Holland, Ira E
1995. Consumer Directed Personal Care Assistance - Lobbying Against Government Cutbacks.
Ira Holland outlines the strategy Concepts of Independence used in lobbying against 1995 government cutbacks in home care services. Internet publication URL: www.independentliving.org/docs4/holland95.html
Brown, Steven E, Gonzales Brown Lillian
1995. Death & Life.
Dr. Steven E. Brown and Gonzales Brown, Co-Founders of the Institute on Disability Culture, in the United States, has written a biographical description of a friend Danny Blake, who lives with Cerebral Palsy and AIDS and provides a cogent analysis of living and dying with a disability. First published in "Mainstream: Magazine of the Able-Disabled," September 1995. Internet publication URL: www.independentliving.org/docs3/brown95b.html.
1995. The Disability Movement and its History.
Pfeiffer, resident scholar in the Center on Disability Studies at the University of Hawaii at Manoa, past president of the Society for Disability Studies, present editor of Disability Studies Quarterly and an early leader of the U.S. disability rights movement while a full time faculty member at Suffolk University in Boston, explores the history of the American disability rights movements through some of its most classic texts. First published as "Hip Crip 101." Mainstream: Magazine of the Able-Disabled, Dec.-Jan. 1994-95. Internet publication URL: www.independentliving.org/docs3/pfeiffer95.html
Brown, Steven E
1995. I Was Born (in a Hospital Bed) -- When I Was Thirty-One Years Old.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, gave a speech, later reworked into an article, in which he describes how he came to accept and even take pride in his status as a person with a disability and a disability activist, as well as other life activities, such as being a parent. First published in "Disability & Society," 1995. Internet publication URL: www.independentliving.org/docs3/brown95c.html.
Dr. Adolf Ratzka
1995. Institutioner eller Personlig Assistans: Ett exempel från Costa Rica.
Är institutioner verkligen bästa platsen för äldre att tillbringa sina sista år? Är det verkligen den bästa uppväxten för barn? Internet publication URL: www.independentliving.org/docs5/InstitutionsCostaRicaSv.html (In Swedish.)
1995. Long-term Care Insurance' and Its Impact on the Population.
For many people with disabilities, the term "Long-Term Care Insurance" suggests that self-determination is in jeopardy. Experience justifies these anxieties, and reality is much worse. Internet publication URL: www.independentliving.org/docs5/paGermany.html
1995. Opening universities to students with disabilities: University of Cape Town, South Africa.
The Disability Unit at the University of Cape Town, South Africa. aims to 'mainstream' rather than follow the 'welfare model' and to dismantle the many barriers that inhibit students and staff who have disabilities or chronic illnesses, from participating equally and fully in all aspects of the University. Internet publication URL: www.independentliving.org/docs5/UCapeTown95.html
1995. Personal Assistance for Independent Living Programme (PAIL), Republic of South Africa.
The immediate objective of the PAIL Programme is that by the end of the project period a minimum of five hundred severely disabled people per year per operational region will have achieved greater independence than in 1995 in South Africa. Internet publication URL: www.independentliving.org/docs5/ProposlPASouthAfrica.html
Economic Social Commission for Asia the Pacific, United Nations
1995. Promotion of Non-Handicapping Physical Environments for Disabled Persons: Guidelines.
As part of a series of regional initiatives to translate into action the goals and objectives of the Asian and Pacific Decade of Disabled Persons, ESCAP in 1993 embarked on a project to promote non-handicapping environments for persons with disabilities and elderly persons in the Asian and Pacific region. This publication of comprehensive guidelines for the promotion of non-handicapping environments is an activity under the project. Internet publication URL: www.independentliving.org/docs2/escap1995.html
Agerblad, Annika, Dr. Adolf Ratzka
1995. Rätten till föräldraskap.
En konferens arrangerad av Handikappombudsmannen och STIL, med stöd från Allmänna Arvsfonden, Stockholm 28-29 augusti 1995. Internet publication URL: www.independentliving.org/docs3/ratt95.html (In Swedish.)
Gill, Carol J
1995. Research on urban planning and architecture for disabled persons in Iran - Establishing design criteria.
Dr. Carol J. Gill, Ph.D., Assistant Professor of Human Development and Director of the Chicago Center for Disability Research, Department of Disability and Human Development at the University of Illinois at Chicago, provides an excellent perspective of why the need for a culture, what it is, and what it means for those of us who feel the need to be categorized in it. Internet publication URL: http://www.independentliving.org/docs3/gill1995.html
Longmore, Paul K
1995. The Second Phase: From Disability Rights to Disability Culture.
Longmore, Professor of History and Director of the Institute on Disability at San Francisco State University, describes how the American disability rights movement moved in the mid-1990s from a focus on rights to a quest for collective identity. First published in DISABILITY RAG & RESOURCE, Sept./Oct. 1995. Internet publication URL: www.independentliving.org/docs3/longm95.html
Mattson Prince, Jane, Manley M, Whiteneck Gale G
1995. Självstyrd gentemot förmedlad personlig assistans för individer med högt sittande tetraplegi.
Forskningssammandrag: Att, inom en begränsad befolkningsgrupp som består av människor med omfattande funktionsnedsättningar fastställa huruvida å ena sidan användandet av förmedlad vårdpersonal och å andra sidan personligt anställda, tränade, och betalda assistenter korrelerar med upplevelsen av förbättrad livskvalité och hälsotillstånd samt lägre kostnader. Internet publication URL: www.independentliving.org/docs3/smap95sv.html (In Swedish)
Dr. Adolf Ratzka
1995. Supporting families in keeping disabled family members at home: Swedish policy instruments.
In Sweden, a disabled family member is likely to represent a burden on the family. Yet the argument can be made that policy instruments, such as those available in Sweden, lessen the impact of a disability on the family and the community. Internet publication URL: www.independentliving.org/docs5/InstitutionsCostaRica.html
1995. Tricycle Production Manual - Vehicle design for people with disabilites in developing countries.
The tricycle is designed primarily for disabled people in Asia, since the result is a joint effort between four Asian organizations. The Tricycle Production Manual has been developed for basically skilled and equipped workshops in developing countries. Internet publication URL: www.independentliving.org/docs5/tricycle.html
Dr. Adolf Ratzka
1994. A brief survey of studies on costs and benefits of non-handicapping environments.
Presentation at the International Congress on Accessibility in Rio de Janeiro, Brazil, June 1994. Internet publication URL: www.independentliving.org/cib/cibrio94access.html
1994. Eugenics and Disability Discrimination.
David Pfeiffer presents and discusses the many statutory ways in which the civil rights of disabled people were, and still are, violated through state and local government laws in the United States. Internet publication URL: www.independentliving.org/docs1/pfeiffe1.html
1994. The Fishing is Free.
Jane Field, a Canadian singer and songwriter with a disability, uses humor in her tales of disability. First recorded in 1994 on a music cassette titled, "The Fishing is Free" (available from the Next Renaissance: a catalog of disability art, culture & collectibles, 2260 Sunrise Point Rd., Las Cruces, NM 88011). Internet publication URL: www.independentliving.org/docs3/field1994.html
Dr. Adolf Ratzka
1994. Independent Living and the family: The context of Costa Rica and Sweden.".
In the context of the family, Independent Living implies participation in all areas of human life, especially loving relationships, sexuality and parenthood. Internet publication URL: www.independentliving.org/docs5/FamilyCRSweden.html
Dr. Adolf Ratzka
1994. Independent Living och familjen: ur Costa Ricanskt och Svenskt perspektiv." .
För begreppet familjen innebär konceptet om Independent Living deltagande i ett av de viktigaste områdena i livet; nämnligen kärleksrelationen, sexuallivet och föräldraskapet. Internet publication URL: www.independentliving.org/docs5/FamilyCRSwedenSv.html (In Swedish.)
1994. What is Community Based Rehabilitation (CBR)?
This paper tells why CBR is needed, and why there are many different views about what CBR is and how it should be done. It was written for the International League of Societies for Persons with Mental Handicap (now "Inclusion International"). It uses language that is easy to read. Internet publication URL: www.independentliving.org/docs2/milesm1994.html
CIB (International Council for Building Research)
1993. About CIB, and Contents of Documents.
This document presents the objectives, membership parameters, and activities of CIB, which stands for an abbreviation of the French title of the International Council for Building Research, Studies and Documentation, as well as links to proceedings from the six international CIB seminars. Internet publication URL: www.independentliving.org/cib/index.html
1993. The Ballad of Josie Evans.
An eloquent, heart-wrenching story of a woman who is abandoned by her government and everyone else to a solitary, but dignified, life and death in a nursing home. Internet publication URL: www.independentliving.org/docs3/evans93.html
Finkelstein, Vic, Morrison Elspeth
1993. Broken Arts And Cultural Repair: The Role Of Culture In The Empowerment Of Disabled People.
A discussion of how human beings come together in groups to confirm their identity and how disability arts and culture enable people with disabilities to find their way into mainstream culture. Morrison, former editor of Disability Arts in London magazine, is freelance writer, theatre director, and author of the Independent Theatre Council's book on Theatre Practice and Disability. Finkelstein, a psychologist by training, was tutor in Disability Studies at the Open University, now Visiting Senior Research Fellow in the Centre for Disability Studies, Leeds University. Both authors have a disability. Internet publication URL: www.independentliving.org/docs3/finkelstein93a.html
1993. From Poster Child to Protester.
Former "Poster Child", Laura Hershey, criticizes and protests fundraising telethons such as Jerry Lewis' Muscular Dystrophy event, claiming they use pity and bigotry and insult people with disabilities. Internet publication URL: www.independentliving.org/docs4/hershey93.html
Ministry of Social Affairs, Sweden
1993. Gesetz zum Assistenzbudget.
("Assistansersättning" - "Compensation for Assistance.") Ursprünglicher Gesetzestext von 1993, der einen bestimmten Personenkreis zu Geldleistungen für persönliche Assistenz von der schwedischen Sozialversicherung berechtigt.Das Gesetz wurde seit seinem Inkrafttreten am 1.1. 1994 mehrmals abeändert, was Einschränkungen aber auch vereinzelte Verbesserungen für Assistenznehmer mit sich führte. (Für die Qualität der Ü bersetzung ist das schwedische Sozialministerium und nicht das Independent Living Institute verantwortlich.) Internet publication URL: www.independentliving.org/docs6/schweden199311.html (In German.)
Council of Europe
1993. Integration of People with Disabilities: Accessibility - Universal Design.
The Council of Europe recommends disability policy guidelines for Member States and is currently preparing revolutionary accessibility guidelines: a specific recommendation to incorporate the principles of Universal Design (design that responds equally to the needs of everyone), including accessibility, into the curricula of all vocations that work on the built environment. Internet publication URL: www.independentliving.org/docs3/coeacc.html
1993. John Hessler, Pioneer in Independence for Disabled People, Dies.
John Hessler revolutionized the US's attitudes toward disabled people - first by entering the University of California, Berkeley, and later by helping create the Center for Independent Living. Internet publication URL: www.independentliving.org/docs4/campos93.html.
1993. Lag om införande av LSS, lagen (1993:387) om stöd och service).
Internet publication URL: www.independentliving.org/docs3/stillss.html (In Swedish.)
Dr. Adolf Ratzka, Larsson Anna
1993. Peer Support - En sjöman ber inte om medvind - han lär sig segla.
Internet publication URL: www.independentliving.org/docs5/peersupport.html (In Swedish.)
Dr. Adolf Ratzka
1993. Personal Assistance and Disability Pride.
Adolf Ratzka reflects on disability pride through personal experiences, and the neccessity of personal assistance services to achieve independence and pride. Internet publication URL: www.independentliving.org/docs4/pride93.html
Dr. Adolf Ratzka
1993. Personlig assistans och Disability Pride.
Adolf Ratzka pratar om "disability pride" genom hans egna erfarenheter och behovet av personlig assistans för att kunna känna sig oberoende och stolt. Internet publication URL: www.independentliving.org/docs4/pride93b.html (In Swedish.)
1993. The Power of Potential of People with Disabilities.
Fadila Lagadien looks at the social, attitudinal and physical barriers that handicap a person with a disability, resulting in their unacknowledged and unused potential. Internet publication URL: www.independentliving.org/docs4/lagadien.html
1993. Standard Rules on the Equalization of Opportunities for Persons with Disabilities.
See documents by Dimitris Michailakis (http://www.independentliving.org/libauth.html#Michailakis) for reports about compliance with the United Nations Standard Rules. A/RES/48/96, 85th plenary meeting. Internet publication URL: www.independentliving.org/standardrules/StandardRules1.html
Dr. Adolf Ratzka
1993. The user cooperative model in personal assistance: The example of STIL, the Stockholm Cooperative for Independent Living.
Origins and description of the first European personal assistance user cooperative, the STIL (Stockholm Cooperative for Independent Living) project as of 1993 which served as model for the Swedish Personal Assistance Reform of 1994 by STIL's founder. Internet publication URL: www.independentliving.org/docs5/ratzka199301.html.
Dr. Adolf Ratzka
1993. Vi behöver alternativ till färdtjänsten!.
STIL-modellen som visade sig så framgångsrik på personlig assistans-området kan med fördel användas även på andra områden som t ex individuella resor. Artikeln publicerades i DN i mars 1993. Internet publication URL: www.independentliving.org/taxi/ar199303.html (In Swedish.)
Tsai, Joseph Y B
1992. Access legislation and barrier-free environments in Taiwan.
Internet publication URL: www.independentliving.org/cib/cibharare18.html
1992. Access legislation and enforcement mechanisms.
Internet publication URL: www.independentliving.org/cib/cibharare12.html
1992. Accessibility in South Africa.
Neville Cohen, of Chairman Industries in South Africa, notes in his paper that access and disability are broad terms, and that three steps should be taken prior to applying for legislation: to define requirements, to select a knowledgeable task force, and to locate influential advocates in the community. A history of building regulations in South Africa is given, followed by questions and answers concerning accessibility and national and cultural differences. Internet publication URL: www.independentliving.org/cib/cibharare5.html
1992. Accessibility legislation in Zambia.
Febby Chizima, of ZAFOD in Lusaka, Zambia, outlines the lack of accessibility in Zambia in public buildings, housing, and street environments. The need for awareness and legislation in these areas is also discussed. Internet publication URL: www.independentliving.org/cib/cibharare4.html
Abdou, Safaa Issa M
1992. Accessible, adaptable low-cost housing in Egypt.
In: "Report of the Fifth International Expert Seminar on Building Non-Handicapping Environments: Access Legislation and Design Solutions, Harare, Zimbabwe, January 16-18, 1992." Internet publication URL: www.independentliving.org/cib/cibharare9.html. In Internet publication URL: www.independentliving.org/cib/cibharare1.html#anchor52685 Masemene, Moses
1992. Constitutionalism and access legislation.
CIB W84 Report Harare: Access Design and Legislation, 1992. Constitutions enshrine fundamental human rights, therefore disability rights denote access to fundamental human rights as we who have disabilities have got to enjoy the same rights as other people. Internet publication URL: www.independentliving.org/cib/cibharare11.html
1992. Essentials of a comprehensive accessibility legislation.
Javad Hassan, President of the Association of Physically Disabled Persons, Islamabad, Pakistan, emphasizes that social integration of disabled people into society is dependant on their ability to physically participate in it. He describes the components for a strong legal instrument to ensure that all buildings and facilities meant for use by the general public would be usable and safe for all, which includes effective enforcement and implementation clauses and which provides for legal proceedings in case of non-compliance. Internet publication URL: www.independentliving.org/cib/cibharare8.html
Disability Rights Education Defense Fund
1992. Excerpts from Preserving disability civil rights: a step-by-step guide to taking action.
This excerpt from the Disability Rights and Education Defense Fund (located in Berkeley, California) civil rights action manual is concerned with the need to make the public aware of your issue and the different ways in which this can be done.
1992. Introducing access legislation for architects and planners in Mauritius.
Avinash Bhandari, of the Ministry of Works in Mauritius, describes features to be included in the construction of buildings in order to ensure accessibility and safety for as broad a segment of the population as possible. He outlines the current state of accessibility in Mauritius and how it could be improved. Internet publication URL: www.independentliving.org/cib/cibharare2.html.
1992. Manufacturing assistive devices in developing countries.
Independence through Mobility by Ralf Hotchkiss is a book about the nuts and bolts of starting a shop and producing the Hotchkiss manual wheelchair with a minimum of equipment, materials, skills and capital in Third World countries. Internet publication URL: www.independentliving.org/toolsforpower/tools32.html
Hagan, Ben E, Wellington H N A
1992. Opportunities and constraints for access legislation in Ghana.
This paper by E. Ben Hagan and H. N. A. Wellington of the Building & Road Research Institute, Dept. of Architecture, University of Science & Technology, Kumasi, Ghana, analyses existing socio-cultural and institutional arrangements in Ghana in order to provide a basis for proposing a strategy to achieve access legislation within the prevailing development context. Internet publication URL: www.independentliving.org/cib/cibharare7.html
1992. Peer counseling: an overview.
Internet publication URL: www.independentliving.org/toolsforpower/tools22.html
Dr. Adolf Ratzka
1992. Personlig Assistans: Ett försök till en operationell definition.
"Personlig" assistans betyder att man som brukare utövar maximal kontroll över hur servicen organiseras och skräddarsyr den enligt sina individuella behov, sin förmåga, livssituation och sina strävanden. Internet publication URL: www.independentliving.org/toolsforpower/tools15b.html (In Swedish.)
1992. Promotion of access legislation in Ghana.
Internet publication URL: www.independentliving.org/cib/cibharare13.html
Council of Europe
1992. Recommendation No. R(92)6 of the Committee of Ministers to Member States on a Coherent policy for people with disabilities.
The Council of Europe recommends disability policy guidelines for Member States in such areas as: education, vocational training, employment, social integration, etc. This recommendation was adopted by the Committee of Ministers on 9 April 1992 at the 474th meeting of the Ministers' Deputies. Internet publication URLs: www.independentliving.org/docs3/coe92r6.html and www.independentliving.org/docs3/coe92r6.pdf
CIB (International Council for Building Research)
1992. Report of the Fifth International Expert Seminar on Building Non-Handicapping Environments: Access Legislation and Design Solutions, Harare, Zimbabwe, January 16-18, 1992.
This portion of the report from the Fifth International Expert Seminar on Building Non-Handicapping Environments: Access Legislation and Design Solutions, held in Harare, Zimbabwe, includes a table of contents with links to papers and discussions, a presentation of the organizers, and opening addresses by the Hon. F.L. Chitauro, Dep. Minister of Labour, Manpower Planning and Social Welfare, Zimbabwe, by Mr. Alexander Phiri, Chairperson, Zimbabwe Federation of Disabled, and by Professor Sven Thiberg, CIB W84 Coordinator, Royal Institute of Technology, Sweden. Internet publication URL: www.independentliving.org/cib/cibharare1.html
1992. Swaziland National Association of the Disabled.
Phillip Dhlamini of Swaziland briefly reports about progress being made by the Swaziland National Association of the Disabled. The organization was officially registered as an organization of disabled people in 1991. Drafted legislation is given pertaining to accessibility, human rights, equal opportunities, and Independent Living. In: Report of the CIB Expert Seminar on Building Non-Handicapping Environments Harare, Zimbabwe, January 16-18, 1992. Internet publication URL: www.independentliving.org/cib/cibharare6.html.
Dr. Adolf Ratzka
1992. Tools for Power: A Resource Kit for Independent Living.
The aim of the "Resource Kit" is threefold: (1) to empower disabled individuals and organizations of disabled persons, (2) to serve as a handbook for professionals, and (3) to aid NGO's in their disability work. It was a project of the Independent Living Committee of Disabled Peoples' International.
Dr. Adolf Ratzka
1992. Towards an operational definition of Personal Assistance.
"Personal" assistance means that users exercise the maximum control over how services are organised and custom-design their services according to their individual needs, capabilities, life circumstances and aspirations.
1992. UWZ efforts in improving accessibility in Zanzibar Stone Town.
This report by H. Khalfan to the CIB Expert Seminar on Building Non-Handicapping Environments, Harare 1992, relates why Zanzibar Stone Town is inaccessible for persons with disabilities. He presents steps being taken to improve the situation. Internet publication URL: www.independentliving.org/cib/cibharare10.html
Philippen, D P
1991. Access legislation.
Internet publication URL: www.independentliving.org/cib/cibbudapest25.html
1991. Access legislation in the Czech Republic.
Internet publication URL: www.independentliving.org/cib/cibbudapest16.html
1991. Access to services and facilities in the Canadian Parks Service.
Robert Fern of The Canadian Parks Service (CPS) in his presentation at the CIB Seminar in Budapest, 1991, describes the Canadian Parks Service's implementation of accessibility measures for disabled persons in the Canadian National Parks. The CPS Strategy and Action Plan emphasizes the need for persons who have hearing, visual and mobility impairments to have equal and, where possible, integrated access to park and site themes, recreational opportunities and essential services. Internet publication URL: www.independentliving.org/cib/cibbudapest8.html
1991. Accessibility legislation - 1991.
Jon Christophersen, of the Building Research Institute in Norway, describes accessibility legislation, implementation, incentives for implementation and problems encountered in Norway. Two studies were carried out, one concerning access legislation in the building regulations and the other concerning life-span dwelling criteria. The results showed that accessibility in Norway could be improved through better workmanship and better control on site, improved legislation, and changing building practice. Internet publication URL: www.independentliving.org/cib/cibbudapest4.html
Dunn, Peter A
1991. Accessible housing legislation and policies: A framework for future policy development.
This paper focuses on the range of policy and legislative issues which need to be tackled in order for countries to promote a barrier-free housing environment, while looking at housing rights and civil rights of people with disabilities. Internet publication URL: www.independentliving.org/cib/cibbudapest6.htm
1991. Adaptation of a theatre in Krakow, Poland.
In May 1991, the 19th century Slowackiego Theatre in Krakow, Poland was scheduled to host the International Conference on Security and Cooperation. This paper discusses adaptations made to parts of the building so that the needs and interests of people with disabilities could better be served. Internet publication URL: www.independentliving.org/cib/cibbudapest15.html
1991. The Americans With Disabilities Act (ADA) of 1990: An activist's perspective.
In her presentation, Marilyn Golden of the Disability Rights and Education Defense Fund, U.S.A., talks about the series of laws against discrimination that the disability movement in the US has achieved, their limitations, and how they are enforced. An account is given of the extensive grass-roots activities and coalition building which took place prior to the enactment of the ADA of 1990. Internet publication URL: www.independentliving.org/cib/cibbudapest11.html
Eilenberg, Ian M
1991. Australia takes tentative steps to take up the challenge of persons with disabilities.
This report by Ian M. Eilenberg, Victorian University of Technology, RMIT, Australia describes legislative steps taken in Australia to improve building regulations in order to promote accessibility and a "non-handicapping" environment. Internet publication URL: www.independentliving.org/cib/cibbudapest7.html