Library
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1999. Science and Society - Critical Comments on the 1999 World Conference on Science, Budapest, Hungary.
Gregor Wolbring, biochemist and scientific advisor to the Thalidomide Society of Canada, reports on the 1999 World Conference on Science, Budapest, Hungary from the perspective of a person with a disability. Internet publication URL: www.independentliving.org/docs1/wolbrin1.html
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1999. A serial killer of disabled people, out on the streets - Will Jack Kevorkian be convicted?
The courts of Michigan are preparing to send a worldwide message about the euthanasia of people with disabilities. Will Jack Kevorkian be convicted and imprisoned? Or will he be acquitted once more, never to be charged again? Internet publication URL: www.independentliving.org/docs5/Kevorkian.html.
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1999. Singer/Crips/Animals.
Patrick William Connally, visionary, (Disability Rights, Enforcement, Education, Services) DREES President and founder, discusses the controversy over the appointment of Peter Singer, author of "Practical Ethics," to a teaching position at Princeton University. According to Connally, Singer seems to support euthanasia for new born babies with disabilities. Connally discusses the morals and values concerning this issue, providing a historical perspective as well as a strong negative to Singer’s ideas. Internet publication URL: www.independentliving.org/column/conn1_00.html.
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1999. Speach on the value of human life to The Trustees of the Center for Human Values, Princeton University April 14, 1999.
Disability activist, Justin Dart, condemns the appointment and ethics of Princeton's Bioethics professor, Dr. Peter Singer. Internet publication URL: www.independentliving.org/docs4/dart99a.html
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1999. A Study of the Political Behavior of People with Disabilities - What Determines Voter Turnout, Executive Summary: Empowerment through Civic Participation.
Are people with disabilities as likely as those without disabilities to vote, and to engage in other forms of political and civic participation? If not, why not? Internet publication URL: www.independentliving.org/docs5/disvoters.html
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1999. Taxi för alla: Förslag till pilotprojekt.
För allmänheten utgör taxin ett viktigt komplement till de kollektiva färdmedlen buss, pendeltåg, spårvagn eller tunnelbana. För människor med funktionshinder gäller det i ännu högre grad. Vi vill visa att enkla och eleganta lösningar kan förbättra även vår rörlighet i stadstrafiken. Internet publication URL: www.independentliving.org/docs5/taxiSv.html (In Swedish.)
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1999. Toward an Inclusive Definition of Disability.
In reaction to the U.S. Supreme Court's ruling on their interpretation of the definition of "disability," the National Council on Disability (NCD) is submitting this inclusive definition of disability by Andy Imparato. Internet publication URL: www.independentliving.org/docs5/imparato.html
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1999. Training Manual for Media and Disability Rights.
Rachel Hurst is the Director of Disability Awareness in Action, London, England. The document is a training manual for organisations of disabled people, as guidance for seminars with the media on disability as a rights issue. It is based on a three-day seminar where media delegates from all over English speaking Africa met in Harare, Zimbabwe in 1998 to share experiences and to work out a way for using the media to get the human rights message across. As well as a suggested programme for a seminar on media and disability rights, organisational guidance and tips for trainers and workshop leaders are provided which should prove useful for any training seminar or workshop that organisations may wish to run on any other subject. ISBN: 1 89037 31 0. Internet publication URL: www.independentliving.org/docs1/hursttm99.html
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1999. United Nations Secretary General Kofi Annan's Message on the International Day of Disabled Persons.
In his message on the International Day of Disabled Persons, 3 December 1999, Kofi Annan, the Secretary General of the United Nations, spoke about the theme of the day, accessibility, with a reminder that for many people with disabilities, the lack of access to essential services remains a source of discrimination and lost opportunities. Accessibility in the broadest sense of the term is a prerequisite for disabled people to enjoy equal opportunities. Internet publication URL: www.independentliving.org/docs6/annan1999.html.
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1999. Vi måste lära oss att hävda oss. Disability Awareness in Action Newsletter, nummer 74, juli 1999.
According to Abidi, Executive Director, National Centre for Promotion of Employment of Disabled, India, with 60-70 million disabled people in India, disability is clearly a social issue, a socio-economic issue, a development issue. Why then is disability not a national issue? Internet publication URL: http://www.independentliving.org/docs1/abidisv.html.
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1999. We (Disabled People) Must Learn to Exert Ourselves. Disability Awareness in Action Newsletter no. 74, July 1999.
According to Abidi, Executive Director, National Centre for Promotion of Employment of Disabled, India, with 60-70 million disabled people in India, disability is clearly a social issue, a socio-economic issue, a development issue. Why then is disability not a national issue? Internet publication URL: http://www.independentliving.org/docs1/abidi.html.
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2000. 2000 ESCAP HRD Award, Theme: HRD for the Empowerment of People with Disabilities.
The United Nations Economic and Social Commission for Asia and the Pacific (ESCAP) established the ESCAP HRD Award in 1990 which is presented annually in recognition of exemplary work in the field of human resources development (HRD). The theme of the award for the year 2000 was “Empowerment of People with Disabilities.” This brochure presents a history of the award as well as eligibility requirements and application procedures. Internet publication URL: www.independentliving.org/docs2/escap2000hrd.html
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2000. Accessibility for All: The Australian Experience.
Maurice Corcoran’s article is an example and encouragement for the movement for Buses For All in other countries. In it, he traces the history leading up to the milestone decision of October 12, 2000 by the Australian Federal Cabinet, requiring all intra-city buses to be of low-floor type using boarding aids for wheelchair users in the form of ramps. Internet publication URL: www.independentliving.org/docs1/corcoran2000.html
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2000. Accessibility of electronic commerce and new service and information technologies for older Australians and people with a disability - Report of the Human Rights and Equal Opportunity Commission on a reference from the Attorney-General.
Submissions and research have confirmed and added to the Commission’s initial understanding that digital technologies offer great potential in providing more effective and economical access to government and business information and services, and improved prospects for equal opportunity in many areas of life including education, for all Australians including older people and people with a disability. Work for this report has confirmed to the Commission that physical barriers, affordability and equipment access barriers, and attitudinal and awareness barriers are preventing some Australians with a disability and some older Australians from having equally effective access to e-commerce and other services using new technologies. Internet publication URL: www.independentliving.org/docs4/hreo2000.html
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2000. Adaptive Technology for the Internet: Making Electronic Resources Accessible to All - The Online Version.
American Library Association. ISBN 0-8389-0752-0. Internet publication URL: www.independentliving.org/docs6/mates2000.html
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2000. Beijing Declaration on Disabled Persons in the New Millennium.
This editorial by Richard Light, Research & Publications Director of Disability Awareness in Action first presents the content of a resolution taken at the World NGO Summit on Disability in Beijing regarding an international convention on the rights of all disabled people. He then goes on to decry the number of expert conferences, special programmes and political initiatives that have failed to yield real progress with regard to action on discrimination against people with disabilities. Internet publication URL: www.independentliving.org/docs6/light200003.html
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2000. Blind People Handling Their Own Fate.
Accounts of earlier social responses to blind people particularly in Japan, and to some extent in China, indicate a measure of both group and individual autonomy within reserved and valued occupations, ostensibly reflecting a status model more 'normal' than blind people enjoyed in much of European history. (Excerpt From: M. Miles (2000) Disability on a Different Model: Glimpses of an Asian Heritage.) Internet publication URL: www.independentliving.org/docs5/mmiles1.html
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2000. Buses for All (Europe) - A Brief Presentation.
A briefing outlining the Australian government’s plans to improve transportation accessibility for disabled people. Other briefings from the year 2000 detail the progress and problems of the EU Bus and Coach Directive and a campaign by the action group, Buses for All (Europe), to make buses accessible for all people with disabilities. Internet publication URL: www.independentliving.org/docs1/buses3.htm
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2000. Consumer-Directed Home and Community Services Programs in Five Countries: Policy Issues for Older People and Government.
This Urban Institute study reviews community services programs in five countries--Austria, France, Germany, the Netherlands, and the US - and shows that direct payments for personal assistance and long term care hold great promise for consumer-directed high quality services. Internet publication URL: www.independentliving.org/docs4/urbani2000.html
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2000. The Darker Ages: What's Wrong With Institutions?
Audrey King, M.A., an internationally known writer, speaker, and advocate on disability issues, shares observations about life in institutions gathered from 30 years of working as a rehabilitation professional. She describes how institutional structures pose a consistent dynamic tension between individual autonomy and system procedures, which are often resistant to change and necessarily geared to cost and procedure efficiencies.
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2000. Disability rights and human rights: plunging into the 'mainstream'?
Andrew Byrnes, of the Faculty of Law at The University of Hong Kong, writes that disability issues are for the most part treated as social issues instead of mainstream human rights issues, similar to women’s rights issues fifteen years ago. He outlines ways in which disability rights issues can be moved onto a more prominent place on the international human rights agenda. He also outlines gains which have already been made as a result of these efforts. In: "Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000." (PDF, 610 KB, Word 97, 564 KB.) Pre-paper 5. Internet publication URL: www.independentliving.org/docs2/byrnes00.pdf. In Internet publication URL: www.independentliving.org/docs2/rioux00.pdf and www.independentliving.org/docs2/rioux00.doc
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2000. Disability Tribune, Special Issue-Disability and bioethics.
The manual contains a definition of biotechnology, its proposed uses, its regulation, a list of related sites, and a discussion of health inequality as a result of economic inequality in relation to the issue of biotechnology. Internet publication URL: www.independentliving.org/docs2/daa200002.html
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2000. En nyttig oenighet.
Internet publication URL: www.independentliving.org/column/stone1_00sv.html (In Swedish.)
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2000. Expansion of Telephone Service For Many People With Speech Disabilities.
Internet publication URL: www.independentliving.org/docs4/segalman.html
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2000. Federal Report Recommends Making Technology Access Easier For People With Disabilities (Australia).
This article recommends strategies for helping the elderly and people with disabilities access new information technologies. Internet publication URL: www.independentliving.org/docs1/baker200006.html
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2000. Gaining Entry.
Betsy Cummings examines the problems facing people with disabilities in hotels, conference centers, and public buildings worldwide, by analyzing the policies of a sample of countries on different continents. Internet publication URL: www.independentliving.org/docs4/cummings2000.html
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2000. A Healthy Dissension.
Internet publication URL: www.independentliving.org/column/stone1_00.html
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2000. IIA Warns SOGOC: Disability Web Decision Puts Businesses on Notice.
In the wake of the court decision against the Sydney Olympics organizers, Australian businesses and authorities oversee their websites' access. Internet publication URL: www.independentliving.org/docs5/sydney-olympics-blind-accessibility-decision-press-release.html
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2000. Independent Living Institute (ILI) Annual Report 1999.
Internet publication URL: www.independentliving.org/docs1/ilanrp1999.html
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2000. Independent Living Institute Verksamhetsberättelse 1999.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1999.html
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2000. Innovative Disabled Entrepreneur Award Scheme (IDEAS) - Calling All Entrepreneurs With Disabilities.
Promoting entrepreneurship of persons with disabilities through competition and awards: an example from South Africa. Internet publication URL: www.independentliving.org/docs5/Innovative-Disabled-Entrepreneur-Award-Scheme.html
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2000. International human rights protections for institutionalised persons with disabilities: an agenda for international action.
In: "Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000." Pre-paper 4. Internet publication URLs: www.independentliving.org/docs2/rioux00.html, www.independentliving.org/docs2/rioux00.doc, www.independentliving.org/docs2/rioux00.pdf
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2000. Memo to the World.
Are public funds to be used for nursing homes or for paying personal assistants in one's own home? Missouri opened the way to freedom. Internet publication URL: www.independentliving.org/docs4/hawkins2000.html
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2000. New Japanese Legislation on Accessible Public Transportation.
This brief comment by Yoshi Kawauchi, architect, access specialist and advocate, Tokyo, Japan, is critical of the new Japanese legislation on access in public transportation. While appreciating the law as a first step towards improvement, he is critical because the law is not a civil rights law and has no procedure for consumers to file complaints, does not include taxicabs because of political pressure, and does not cover people with developmental disabilities or psychiatric disabilities. Internet publication URL: www.independentliving.org/docs1/japan001027.html
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2000. Preliminary ideas and procedures for ensuring systematic international collection of information.
In: "Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000." Pre-paper 7. Internet publication URL: www.independentliving.org/docs2/mohit00.pdf. In Internet publication URLs: www.independentliving.org/docs2/rioux00.pdf and www.independentliving.org/docs2/rioux00.doc
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2000. Rätten att leva och att vara annorlunda.
Internet publication URL: www.independentliving.org/docs1/dpi022000sv.html (In Swedish.)
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2000. Recording human rights abuses against persons with disabilities: practical issues revealed by the Disability Awareness in Action Human Rights Project.
In: "Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000." Pre-paper 2. Internet publication URL: www.independentliving.org/docs2/docs2/light00.pdf. In Internet publication URLs: www.independentliving.org/docs2/rioux00.pdf and www.independentliving.org/docs2/rioux00.doc
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2000. The Right to Live and be Different.
In February 2000, 130 disabled people in twenty-seven countries discussed bioethics and human rights, and it is with pride that we make the following declaration. Internet publication URL: www.independentliving.org/docs1/dpi022000.html
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2000. The Rough Guide to Managing Personal Assistants.
"Having PAs enabled me to find out who I am and now enables me to be who I am." If you are a disabled person and about to start receiving a Direct Payment to employ your own personal assistants (PAs), this book aims to give you a flavour of what it is like; the joys and the challenges. The book covers recruitment, managing, using PAs in social situations and at work, and dealing with problems. Put together by Sian Vasey with cartoons by David Shenton.
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2000. Signing in the Seraglio: mutes, dwarfs and jestures at the Ottoman Court 1500 - 1700.
Deaf people, known as 'mutes', worked in the Turkish Ottoman court from the fifteenth to the twentieth century in various roles along with dwarfs and other entertainers. Their signing system became popular, was used regularly by hearing people including successive Sultans, and was reportedly capable of expressing ideas of whatever complexity. Internet publication URL: www.independentliving.org/docs5/mmiles2.html
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2000. Sydney Olympics 2000 Website Accessibility Decision: Bruce Lindsay Maguire vs Sydney Organising Committee for the Olympic Games: Reasons for Decision of the Hon. William Carter QC, Inquiry Commissioner..
Sydney Olympics organizers were taken to court for having an inaccessible Website, which is in violation of the Australian Disability Discrimination Act of 1992, and lost the case. Internet publication URL: www.independentliving.org/docs5/sydney-olympics-blind-accessibility-decision.html
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2000. Universal Design: Maine's Opportunity To Lead the Way To Information Access For Everyone.
In September 1997, leaders from Maine State government, business, education, and the non-profit community gathered for the Conference, Maximizing Economic Potential. The Conference looked at how government and education can lead the way in ensuring that information technologies accommodate differing needs and provide access for everyone. This report is the outcome of that effort. Internet publication URL: www.independentliving.org/docs5/maine-web-accessibility.html
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2000. Why People with Disabilities in Tanzania Deserve Economic Empowerment.
Internet publication URL: www.independentliving.org/docs1/tomric200008.html
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2000. Zona and Ed Roberts: Twentieth Century Pioneers. Disability Studies Quarterly. 
brown00a.pdf (131.54 KB)
Brown, Steven E. 2000. "Zona and Ed Roberts: Twentieth Century Pioneers." In: Disability Studies Quarterly 20 (1)(Winter 2000), 26-42.
Brown, Co-Founder of the Institute on Disability Culture, in the United States, has written a biographical description of two disability rights pioneers. Many people know the history and legacy of Ed Roberts, but far fewer realize the impact of his mother, Zona, and her own contributions apart from Ed to the disability rights movement. This is their story. Internet publication URLs: http://www.independentliving.org/docs3/brown00a.html and http://www.independentliving.org/docs3/brown00a.pdf (132 KB.)
brown00a.pdf (131.54 KB).
2001. Culture and Identity.
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2001. Discapacidad: Exclusión / Inclusión.
The author, instructor at the Department of Anthropology at Universidad de Chile, proposes a different perspective for analyzing disability issues using the concept of exclusion / inclusion for a multi-dimensional and dynamic understanding of social exclusion. First publisher: Revista Mad. No.5. Septiembre 2001. Ediciones Mad, Universidad de Chile. Inernet publication URL: sociales.uchile.cl/publicaciones/mad/05/paper07.htm. Inernet publication URL: www.independentliving.org/docs7/saavedra200109.html
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2001. Executive Order: Community-Based Alternatives for Individuals with Disabilities.
On June 18, 2001 US President Bush issued an Executive Order to swiftly implement the Supreme Court decision and help individuals with disabilities move into the community. Internet publication URL: www.independentliving.org/docs3/gb010618.html
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2001. A Generic Orientation to Doing Attendant Work. walker2001.pdf (40.92 KB)
This manual provides a general introduction to the work of personal assistants, and is especially helpful to new assistants. It covers a wide range of topics, and explains the purpose of personal assistance and the nature of the work, to the extent that generalisations are possible. Revised online publication. First published by Center for Independent Living Berkeley, California 1986. Internet publication URL: www.independentliving.org/docs2/walker2001.pdf
walker2001.pdf (40.92 KB).
2001. Independent Living Institute (ILI) Annual Report 2000.
Internet publication URL: www.independentliving.org/docs1/ilanrp2000.html
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2001. Independent Living Institute Verksamhetsberättelse 2000.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2000.html
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2001. Justin Dart, Jr. - A Peek of Insight.
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2001. Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000. 
rioux00.doc (572 KB) rioux00.pdf (341.38 KB)
Internet publication URLs: www.independentliving.org/docs2/rioux00.html, www.independentliving.org/docs2/rioux00.doc, www.independentliving.org/docs2/rioux00.pdf
rioux00.doc (572 KB) rioux00.pdf (341.38 KB).
2001. Models of Rehabilitation and Evidence of Their Effectiveness: Production & Movements of Disability Knowledge, Skill & Design Within the Cultures and Concepts of Southern Africa.
Starting with a disabled person in Mozambique in the 1590s, and a projection of future disability services when knowledge and skills are widely disseminated and rehabilitation professionals are no longer needed, this paper looks more closely at the knowledge and skills available among disabled people and their families and communities in Southern Africa. These factors need to be pooled, refined and tested so that services become rooted in African cultures and respond more appropriately to people's self-perceived needs. Internet publication URLs: www.independentliving.org/docs2/milesm200104.html and www.independentliving.org/docs2/milesm200104.pdf
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2001. A Personal Journey Into Disability Politics.
Finkelstein reviews the development of radical British disability organizations and his own personal history and thought in their evolution. Finkelstein, a psychologist by training, was tutor in Disability Studies at the Open University and is now Visiting Senior Research Fellow in the Centre for Disability Studies, Leeds University. Finkelstein has a disability. Internet publication URLs: www.independentliving.org/docs3/finkelstein01a.html and www.independentliving.org/docs3/finkelstein01a.pdf
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2001. Pioneering Personal Assistance in Slovenia: An Evaluation of the YHD Pilot Project on Personal Assistance in Slovenia. duve2001.pdf (150 KB)
YHD-Association for Theory and Culture of Disability, an organization run by and for people with disabilities and subscribing to the Independent Living philosophy, started a pilot project in Ljubljana with personal assistance for deinstitutionalization and equal opportunities of assistance users. Internet publication URLs: http://www.independentliving.org/docs3/duve2001.html and http://www.independentliving.org/files/duve2001.pdf.
duve2001.pdf (150 KB).
2001. Press Release: Disabled People to Finally Catch the Bus - Victory for Disabled People on Bus and Coach Directive.
All newly purchased buses throughout the European Union must be fully accessible to people with disabilities according to the Directive. This was the result of nine years of campaigning by disabled people, together with the Disability Intergroup of the European Parliament. Internet publication URL: www.independentliving.org/docs1/pr20010216.html
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2001. Pressmeddelande 2001-09-17, Taxi för alla - rärlighet åt personer med omfattande funktionshinder.
Internet publication URL: www.independentliving.org/taxi/taxi010917.html (in Swedish).
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2001. Rethinking Care From the Perspective of Disabled People. barnes200106.pdf (111.34 KB)
Conference Report and Recommendations (Draft). World Health Organization Disability and Rehabilitation Team. In this report to the United Nations World Health Organization, Professor Barnes, from the Centre for Disability Studies, University of Leeds, England, recommends that member nations adopt a holistic approach that includes the introduction of policies to eliminate poverty and secure equal access to all community based services and facilities. These include medical services, education, employment, housing, transport, public amenities etc. The responsibility of national governments for introducing and financing these developments is also addressed. Internet publication URL: www.independentliving.org/docs6/barnes200106.pdf (PDF, 112 KB).
barnes200106.pdf (111.34 KB).
2001. Taxi för alla.
i SamtransNytt juni 2001. Internet publikation URL: www.independentliving.org/docs1/samtr5.html (In Swedish).
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2001. Ugly.
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2001. Valuing Diversity: The Disability Agenda - We've Only Just Begun.
Dr. Jane Campbell, Chair of the Social Care Institute for Excellence in England, presented this paper at the Bristol University Centenary Celebration on 9th November 2001, as part of their series of lectures on Valuing Diversity. She concludes, amongst other things that, "Well firstly we have to acknowledge that independent living is a human rights issue. Secondly, society has to learn not to retreat from the nettle even though it causes pain. The voice of the so-called radicals that dare to tell it how it is must not be dismissed." Internet publication URL: www.independentliving.org/docs6/campbell20011109.html
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2001. Wheelchair Ease: The Internet, England, & My Summer Vacation.
Internet publication URL: www.independentliving.org/docs3/tusler01.html
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2002. Activist Handbook. crs-activist-handbook.pdf (525.99 KB)
Internet publication URLs: www.independentliving.org/docs7/crs-activist-handbook.html and www.independentliving.org/docs7/crs-activist-handbook.pdf (526 KB).
crs-activist-handbook.pdf (525.99 KB).
2002. Community and Individual Responses to Disablement in South Asian Histories: Old Traditions, New Myths?
Documented histories of South Asian societies provide evidence that disabled people played various roles in their families and communities, sometimes with a good deal of independence. The commonest responses have been top-down, charitable or restrictive; yet some evidence challenges the stereotypes and suggests that disablement historically evoked a wider range of responses and initiative. Internet publication URL: www.independentliving.org/docs3/miles2002a.html
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2002. Development and Self-Help Movement of Women with Disabilities.
This article focuses on development assistance models and philosophies for women with disabilities who struggle to achieve independence in Asia, first from the viewpoint of a development program organizer and then from the viewpoint of a witness of empowered self-help movements. Internet publication URL: www.independentliving.org/docs5/nakanishi.html
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2002. Essay Contest: Disabled High School Students Can Win an All Expences Paid Trip to Japan.
Swedish disabled high school student Yasmin Jungestedt won an essay competition and a trip to Japan to take part in the10th annual camp for high school students organized by the Japanese Independent Living Movement. Links to her prize-winning essay and her account of the time she spent in Japan meeting other high school students with disabilities from Japan and around the world as well as information about the essay contest and the 10th International Convention for Disabled High School Students are presented. Internet Publication URL: http://www.independentliving.org/docs5/japan200208.html
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2002. Facilitated Sexual Expression in the Independent Living Movement in Ireland.
In her paper submitted for the Degree of Masters of Arts in Disability Studies at The University of Leeds, Bonnie Selina explores facilitated sexual expression in the Irish Independent Living Movement including how widespread facilitated sexual expression is in the Irish Independent Living movement and the legal and ethical implications of this form of assistance, particularly in the Irish social context. Internet publication URL: www.independentliving.org/docs6/bonnie200208.html
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2002. I think I finally made the grade, I've become world's worst on empathy, by Susnnne Berg, June 2002.
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2002. Independent Living Institute (ILI) Annual Report 2001.
Internet publication URL: www.independentliving.org/docs1/ilanrp2001.html
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2002. Independent Living Institute Verksamhetsberättelse 2001.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2001.html
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2002. IT and disabled people's employment: opportunities and limits, The example of the Independent Living Institute.
Ratzka, Director, Independent Living Institute, describes some of the features of the Institute's Website and shows some of the possibilities offered by the internet to individuals with disabilities and their organizations. Pointing out the qualifications that working in this environment requires he concludes that IT cannot materially improve disabled people's employment situation as long as they do not have equal access to education, housing and transportation services. Internet publication URL: www.independentliving.org/docs4/ratzka20020201.html
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2002. Projektet ‘Taxi för Alla’ (PDF, 60 KB).
Nollåtta. DHR Stockholmavdelning. No. 6, dec. 2002, s. 14. Internet publikation URL: www.independentliving.org/taxi/nollatta200212s14.pdf (PDF, 60 KB).
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2002. Think Piece - 'Sticks and Stones' But words are hurting!.
Dr. Jane Campbell, Chair of the Social Care Institute for Excellence in England, discusses the importance of language and particular words. Internet publication URL: www.independentliving.org/docs6/campbell2002a.html
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2002. User control over services as a precondition for self-determination.
Plenary presentation at Danish EU Presidency Seminar on "Quality of Life and Quality in Services for People with Disabilities," Copenhagen, October 31-November 1, 2002. Internet publication URL: www.independentliving.org/docs4/ar200210.html
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2003. The African View of Independent Living.
Joshua T. Malinga, Secretary General, Pan African Federation of the Disabled (PAFOD), and Past World Chairperson, Disabled Peoples' International (DPI) gives an overview of Indepedent Living in Africa. He concludes that, "Independent Living in Africa is basically in theory form and is still in its rudimental stages due to a number of factors." Internet publication URL: www.independentliving.org/docs6/malinga2003.html. In the forthcoming English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish).
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2003. Angående Färdtjänstförvaltningens svar på min anmälan om diskriminering - Anmälan hos Handikappombudsmannen.".
Ärende Dnr 2003/990. Internet publication URLs: www.independentliving.org/taxi/ratzka20030911.html och www.independentliving.org/taxi/ratzka20030911.pdf (6 KB). (In Swedish.)
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2003. Building an Independent Living organisation fit for the twenty first century. Underpinning organisational development with empowering principals.
Dr. Jane Campbell, Chair of the Social Care Institute for Excellence in England, contemplates the future of Independent Living organisations, including work together with non-disabled persons (which she calls, "the mutuality route.") She concludes, "our independent living organisations to be fit for the 21st century we must have principles of: full inclusion, valuing diversity, equality of opportunity, human rights, civil rights, and citizenship. Internet publication URL: www.independentliving.org/docs6/campbell20030523.html
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2003. Checklist for Organizing Independent Living Events.
In this checklist the author covers the steps of planning, event format, event contents and media work which are crucial to the success of a workshop, training session, seminar or conference on Independent Living. Internet publication URL: www.independentliving.org/docs6/ratzka200308a.html
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2003. Close the Institutions for the Intellectually Disabled - Everyone Can Live in the Open Society. A pamphlet on the European Year of People with Disabilities. grunewald2003.pdf (108.92 KB)
A pamphlet on the European Year of People with Disabilities. Intenet publication URLs: www.independentliving.org/docs7/grunewald2003.html and www.independentliving.org/docs7/grunewald2003.pdf
grunewald2003.pdf (108.92 KB).
2003. The Craving of the Benevolent.
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2003. Delseger för dem som nyttjar rullstolstaxi.
Internet publication URL: www.independentliving.org/taxi/dn20030923.html (In Swedish.)
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2003. Den svarta tisdagen, 17 juni 2003.
Internet publikation URL: www.independentliving.org/taxi/ratzka20030618.html (In Swedish).
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2003. Developments in Independent Living and Direct Payments in UK.
Presented at the European Network on Independent Living (ENIL) conference in Southampton, England, 7-9 March 2003. Internet publication URL: http://www.independentliving.org/docs6/evans200311.html
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2003. Dichiarazione di Tenerife: Promuovere la Vita Indipendente Fine della Discriminazione contro le Persone Disabili.
From the1st European Congress on Independent Living, Tenerife April 24-26, 2003. Internet publication URL: www.independentliving.org/docs6/tenrife20020426it.html
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2003. Die Schwedische Assistenzreform von 1994.
Vortrag anlässlich der Eröffnung des Europäischen Jahres der Menschen mit Behinderungen In Magdeburg 21. 2. 2003. Internet publication URL: www.independentliving.org/docs6/ratzka200302.html (In German).
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2003. Direct Payments Schemes for People with Disabilities - A Summary Guide, A new and innovative policy approach to providing services to disabled people in Ireland.
This information leaflet is based on the research project, "Direct Payments Schemes for People with Disabilities," carried out by the Bray Partnership in 2002 (see above). The aim of the leaflet is to provide information and create awareness about the concept of direct payments, as well as to commence a lobbying process for the introduction of a direct payments pilot programme. As such, the leaflet fulfills part of the recommendations of the research project relating to dissemination of information and increasing awareness. Bray Partnership, Ireland, Website: www.braypartnership.ie. Internet publication URL: www.independentliving.org/docs6/bray200305-sum.pdf (155 KB). See also the main document, Internet publication URL:www.independentliving.org/docs6/bray200305.pdf (357 KB)
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2003. Disability Situation & Impact of ADD work in Bangladesh.
Action on Disability and Development (ADD), Bangladesh. Internet publication URL: www.independentliving.org/docs6/uddin200309.html
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2003. Disability, the organization of work, and the need for change.
Professor Barnes, from the Centre for Disability Studies, University of Leeds, England points out that, "regardless of their role within the 'conventional' labour market, disabled people are both producers and consumers of a vast array of services upon which many non-disabled people depend; they are, therefore, a fundamental component within this equation." Internet publication URL: www.independentliving.org/docs6/barnes20030306.html
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2003. The Economics of Independent Living.
English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") : www.independentliving.org/docs6/alonso2003.pdf (In Spanish, PDF, 1.46 MB). Parts of the book are available in English.
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2003. El Movimiento de Vida Independiente, Experiencias Internacionales.
Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish, PDF, 1.46 MB).
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2003. "ENIL’s Strasbourg Freedom Drive 2003." Radioprogram.
Bollard, Joe. 2003-09. "ENIL’s Strasbourg Freedom Drive 2003." .Listen-MP3 (30:28 minuter, 28,6 MB), listen-RealAudio, download-RealAudio (4.6 MB). Internet publication URLs: www.independentliving.org/radio/bollard200309.mp3, www.independentliving.org/radio/bollard200309.ram, www.independentliving.org/radio/bollard200309.rm, www.independentliving.org/radio/bollard200309.pdf, www.independentliving.org/radio/bollard200309sv.html, och www.independentliving.org/radio/bollard200309.html
In September 2003, ninety assistance users from ENIL, the European Independent Living Movement, converged on the European Parliament in Strasbourg to present their key demands (see http://www.enil.eu.com/sfd/8demands.htm) for the inclusion of people, who need personal assistance, in mainstream society. Joe Bollard, the producer, is from Dublin, and is blind.
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2003. Fel siffra orsakade rabalder i färdtjänstdebatt.
Dagens Nyheter. Internet publikation URL: www.independentliving.org/taxi/dn20031003.html (In Swedish.)
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2003. Foreword to The Independent Living Movement: International Experiences.
Judith E. Heumann, MPH (Masters in Public Health), Advisor on Disability and Development, The World Bank tells about her own life and how as she was continually aware of the invisibility of disabled people in society. In her work with the World Bank, she has travelled widely and points out, "Poverty and social discrimination have gone hand in hand." In the forthcoming English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences." In Spanish, PDF, 1.46 MB).
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2003. From patient to customer: Direct payments for assistive technology for disabled people’s self-determination.
The author, AT user and activist in the Independent Living movement, claiming that direct payments for AT result in better quality and cost-efficiency than services in kind, suggests a pilot project to test the hypothesis. Plenary paper presented at the 7th European Conference for the Advancement of Assistive Technology, "Shaping the Future", Dublin, Ireland, August 31st – 3rd September 2003. Internet publication URL: www.independentliving.org/docs6/ratzka200308b.html.
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2003. Funktionshindrade protesterar, Dagens Nyheter 2003-06-15 (PDF, 357 KB).
Internet publikation URL: www.independentliving.org/taxi/dn20030615.pdf (PDF, 357 KB). (In Swedish.)
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2003. Get A Life! - Euthanasia and human value.
Dr. Jane Campbell, Chair of the Social Care Institute for Excellence in England, points out in this presentation at STIL in Stockholm that, "The normal response to suicidal depression is to treat the depression, not to push the person off the bridge!"
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2003. Hårda sparkrav vänter färdtjänsten.
Dagens Nyheter. Internet publikation URL: www.independentliving.org/taxi/dn20030614.html och www.independentliving.org/taxi/dn20030614.pdf (In Swedish).
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2003. Hellre ofta än bekvämt.
Insändare till City, 2003-10-07, s. 21 [Sjölander (s), Börjesson (v), och Dahl (mp)]. Internet publikation URL: www.independentliving.org/taxi/city20031007s21.html och www.independentliving.org/taxi/city20031007s21.pdf (In Swedish).
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2003. Independent Living and some Italian Experiences.
Raffaello Belli presents an overview of the history of and current situation for people with disabilities in the various geographical areas in Italy with regard to the Independent Living movement and the availability of resources for Independent Living including direct payments. Presented at the European Network on Independent Living (ENIL) conference in Southampton, England, 7-9 March 2003. Internet publication URL: www.independentliving.org/docs6/belli200303.html.
Pages
Recent Publications
- Adolf Ratzka, a great leader of the Independent Living movement has unfortunately passed away.
- Independent Living Institute Annual Report 2023
- Independent Living Institute Verksamhetsberättelse 2023
- In Search of Links: Overview of the State of Research on Disability, Migration, Employment and Health
- Personal assistance in Sweden
- Disability Defenders Network’s Newsletter - The development of personal assistance in Scotland
- The struggle for a PA law in Poland
- The Development of Personal Assistance in Malta: Moving closer to independent living through a practical and phased approach
- Personal Assistance: What's the current situation in Finland?
- The history of the adoption of the Personal Assistance Law in Bulgaria and its subsequent controversial effect - 2009-2023
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