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2011
Independent Living Institute.  2011.  Independent Living Institute Annual Report 2010.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2009.html
Independent Living Institute.  2011.  Independent Living Institute Verksamhetsberättelse 2010.
Erdtman, Emil.  2011.  Mats Winberg granskar tillgängligheten i Barcelona - reseberättelse.
Westberg, Kenneth.  2011.  Norway: “Government breaks its promise of legislation for personal assistance”.
Westberg, Kenneth.  2011.  Norway: Personal Assistance heading for legislation?
Westberg, Kenneth.  2011.  Norway: “The upcoming legislation will be a disappointment”.
Dr. Adolf Ratzka.  2011.  Personal responsibility as precondition for personal and social change.
Adolf Ratzka, Independent Living Institute, presented at the Second International Conference on Personal Responsibility on the Way to Social Change organized by Jerusalem Center for Independent Living December 2, 2010
PDF icon 2011-05_Personal_responsibility_as_precondition_for_personal_and_social_change.pdf (111.98 KB)
[Anonymous].  2011.  Swedish EU parliamentarians urge more personal assistance in Europe. GP.
Ladstätter, Martin.  2011.  Switzerland introducing direct payments for personal assistance.
Erdtman, Emil.  2011.  Tillgänglighet och design väger tungt i Barcelona..
2010
Egan, David.  2010.  2GoDirect - The experience of two people using a direct payment to employ a Personal Assistant. Center for Independent Living Carmichael House, Dublin, Ireland. PDF icon 2GoDirect.pdf (2.3 MB)
Ciobanu, Claudia.  2010.  Amid budget cuts, hundreds of Romanian children have lost their homes this year because their foster parents can no longer afford their upkeep.
Westberg, Kenneth.  2010.  Attitudes to people with disabilities are negative in Russia - Interview with Sergey Kiselev, Chairman of Apparel.
Miles, M.  2010.  THE CHUAS OF SHAH DAULAH AT GUJRAT, PAKISTAN: Evidence, Historical Background and Development, with Bibliography 1839-2009.
[This article cites and quotes historical materials first collected in: M. Miles (1996) Pakistan's microcephalic chuas of Shah Daulah: cursed, clamped or cherished? History of Psychiatry 7: 571-589, from Taylor & Francis, www.tandf.co.uk/] Evidence on microcephalic children (chuas) at the shrine, and how some of them developed a capacity for independent living. Internet publication URL: http://www.independentliving.org/miles201005.html
Badach, Frédérique.  2010.  Foire aux questions L'assistance personnelle en Suède.
Nordenfelt, Enar.  2010.  The foundation in memory of Rolf Bergfors.
Gaeremynck, Dave, Dr. Adolf Ratzka.  2010.  ILI deltog i utbildning i Galati Rumänien, från tisdagen den 19 oktober till fredagen den 22 oktober 2010.
Gaeremynck, Dave, Dr. Adolf Ratzka.  2010.  ILI participated in training session in Galati, Romania from Tuesday October, 19th until Friday October, 22nd 2010. PDF icon StepsRomania_DeInstitutionalization.pdf (207.97 KB)PDF icon StepsRomania_UserInvolvement.pdf (319.98 KB)
Westberg, Kenneth.  2010.  In Flanders all personal care assistants are employed by the people they assist..
Independent Living Institute.  2010.  Independent Living Institute Annual Report 2009.
Internet publication URL: www.independentliving.org/docs1/ilanrp2009.html
Independent Living Institute.  2010.  Independent Living Institute Verksamhetsberättelse 2009.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2009.html
Westberg, Kenneth.  2010.  Interview with Arthur Klimchenko, 22 years, Kaliningrad - "Personal assistance would certainly be good, but I would be afraid of being dominated".
Badach, Frédérique.  2010.  L'assistance personnelle en Suède.
Westberg, Kenneth.  2010.  Latvia: “The view of people with disabilities has improved”.
Erdtman, Emil.  2010.  Municipalities as personal assistance providers in Sweden.
Haualand, Hilde.  2010.  Provision of Videophones and Video Interpreting for the Deaf and Hard of Hearing, A Comparative Study of Video Interpreting (IV) Systems in the US, Norway and Sweden. Fafo Institute for Labour and Social Research, Norway.
Internet publication URL: www.independentliving.org/haualand20100924video-interpreting-systems
PDF icon haualand20100924video-interpreting-systems.pdf (1022.69 KB)
Berg, Susanne.  2010.  Remissvar på utredningen Bortom fagert tal – om bristande tillgänglighet som diskriminering (Ds 2010:20)..
Erdtman, Emil.  2010.  Spain - Assistance - available in Spain by law, but not in reality.
Nordenfelt, Enar.  2010.  Stiftelsen Fonden till Rolf Bergfors minne. PDF icon gil-stiftelsen-information-202103.pdf (103.8 KB)PDF icon gil-stiftelsen-ansokningblankett-202103-w.pdf (145.5 KB)
Westberg, Kenneth.  2010.  Tough struggle for personal assistance in Iceland.
Johansson, Emma, Dr. Adolf Ratzka, Filipsson Hans.  2010.  Yttrande över ”Bortom fagert tal – Om bristande tillgänglighet som diskriminering” (Ds 2010:20). Stil, Stiftarna av Independent Living i Sverige, Independent Living Institute, Marschen för tillgänglighet. PDF icon 20101123STIL_ILI_Marschen_yttrande_bortom_fagert_tal.pdf (144.71 KB)
2009
Dr. Adolf Ratzka.  2009.  Adolf D. Ratzka, PhD, Interviews and Profiles.
Brown, Steven E.  2009.  Creating a Disability Mythology.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, attempted to reframe how people think about the history of disability and current notions about disability pride. First published in International Journal Of Rehabilitation Research, Winter 1992. Internet publication URL: www.independentliving.org/docs3/brown92a.html.
Jaillet, C.  2009.  De la dé-institutionnalisation à la vie autonome : la nécessité des systèmes de formations et de la pair-émulation.
Miles, M.  2009.  DEAF PEOPLE, SIGN LANGUAGE & COMMUNICATION, IN OTTOMAN & MODERN TURKEY: Observations and Excerpts from 1300 to 2009. From sources in English, French, German, Greek, Italian, Latin and Turkish, with introduction and some annotation.
Internet publication URL: https://www.independentliving.org/miles200907.html
PDF icon miles200907.pdf (494.75 KB)
Asaka, Junko.  2009.  Disability, women and love.
Junko Asaka speaks candidly about her own experiences of being in love and being a woman with a disability, revealing how she came to terms with her own perceptions of herself. Internet publication URL: www.independentliving.org/toolsforpower/tools25.html
Jaillet, C.  2009.  From institutions to Independent Living: the need of peer-support and education programs.
Internet publication URL: www.independentliving.org/jaillet2009institutions-to-independent-living
Independent Living Institute.  2009.  Independent Living Institute (ILI) Annual Report 2008.
Internet publication URL: www.independentliving.org/docs1/ilanrp2008.html
Independent Living Institute.  2009.  Independent Living Institute Verksamhetsberättelse 2008.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2008.html
Dr. Adolf Ratzka.  2009.  Interview with Kalle Könkkölä November 2008.
Internet publication URL: https://www.independentliving.org/kalle_konkkola200811
PDF icon kalle_konkkola200811.pdf (31.76 KB)
Jaillet, C.  2009.  La place des aidants familiaux dans le système d'assistance personnelle suédoise.
Jaillet, C.  2009.  Les politiques d'insertion pour les personnes en situation de handicap : des coûts compensés par une dynamique économique - modèle suédois et système français.
Internet publication URL:  www.independentliving.org/jaillet2009politiques-dinsertion
Dr. Adolf Ratzka.  2009.  Report from Independent Living seminar in Stockholm 2009: Networks on Personal Assistance and Public Transport Access.
Jaillet, C.  2009.  The role of relative helpers in the Swedish personal assistance system.
 
2008
Independent Living Institute.  2008.  25 år Independent Living - Dokumentation.
Independent Living Institute.  2008.  25 years of Independent Living in Sweden (2008) - Documentation.
Brafman, Daniela.  2008.  Center for Independent Living in Jerusalem.
Erdtman, Emil.  2008.  Croatians are proud of their disability policy.
Were Masakhwe, Phitalis.  2008.  Development System Locks Out the Disabled.
Internet Publication URL: www.independentliving.org/docs7/masakhwe200802.html
Westberg, Kenneth.  2008.  Finland: “The new personal assistance law doesn’t quite make it”.
Bernt, Malin.  2008.  Flanders, Belgium - long queue for personal assistance.
Dr. Adolf Ratzka.  2008.  Från patient till kund - anförande vid konferensen Fritt val av hjälpmedel Stockholm 30 maj 2008.
Internet publikation URL: www.independentliving.org/ratzkafrittval (In Swedish.)
Bernt, Malin.  2008.  Germany – means-tested personal assistance.
Miles, M.  2008.  Glimpses of Disability in the Literature and Cultures of East Asia, South Asia, the Middle East & Africa. A modern and historical bibliography, with some annotation.
This annotated bibliography lists a selection of 130 novels, short stories, biographies, autobiographies, materials from philosophy, anthropology and folklore, and literary criticism, in which disability, deafness or mental disorders play some significant part, from East Asia, South Asia, the Middle East and Africa, available mostly in English or French. Internet publication URLs: independentliving.org/docs7/miles200807.html and independentliving.org/docs7/miles200807.pdf
Erdtman, Emil.  2008.  Greece – Stelios lives “independently” with help from his family.
Miles, M.  2008.  HITTITE DEAF MEN IN THE 13th CENTURY BC: introductory notes with annotated bibliography.
The article introduces bibliographical evidence on deaf men working in palaces and temples of the Hittite Kingdom in Anatolia (now Turkey) during the 13th century BC, with further notes on signing and deaf people's activities in the ancient and medieval Middle East. With some additions and revision September 2009. Internet publication URLs: www.independentliving.org/docs7/miles200809.html and www.independentliving.org/files/miles200809.pdf.
PDF icon miles200809.pdf (107.78 KB)PDF icon HITTITE_DEAF_MEN_IN_THE_13th_CENTURY_BC_traduction_francaise_4.pdf (637.26 KB)
Erdtman, Emil.  2008.  Iceland – Few have been granted personal assistance payments.
Berggren, Henrik.  2008.  IL 25 år dokumentation - Henrik Berggren.
Könkkölä, Kalle.  2008.  IL 25 år dokumentation - Kalle Könkkölä.
Westerberg, Bengt.  2008.  IL 25 years Documentation - Bengt Westerberg.
Könkkölä, Kalle.  2008.  IL 25 years Documentation - Kalle Könkkölä.
Independent Living Institute.  2008.  Independent Living Institute (ILI) Annual Report 2007.
Internet publication URL: www.independentliving.org/docs1/ilanrp2007.html
Independent Living Institute.  2008.  Independent Living Institute Verksamhetsberättelse 2007.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2007.html
Independent Living Institute.  2008.  Independent Living movement’s 25 years of existence in Sweden 2008 - Documentation.
Erdtman, Emil.  2008.  Ireland – ideological shift under way - interview with David Egan.
Westberg, Kenneth.  2008.  Latvia: “We want help to start a personal assistance project”.
Dr. Adolf Ratzka.  2008.  No shortcuts on the road to employment for persons with disabilities.
Internet publication URL: http://www.independentliving.org/ratzka20080708
Nybom, Martin, Pettersson Jens.  2008.  Personlig assistans - en billig och effektiv form av valfrihet, egenmakt och integritet - En jämförelse mellan kostnaderna för personlig assistans och kommunal hemtjänst.
Internet publication URL: http://www.independentliving.org/lsskostnad/ (In Swedish.)
Were Masakhwe, Phitalis.  2008.  Post-election violence and disabled people in Kenya; issues for reflection and action.
Internet publication URL: www.independentliving.org/docs7/masakhwe20080124.html
Erdtman, Emil.  2008.  Spain - Spaniards are fighting for more personal assistance.
Were Masakhwe, Phitalis.  2008.  Trials and tribulation of persons with disabilities in 2007 general election.
Internet Publication URL: www.independentliving.org/docs7/masakhwe20080128.html
Dr. Adolf Ratzka.  2008.  Vem sparar i LSS-kommitténs förslag?
Internet publication URL:http://www.independentliving.org/ratzka20081001
Stars of Hope Society, Ramallah, Palestine.  2008.  Workshop on Article 19 in the UN Convention on the Rights of Persons with Disabilities "living independently and being included in the community".
Report on the workshop on Article 19 “Living independently and being included in the community“ of the United Nations Convention on the Rights of Persons with Disabilities held in Ramallah, West Bank, Palestine on October 30, 2008. The organizers were Stars of Hope Society, Ramallah, which is an organization of women with disabilities, and Handicap International.
PDF icon StarsofHopeSociety20081115.pdf (115.64 KB)
2007
Anderberg, Peter.  2007.  Assistansutredningens delbetänkande - Hårdare tag mot användare av assistans"!.
Internet publikation URL: www.independentliving.org/docs7/anderberg200710b.html (In Swedish.)
Barnes, Colin.  2007.  'Direct Payments' for Personal Assistants for Disabled People: a key to independent living?
Background notes to a verbal presentation at the Centre for Independent Living, Dublin, Conference 'Independent Living 2007,' Croke Park Conference Centre, Dublin 3, Tuesday, June 5th 2007. Internet publication URL: http://www.independentliving.org/docs7/barnes20070605.html
Miles, M.  2007.  Disability and Deafness in East Asia: Social and Educational Responses, from Antiquity to Recent Times. A bibliography of European-language materials with introduction and some annotation. Revised Version 4.0, August 2007.
The bibliography introduces and lists 900 articles, chapters and books connected with social and educational responses to disability, deafness and mental disorders in China, Korea and Japan, from antiquity to 2007, some with annotation. (This work revises and greatly extends an earlier bibliography on the former History of Education website at the Catholic University of Nijmegen). Internet publication URLs: independentliving.org/docs7/miles200708.html and independentliving.org/docs7/miles200708.pdf
Miles, M.  2007.  Disability and Deafness, in the context of Religion, Spirituality, Belief and Morality, in Middle Eastern, South Asian and East Asian Histories and Cultures: annotated bibliography.
The bibliography introduces and annotates materials pertinent to disability, mental disorders and deafness, in the context of religious belief and practice in the Middle East, South Asia and East Asia. Internet publication URLs: www.independentliving.org/docs7/miles200707.html and www.independentliving.org/docs7/miles200707.pdf
Miles, Christine.  2007.  Imran's Djinn, and Theories of Epilepsy.
This article and the review comment were first published in “EPICADEC News” (from the Foundation Epilepsy Care Developing Countries, Leiden), October 2000, pp. 9-10, titled “Imran’s Djinn”. They are here reproduced with permission, after slight revision. The article concerns an Asian boy living in UK. His family had trouble using the health services, because of different concepts of Imran’s illness. One of Imran’s teachers met the family half way, respecting their beliefs and giving them time to digest a different approach to epilepsy and its treatment. A scientific reviewer comments on the story. Internet publication URL: www.independentliving.org/docs7/miles-christine2000.html
Dr. Adolf Ratzka.  2007.  Independent Living for people with disabilities: from patient to citizen and customer.
Keynote at the conference in Barcelona 22 October 2007 organized by the Catalan Party Convergéncia i Unió in commemoration of the 25th anniversary of The Spanish Law for Persons with Disabilities of 1982. Internet publication URL: www.independentliving.org/docs7/ratzka20071022.html
Independent Living Institute.  2007.  Independent Living Institute (ILI) Annual Report 2006.
Internet publication URL: www.independentliving.org/docs1/ilanrp2006.html
Independent Living Institute.  2007.  Independent Living Institute Verksamhetsberättelse 2006.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2006.html
Miles, M.  2007.  International Strategies for Disability-related Work in Developing Countries: historical, modern and critical reflections.
Revised version of a paper first published in the Zeitschrift Behinderung und Dritte Welt, 3/2003, pp. 96-106, and here reproduced with permission. International strategies concerned with disability in developing and transitional countries (DTC) are scrutinised critically, with an historical focus on beneficial traditions and practices in Asia and Africa, attesting the variety and complexity of social responses to disability. Internet publication URLs: www.independentliving.org/docs7/miles200701.html and www.independentliving.org/docs7/miles200701.pdf (112 KB).
PDF icon miles200701.pdf (111.63 KB)
Anderberg, Peter.  2007.  Kort om assistansberedningens delbetänkande med Stefan Pelc, egen arbetsgivare för sina assistenter.
Internet publikation URL: www.independentliving.org/docs7/anderberg200710a.html (In Swedish.)
Miles, M.  2007.  Parents of Deaf Afghan Children -- On The Air.
In these short scripts from a radio series, Afghan parents and a counsellor discuss issues of raising their deaf child in a rural area of Afghanistan, and several ways in which they can assist her in learning to communicate. An explanatory note follows, on the origin and purpose of the radio series. [Earlier versions of these scripts were circulated in 1984, 1986 and 1988, from the Mental Health Centre Peshawar, Pakistan.] Internet publication URL: www.independentliving.org/docs7/miles200705.html
Brown, Steven E.  2007.  The Pursuit of Radical Change: Perceptions and Realities of the Americans with Disabilities Act.
The author was invited to address an audience in Stockholm, Sweden, in June 2007, regarding the Americans with Disabilities Act and how it might relate to the implementation of an anti-discrimination law in Sweden. This paper is an attempt to shed light on the ADA in that context. Discussions include 1) how American laws are made, 2) historical background relating to the development of the ADA, 3) a discussion of the Act itself, 4) enforcement mechanisms, 5) impact of the ADA, and 6) future directions. Internet publication URL: www.independentliving.org/docs7/brown20070531.html
The Pan Africa Wheelchair Builders Association (PAWBA) and The Tanzanian Training Centre for Orthopaedic Technologists (TATCOT).  2007.  Report of 4th All Africa Wheelchair Congress, 17TH – 21ST September 2007, Uhuru Hotel, Moshi, Tanzania.
Internet publication URLs: www.independentliving.org/docs7/pawba-tatcot200709.html and www.independentliving.org/docs7/pawba-tatcot200709.pdf  
Miles, M.  2007.  Review - Epileptic Graphic.
Review of “Epileptic” by “David B.”, a remarkably frank account, in graphics and cartoon strip, of childhood and adulthood with an older brother having epilepsy, and a family doing the tour of cures in France of the 1960s and 1970s. Internet publication URL: www.independentliving.org/docs7/miles200704.html
[Anonymous].  2007.  Stockholm 2010.
Stockholm - världens mest tillgängliga huvudstad år 2010? Enligt Stockholms stads tillgänglighetsprojekt ska Stockholm bli världens mest tillgängliga huvudstad senast 2010. Vi vill bidra med information om hur långt konkurrensen har kommit.
Were Masakhwe, Phitalis.  2007.  The UN Day for Persons with Disabilities: How the world is unfair to people with disabilities.
Internet Publication URL: www.independentliving.org/docs7/masakhwe20071203.html
Smaaland, Jessica.  2007.  Vilken är din typ? - Erfarenheter av assistansanordnare
Internet publikation URL: www.independentliving.org/Erfarenheter-av-assistansanordnare.html och www.independentliving.org/assistanskoll/Erfarenheter-av-assistansanordnare.html
2006
Miles, M.  2006.  Children with spina bifida and hydrocephalus in Africa: can medical, family and community resources improve the life chances?
This much extended and revised article incorporates material from: M. Miles (2002) Children with hydrocephalus and spina bifida in East Africa: can family and community resources improve the odds? Disability & Society 17: 643-658, Carfax Publishing, Taylor & Francis. (The latter material is republished with permission.) The revised article concerns social responses to children with hydrocephalus and spina bifida in African countries, and the historical development of ways in which various resources have been used to improve their life chances, and overcome the disabling effects of these conditions. Internet publication URLs: www.independentliving.org/docs7/miles200609.html and www.independentliving.org/docs7/miles200609.pdf (239 KB).
PDF icon miles200609.pdf (238.41 KB)
Independent Living Institute.  2006.  Independent Living Institute (ILI) Annual Report 2005.
Internet publication URL: www.independentliving.org/docs1/ilanrp2005.html
Independent Living Institute.  2006.  Independent Living Institute Verksamhetsberättelse 2005.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2005.html
King, Audrey.  2006.  A Matter of Perception.
Hellman, Finn.  2006.  "Mediebilden av funktionshinder" – ett program om fördomar, förebilder och allt vad det nu är.
Lyssna-RealAudio (32:37 minuter, 30,6 MB). Vissa får inte namnskyltar som andra, vissa får inte några direkta frågor. Hör Cecilia Blanck och Kerstin Selin berätta om hur Sveriges Television särbehandlar intellektuellt funktionshindrade. Och lyssna till Anna Bergholtz, blind journalist som öppnar ögon - i det här programmet i form av en lista på tips till icke-funktionshindrade kollegor. Missa inte heller när Elisabet Höglund bemöter kritik som riktats mot ett av hennes reportage.Reporter och producent: Finn Hellman. Medverkande: Kerstin Sellin, Cecilia Blanck. Elisabeth Höglund, Anna Bergholtz. Teknik: Wei Wei Jin. (In Swedish.)
Dr. Adolf Ratzka.  2006.  Is Personal Assistance Relevant for Developing Countries?
Independent Living Institute, Berg Susanne, Hellman Finn.  2006.  Radio Independent Living.
Miles, M.  2006.  Signs of Development in Deaf South & South-West Asia: histories, cultural identities, resistance to cultural imperialism.
First published in 2001, this revised article extended and updated 2006-04 offers evidence and hypotheses for a short cultural history of deaf people, culture and sign language in South Asia and South West Asia, using documents from antiquity through 2005. A new appendix shows 110 items on deafness and sign language in the Arab countries of the Eastern Mediterranean and South West Asia. This is a further revised, extended and updated version of a chapter first published in: Alison Callaway (ed) Deafness and Development, University of Bristol, Centre for Deaf Studies, 2001. It is here republished with kind permission. Internet publication URL: www.independentliving.org/docs7/miles200604.html
Hellman, Finn.  2006.  Skit i normerna och börja lev – ett program om funktionshinder och sex.
Lyssna-MP3 (36:40 minuter, 34,4 MB), lyssna-RealAudio, download-RealAudio (19,8 MB). Programmet i text. Vi bjuder på recensioner av tre sexupplysande tidskrifter och besöker en kraschad kärleksmiddag. Men framförallt undersöker vi om ett mer avromantiserat synsätt på sex skulle gagna personer med funktionshinder. Hör varför sexologen Carol Queen rekommenderar funktionshindrade att ta efter Sado-masochister och lyssna till Stefan Reitersjös  piskor och tankar kring assistans och bondage. Reporter och producent: Finn Hellman. Medverkar gör även: Susanne Berg, Sebastian Ferrer, Carol Queen och Stefan Reitersjö. (In Swedish.) Internet publication URLs: www.independentliving.org/radio/skit-i-normerna.mp3, www.independentliving.org/radio/skit-i-normerna.ram, www.independentliving.org/radio/skit-i-normerna.rm och www.independentliving.org/radio/skit-i-normerna.html
Miles, M.  2006.  Social Responses to Disability & Poverty in Economically Weaker Countries. Research, Trends, Critique, and Lessons Usually Not Learnt. Annotated bibliography of modern and historical material.
The author introduces 250 articles and books showing social responses to disability and poverty in two-thirds of the world now and in history, with critical notes. He commends some intelligent approaches in the face of complexity and challenges simplistic slogans and official blah-blah. [An earlier version of the “Modern Materials” section first appeared in DisabilityWorld (Dec.05 - Jan.06), and is reproduced by kind permission, with revision and extension.] Internet publication URL: www.independentliving.org/docs7/miles200603.html

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