M
Miles, M.
2006.
Signs of Development in Deaf South & South-West Asia: histories, cultural identities, resistance to cultural imperialism. First published in 2001, this revised article extended and updated 2006-04 offers evidence and hypotheses for a short cultural history of deaf people, culture and sign language in South Asia and South West Asia, using documents from antiquity through 2005. A new appendix shows 110 items on deafness and sign language in the Arab countries of the Eastern Mediterranean and South West Asia. This is a further revised, extended and updated version of a chapter first published in: Alison Callaway (ed) Deafness and Development, University of Bristol, Centre for Deaf Studies, 2001. It is here republished with kind permission. Internet publication URL: www.independentliving.org/docs7/miles200604.html
Miles, M.
2007.
Parents of Deaf Afghan Children -- On The Air. In these short scripts from a radio series, Afghan parents and a counsellor discuss issues of raising their deaf child in a rural area of Afghanistan, and several ways in which they can assist her in learning to communicate. An explanatory note follows, on the origin and purpose of the radio series. [Earlier versions of these scripts were circulated in 1984, 1986 and 1988, from the Mental Health Centre Peshawar, Pakistan.] Internet publication URL: www.independentliving.org/docs7/miles200705.html
Miles, M.
2003.
Segregated We Stand? The Mutilated Greeks' Debate at Persepolis, 330 BC Probably the world's earliest recorded policy debate among a large group ofdisabled people. Also the first time a ruler changed his mind in response towhat they actually asked for. First published in Disability & Society 18 (7):865-79. Reproduced with permission of Carfax Publishing, Taylor & Francis,and with some revision. Internet publication URL: www.independentliving.org/docs7/miles2003.html
Miles, M.
2000.
Blind People Handling Their Own Fate. Accounts of earlier social responses to blind people particularly in Japan, and to some extent in China, indicate a measure of both group and individual autonomy within reserved and valued occupations, ostensibly reflecting a status model more 'normal' than blind people enjoyed in much of European history. (Excerpt From: M. Miles (2000) Disability on a Different Model: Glimpses of an Asian Heritage.) Internet publication URL: www.independentliving.org/docs5/mmiles1.html
Miles, M.
2008.
HITTITE DEAF MEN IN THE 13th CENTURY BC: introductory notes with annotated bibliography. The article introduces bibliographical evidence on deaf men working in palaces and temples of the Hittite Kingdom in Anatolia (now Turkey) during the 13th century BC, with further notes on signing and deaf people's activities in the ancient and medieval Middle East. With some additions and revision September 2009. Internet publication URLs: www.independentliving.org/docs7/miles200809.html and www.independentliving.org/files/miles200809.pdf.
miles200809.pdf (107.78 KB) HITTITE_DEAF_MEN_IN_THE_13th_CENTURY_BC_traduction_francaise_4.pdf (637.26 KB) Miles, M.
2007.
Disability and Deafness, in the context of Religion, Spirituality, Belief and Morality, in Middle Eastern, South Asian and East Asian Histories and Cultures: annotated bibliography. The bibliography introduces and annotates materials pertinent to disability, mental disorders and deafness, in the context of religious belief and practice in the Middle East, South Asia and East Asia. Internet publication URLs: www.independentliving.org/docs7/miles200707.html and www.independentliving.org/docs7/miles200707.pdf
Miles, M.
1988.
The Blind Afghan Child. A young Afghan who was born blind in a remote village tells of his childhood and how he gained the skills to take part in community life and later to earn his living in a town. Internet publication URL: www.independentliving.org/docs3/milesm1988a.html
Miles, M.
2005.
Martin Luther and Childhood Disability in 16th Century Germany: What did he write? What did he say? Revised and extended version of a paper that was first published with copyright by The Haworth Press, Inc., Binghampton, NY 13904-1580, in the Journal of Religion, Disability & Health (2001), vol. 5 (4) pp. 5-36, and is here reproduced with permission.
Martin Luther’s ideas and theological writings on deaf or disabled children and adults, and his personal and practical experiences in this field are shown. Textual evidence gives a different picture from what is commonly believed, and is interesting both for Luther’s own times and the modern world. Internet publication URL: www.independentliving.org/docs7/miles2005b.html
Miles, M.
2001.
Models of Rehabilitation and Evidence of Their Effectiveness: Production & Movements of Disability Knowledge, Skill & Design Within the Cultures and Concepts of Southern Africa. Starting with a disabled person in Mozambique in the 1590s, and a projection of future disability services when knowledge and skills are widely disseminated and rehabilitation professionals are no longer needed, this paper looks more closely at the knowledge and skills available among disabled people and their families and communities in Southern Africa. These factors need to be pooled, refined and tested so that services become rooted in African cultures and respond more appropriately to people's self-perceived needs. Internet publication URLs: www.independentliving.org/docs2/milesm200104.html and www.independentliving.org/docs2/milesm200104.pdf
Miles, M.
2006.
Children with spina bifida and hydrocephalus in Africa: can medical, family and community resources improve the life chances? This much extended and revised article incorporates material from: M. Miles (2002) Children with hydrocephalus and spina bifida in East Africa: can family and community resources improve the odds? Disability & Society 17: 643-658, Carfax Publishing, Taylor & Francis. (The latter material is republished with permission.) The revised article concerns social responses to children with hydrocephalus and spina bifida in African countries, and the historical development of ways in which various resources have been used to improve their life chances, and overcome the disabling effects of these conditions. Internet publication URLs: www.independentliving.org/docs7/miles200609.html and www.independentliving.org/docs7/miles200609.pdf (239 KB).
miles200609.pdf (238.41 KB) Miles, M.
2010.
THE CHUAS OF SHAH DAULAH AT GUJRAT, PAKISTAN: Evidence, Historical Background and Development, with Bibliography 1839-2009. [This article cites and quotes historical materials first collected in: M. Miles (1996) Pakistan's microcephalic chuas of Shah Daulah: cursed, clamped or cherished? History of Psychiatry 7: 571-589, from Taylor & Francis, www.tandf.co.uk/]
Evidence on microcephalic children (chuas) at the shrine, and how some of them developed a capacity for independent living.
Internet publication URL: http://www.independentliving.org/miles201005.html
Miles, M.
2007.
Disability and Deafness in East Asia: Social and Educational Responses, from Antiquity to Recent Times. A bibliography of European-language materials with introduction and some annotation. Revised Version 4.0, August 2007. The bibliography introduces and lists 900 articles, chapters and books connected with social and educational responses to disability, deafness and mental disorders in China, Korea and Japan, from antiquity to 2007, some with annotation. (This work revises and greatly extends an earlier bibliography on the former History of Education website at the Catholic University of Nijmegen). Internet publication URLs: independentliving.org/docs7/miles200708.html and independentliving.org/docs7/miles200708.pdf
Miles, M.
1994.
What is Community Based Rehabilitation (CBR)? This paper tells why CBR is needed, and why there are many different views about what CBR is and how it should be done. It was written for the International League of Societies for Persons with Mental Handicap (now "Inclusion International"). It uses language that is easy to read. Internet publication URL: www.independentliving.org/docs2/milesm1994.html
Miles, M.
2005.
Deaf People Living and Communicating in African Histories, c. 960s - 1960s. New, much extended Version 5.01, incorporating an article first published in Disability & Society vol. 19, pp. 531-45; August 2004, titled then "Locating deaf people, gesture and sign in African histories, 1450s-1950s". The latter material is republished with permission of Carfax Publishing, Taylor & Francis. Visits 100 deaf people in 42 nations, across 1000 years of African history. From servants and schoolchildren to scientists, soldiers and statesmen, using every possible means of communication. Internet publication URL: www.independentliving.org/docs7/miles2005a.html
Miles, M.
2008.
Glimpses of Disability in the Literature and Cultures of East Asia, South Asia, the Middle East & Africa. A modern and historical bibliography, with some annotation. This annotated bibliography lists a selection of 130 novels, short stories, biographies, autobiographies, materials from philosophy, anthropology and folklore, and literary criticism, in which disability, deafness or mental disorders play some significant part, from East Asia, South Asia, the Middle East and Africa, available mostly in English or French. Internet publication URLs: independentliving.org/docs7/miles200807.html and independentliving.org/docs7/miles200807.pdf
Miles, M.
2002.
Community and Individual Responses to Disablement in South Asian Histories: Old Traditions, New Myths? Documented histories of South Asian societies provide evidence that disabled people played various roles in their families and communities, sometimes with a good deal of independence. The commonest responses have been top-down, charitable or restrictive; yet some evidence challenges the stereotypes and suggests that disablement historically evoked a wider range of responses and initiative. Internet publication URL: www.independentliving.org/docs3/miles2002a.html
Ministry of Social Affairs, Sweden.
1993.
Gesetz zum Assistenzbudget. ("Assistansersättning" - "Compensation for Assistance.") Ursprünglicher Gesetzestext von 1993, der einen bestimmten Personenkreis zu Geldleistungen für persönliche Assistenz von der schwedischen Sozialversicherung berechtigt.Das Gesetz wurde seit seinem Inkrafttreten am 1.1. 1994 mehrmals abeändert, was Einschränkungen aber auch vereinzelte Verbesserungen für Assistenznehmer mit sich führte. (Für die Qualität der Ü bersetzung ist das schwedische Sozialministerium und nicht das Independent Living Institute verantwortlich.) Internet publication URL: www.independentliving.org/docs6/schweden199311.html (In German.)
Mohit, Anuradha, Rungta S K.
2000.
Preliminary ideas and procedures for ensuring systematic international collection of information. In: "Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000." Pre-paper 7. Internet publication URL: www.independentliving.org/docs2/mohit00.pdf. In Internet publication URLs: www.independentliving.org/docs2/rioux00.pdf and www.independentliving.org/docs2/rioux00.doc
Montero, Federico.
1998.
Legislation on Disability: The Costa Rican Experience. Despite the country's relative good respect for human rights and our democratic system, disabled people still do not enjoy equal rights and participation in all aspects of society. Among the factors that prevent disabled people from full citizenship are negative attitudes against disability. Internet publication URL: www.independentliving.org/docs1/hr12.html
Montero, Federico.
1998.
Human Rights and Organisations of Disabled Persons in Costa Rica. Despite positive changes in Costa Rica's social policies, disabled people still are denied certain rights to participate in all aspects of society. Internet publication URL: www.independentliving.org/docs1/stlm19980823e.html
N
Nadash, Pamela.
1998.
Independent Choices: Enhancing Consumer Direction for People with Disabilities. Allowing consumers to manage and direct the long-term services they need acknowledges that they are the best judges of their own needs and the best decision-makers on how these needs get met - an acknowledgment seldom made. Internet publication URL: www.independentliving.org/docs4/ar3983.html
Nakanishi, Yukiko.
1998.
Effects of the Economic Downturn in Japan. The Japanese Government has been trying to promote decentralization for the last 6-7 years. Disabled persons are afraid that some services will be cut due to scarce local resources. Internet publication URL: www.independentliving.org/docs5/JapanEcon.html
Nakanishi, Yukiko.
2002.
Development and Self-Help Movement of Women with Disabilities. This article focuses on development assistance models and philosophies for women with disabilities who struggle to achieve independence in Asia, first from the viewpoint of a development program organizer and then from the viewpoint of a witness of empowered self-help movements. Internet publication URL: www.independentliving.org/docs5/nakanishi.html
Nakanishi, Yukiko.
1999.
IL-rörelsen breder ut sig i Asien. Yukiko Nakanishi reports on Independent Living seminars, workshops and exchanges that are helping to spread the philosophy across Asia. Internet publication URL: www.independentliving.org/docs1/dpidi299sv.html (In Swedish.)
Nakanishi, Yukiko.
1999.
Independent Living movement spreads in Asia. Yukiko Nakanishi reports on Independent Living seminars, workshops and exchanges that are helping to spread the philosophy across Asia. Internet publication URL: www.independentliving.org/docs1/dpidi299.html
National Council on Disability (NCD).
1999.
Ny rapport från NCD om förbättringar i tillämpningen av rättigheter för flygresenärer med funktionsnedsättgning. The NCD has released a groundbreaking report documenting ineffective enforcement of the Air Carrier Access Act (ACAA) since the law's passage in 1986. Internet publication URL: www.independentliving.org/docs5/ncd1999sv.html
National Council on Disability (NCD).
1999.
NCD Releases Report on Improving the Enforcement of Civil Rights of Air Travelers with Disabilities. The NCD has released a groundbreaking report documenting ineffective enforcement of the Air Carrier Access Act (ACAA) since the law's passage in 1986. Internet publication URL: www.independentliving.org/docs5/ncd199.html
Newman, Gertrude.
1992.
Promotion of access legislation in Ghana. Internet publication URL: www.independentliving.org/cib/cibharare13.html
Nkeli, Jerry.
1998.
How to overcome double discrimination of disabled people in South Africa. South African Human Rights Commissioner, Jerry Nkeli, outlines the country's history from the point of view of the Disability Rights Movement. Conference on Legislation for Human Rights Arranged by Handikappombudsmannen in cooperation with Independent Living Sverige, Stockholm, Sweden 24 August 1998. Internet publication URL: www.independentliving.org/docs1/hr5.html
Nkeli, Jerry.
1998.
Human Rights Commissioner reflects on achievements obtained by people with disabilities. In South Africa we have disabled people in leadership-roles and have achieved a lot but we have many problems to face in the field of human rights such as issues dealing with racial intolerance and a diversity of various issues that deal with colonialism. Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Stockholm, Sweden 23 August, 1998. Internet publication URL: www.independentliving.org/docs1/stlm19980823f.html
Nolan, Ann, Regan Colm.
2003.
Direct Payments Schemes for People with Disabilities - A Summary Guide, A new and innovative policy approach to providing services to disabled people in Ireland. This information leaflet is based on the research project, "Direct Payments Schemes for People with Disabilities," carried out by the Bray Partnership in 2002 (see above). The aim of the leaflet is to provide information and create awareness about the concept of direct payments, as well as to commence a lobbying process for the introduction of a direct payments pilot programme. As such, the leaflet fulfills part of the recommendations of the research project relating to dissemination of information and increasing awareness. Bray Partnership, Ireland, Website: www.braypartnership.ie. Internet publication URL: www.independentliving.org/docs6/bray200305-sum.pdf (155 KB). See also the main document, Internet publication URL:www.independentliving.org/docs6/bray200305.pdf (357 KB) Ntsika Enterprise Promotion Agency.
2000.
Innovative Disabled Entrepreneur Award Scheme (IDEAS) - Calling All Entrepreneurs With Disabilities. Promoting entrepreneurship of persons with disabilities through competition and awards: an example from South Africa. Internet publication URL: www.independentliving.org/docs5/Innovative-Disabled-Entrepreneur-Award-Scheme.html
Nyhetsbyrån ikapp.
2003.
Populärt byta färdtjänstbuss mot taxi. Internet publication URL: www.independentliving.org/taxi/ikapp20030327.html (In Swedish).
P
Parakattel, Paul.
1991.
Creating accessibility in developing countries. Internet publication URL: www.independentliving.org/cib/cibbudapest23.html
Persson, Ann, Palmgren Nils.
2003.
Fel siffra orsakade rabalder i färdtjänstdebatt. Dagens Nyheter. Internet publikation URL: www.independentliving.org/taxi/dn20031003.html (In Swedish.)
Persson, Ann.
2003.
Protester mot höjd avgift för rullstolstaxi. Dagens Nyhter. Internet publikation URL: www.independentliving.org/taxi/dn20031007.html (In Swedish).
Peterson, Dick.
1998.
Hanging In There. Dick Peterson creates a new hoisting device with an above-the-waist lifting harness, making transfers smoother for people with various physical disabilities. Internet publication URL: www.independentliving.org/docs3/peterson.html
Pfeiffer, David.
1995.
The Disability Movement and its History. Pfeiffer, resident scholar in the Center on Disability Studies at the University of Hawaii at Manoa, past president of the Society for Disability Studies, present editor of Disability Studies Quarterly and an early leader of the U.S. disability rights movement while a full time faculty member at Suffolk University in Boston, explores the history of the American disability rights movements through some of its most classic texts. First published as "Hip Crip 101." Mainstream: Magazine of the Able-Disabled, Dec.-Jan. 1994-95. Internet publication URL: www.independentliving.org/docs3/pfeiffer95.html
Pfeiffer, David.
1994.
Eugenics and Disability Discrimination. David Pfeiffer presents and discusses the many statutory ways in which the civil rights of disabled people were, and still are, violated through state and local government laws in the United States. Internet publication URL: www.independentliving.org/docs1/pfeiffe1.html
Pfeiffer, David.
1988.
Divisions in the disability community. Within the community of disabled persons in this country there is a division between those concerned with civil rights and those concerned with service delivery. Internet publication URL: www.independentliving.org/toolsforpower/tools3b.html
Philippen, D P.
1991.
Access legislation. Internet publication URL: www.independentliving.org/cib/cibbudapest25.html
Physical Disability Council of NSW, Inc..
1999.
Position Papers '99, Attendant Care. Internet publication URL: www.independentliving.org/docs1/pdcnsw99.html
Polinszky, Tibor.
1991.
Regulation of the non-handicapping environment in Hungary. Internet publication URL: www.independentliving.org/cib/cibbudapest26.html
R
Racino, Julie Ann.
1991.
Centrum för Independent Living (CIL), Berkeley, California: Funktionshindrade visar vägen till fullvärdigt medborgarskap. The Berkeley CIL, the "first organization of its type in the world," is a visible symbol of the Independent Living movement, the international civil rights movement of disabled people. Internet publication URL: www.independentliving.org/docs4/racino91sv.html (In Swedish.)
Racino, Julie Ann.
1991.
Center for Independent Living (CIL): Disabled People Take the Lead for Full Community Lives. The Berkeley CIL, the "first organization of its type in the world," is a visible symbol of the Independent Living movement, the international civil rights movement of disabled people. Internet publication URL: www.independentliving.org/docs4/racino91.html
Rajkov, Gordana.
2003.
Inependent Living and Yugoslav Experience. The report presented on behalf Centre for Independent Living of Serbia, at the Europena Network on Independent Living (ENIL) Conference in Southampton, England, 7-9 March 2003. Gordana R. is a founding member of CIL in Serbia, and in the report she is explaining the current situation of disabled people in Serbia in the light of economic, social and political context, and CIL’s efforts to promote the idea of Independent Living Phylosophy in Serbia, particularly the PA Service, through pilot projects and research. Internet publication URL: www.independentliving.org/docs6/rajkov200303.html
Dr. Adolf Ratzka.
2005.
Independent Living émancipe les personnes en situation de handicap. Development Outreach. World Bank. Juillet 2005. Internet publication URL: www.independentliving.org/docs7/ratzka200507f.html
Dr. Adolf Ratzka.
1996.
Schweden: Betreuung oder Selbstbestimmung - zur Lage von Menschen mit Behinderungen. Schweden mit seinen 8,5 Millionen Einwohnern erfreut sich des Rufs eines fortschrittlichen Sozialstaats, in dem Menschen mit Behinderungen unter besseren Lebensbedingungen als in den meisten anderen Ländern leben. Internet publication URL: www.independentliving.org/docs4/ratzka96a.html (in German)
Dr. Adolf Ratzka.
1998.
I kläm mellan laissez faire och den sociala ingenjörskonsten. Skillnaderna mellan hemtjänst och personlig assistans - en diskussion med en granskning av de olika socialpolitiska instrument som finns på vårt område. Internet publication URL: www.independentliving.org/docs5/i_klam.html (In Swedish.)
Dr. Adolf Ratzka.
2003.
Independent Living in Sweden. Account of the emergence of the Independent Living movement in Sweden, the social policy climate at the time, its struggles, achievements and challenges from the perspective of the person who introduced the independent living concept to Sweden. Internet publication URL: www.independentliving.org/docs6/ratzka200302b.html. In the forthcoming English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish, PDF, 1.46 MB). Dr. Adolf Ratzka.
2015.
Accessible cities consist of barrier-free housing. In this presentation Dr. Adolf Ratzka emphasizes that city and housing planners still do not pay sufficient attention to barrier-free housing for people with disabilities and proposes the goal of general accessibility in the housing stock, in both new construction an renovation. Drawing on Swedish experience he claims that general residential accessibility would also imply savings to society in the form of lower costs due to fewer residential accidents particularly in the older population.
Dr. Adolf Ratzka.
2012.
Personal assistance policy features for Independent Living:. What are the important features of a national policy on personal assistance that is to promote "living independently and being included in the community" "with choices equal to others" and to enable persons with disabilities to fulfill their duties and to enjoy their rights as citizens?
The presentation identifies the elements of the Swedish Personal Assistance Act of 1994 that have contributed most to the outcome of this widely acclaimed legislation.
2012_01_Wien_PPP_Word.doc (47 KB) Dr. Adolf Ratzka.
1996.
STIL, the Stockholm Cooperative for Independent Living. Adolf Ratzka who imported the Independent Living Movement to Sweden provides his view of the origins of STIL, the Stockholm Cooperative for Independent Living, social policy in Sweden in the 1980's and how a change was needed, from the professionally run service culture to self-determination of equal citizens. Internet publication URL: www.independentliving.org/docs6/ratzka199605.html
Dr. Adolf Ratzka.
1990.
STIL mot hemtjänststalinisterna. Hur skulle det se ut om kommunen hade monopol på finansieringen, produktionen och fördelningen av bröd? Artikeln illustrerar det tredubbla kommunala monopolet på hemtjänstområde. Artikeln publicerades i DN. Internet publication URL: www.independentliving.org/docs3/ar199008.html (In Swedish.)
Dr. Adolf Ratzka.
1998.
Försök med kontantstöd för Personlig Assistans i Slovakien. I 1997 vann Institutet för Independent Living ett kontrakt för projekt i Slovakiska Republiken inom EU:s PHARE- program för personlig assistans i brukarregi med kontantstöd och för uppbyggnaden av ett integrerat allmänt taxisystem, som tar alla kunder oavsett om de har rörelsehinder och använder rullstol eller ej, med subventioner för kunder med funktionshinder. Artikeln diskuterar de möjligheter och hinder som brukarinitierade och brukarstyrda lösningar möter i post-kommunistiska samhällen. Internet publication URL: www.independentliving.org/docs3/slovakiasv.html (In Swedish.)
Dr. Adolf Ratzka.
1994.
A brief survey of studies on costs and benefits of non-handicapping environments. Presentation at the International Congress on Accessibility in Rio de Janeiro, Brazil, June 1994. Internet publication URL: www.independentliving.org/cib/cibrio94access.html
Dr. Adolf Ratzka.
2003.
Selbstbestimmte Mobilität für Menschen mit Behinderung in Schweden?" Rollstuhlgerechter öffentlicher Fern- und Nahverkehr und Taxidienste statt Sonderlösungen und Sonderfahrdienste sind für die Selbstbestimmung vieler Körperbehinderten im Alltag unumgänglich. Leider sind diese Voraussetzungen in Schweden nicht erfüllt. Ein kürzlich erfolgreich durchgeführtes Versuchsprojekt mit barrierenfreien Taxidroschken im regulären Taxiverkehr konnte wegen des Widerstands der Sonderfahrdienste und der politischen Majorität im Landkreis nicht weitergeführt werden. Internet publication URL: www.independentliving.org/docs6/ratzka200311.html. (In German.)
Dr. Adolf Ratzka.
2015.
Self-determination through Direct Payments and Personal Assistance cooperatives. In his keynote address Adolf Ratzka delineates the origins of STIL, the Stockholm Cooperative for Independent Living owned and mainly run by Personal Assistance user themselves providing services to its members. Personal Assistance is here depicted as an example of demand-driven as opposed to supply-driven services which, according to the text's analysis, would explain the differences between these services in terms of quality and cost efficiency.
Dr. Adolf Ratzka.
1995.
Supporting families in keeping disabled family members at home: Swedish policy instruments. In Sweden, a disabled family member is likely to represent a burden on the family. Yet the argument can be made that policy instruments, such as those available in Sweden, lessen the impact of a disability on the family and the community. Internet publication URL: www.independentliving.org/docs5/InstitutionsCostaRica.html