Library
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2010. Independent Living Institute Annual Report 2009.
Internet publication URL: www.independentliving.org/docs1/ilanrp2009.html
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2010. Independent Living Institute Verksamhetsberättelse 2009.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2009.html
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2010. L'assistance personnelle en Suède.
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2010. Provision of Videophones and Video Interpreting for the Deaf and Hard of Hearing, A Comparative Study of Video Interpreting (IV) Systems in the US, Norway and Sweden. Fafo Institute for Labour and Social Research, Norway. 
haualand20100924video-interpreting-systems.pdf (1022.69 KB)
Internet publication URL: www.independentliving.org/haualand20100924video-interpreting-systems
haualand20100924video-interpreting-systems.pdf (1022.69 KB).
2010. Stiftelsen Fonden till Rolf Bergfors minne. gil-stiftelsen-information-202103.pdf (103.8 KB) gil-stiftelsen-ansokningblankett-202103-w.pdf (145.5 KB)
gil-stiftelsen-information-202103.pdf (103.8 KB) gil-stiftelsen-ansokningblankett-202103-w.pdf (145.5 KB).
2010. Yttrande över ”Bortom fagert tal – Om bristande tillgänglighet som diskriminering” (Ds 2010:20). Stil, Stiftarna av Independent Living i Sverige, Independent Living Institute, Marschen för tillgänglighet. 20101123STIL_ILI_Marschen_yttrande_bortom_fagert_tal.pdf (144.71 KB)
20101123STIL_ILI_Marschen_yttrande_bortom_fagert_tal.pdf (144.71 KB).
2009. Creating a Disability Mythology.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, attempted to reframe how people think about the history of disability and current notions about disability pride. First published in International Journal Of Rehabilitation Research, Winter 1992. Internet publication URL: www.independentliving.org/docs3/brown92a.html.
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2009. DEAF PEOPLE, SIGN LANGUAGE & COMMUNICATION, IN OTTOMAN & MODERN TURKEY: Observations and Excerpts from 1300 to 2009. From sources in English, French, German, Greek, Italian, Latin and Turkish, with introduction and some annotation. miles200907.pdf (494.75 KB)
Internet publication URL: https://www.independentliving.org/miles200907.html
miles200907.pdf (494.75 KB).
2009. Disability, women and love.
Junko Asaka speaks candidly about her own experiences of being in love and being a woman with a disability, revealing how she came to terms with her own perceptions of herself. Internet publication URL: www.independentliving.org/toolsforpower/tools25.html
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2009. From institutions to Independent Living: the need of peer-support and education programs.
Internet publication URL: www.independentliving.org/jaillet2009institutions-to-independent-living
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2009. Independent Living Institute (ILI) Annual Report 2008.
Internet publication URL: www.independentliving.org/docs1/ilanrp2008.html
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2009. Independent Living Institute Verksamhetsberättelse 2008.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2008.html
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2009. Interview with Kalle Könkkölä November 2008. kalle_konkkola200811.pdf (31.76 KB)
Internet publication URL: https://www.independentliving.org/kalle_konkkola200811
kalle_konkkola200811.pdf (31.76 KB).
2009. Les politiques d'insertion pour les personnes en situation de handicap : des coûts compensés par une dynamique économique - modèle suédois et système français.
Internet publication URL: www.independentliving.org/jaillet2009politiques-dinsertion
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2008. Development System Locks Out the Disabled.
Internet Publication URL: www.independentliving.org/docs7/masakhwe200802.html
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2008. Från patient till kund - anförande vid konferensen Fritt val av hjälpmedel Stockholm 30 maj 2008.
Internet publikation URL: www.independentliving.org/ratzkafrittval (In Swedish.)
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2008. Glimpses of Disability in the Literature and Cultures of East Asia, South Asia, the Middle East & Africa. A modern and historical bibliography, with some annotation.
This annotated bibliography lists a selection of 130 novels, short stories, biographies, autobiographies, materials from philosophy, anthropology and folklore, and literary criticism, in which disability, deafness or mental disorders play some significant part, from East Asia, South Asia, the Middle East and Africa, available mostly in English or French. Internet publication URLs: independentliving.org/docs7/miles200807.html and independentliving.org/docs7/miles200807.pdf
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2008. HITTITE DEAF MEN IN THE 13th CENTURY BC: introductory notes with annotated bibliography. miles200809.pdf (107.78 KB) HITTITE_DEAF_MEN_IN_THE_13th_CENTURY_BC_traduction_francaise_4.pdf (637.26 KB)
The article introduces bibliographical evidence on deaf men working in palaces and temples of the Hittite Kingdom in Anatolia (now Turkey) during the 13th century BC, with further notes on signing and deaf people's activities in the ancient and medieval Middle East. With some additions and revision September 2009. Internet publication URLs: www.independentliving.org/docs7/miles200809.html and www.independentliving.org/files/miles200809.pdf.
miles200809.pdf (107.78 KB) HITTITE_DEAF_MEN_IN_THE_13th_CENTURY_BC_traduction_francaise_4.pdf (637.26 KB).
2008. Independent Living Institute (ILI) Annual Report 2007.
Internet publication URL: www.independentliving.org/docs1/ilanrp2007.html
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2008. Independent Living Institute Verksamhetsberättelse 2007.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2007.html
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2008. No shortcuts on the road to employment for persons with disabilities.
Internet publication URL: http://www.independentliving.org/ratzka20080708
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2008. Personlig assistans - en billig och effektiv form av valfrihet, egenmakt och integritet - En jämförelse mellan kostnaderna för personlig assistans och kommunal hemtjänst.
Internet publication URL: http://www.independentliving.org/lsskostnad/ (In Swedish.)
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2008. Post-election violence and disabled people in Kenya; issues for reflection and action.
Internet publication URL: www.independentliving.org/docs7/masakhwe20080124.html
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2008. Trials and tribulation of persons with disabilities in 2007 general election.
Internet Publication URL: www.independentliving.org/docs7/masakhwe20080128.html
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2008. Vem sparar i LSS-kommitténs förslag?
Internet publication URL:http://www.independentliving.org/ratzka20081001
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2008. Workshop on Article 19 in the UN Convention on the Rights of Persons with Disabilities "living independently and being included in the community". StarsofHopeSociety20081115.pdf (115.64 KB)
Report on the workshop on Article 19 “Living independently and being included in the community“ of the United Nations Convention on the Rights of Persons with Disabilities held in Ramallah, West Bank, Palestine on October 30, 2008. The organizers were Stars of Hope Society, Ramallah, which is an organization of women with disabilities, and Handicap International.
StarsofHopeSociety20081115.pdf (115.64 KB).
2007. Assistansutredningens delbetänkande - Hårdare tag mot användare av assistans"!.
Internet publikation URL: www.independentliving.org/docs7/anderberg200710b.html (In Swedish.)
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2007. 'Direct Payments' for Personal Assistants for Disabled People: a key to independent living?
Background notes to a verbal presentation at the Centre for Independent Living, Dublin, Conference 'Independent Living 2007,' Croke Park Conference Centre, Dublin 3, Tuesday, June 5th 2007. Internet publication URL: http://www.independentliving.org/docs7/barnes20070605.html
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2007. Disability and Deafness in East Asia: Social and Educational Responses, from Antiquity to Recent Times. A bibliography of European-language materials with introduction and some annotation. Revised Version 4.0, August 2007.
The bibliography introduces and lists 900 articles, chapters and books connected with social and educational responses to disability, deafness and mental disorders in China, Korea and Japan, from antiquity to 2007, some with annotation. (This work revises and greatly extends an earlier bibliography on the former History of Education website at the Catholic University of Nijmegen). Internet publication URLs: independentliving.org/docs7/miles200708.html and independentliving.org/docs7/miles200708.pdf
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2007. Disability and Deafness, in the context of Religion, Spirituality, Belief and Morality, in Middle Eastern, South Asian and East Asian Histories and Cultures: annotated bibliography.
The bibliography introduces and annotates materials pertinent to disability, mental disorders and deafness, in the context of religious belief and practice in the Middle East, South Asia and East Asia. Internet publication URLs: www.independentliving.org/docs7/miles200707.html and www.independentliving.org/docs7/miles200707.pdf
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2007. Imran's Djinn, and Theories of Epilepsy.
This article and the review comment were first published in “EPICADEC News” (from the Foundation Epilepsy Care Developing Countries, Leiden), October 2000, pp. 9-10, titled “Imran’s Djinn”. They are here reproduced with permission, after slight revision.
The article concerns an Asian boy living in UK. His family had trouble using the health services, because of different concepts of Imran’s illness. One of Imran’s teachers met the family half way, respecting their beliefs and giving them time to digest a different approach to epilepsy and its treatment. A scientific reviewer comments on the story. Internet publication URL: www.independentliving.org/docs7/miles-christine2000.html
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2007. Independent Living for people with disabilities: from patient to citizen and customer.
Keynote at the conference in Barcelona 22 October 2007 organized by the Catalan Party Convergéncia i Unió in commemoration of the 25th anniversary of The Spanish Law for Persons with Disabilities of 1982. Internet publication URL: www.independentliving.org/docs7/ratzka20071022.html
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2007. Independent Living Institute (ILI) Annual Report 2006.
Internet publication URL: www.independentliving.org/docs1/ilanrp2006.html
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2007. Independent Living Institute Verksamhetsberättelse 2006.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2006.html
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2007. International Strategies for Disability-related Work in Developing Countries: historical, modern and critical reflections. miles200701.pdf (111.63 KB)
Revised version of a paper first published in the Zeitschrift Behinderung und Dritte Welt, 3/2003, pp. 96-106, and here reproduced with permission.
International strategies concerned with disability in developing and transitional countries (DTC) are scrutinised critically, with an historical focus on beneficial traditions and practices in Asia and Africa, attesting the variety and complexity of social responses to disability. Internet publication URLs: www.independentliving.org/docs7/miles200701.html and www.independentliving.org/docs7/miles200701.pdf (112 KB).
miles200701.pdf (111.63 KB).
2007. Kort om assistansberedningens delbetänkande med Stefan Pelc, egen arbetsgivare för sina assistenter.
Internet publikation URL: www.independentliving.org/docs7/anderberg200710a.html (In Swedish.)
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2007. Parents of Deaf Afghan Children -- On The Air.
In these short scripts from a radio series, Afghan parents and a counsellor discuss issues of raising their deaf child in a rural area of Afghanistan, and several ways in which they can assist her in learning to communicate. An explanatory note follows, on the origin and purpose of the radio series. [Earlier versions of these scripts were circulated in 1984, 1986 and 1988, from the Mental Health Centre Peshawar, Pakistan.] Internet publication URL: www.independentliving.org/docs7/miles200705.html
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2007. The Pursuit of Radical Change: Perceptions and Realities of the Americans with Disabilities Act.
The author was invited to address an audience in Stockholm, Sweden, in June 2007, regarding the Americans with Disabilities Act and how it might relate to the implementation of an anti-discrimination law in Sweden. This paper is an attempt to shed light on the ADA in that context. Discussions include 1) how American laws are made, 2) historical background relating to the development of the ADA, 3) a discussion of the Act itself, 4) enforcement mechanisms, 5) impact of the ADA, and 6) future directions. Internet publication URL: www.independentliving.org/docs7/brown20070531.html
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2007. Report of 4th All Africa Wheelchair Congress, 17TH – 21ST September 2007, Uhuru Hotel, Moshi, Tanzania.
Internet publication URLs: www.independentliving.org/docs7/pawba-tatcot200709.html and www.independentliving.org/docs7/pawba-tatcot200709.pdf
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2007. Review - Epileptic Graphic.
Review of “Epileptic” by “David B.”, a remarkably frank account, in graphics and cartoon strip, of childhood and adulthood with an older brother having epilepsy, and a family doing the tour of cures in France of the 1960s and 1970s. Internet publication URL: www.independentliving.org/docs7/miles200704.html
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2007. Stockholm 2010.
Stockholm - världens mest tillgängliga huvudstad år 2010?
Enligt Stockholms stads tillgänglighetsprojekt ska Stockholm bli världens mest tillgängliga huvudstad senast 2010. Vi vill bidra med information om hur långt konkurrensen har kommit.
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2007. The UN Day for Persons with Disabilities: How the world is unfair to people with disabilities.
Internet Publication URL: www.independentliving.org/docs7/masakhwe20071203.html
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2007. Vilken är din typ? - Erfarenheter av assistansanordnare
Internet publikation URL: www.independentliving.org/Erfarenheter-av-assistansanordnare.html och www.independentliving.org/assistanskoll/Erfarenheter-av-assistansanordnare.html
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2006. Children with spina bifida and hydrocephalus in Africa: can medical, family and community resources improve the life chances? miles200609.pdf (238.41 KB)
This much extended and revised article incorporates material from: M. Miles (2002) Children with hydrocephalus and spina bifida in East Africa: can family and community resources improve the odds? Disability & Society 17: 643-658, Carfax Publishing, Taylor & Francis. (The latter material is republished with permission.) The revised article concerns social responses to children with hydrocephalus and spina bifida in African countries, and the historical development of ways in which various resources have been used to improve their life chances, and overcome the disabling effects of these conditions. Internet publication URLs: www.independentliving.org/docs7/miles200609.html and www.independentliving.org/docs7/miles200609.pdf (239 KB).
miles200609.pdf (238.41 KB).
2006. Independent Living Institute (ILI) Annual Report 2005.
Internet publication URL: www.independentliving.org/docs1/ilanrp2005.html
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2006. Independent Living Institute Verksamhetsberättelse 2005.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2005.html
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2006. A Matter of Perception.
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2006. "Mediebilden av funktionshinder" – ett program om fördomar, förebilder och allt vad det nu är.
Lyssna-RealAudio (32:37 minuter, 30,6 MB). Vissa får inte namnskyltar som andra, vissa får inte några direkta frågor. Hör Cecilia Blanck och Kerstin Selin berätta om hur Sveriges Television särbehandlar intellektuellt funktionshindrade. Och lyssna till Anna Bergholtz, blind journalist som öppnar ögon - i det här programmet i form av en lista på tips till icke-funktionshindrade kollegor. Missa inte heller när Elisabet Höglund bemöter kritik som riktats mot ett av hennes reportage.Reporter och producent: Finn Hellman. Medverkande: Kerstin Sellin, Cecilia Blanck. Elisabeth Höglund, Anna Bergholtz. Teknik: Wei Wei Jin. (In Swedish.)
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2006. Radio Independent Living.
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2006. Signs of Development in Deaf South & South-West Asia: histories, cultural identities, resistance to cultural imperialism.
First published in 2001, this revised article extended and updated 2006-04 offers evidence and hypotheses for a short cultural history of deaf people, culture and sign language in South Asia and South West Asia, using documents from antiquity through 2005. A new appendix shows 110 items on deafness and sign language in the Arab countries of the Eastern Mediterranean and South West Asia. This is a further revised, extended and updated version of a chapter first published in: Alison Callaway (ed) Deafness and Development, University of Bristol, Centre for Deaf Studies, 2001. It is here republished with kind permission. Internet publication URL: www.independentliving.org/docs7/miles200604.html
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2006. Skit i normerna och börja lev – ett program om funktionshinder och sex.
Lyssna-MP3 (36:40 minuter, 34,4 MB), lyssna-RealAudio, download-RealAudio (19,8 MB). Programmet i text. Vi bjuder på recensioner av tre sexupplysande tidskrifter och besöker en kraschad kärleksmiddag. Men framförallt undersöker vi om ett mer avromantiserat synsätt på sex skulle gagna personer med funktionshinder. Hör varför sexologen Carol Queen rekommenderar funktionshindrade att ta efter Sado-masochister och lyssna till Stefan Reitersjös piskor och tankar kring assistans och bondage. Reporter och producent: Finn Hellman. Medverkar gör även: Susanne Berg, Sebastian Ferrer, Carol Queen och Stefan Reitersjö. (In Swedish.) Internet publication URLs: www.independentliving.org/radio/skit-i-normerna.mp3, www.independentliving.org/radio/skit-i-normerna.ram, www.independentliving.org/radio/skit-i-normerna.rm och www.independentliving.org/radio/skit-i-normerna.html
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2006. Social Responses to Disability & Poverty in Economically Weaker Countries. Research, Trends, Critique, and Lessons Usually Not Learnt. Annotated bibliography of modern and historical material.
The author introduces 250 articles and books showing social responses to disability and poverty in two-thirds of the world now and in history, with critical notes. He commends some intelligent approaches in the face of complexity and challenges simplistic slogans and official blah-blah. [An earlier version of the “Modern Materials” section first appeared in DisabilityWorld (Dec.05 - Jan.06), and is reproduced by kind permission, with revision and extension.] Internet publication URL: www.independentliving.org/docs7/miles200603.html
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2005. Att leva ett självbestämt liv – berättelsen om en ung funktionshindrad man i Österrike.
Att leva ett självbestämt liv - berättelsen om en ung funktionshindrad man i Österrike. Lyssna-MP3-svensk (30:56 minuter, 29 MB), Lyssna-MP3-deutsch (28:49 minuter, 27 MB). Internet publication URLs: www.independentliving.org/radio/jochen-baumschlager.mp3, www.independentliving.org/radio/jochen-baumschlager-de.mp3, www.independentliving.org/radio/jochen-baumschlager-sv.html, www.independentliving.org/radio/jochen-baumschlager-en.html, www.independentliving.org/radio/jochen-baumschlager-de.html
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2005. Deaf People Living and Communicating in African Histories, c. 960s - 1960s.
New, much extended Version 5.01, incorporating an article first published in Disability & Society vol. 19, pp. 531-45; August 2004, titled then "Locating deaf people, gesture and sign in African histories, 1450s-1950s". The latter material is republished with permission of Carfax Publishing, Taylor & Francis. Visits 100 deaf people in 42 nations, across 1000 years of African history. From servants and schoolchildren to scientists, soldiers and statesmen, using every possible means of communication. Internet publication URL: www.independentliving.org/docs7/miles2005a.html
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2005. Development OUTREACH, July 2005.
Internet publication URL: www.independentliving.org/docs7/sarbib200507.html
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2005. Ensam kan jag bo". Jag kan inte det - bo ihopa - är ett radioprogram om fyra män som köpte det gamla kvarnhuset på Kaptensgatan i Råå och flyttade ut från gruppbostaden.
I början av 1993 köpte fyra män med begåvningshandikapp ett eget hem i en av Helsingborgs förorter. Huset köptes på öppna marknaden, byggdes om och inreddes gemensamt. Det var det första steget ut från ett kollektivt boende för killarna. I dag lever de som egna individer med personlig assistans. Det här är berättelsen om hur det gick till. Lyssna-MP3 (29:56 minuter, 28,1 MB), lyssna-RealAudio, download-RealAudio (14.3 MB). Programmet i text. Deltagare: Per Claésson, Lars Lindström, Martin Linnander, Lars Hempel och assistenter, samt Kent och Patricia Ericsson. Internet publication URLs: www.independentliving.org/radio/ensam-kan-jag-bo.mp3, www.independentliving.org/radio/ensam-kan-jag-bo.ram, www.independentliving.org/radio/ensam-kan-jag-bo.rm och www.independentliving.org/radio/ensam-kan-jag-bo.html.
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2005. Experiences with Successful Policy for Community-Based Services. Europe in Action 2005, Prague May 19 - 21.
Intenet publication URL: www.independentliving.org/docs7/grunewald200505.html
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2005. "Finns det gudinnor som är funktionshindrade"? är ett program om teater och 'empowerment'
Lyssna-RealAudio (34:53 minuter, download-RealAudio, 16,7 MB). Programmet i text. Deltagare: Lotti Filipsson, Annette Lundborg, Gella Åström, Barbara Slånhammar, Eva Stubbendorff, Karin Holmgren, Anette Jönsson och Clas Malmberg. Internet publication URLs: www.independentliving.org/radio/finns-det-gudinnor.rm, www.independentliving.org/radio/finns-det-gudinnor.ram, och www.independentliving.org/radio/finns-det-gudinnor.html
Radio Independent Living tittar in bakom kulisserna hos Fridakursen i Stockholm och Moomsteatern i Malmö. Fridakursen är en folkhögskolekurs för kvinnor med funktionshinder på Långholmens folkhögskola. Moomsteatern är än så länge daglig sysselsättning, en åtgärd inom Malmös omsorgsverksamhet. Detta är en del av sanningen. En annan del är att det handlar om teater. Teater som skapar gruppidentitet och stolta individer. Teater som ett demokratiskt läromedel både för samhället i stort och för var och en av oss.
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2005. Hunger Strike for Personal Assistance in France.
Lyssna-MP3-svensk (28:21 minuter, 26,6 MB). Lyssna-MP3-français (29:30 minuter, 27,7 MB). Programmet i text (In English, En français).
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2005. Hungerstrejk för personlig assistans i Frankrike.
Lyssna-MP3-svensk (28:21 minuter, 26,6 MB). Marcel Nuss i Strasbourg i Frankrike behöver assistans dygnet runt. Gaby, hans fru, arbetade i 20 år som hans assistent utan ledighet. Det behövdes ett sprucket äktenskap, hot om hungerstrejk och tillkomsten av en militant organisation av assistansbrukare tills regeringen i Paris kände sig tvungen att komma med en lösning. Lyssna-MP3-français (29:30 minuter, 27,7 MB). Programmet i text (In English, En français).
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2005. Independent Living émancipe les personnes en situation de handicap.
Development Outreach. World Bank. Juillet 2005. Internet publication URL: www.independentliving.org/docs7/ratzka200507f.html
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2005. Independent Living Empowers People with Disabilities.
In: Development Outreach. World Bank. July 2005. Reprinted from www1.worldbank.org/devoutreach/article.asp?id=317. The World Bank's magazine "Development Outreach" in a special edition presents articles from governments and international NGOs, illustrating different perspectives and approaches to facing the challenges of disability, and addressing the connection between disability and poverty. In his article about Independent Living Adolf Ratzka defines the concept and its implications for disability policy. Internet publication URL: www.independentliving.org/docs7/ratzka200507.html
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2005. Independent Living Institute (ILI) Annual Report 2004.
Internet publication URL: www.independentliving.org/docs1/ilanrp2004.html
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2005. Independent Living Institute Verksamhetsberättelse 2004.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2004.html
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2005. Korea: Disabled Hope for Infrastructure for Support.
The second article in a two-part series examining the problems of disabled people in Korea and possible solutions. Internet publication URL: www.independentliving.org/docs7/ji-young2005019.html
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2005. L'interview Marcel Nuss.
MP3-français (29:30 minuter, 27,7 MB). Lyssna-MP3-svensk (28:21 minuter, 26,6 MB). Transcript: på svenska, in English, en français). Internet publication URLs: www.independentliving.org/radio/marcel-nuss.mp3, www.independentliving.org/radio/marcel-nuss-fr.mp3, www.independentliving.org/radio/marcel-nuss-sv.html, www.independentliving.org/radio/marcel-nuss-en.html, och www.independentliving.org/radio/marcel-nuss-fr.html
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2005. Martin Luther and Childhood Disability in 16th Century Germany: What did he write? What did he say?
Revised and extended version of a paper that was first published with copyright by The Haworth Press, Inc., Binghampton, NY 13904-1580, in the Journal of Religion, Disability & Health (2001), vol. 5 (4) pp. 5-36, and is here reproduced with permission.
Martin Luther’s ideas and theological writings on deaf or disabled children and adults, and his personal and practical experiences in this field are shown. Textual evidence gives a different picture from what is commonly believed, and is interesting both for Luther’s own times and the modern world. Internet publication URL: www.independentliving.org/docs7/miles2005b.html
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2005. När man behöver hjälp så ringer man, är ett program om boendeservice och dess historia i Sverige.
Lyssna-MP3 (22:44 minuter, 21,3 MB), lyssna-RealAudio, download-RealAudio (14.7 MB). Internet publication URLs: www.independentliving.org/radio/nar-man-behover-hjalp.mp3, (In Swedish.)
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