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2010. THE CHUAS OF SHAH DAULAH AT GUJRAT, PAKISTAN: Evidence, Historical Background and Development, with Bibliography 1839-2009.
[This article cites and quotes historical materials first collected in: M. Miles (1996) Pakistan's microcephalic chuas of Shah Daulah: cursed, clamped or cherished? History of Psychiatry 7: 571-589, from Taylor & Francis, www.tandf.co.uk/]
Evidence on microcephalic children (chuas) at the shrine, and how some of them developed a capacity for independent living.
Internet publication URL: http://www.independentliving.org/miles201005.html
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1987. Civil Rights FOR Disabled Americans: The Foundation of a Political Agenda.
The primary goal of this paper by Harlan Hahn of the University of Southern California is to examine crucial areas of agreement and disagreement about the "minority group model" (views prejudice and discrimination as the major issues confronting citizens with disabilities) both within and between disabled and nondisabled segments of the population, and to develop a case for the benefits that can be derived from policies founded on a socio-political understanding of disability. Internet publication URL: www.independentliving.org/docs4/hahn.html
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1991. Classification of the environment - 1991.
In his report at the CIB seminar in 1991, Zoltán Csorba from the Mayor's Office in Budapest, Hungary describes action taken by the government to build homes for persons with disabilities in conjunction with the International Year of Disabled Persons and the various reasons why this initiative did not continue. He outlines a system of classification of the environment which could be used in the formulation of international recommendations which could in turn serve as a basis for legislation to promote the creation of non-handicapping environments and homes in former socialist states. Internet publication URL: www.independentliving.org/cib/cibbudapest5.html
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2003. Close the Institutions for the Intellectually Disabled - Everyone Can Live in the Open Society. A pamphlet on the European Year of People with Disabilities. 
grunewald2003.pdf (108.92 KB)
A pamphlet on the European Year of People with Disabilities. Intenet publication URLs: www.independentliving.org/docs7/grunewald2003.html and www.independentliving.org/docs7/grunewald2003.pdf
grunewald2003.pdf (108.92 KB).
2002. Community and Individual Responses to Disablement in South Asian Histories: Old Traditions, New Myths?
Documented histories of South Asian societies provide evidence that disabled people played various roles in their families and communities, sometimes with a good deal of independence. The commonest responses have been top-down, charitable or restrictive; yet some evidence challenges the stereotypes and suggests that disablement historically evoked a wider range of responses and initiative. Internet publication URL: www.independentliving.org/docs3/miles2002a.html
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1996. Community legislation in force: Resolution of the Council AND of the representatives of the governments of the member states meeting within the Council of 20 December 1996 on equality of opportunity for people with disabilities.
This European Council resolution affirms human rights as a fundamental value of the Member States whereas the principle of equality of opportunity for all, including people with disabilities, represents a core value. All disabled persons, whatever the origin and nature of their disability, must be entitled to concrete measures aimed at improving their social and professional integration. Internet publication URL: www.independentliving.org/docs3/ec9612.html
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1997. A Comparative Analysis of Barrier-Free Housing: Policies for Elderly People in the United States and Canada.
This paper identifies policy issues in creating barrier free housing for elderly people with disabilities in the United States and Canada. The strengths and weaknesses of a variety of policy approaches are contrasted. The approach in the United States which emphasizes individual housing rights is compared to the more social welfare approach used in Canada. Internet publication URL: www.independentliving.org/docs5/dunn1997b.html
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1996. Comunita Progetto Sud and Cooperativa at Lamezia Terme - Report from the study visit of working group one, sector social integration, 28 March - 31 March 1996.
Internet publication URL: www.independentliving.org/docs6/osterwitz1996.html
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1994. The Concept of Independent Living - a New Perspective in Rehabilitation.
Internet publication URL: www.independentliving.org/docs5/Osterwitz.html
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1998. Conference on Human Rights for Disabled People: Discussion from August 24th, 1998.
This is the transcript of a panel discussion on the topic of constitutional laws and anti-discrimination legislation for persons with disabilities. Internet publication URL: www.independentliving.org/docs1/hr11.html
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1998. Conference on Legislation for Human Rights.
This introduction to the conference on Legislation for Human Rights held in Stockholm on August 24, 1998 presents links to reports by experts from several countries with anti-discrimination legislation in connection with disability about how the legislation has functioned in their countries and their reflections on the situation of disabled people in their respective countries. Internet publication URL: www.independentliving.org/docs1/hr00.html
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1998. Conflict Situations and Disabled Persons.
Henry Enns, Executive Director of Disabled Peoples’ International discusses the plight of disabled refugees as a human rights issue that needs to be addressed by the UN and member states. Immigration policies in most countries discriminate against disabled refugees considering them as a “burden” and ignoring the significant contributions that disabled persons make to society. Internet publication URL: www.independentliving.org/docs1/dispeopleintldev2.html
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1992. Constitutionalism and access legislation.
CIB W84 Report Harare: Access Design and Legislation, 1992. Constitutions enshrine fundamental human rights, therefore disability rights denote access to fundamental human rights as we who have disabilities have got to enjoy the same rights as other people. Internet publication URL: www.independentliving.org/cib/cibharare11.html
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1995. Consumer Directed Personal Care Assistance - Lobbying Against Government Cutbacks.
Ira Holland outlines the strategy Concepts of Independence used in lobbying against 1995 government cutbacks in home care services. Internet publication URL: www.independentliving.org/docs4/holland95.html
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2000. Consumer-Directed Home and Community Services Programs in Five Countries: Policy Issues for Older People and Government.
This Urban Institute study reviews community services programs in five countries--Austria, France, Germany, the Netherlands, and the US - and shows that direct payments for personal assistance and long term care hold great promise for consumer-directed high quality services. Internet publication URL: www.independentliving.org/docs4/urbani2000.html
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1984. Costs and Benefits of Accessible Environments: A Case Study.
Internet publication URL: www.independentliving.org/cib/cibsthlm4.html
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2003. The Craving of the Benevolent.
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2009. Creating a Disability Mythology.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, attempted to reframe how people think about the history of disability and current notions about disability pride. First published in International Journal Of Rehabilitation Research, Winter 1992. Internet publication URL: www.independentliving.org/docs3/brown92a.html.
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1991. Creating a political alliance for anti-discrimination legislation in Germany.
Internet publication URL: www.independentliving.org/cib/cibbudapest18.html
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1991. Creating accessibility in developing countries.
Internet publication URL: www.independentliving.org/cib/cibbudapest23.html
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1991. Creating and maintaining access to housing: Implementing access at the local level.
Internet publication URL: www.independentliving.org/cib/cibbudapest24.html
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1998. Crip Utopia.
Ironisk science fiction. Internet publication URL: www.independentliving.org/docs4/ratzkacusv.html (In Swedish.)
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1998. Crip Utopia.
Tongue-in-cheek science fiction. Internet publication URL: www.independentliving.org/docs4/ratzkacu.html (In Swedish.)
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2001. Culture and Identity.
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1999. The Curb Ramps of Kalamazoo: Discovering Our Unrecorded History.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, learned by accident of a city program to implement curb cuts in Kalamazoo, Michigan in the U.S. in the mid-1940s. This is the story of how that occurred. In: Disability Studies Quarterly, 19 (3), (Summer 1999), 203-05. Internet publication URL: www.independentliving.org/docs3/brown99a.html.
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1999. Czech Republic warehouses disabled people - Money Earmarked for Creation of Institutions.
Jana Hrdá, Director of the Prague Center for Independent Living, appeals to the international disability community to write letters protesting the planned construction of more institutions for disabled people in her country. A letter by the Director of the Independent Living Institute points out the detrimental psychological, social and economic effects of warehousing disabled people in institutions. Instead, evidence shows that funds spent on personal assistance and housing adaptation yield high returns for individual and society. Internet publication URL: www.independentliving.org/docs1/czechinst.html
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2000. The Darker Ages: What's Wrong With Institutions?
Audrey King, M.A., an internationally known writer, speaker, and advocate on disability issues, shares observations about life in institutions gathered from 30 years of working as a rehabilitation professional. She describes how institutional structures pose a consistent dynamic tension between individual autonomy and system procedures, which are often resistant to change and necessarily geared to cost and procedure efficiencies.
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2005. Deaf People Living and Communicating in African Histories, c. 960s - 1960s.
New, much extended Version 5.01, incorporating an article first published in Disability & Society vol. 19, pp. 531-45; August 2004, titled then "Locating deaf people, gesture and sign in African histories, 1450s-1950s". The latter material is republished with permission of Carfax Publishing, Taylor & Francis. Visits 100 deaf people in 42 nations, across 1000 years of African history. From servants and schoolchildren to scientists, soldiers and statesmen, using every possible means of communication. Internet publication URL: www.independentliving.org/docs7/miles2005a.html
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2009. DEAF PEOPLE, SIGN LANGUAGE & COMMUNICATION, IN OTTOMAN & MODERN TURKEY: Observations and Excerpts from 1300 to 2009. From sources in English, French, German, Greek, Italian, Latin and Turkish, with introduction and some annotation. miles200907.pdf (494.75 KB)
Internet publication URL: https://www.independentliving.org/miles200907.html
miles200907.pdf (494.75 KB).
1995. Death & Life.
Dr. Steven E. Brown and Gonzales Brown, Co-Founders of the Institute on Disability Culture, in the United States, has written a biographical description of a friend Danny Blake, who lives with Cerebral Palsy and AIDS and provides a cogent analysis of living and dying with a disability. First published in "Mainstream: Magazine of the Able-Disabled," September 1995. Internet publication URL: www.independentliving.org/docs3/brown95b.html.
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1975. Declaration on the Rights of Disabled Persons Proclaimed by United Nations General Assembly resolution 3447 (XXX) of 9 December 1975.
Proclaimed by United Nations General Assembly resolution 3447 (XXX) of 9 December 1975. Internet publication URL: www.independentliving.org/docs6/unga19751209.html
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1992. Declaring independence in Berkeley.
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1998. Definitioner av Independent Living (IL) världen över.
En av de primära grundsatserna av IL filosofin är att sociala problem inte stammar från funktionsnedsättningen hos individen utan från samhällets misslyckande i att möta samhällsmedborgarnas behov. Internet publication URL: www.independentliving.org/docs4/doe1998.html (In Swedish.)
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2003. Delseger för dem som nyttjar rullstolstaxi.
Internet publication URL: www.independentliving.org/taxi/dn20030923.html (In Swedish.)
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1996. Demand for Social Security Measures by Independent Living Association in Japan.
Internet publication URL: www.independentliving.org/docs6/cil-japan199606.html.
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1986. Den lilla skillnaden - Apropå vår omslagsbild.
Från "Stiletten" nr. 4/86, oktober 1986. Internet publication URL: www.independentliving.org/docs3/ar198610.html (In Swedish.)
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1993. Den nya handikappreformen för ett jämlikt och värdigt liv.
I: Institutet för Independent Living. 1993. "Hemtjänst i omdaning - möjligheter och decentraliseringens och privatiseringens tid, Dokumentation av STIL-hearing Stockholm 1993." Internet publication URL: www.independentliving.org/docs3/stil1993.html#3 (In Swedish.)
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1993. Den offentliga sektorn och individens självbestämmande.
I: Institutet för Independent Living. 1993. "Hemtjänst i omdaning - möjligheter och decentraliseringens och privatiseringens tid, Dokumentation av STIL-hearing Stockholm 1993." Internet publication URL: www.independentliving.org/docs3/stil1993.html#2 (In Swedish.)
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2003. Den svarta tisdagen, 17 juni 2003.
Internet publikation URL: www.independentliving.org/taxi/ratzka20030618.html (In Swedish).
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1999. Department of Transportation (DOT) Finishes Greyhound Regulation -- Proposes Bus Companies Must Document Lack of Service.
Internet publication URL: www.independentliving.org/docs6/golden1999.html
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1991. Design guidelines of public collective housing for the aging society in Japan.
Satoshi Kose, from the Building Design and Use Division, Building Research Institute in Tsukuba, Japan, describes the Ministry of Construction's project aimed at solving the problem of housing for the aged, in terms of both policy on housing supply and guidelines for dwelling design. Some of the practical requirements will be: elimination of level differences within dwellings; provision of handrails to assist moving about; promotion of the development of building facilities that are suited to the needs of the aged persons, etc. Internet publication URL: www.independentliving.org/cib/cibbudapest13.html
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1998. Det är du som bestämmer: Brukarstryd budget för att ordna assistans (Direct Payments).
"Client-linked budget" is a system of direct payments for personal assistance services. This outlines the Dutch service, comparing it with "help in kind." Internet publication URL: www.independentliving.org/docs3/hardussv.html (In Swedish.)
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2004. "Det är samma här, men det är olika" - ett program om hur det kan vara att komma till Sverige som man med funktionshinder från Mellanöstern.
Lyssna-MP3 (29:38 minuter, 27,8 MB), lyssna-RealAudio, download-RealAudio (9,8 MB). Programmet i text. Att vara invandrare och funktionshindrad beskrivs ibland som att leva med ett dubbelhandikapp. Vi frågade tre män från olika delar av mellanöstern om deras syn på hur det är att leva med funktionshinder i hemlandet och hur de upplever situationen i det svenska samhället. Deltagare:Khoudadad Bahrami, Amir Amirriazi och Attila Koüba. Intervjuer och research: Farhad Jahanmahan.
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2004. "Det finns hem för sådana där" är ett radioprogram om vanföreanstalterna, skolhem för barn med rörelsehinder.
Barn och unga med funktionshinder hade inte rätt att gå i den ordinarie kommunala skolan. Särskilda skolhem, institutioner var alternativet. Genom en lagändring 1962 – 120 år efter allmän skolplikt infördes i Sverige - blev kommunerna tvungna att erbjuda skolgång på hemorten för rörelsehindrade elever. Programmet följer tre kvinnor med rörelsehinder från 30- till 60-talet. Lyssna-MP3 (30:43 minuter, 28,8 MB), lyssna-RealAudio, download-RealAudio (9,9 MB). Programmet i text. Deltagare: Siv Eriksson, Karin Westlund och Wenche Willumsen.
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1998. Determining Consumers' Preferences for a Cash Option: New York Survey Findings. ar498.pdf (59.02 KB)
The purpose of this article is to present findings from a telephone survey conducted in New York to assess consumers' preliminary interest in the cash option when compared to traditional services. Internet publication URLs: www.independentliving.org/docs4/ar498.html
ar498.pdf (59.02 KB).
2002. Development and Self-Help Movement of Women with Disabilities.
This article focuses on development assistance models and philosophies for women with disabilities who struggle to achieve independence in Asia, first from the viewpoint of a development program organizer and then from the viewpoint of a witness of empowered self-help movements. Internet publication URL: www.independentliving.org/docs5/nakanishi.html
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2005. Development OUTREACH, July 2005.
Internet publication URL: www.independentliving.org/docs7/sarbib200507.html
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2008. Development System Locks Out the Disabled.
Internet Publication URL: www.independentliving.org/docs7/masakhwe200802.html
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2003. Developments in Independent Living and Direct Payments in UK.
Presented at the European Network on Independent Living (ENIL) conference in Southampton, England, 7-9 March 2003. Internet publication URL: http://www.independentliving.org/docs6/evans200311.html
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2003. Dichiarazione di Tenerife: Promuovere la Vita Indipendente Fine della Discriminazione contro le Persone Disabili.
From the1st European Congress on Independent Living, Tenerife April 24-26, 2003. Internet publication URL: www.independentliving.org/docs6/tenrife20020426it.html
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2004. Die Österreichische Pflegevorsorge.
Dokument in Rahmen des ECEPA Projekts. Internet Veröffentlichung URL: www.independentliving.org/docs7/brozek200409a-de.html (In German.)
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2003. Die Schwedische Assistenzreform von 1994.
Vortrag anlässlich der Eröffnung des Europäischen Jahres der Menschen mit Behinderungen In Magdeburg 21. 2. 2003. Internet publication URL: www.independentliving.org/docs6/ratzka200302.html (In German).
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2015. Die Voraussetzungen zur De-institutionalisierung von Menschen mit Behinderungen.
Persönliche Assistenz ist eine hochqualitative und kostengünstige Alternative zu Wohneinrichtungen und ambulanten Diensten, laut Adolf Ratzka - eine Behauptung, die er mit den über 20-jährigen schwedischen Erfahrungen mit persönlicher Assistenz belegt. Den Hauptwiderstand gegen persönliche Assistenz in Deutschland sieht er in den Eigeninteressen der Wohlfahrtsverbände und dem noch weitverbreiteten medizinischen Bild von Behinderung.
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1998. Direct Payment Schemes in Slovakia.
In 1997 the Independent Living Institute successfully bid for projects in the Slovak Republic within the European PHARE program: a personal assistance delivery scheme using direct cash payments and a accessible mainstream taxi system with a subsidy scheme for disabled riders. The article discusses some of the difficulties and opportunities that user-initiated and user-run solutions entail in post-communist societies. Internet publication URL: www.independentliving.org/docs3/slovakia.html
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1996. Direct Payments Campaign in the U.K..
The IL movement believes that Direct Payment schemes should be a right, and thus a change in the legislation has high priority in the issues of disabled people after comprehensive civil rights legislation. Internet publication URL: www.independentliving.org/docs2/enildirectpayment.html
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2007. 'Direct Payments' for Personal Assistants for Disabled People: a key to independent living?
Background notes to a verbal presentation at the Centre for Independent Living, Dublin, Conference 'Independent Living 2007,' Croke Park Conference Centre, Dublin 3, Tuesday, June 5th 2007. Internet publication URL: http://www.independentliving.org/docs7/barnes20070605.html
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2003. Direct Payments Schemes for People with Disabilities - A Summary Guide, A new and innovative policy approach to providing services to disabled people in Ireland.
This information leaflet is based on the research project, "Direct Payments Schemes for People with Disabilities," carried out by the Bray Partnership in 2002 (see above). The aim of the leaflet is to provide information and create awareness about the concept of direct payments, as well as to commence a lobbying process for the introduction of a direct payments pilot programme. As such, the leaflet fulfills part of the recommendations of the research project relating to dissemination of information and increasing awareness. Bray Partnership, Ireland, Website: www.braypartnership.ie. Internet publication URL: www.independentliving.org/docs6/bray200305-sum.pdf (155 KB). See also the main document, Internet publication URL:www.independentliving.org/docs6/bray200305.pdf (357 KB)
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1997. Directive 2000/ /EC of the European Parliament and of the Council of the European Union. eu97bus.pdf (569.45 KB)
Internet publication URL: Internet publication URL: www.independentliving.org/docs4/eu97bus.html
eu97bus.pdf (569.45 KB).
1996. Direktutbetalningskampanjen i Storbritannien.
The IL movement believes that Direct Payment schemes should be a right, and thus a change in the legislation has high priority in the issues of disabled people after comprehensive civil rights legislation. Internet publication URL: www.independentliving.org/docs2/directpayuksv.html (In Swedish.)
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2007. Disability and Deafness in East Asia: Social and Educational Responses, from Antiquity to Recent Times. A bibliography of European-language materials with introduction and some annotation. Revised Version 4.0, August 2007.
The bibliography introduces and lists 900 articles, chapters and books connected with social and educational responses to disability, deafness and mental disorders in China, Korea and Japan, from antiquity to 2007, some with annotation. (This work revises and greatly extends an earlier bibliography on the former History of Education website at the Catholic University of Nijmegen). Internet publication URLs: independentliving.org/docs7/miles200708.html and independentliving.org/docs7/miles200708.pdf
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2007. Disability and Deafness, in the context of Religion, Spirituality, Belief and Morality, in Middle Eastern, South Asian and East Asian Histories and Cultures: annotated bibliography.
The bibliography introduces and annotates materials pertinent to disability, mental disorders and deafness, in the context of religious belief and practice in the Middle East, South Asia and East Asia. Internet publication URLs: www.independentliving.org/docs7/miles200707.html and www.independentliving.org/docs7/miles200707.pdf
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1996. Disability Awareness in Action Resource Kit No. 1, Media Information.
DAA's Media Information Resource Kit helps to change the structures of society and attitudes, and to support your cause through traditional media. Internet publication URLs: www.independentliving.org/docs2/daakit1.html and www.independentliving.org/docs2/daa1.pdf
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1996. Disability Awareness in Action Resource Kit No. 2, Consultation and Influence.
DAA's Consultation and Influence Resource Kit helps to unite organisations as advocates for their own rights to influence decision-makers in governments and all sectors of society. Internet publication URLs: www.independentliving.org/docs2/daakit21.html and www.independentliving.org/docs2/daa2.pdf (146 KB)
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1996. Disability Awareness in Action Resource Kit No. 3, Campaigns.
DAA's Campaigns Resource Kit offers ideas for campaigns, things to be considered if you are to run a successful campaign and some real-life examples. Internet publication URLs: www.independentliving.org/docs2/daakit31.html and www.independentliving.org/docs2/daa3.pdf (103 KB)
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1996. Disability Awareness in Action Resource Kit No. 4, Organisation Building.
DAA's Organisation Building Resource Kit looks at how organisations of disabled people can improve their structures and the way they work. nternet publication URLs: www.independentliving.org/docs2/daakit41.html and www.independentliving.org/docs2/daa4.pdf
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1996. Disability Awareness in Action Resource Kit No. 5, Fund-Raising.
DAA's Fund-Raising Resource Kit gives ideas about your disability organisation's funding strategy - how to raise and use money effectively. Internet publication URLs: www.independentliving.org/docs2/daakit51.html and www.independentliving.org/docs2/daa5.pdf (65 KB)
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1996. Disability Awareness in Action Resource Kit No. 6, Disabled Women.
DAA's Disabled Women Resource Kit focuses on the social status of disabled women, comments on representation and empowerment, and looks at the women's movement in the context of disabled women's issues. Internet publication URLs: www.independentliving.org/docs2/daakit61.html and www.independentliving.org/docs2/daa6.pdf (61 KB)
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1996. Disability Community Leaders Denounce Jack Kevorkian.
It is long past time for the disability community to respond to Jack Kevorkian's lethal assaults on our people. At least half of the people whose suicides he has abetted have been disabled. Internet publication URL: www.independentliving.org/docs4/longmore96.html
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1996. Disability Culture: A Fact Sheet.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, briefly describes the history and themes of disability culture. (Las Cruces, NM: Institute on Disability Culture, 1996). Internet publication URL: www.independentliving.org/docs3/brown96a.html.
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2023. Disability Defenders Network’s Newsletter - The development of personal assistance in Scotland.
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1996. Disability Discrimination in the Workplace.
Despite increased sensitivity to physical and mental disabilities, many of America's workers find themselves to be victims of employment discrimination due to their disability. Internet publication URL: www.independentliving.org/docs5/EmployDiscrim.html
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2018. DISABILITY IN AFRICA: RELIGIOUS, ETHICAL & HEALING RESPONSES, to and by People with Disabilities, Deafness, or Mental Debility: a bibliography through four millennia, with introduction and partial annotation.. pdf format (2.52 MB)
epub format (808.68 KB) mobi format (1.04 MB)
pdf format (2.52 MB) epub format (808.68 KB) mobi format (1.04 MB).
1991. Disability in Bulgaria - the necessity of higher social protection during the crisis period and the transition to a market economy.
Gallina Atanassova outlines the effects that half a century of totalitarian socialism has had on the current situation of disabled people in Bulgaria. She describes the work of the Union of Disabled People in Bulgaria, a grass roots organization which advocates for the rights and needs of disabled people in Bulgaria. Third ENIL Seminar, Stockholm, Sweden June 1991. Internet publication URL: www.independentliving.org/docs2/enilstockholmsem2.html. In: Internet publication URL: www.independentliving.org/docs2/enilstockholmsem1.html.
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1995. The Disability Movement and its History.
Pfeiffer, resident scholar in the Center on Disability Studies at the University of Hawaii at Manoa, past president of the Society for Disability Studies, present editor of Disability Studies Quarterly and an early leader of the U.S. disability rights movement while a full time faculty member at Suffolk University in Boston, explores the history of the American disability rights movements through some of its most classic texts. First published as "Hip Crip 101." Mainstream: Magazine of the Able-Disabled, Dec.-Jan. 1994-95. Internet publication URL: www.independentliving.org/docs3/pfeiffer95.html
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1999. Disability, Poverty Reduction and Social Development.
Anita Kelles-Viitanen of the Asian Development Bank examines the objectives of the Bank in regard to poverty reduction and improving the quality of life of all people in Asia and the Pacific. Internet publication URL: www.independentliving.org/docs1/dpidi2992.html
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2000. Disability rights and human rights: plunging into the 'mainstream'?
Andrew Byrnes, of the Faculty of Law at The University of Hong Kong, writes that disability issues are for the most part treated as social issues instead of mainstream human rights issues, similar to women’s rights issues fifteen years ago. He outlines ways in which disability rights issues can be moved onto a more prominent place on the international human rights agenda. He also outlines gains which have already been made as a result of these efforts. In: "Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000." (PDF, 610 KB, Word 97, 564 KB.) Pre-paper 5. Internet publication URL: www.independentliving.org/docs2/byrnes00.pdf. In Internet publication URL: www.independentliving.org/docs2/rioux00.pdf and www.independentliving.org/docs2/rioux00.doc
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2003. Disability Situation & Impact of ADD work in Bangladesh.
Action on Disability and Development (ADD), Bangladesh. Internet publication URL: www.independentliving.org/docs6/uddin200309.html
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2003. Disability, the organization of work, and the need for change.
Professor Barnes, from the Centre for Disability Studies, University of Leeds, England points out that, "regardless of their role within the 'conventional' labour market, disabled people are both producers and consumers of a vast array of services upon which many non-disabled people depend; they are, therefore, a fundamental component within this equation." Internet publication URL: www.independentliving.org/docs6/barnes20030306.html
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2000. Disability Tribune, Special Issue-Disability and bioethics.
The manual contains a definition of biotechnology, its proposed uses, its regulation, a list of related sites, and a discussion of health inequality as a result of economic inequality in relation to the issue of biotechnology. Internet publication URL: www.independentliving.org/docs2/daa200002.html
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2009. Disability, women and love.
Junko Asaka speaks candidly about her own experiences of being in love and being a woman with a disability, revealing how she came to terms with her own perceptions of herself. Internet publication URL: www.independentliving.org/toolsforpower/tools25.html
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1980. The Disabled Consumer Movement: Policy Implications for Rehabilitation Service Provisions.
Internet publication URL: www.independentliving.org/docs6/derksen1980.html
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1987. Disabled People and our Culture Development.
Why is disability culture a crucial component of the disability rights movement? The question is addressed by Finkelstein, a psychologist by training, tutor in Disability Studies at the Open University and Visiting Senior Research Fellow in the Centre for Disability Studies, Leeds University. Finkelstein has a disability. Internet publication URL: www.independentliving.org/docs3/finkelstein87a.html
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1999. Disabled people and the inclusive society: or the times they really are changing.
Mike Oliver looks at semantics and use of words in addressing disability issues, and refers to Bob Dylan's "The times they are a-changing" to make his point about exclusion and discrimination. Internet publication URL: www.independentliving.org/docs4/oliver.html
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1991. Disabled People in International Development.
This booklet is presented to create an increasing awareness of disabled persons in the development process for both the disabled persons community and non-governmental organizations involved in international development. Internet publication URLs: www.independentliving.org/docs1/dispeopleintldev1.html and www.independentliving.org/docs1/dispeopleintldev.pdf
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1991. Disabled People's Development Projects.
This booklet is presented to create an increasing awareness of disabled persons in the development process for both the disabled persons community and non-governmental organizations involved in international development. Internet publication URL: www.independentliving.org/docs1/dispeopleintldev3.html
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1998. Disabled Refugees.
Henry Enns, Executive Director of Disabled Peoples’ International discusses the plight of disabled refugees as a human rights issue that needs to be addressed by the UN and member states. Immigration policies in most countries discriminate against disabled refugees considering them as a “burden” and ignoring the significant contributions that disabled persons make to society. Internet publication URL: www.independentliving.org/enns1998disabled_refugees
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1999. Disabled to Raise Funds for Non-Disabled - Labor Day weekend radio event to benefit Literacy Volunteers of America.
To show that people with disabilities – like all other humans – can be both on the receiving and giving end, "On A Roll," the weekly syndicated radio program on disability lifestyle issues, produced by people with disabilities, raised funds for Literacy Volunteers of America, Inc. (LVA) through an on-air event on Sept. 5, 1999. Internet publication URL: www.independentliving.org/docs6/onarollathon1999.html
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1997. Disabled Women and the Media - Presentation for National Women's Day.
Fadila Lagadien considers how media communicates images of the estimated 13 per cent of disabled South Africans, especially women with disabilities. Internet publication URL: www.independentliving.org/docs1/fadila97.html
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2001. Discapacidad: Exclusión / Inclusión.
The author, instructor at the Department of Anthropology at Universidad de Chile, proposes a different perspective for analyzing disability issues using the concept of exclusion / inclusion for a multi-dimensional and dynamic understanding of social exclusion. First publisher: Revista Mad. No.5. Septiembre 2001. Ediciones Mad, Universidad de Chile. Inernet publication URL: sociales.uchile.cl/publicaciones/mad/05/paper07.htm. Inernet publication URL: www.independentliving.org/docs7/saavedra200109.html
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1998. Discrimination and the law - the British Experience.
In his presentation at the seminar organized by Independent Living Sweden, Stockholm, and and the Office of the Disability Ombudsman, Professor Colin Barnes of the Disability Research Unit in Leeds, UK, describes the Disability Discrimination Act enacted in 1995 in the UK, why and how the Act came into being, and why the Act is a mistake. He notes that the result of policies in general has been to create dependence for disabled people instead of independence which is what disabled people want and have a right to. Conference on Legislation for Human Rights Stockholm, Sweden, 1998-08-24. Internet publication URL: www.independentliving.org/docs1/hr6.html.
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1997. Dis-ing Definitions.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, attempted to reframe how people think the language and status of disability. First published in Mainstream: Magazine of The Able-Disabled, August 1997. Internet publication URL: www.independentliving.org/docs3/brown97b.html.
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1988. Divisions in the disability community.
Within the community of disabled persons in this country there is a division between those concerned with civil rights and those concerned with service delivery. Internet publication URL: www.independentliving.org/toolsforpower/tools3b.html
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Recent Publications
- Adolf Ratzka, a great leader of the Independent Living movement has unfortunately passed away.
- Independent Living Institute Annual Report 2023
- Independent Living Institute Verksamhetsberättelse 2023
- In Search of Links: Overview of the State of Research on Disability, Migration, Employment and Health
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- The history of the adoption of the Personal Assistance Law in Bulgaria and its subsequent controversial effect - 2009-2023
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