Human Rights

Personal Assistance empowers persons with disabilities and benefits the national economy

English
Dr. Adolf Ratzka.  2012.  Personal Assistance empowers persons with disabilities and benefits the national economy.
Persons with the exactly the same disabilities can have completely different lives depending on where they live. In some countries there are policies and attitudes that allow us to develop and follow our interests, get education and work, meet friends, marry and have children. In other countries, people with disabilities may have to live with their parents or in institutions, with little contact with the outside world, with no or only simple work.

The Independent Living movement paved the way: Origins of personal assistance in Sweden

English
Dr. Adolf Ratzka.  2012.  The Independent Living movement paved the way: Origins of personal assistance in Sweden. Perspectives on personal assistance.
Chapter 2 Perspectives on personal assistance, Brusén Peter, Flyckt Karin (ed.), Gothia Förlag 2012 Adolf Ratzka Benign oppression Social policy is rarely made by the people whose lives it affects. Rather, it is formulated based on political considerations by politicians and bureaucrats who, by necessity, have limited knowledge of the conditions of other people’s lives – especially regarding those of us with extensive disabilities who depend on other people to survive and require practical assistance with activities of daily living such as getting out of bed, dressing, personal hygiene and bathing. The greater our dependence, the more others assume they are entitled to have opinions about our needs and the less those of us affected have a say in how we want to live our lives and what social resources we need. As a result, solutions and services often make us more dependent on others rather than independent.

Swedish EU parliamentarians urge more personal assistance in Europe

English
[Anonymous].  2011.  Swedish EU parliamentarians urge more personal assistance in Europe. GP.

The October 1  2011 article Dismantle Europe's inhumane institutions in the daily newspaper Göteborgsposten urges European countries to provide people with disabilities with personal assistance and assistive devices, rather than relegating them to institutions.

According to the Swedish Members of the European Parliament at least 1.2 million people live in institutions in the EU and Turkey, which they consider to be contrary to the UN Convention on the Rights of Persons with Disabilities.

Back To Basics - Hampshire Center for Independent Living's Expert Seminar on Independent Living

English
Mason, Philip.  1998.  Back To Basics - Hampshire Center for Independent Living's Expert Seminar on Independent Living.

Keynote at the Expert Seminar
organized by the Hampshire Center for Independent Living
in Southampton, May 30 -31 1998

by Philip Mason

 


I am privileged and overawed to be the first speaker in this conference. A conference which is looking at the future in respect of those well known phrases 'Independent Living' and 'Direct Payments'. It is a privilege and also a responsibility because I need to strike the right note. I need to encourage but also to challenge.

So where do we start? Do we talk about the past; look at the present, and then think about the future?

We ought to do a little bit of all three and it is my job to start the ball rolling.

Hunger Strike for Personal Assistance in France

English
Abadia, Regine, Sallem Ryadh.  2005.  Hunger Strike for Personal Assistance in France.

På svenska | En français

 Interview: Regine Abadia and Ryadh Sallem

 

You’re listening to Radio Independent Living documenting disabled people‘s struggle for self-determination

For years Marcel Nuss has been fighting for his right to live like everybody else -, in the community and not in a residential institution. He had to fight, because he is disabled and uses a ventilator 24 hrs a day, because he needs personal assistance - and because he lives in France where people like him are still not considered to be ready for a life outside of hospital-like institutions.

"Motstånd – en plikt"! Ett radioprogram om politiskt motstånd och civil olydnad

Swedish
Berg, Susanne.  2004.  "Motstånd – en plikt"! Ett radioprogram om politiskt motstånd och civil olydnad.

 

Motstånd – en plikt! Ett program om politiskt motstånd och civil olydnad. 2004-04. lyssna Lyssna-MP3 (26 minuter, 24,4 MB). Internet publication URLs: www.independentliving.org/radio/civilolydnad2002.mp3 och www.independentliving.org/radio/civilolydnad2002.html

Hungerstrejk för personlig assistans i Frankrike

Swedish
Abadia, Regine, Sallem Ryadh.  2005.  Hungerstrejk för personlig assistans i Frankrike.

In English | En français

 

Intervju:
Regine Abadia och Ryadh Sallem

 

I åratal fick Marcel Nuss kämpa för sin rätt att leva som andra, ute i samhället istället för att vara inlåst på institution. Han fick kämpa därför att han har ett funktionshinder och använder ventilator dygnet runt, han fick kämpa för att han behöver personlig assistans  - och för att han är bosatt i Frankrike där människor med dessa behov inte anses kapabla att leva utanför sjukhusliknande anstalter.

Excerpts from Preserving disability civil rights: a step-by-step guide to taking action

English
Disability Rights Education Defense Fund.  1992.  Excerpts from Preserving disability civil rights: a step-by-step guide to taking action.

På svenska

This is the manual you have always wanted to consult. Have a look at the table of contents to whet your appetite:

Fundraising, putting on an event, writing proposals, talking to lenders and donors, media/public relations, press release, letters to the editor, bringing television to your event, getting an interview in the media, politicking the politicians, community organizing, starting a small group, creating coalitions, educating the community, and much more.

The Craving of the Benevolent

English
Berg, Susanne.  2003.  The Craving of the Benevolent.

Susanne Berg and her catSusanne Berg has been actively involved in the Swedish disability movement since the mid-1980s. She lectures, writes and speaks on a range of subjects from disability history and awareness to accessibility to the physical environment. Susanne sees column writing as therapy, loves her cat and hates 1111descriptions like this.

 Listening to the angry argument between my Swiss friend and our table neighbour I try to look undisturbed; cool, calm and aloof. They are arguing about me, or rather the right to cut my sausages.

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