ilanrp2000.html
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2003. Independent Living Institute Verksamhetsberättelse 2002.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2002.html
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2015. Independent Living Institute Verksamhetsberättelse 2014. Verksamhetsberättelse 2014 (361.24 KB)
Verksamhetsberättelse 2014 (361.24 KB).
2006. Independent Living Institute (ILI) Annual Report 2005.
Internet publication URL: www.independentliving.org/docs1/ilanrp2005.html
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1997. Independent Living Institute (ILI) Annual Report 1996.
Internet publication URL: www.independentliving.org/docs1/ilanrp1996.html
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2010. Independent Living Institute Verksamhetsberättelse 2009.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2009.html
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2017. Independent Living Institute Verksamhetsberättelse 2016. Independent Living Institute Verksamhetsberättelse 2015 (375.59 KB)
Independent Living Institute Verksamhetsberättelse 2015 (375.59 KB).
1999. Independent Living Institute Verksamhetsberättelse 1998.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1998.html
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2002. Independent Living Institute (ILI) Annual Report 2001.
Internet publication URL: www.independentliving.org/docs1/ilanrp2001.html
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2013. Independent Living Institute Verksamhetsberättelse 2012. Arsberattelse 2012.pdf (403.62 KB)
Arsberattelse 2012.pdf (403.62 KB).
2004. Independent Living Institute Verksamhetsberättelse 2003.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2003.html
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2015. Independent Living Institute Annual Report 2014. Annual Report 2014 (419.49 KB)
Annual Report 2014 (419.49 KB).
2019. Independent Living Institute Verksamhetsberättelse 2018. Arsberattelse 2018_Independent_Living_Institute.pdf (951.62 KB)
Arsberattelse 2018_Independent_Living_Institute.pdf (951.62 KB).
2007. Independent Living Institute (ILI) Annual Report 2006.
Internet publication URL: www.independentliving.org/docs1/ilanrp2006.html
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1998. Independent Living Institute (ILI) Annual Report 1997.
Internet publication URL: www.independentliving.org/docs1/ilanrp1997.html
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2010. Independent Living Institute Annual Report 2009.
Internet publication URL: www.independentliving.org/docs1/ilanrp2009.html
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2017. Independent Living Institute Annual Report 2016. Annual Report ILI 2016.pdf (537.81 KB)
Annual Report ILI 2016.pdf (537.81 KB).
2000. Independent Living Institute Verksamhetsberättelse 1999.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1999.html
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2003. Independent Living Institute (ILI) Annual Report 2002.
Internet publication URL: www.independentliving.org/docs1/ilanrp2002.html
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2013. Independent Living Institute Annual Report 2012. Annual Report 2012.pdf (491.76 KB)
Annual Report 2012.pdf (491.76 KB).
2005. Independent Living Institute Verksamhetsberättelse 2004.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2004.html
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2014. Independent Living Institute Annual Report 2013. AnnualReport2013.pdf (438.49 KB)
AnnualReport2013.pdf (438.49 KB).
2018. Independent Living Institute Annual Report 2017. English_version_Arsberattelse_ILI_2017.pdf (574.98 KB)
English_version_Arsberattelse_ILI_2017.pdf (574.98 KB).
2009. Independent Living Institute (ILI) Annual Report 2008.
Internet publication URL: www.independentliving.org/docs1/ilanrp2008.html
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2008. Independent Living Institute Verksamhetsberättelse 2007.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2007.html
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1999. Independent Living Institute (ILI) Annual Report 1998.
Internet publication URL: www.independentliving.org/docs1/ilanrp1998.html
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2016. Independent Living Institute Annual Report 2015. Independent Living Institute Annual Report 2015 (357.41 KB)
Independent Living Institute Annual Report 2015 (357.41 KB).
1999. Independent Living World Summit.
The first global meeting on Independent Living was convened in Washington, D.C., September 21-25, 1999. Over 100 leaders evaluated the movement's 30 year old history and set the agenda for the future. This publication provides links to conference reports and reflections from participants in their respective languages. Internet publication URL: www.independentliving.org/docs2/ils0.html
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2001. Independent Living Institute Verksamhetsberättelse 2000.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2000.html
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2020. Independent Living Institute Annual Report 2019. Annual-report-2019-ILI.pdf (735.5 KB)
Annual-report-2019-ILI.pdf (735.5 KB).
2004. Independent Living Institute (ILI) Annual Report 2003.
Internet publication URL: www.independentliving.org/docs1/ilanrp2003.html
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2013. Independent Living Institute Verksamhetsberättelse 2011. Årsberattelse 2011.pdf (404.37 KB) Annual Report 2011.pdf (413.91 KB)
Årsberattelse 2011.pdf (404.37 KB) Annual Report 2011.pdf (413.91 KB).
2000. IIA Warns SOGOC: Disability Web Decision Puts Businesses on Notice.
In the wake of the court decision against the Sydney Olympics organizers, Australian businesses and authorities oversee their websites' access. Internet publication URL: www.independentliving.org/docs5/sydney-olympics-blind-accessibility-decision-press-release.html
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1998. "Invitation to Disability Studies" New book on disability studies in Japanese.
A collection of texts and resources by persons with disabilities for disabled people. (in Japanese.) Internet publication URL: www.independentliving.org/docs5/nagase.html
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2003. Independent Living in the U.S. & Canada.
Kathy Martinez is International Director and Deputy Director of the World Institute on Disability, Oakland, USA. She gives an overview of events in the U.S. and Canada that made the independent living movement possible. She also covers the basic philosophy of the U.S. IL movement, as well as emerging issues and trends that challenge the IL movement. Internet publication URL: www.independentliving.org/docs6/martinez2003.html. In the forthcoming English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish).
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2007. Imran's Djinn, and Theories of Epilepsy.
This article and the review comment were first published in “EPICADEC News” (from the Foundation Epilepsy Care Developing Countries, Leiden), October 2000, pp. 9-10, titled “Imran’s Djinn”. They are here reproduced with permission, after slight revision.
The article concerns an Asian boy living in UK. His family had trouble using the health services, because of different concepts of Imran’s illness. One of Imran’s teachers met the family half way, respecting their beliefs and giving them time to digest a different approach to epilepsy and its treatment. A scientific reviewer comments on the story. Internet publication URL: www.independentliving.org/docs7/miles-christine2000.html
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2007. International Strategies for Disability-related Work in Developing Countries: historical, modern and critical reflections. miles200701.pdf (111.63 KB)
Revised version of a paper first published in the Zeitschrift Behinderung und Dritte Welt, 3/2003, pp. 96-106, and here reproduced with permission.
International strategies concerned with disability in developing and transitional countries (DTC) are scrutinised critically, with an historical focus on beneficial traditions and practices in Asia and Africa, attesting the variety and complexity of social responses to disability. Internet publication URLs: www.independentliving.org/docs7/miles200701.html and www.independentliving.org/docs7/miles200701.pdf (112 KB).
miles200701.pdf (111.63 KB).
1998. Independent Choices: Enhancing Consumer Direction for People with Disabilities.
Allowing consumers to manage and direct the long-term services they need acknowledges that they are the best judges of their own needs and the best decision-makers on how these needs get met - an acknowledgment seldom made. Internet publication URL: www.independentliving.org/docs4/ar3983.html
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1999. IL-rörelsen breder ut sig i Asien.
Yukiko Nakanishi reports on Independent Living seminars, workshops and exchanges that are helping to spread the philosophy across Asia. Internet publication URL: www.independentliving.org/docs1/dpidi299sv.html (In Swedish.)
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1999. Independent Living movement spreads in Asia.
Yukiko Nakanishi reports on Independent Living seminars, workshops and exchanges that are helping to spread the philosophy across Asia. Internet publication URL: www.independentliving.org/docs1/dpidi299.html
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2000. Innovative Disabled Entrepreneur Award Scheme (IDEAS) - Calling All Entrepreneurs With Disabilities.
Promoting entrepreneurship of persons with disabilities through competition and awards: an example from South Africa. Internet publication URL: www.independentliving.org/docs5/Innovative-Disabled-Entrepreneur-Award-Scheme.html
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1997. Integrated National Disability Strategy- White Paper.
White Paper from the Office of the President, South Africa. Disabled people should not be seen as objects of pity but as capable individuals who are contributing immensely to the development of society. Internet publication URL: www.independentliving.org/docs5/SANatlDisStrat.html
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2003. Inependent Living and Yugoslav Experience.
The report presented on behalf Centre for Independent Living of Serbia, at the Europena Network on Independent Living (ENIL) Conference in Southampton, England, 7-9 March 2003. Gordana R. is a founding member of CIL in Serbia, and in the report she is explaining the current situation of disabled people in Serbia in the light of economic, social and political context, and CIL’s efforts to promote the idea of Independent Living Phylosophy in Serbia, particularly the PA Service, through pilot projects and research. Internet publication URL: www.independentliving.org/docs6/rajkov200303.html
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2002. IT and disabled people's employment: opportunities and limits, The example of the Independent Living Institute.
Ratzka, Director, Independent Living Institute, describes some of the features of the Institute's Website and shows some of the possibilities offered by the internet to individuals with disabilities and their organizations. Pointing out the qualifications that working in this environment requires he concludes that IT cannot materially improve disabled people's employment situation as long as they do not have equal access to education, housing and transportation services. Internet publication URL: www.independentliving.org/docs4/ratzka20020201.html
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1998. I kläm mellan laissez faire och den sociala ingenjörskonsten.
Skillnaderna mellan hemtjänst och personlig assistans - en diskussion med en granskning av de olika socialpolitiska instrument som finns på vårt område. Internet publication URL: www.independentliving.org/docs5/i_klam.html (In Swedish.)
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1997. Independent Living and Our Organizations: A Definition.
We are the last minority to fight for our rights and we will not go away. Even with the most sophisticated prevention, early detection and rehabilitation services there will always be people with disabilities and we have to build our societies in such a way that everybody can live in them with dignity and self-respect. Presentation at the conference "Our Common World" organized by Disability Rights Advocates Hungary in Siofok, Hungary, May 9-11, 1997.
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2003. Independent Living in Sweden.
Account of the emergence of the Independent Living movement in Sweden, the social policy climate at the time, its struggles, achievements and challenges from the perspective of the person who introduced the independent living concept to Sweden. Internet publication URL: www.independentliving.org/docs6/ratzka200302b.html. In the forthcoming English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish, PDF, 1.46 MB).
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1995. Institutioner eller Personlig Assistans: Ett exempel från Costa Rica.
Är institutioner verkligen bästa platsen för äldre att tillbringa sina sista år? Är det verkligen den bästa uppväxten för barn? Internet publication URL: www.independentliving.org/docs5/InstitutionsCostaRicaSv.html (In Swedish.)
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1996. Independent Living and Attendant care in Sweden: A Consumer Perspective. ar1986spr.pdf (111.55 KB)
Internet publication URL: http://www.independentliving.org/docs1/ar1986spr.html
ar1986spr.pdf (111.55 KB).
1993. Independent Living och dagens socialpolitik.
I: Institutet för Independent Living. 1993. "Hemtjänst i omdaning - möjligheter och decentraliseringens och privatiseringens tid, Dokumentation av STIL-hearing Stockholm 1993." Internet publication URL: www.independentliving.org/docs3/stil1993.html#1 (In Swedish.)
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1998. Independent Living in der Slowakei.".
1997 wann das Institut für Independent Living Projektverträge in der Slovakischen Republik im Rahmen des EU PHARE Programms für die Einführung eines Models für Persönliche Assistenz mit Bargeldleistungen an die Assistenznehmer sowie eines Models für ein rollstuhlgerechtes, der Öffentlichkeit zugängliches, Taxisystem mit Subventionierung der behinderten Reisenden. Der Artikel diskutiert die besonderen Schwierigkeiten und Möglichkeiten von benutzer-initierten und benutzer-betriebenen Lösungen in post-kommunistischen Gesellschaften. Internet publication URL: www.independentliving.org/docs3/slovakiade.html (In German.)
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2012. The Independent Living movement paved the way: Origins of personal assistance in Sweden. Perspectives on personal assistance.
Pages
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