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Found 265 results

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2009
Independent Living Institute.  2009-09.  Independent Living Institute (ILI) Annual Report 2008.

Internet publication URL: www.independentliving.org/docs1/ilanrp2008.html

Independent Living Institute.  2009-09.  Independent Living Institute, ILI Verksamhetsberättelse 2008.

Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2008.html

Miles, M.  2009-07.  DEAF PEOPLE, SIGN LANGUAGE & COMMUNICATION, IN OTTOMAN & MODERN TURKEY: Observations and Excerpts from 1300 to 2009. From sources in English, French, German, Greek, Italian, Latin and Turkish, with introduction and some annotation.

Internet publication URL: http://www.independentliving.org/miles200907.html

Ratzka, Adolf.  2009-04-08.  Interview with Kalle Könkkölä November 2008.

Internet publication URL: http://www.independentliving.org/kalle_konkkola200811

Jaillet, C.  2009.  La place des aidants familiaux dans le système d'assistance personnelle suédoise.
Jaillet, C.  2009.  Les politiques d'insertion pour les personnes en situation de handicap : des coûts compensés par une dynamique économique - modèle suédois et système français.

Internet publication URL:  www.independentliving.org/jaillet2009politiques-dinsertion

Jaillet, C.  2009.  De la dé-institutionnalisation à la vie autonome : la nécessité des systèmes de formations et de la pair-émulation.
Jaillet, C.  2009.  The role of relative helpers in the Swedish personal assistance system.

Internet publication URL:  www.independentliving.org/jaillet2009relative-helpers-in-sweden

Jaillet, C.  2009.  From institutions to Independent Living: the need of peer-support and education programs.

Internet publication URL: www.independentliving.org/jaillet2009institutions-to-independent-living

2008
Stars of Hope Society, Ramallah, Palestine.  2008-11-15.  Workshop on Article 19 in the UN Convention on the Rights of Persons with Disabilities "living independently and being included in the community".

Report on the workshop on Article 19 “Living independently and being included in the community“ of the United Nations Convention on the Rights of Persons with Disabilities held in Ramallah, West Bank, Palestine on October 30, 2008. The organizers were Stars of Hope Society, Ramallah, which is an organization of women with disabilities, and Handicap International.

Ratzka, Adolf.  2008-10-01.  Vem sparar i LSS-kommitténs förslag?

Internet publication URL:http://www.independentliving.org/ratzka20081001

Miles, M.  2008-09.  HITTITE DEAF MEN IN THE 13th CENTURY BC: introductory notes with annotated bibliography.

The article introduces bibliographical evidence on deaf men working in palaces and temples of the Hittite Kingdom in Anatolia (now Turkey) during the 13th century BC, with further notes on signing and deaf people's activities in the ancient and medieval Middle East. With some additions and revision September 2009. Internet publication URLs: www.independentliving.org/docs7/miles200809.html and www.independentliving.org/files/miles200809.pdf.

Ratzka, Adolf.  2008-07-08.  No shortcuts on the road to employment for persons with disabilities.

Internet publication URL: http://www.independentliving.org/ratzka20080708

Miles, M.  2008-07.  Glimpses of Disability in the Literature and Cultures of East Asia, South Asia, the Middle East & Africa. A modern and historical bibliography, with some annotation.

This annotated bibliography lists a selection of 130 novels, short stories, biographies, autobiographies, materials from philosophy, anthropology and folklore, and literary criticism, in which disability, deafness or mental disorders play some significant part, from East Asia, South Asia, the Middle East and Africa, available mostly in English or French. Internet publication URLs: independentliving.org/docs7/miles200807.html and independentliving.org/docs7/miles200807.pdf

Ratzka, Adolf.  2008-05-30.  Från patient till kund - anförande vid konferensen Fritt val av hjälpmedel Stockholm 30 maj 2008.

Internet publikation URL: www.independentliving.org/ratzkafrittval (In Swedish.)

Nybom, Martin, Pettersson Jens.  2008-05.  Personlig assistans - en billig och effektiv form av valfrihet, egenmakt och integritet - En jämförelse mellan kostnaderna för personlig assistans och kommunal hemtjänst.

Internet publication URL: http://www.independentliving.org/lsskostnad/ (In Swedish.)

Were Masakhwe, Phitalis.  2008-01-24.  Post-election violence and disabled people in Kenya; issues for reflection and action.

Internet publication URL: www.independentliving.org/docs7/masakhwe20080124.html

2007
Ratzka, Adolf.  2007-10-22.  Independent Living for people with disabilities: from patient to citizen and customer.

Keynote at the conference in Barcelona 22 October 2007 organized by the Catalan Party Convergéncia i Unió in commemoration of the 25th anniversary of The Spanish Law for Persons with Disabilities of 1982. Internet publication URL: www.independentliving.org/docs7/ratzka20071022.html

Anderberg, Peter.  2007-10.  Assistansutredningens delbetänkande - Hårdare tag mot användare av assistans"!.

Internet publikation URL: www.independentliving.org/docs7/anderberg200710b.html (In Swedish.)

Anderberg, Peter.  2007-10.  Kort om assistansberedningens delbetänkande med Stefan Pelc, egen arbetsgivare för sina assistenter.

Internet publikation URL: www.independentliving.org/docs7/anderberg200710a.html (In Swedish.)

Miles, M.  2007-08.  Disability and Deafness in East Asia: Social and Educational Responses, from Antiquity to Recent Times. A bibliography of European-language materials with introduction and some annotation. Revised Version 4.0, August 2007.

The bibliography introduces and lists 900 articles, chapters and books connected with social and educational responses to disability, deafness and mental disorders in China, Korea and Japan, from antiquity to 2007, some with annotation. (This work revises and greatly extends an earlier bibliography on the former History of Education website at the Catholic University of Nijmegen). Internet publication URLs: independentliving.org/docs7/miles200708.html and independentliving.org/docs7/miles200708.pdf

Miles, M.  2007-07.  Disability and Deafness, in the context of Religion, Spirituality, Belief and Morality, in Middle Eastern, South Asian and East Asian Histories and Cultures: annotated bibliography.

The bibliography introduces and annotates materials pertinent to disability, mental disorders and deafness, in the context of religious belief and practice in the Middle East, South Asia and East Asia. Internet publication URLs: www.independentliving.org/docs7/miles200707.html and www.independentliving.org/docs7/miles200707.pdf

Barnes, Colin.  2007-06-05.  'Direct Payments' for Personal Assistants for Disabled People: a key to independent living?

Background notes to a verbal presentation at the Centre for Independent Living, Dublin, Conference 'Independent Living 2007,' Croke Park Conference Centre, Dublin 3, Tuesday, June 5th 2007. Internet publication URL: http://www.independentliving.org/docs7/barnes20070605.html

Brown, Steven E.  2007-05-31.  The Pursuit of Radical Change: Perceptions and Realities of the Americans with Disabilities Act.

The author was invited to address an audience in Stockholm, Sweden, in June 2007, regarding the Americans with Disabilities Act and how it might relate to the implementation of an anti-discrimination law in Sweden. This paper is an attempt to shed light on the ADA in that context. Discussions include 1) how American laws are made, 2) historical background relating to the development of the ADA, 3) a discussion of the Act itself, 4) enforcement mechanisms, 5) impact of the ADA, and 6) future directions. Internet publication URL: www.independentliving.org/docs7/brown20070531.html

Miles, M.  2007-05.  Parents of Deaf Afghan Children -- On The Air.

In these short scripts from a radio series, Afghan parents and a counsellor discuss issues of raising their deaf child in a rural area of Afghanistan, and several ways in which they can assist her in learning to communicate. An explanatory note follows, on the origin and purpose of the radio series. [Earlier versions of these scripts were circulated in 1984, 1986 and 1988, from the Mental Health Centre Peshawar, Pakistan.] Internet publication URL: www.independentliving.org/docs7/miles200705.html

Miles, M.  2007-04.  Review - Epileptic Graphic.

Review of “Epileptic” by “David B.”, a remarkably frank account, in graphics and cartoon strip, of childhood and adulthood with an older brother having epilepsy, and a family doing the tour of cures in France of the 1960s and 1970s. Internet publication URL: www.independentliving.org/docs7/miles200704.html

Miles, M.  2007-01.  International Strategies for Disability-related Work in Developing Countries: historical, modern and critical reflections.

Revised version of a paper first published in the Zeitschrift Behinderung und Dritte Welt, 3/2003, pp. 96-106, and here reproduced with permission.

International strategies concerned with disability in developing and transitional countries (DTC) are scrutinised critically, with an historical focus on beneficial traditions and practices in Asia and Africa, attesting the variety and complexity of social responses to disability. Internet publication URLs: www.independentliving.org/docs7/miles200701.html and www.independentliving.org/docs7/miles200701.pdf (112 KB).

Miles, Christine.  2007.  Imran's Djinn, and Theories of Epilepsy.

This article and the review comment were first published in “EPICADEC News” (from the Foundation Epilepsy Care Developing Countries, Leiden), October 2000, pp. 9-10, titled “Imran’s Djinn”. They are here reproduced with permission, after slight revision.

The article concerns an Asian boy living in UK. His family had trouble using the health services, because of different concepts of Imran’s illness. One of Imran’s teachers met the family half way, respecting their beliefs and giving them time to digest a different approach to epilepsy and its treatment. A scientific reviewer comments on the story. Internet publication URL: www.independentliving.org/docs7/miles-christine2000.html


2006
Miles, M.  2006-09.  Children with spina bifida and hydrocephalus in Africa: can medical, family and community resources improve the life chances?

This much extended and revised article incorporates material from: M. Miles (2002) Children with hydrocephalus and spina bifida in East Africa: can family and community resources improve the odds? Disability & Society 17: 643-658, Carfax Publishing, Taylor & Francis. (The latter material is republished with permission.) 

The revised article concerns social responses to children with hydrocephalus and spina bifida in African countries, and the historical development of ways in which various resources have been used to improve their life chances, and overcome the disabling effects of these conditions. Internet publication URLs: www.independentliving.org/docs7/miles200609.html and www.independentliving.org/docs7/miles200609.pdf (239 KB).

Miles, M.  2006-04.  Signs of Development in Deaf South & South-West Asia: histories, cultural identities, resistance to cultural imperialism.

First published in 2001, this revised article extended and updated 2006-04 offers evidence and hypotheses for a short cultural history of deaf people, culture and sign language in South Asia and South West Asia, using documents from antiquity through 2005. A new appendix shows 110 items on deafness and sign language in the Arab countries of the Eastern Mediterranean and South West Asia. This is a further revised, extended and updated version of a chapter first published in: Alison Callaway (ed) Deafness and Development, University of Bristol, Centre for Deaf Studies, 2001. It is here republished with kind permission. Internet publication URL: www.independentliving.org/docs7/miles200604.html

Miles, M.  2006-03.  Social Responses to Disability & Poverty in Economically Weaker Countries. Research, Trends, Critique, and Lessons Usually Not Learnt. Annotated bibliography of modern and historical material.

The author introduces 250 articles and books showing social responses to disability and poverty in two-thirds of the world now and in history, with critical notes. He commends some intelligent approaches in the face of complexity and challenges simplistic slogans and official blah-blah. [An earlier version of the “Modern Materials” section first appeared in DisabilityWorld (Dec.05 - Jan.06), and is reproduced by kind permission, with revision and extension.] Internet publication URL: www.independentliving.org/docs7/miles200603.html

Hellman, Finn.  2006.  Skit i normerna och börja lev – ett program om funktionshinder och sex.

lyssnaLyssna-MP3 (36:40 minuter, 34,4 MB), lyssna-RealAudio, download-RealAudio (19,8 MB). Programmet i text. Vi bjuder på recensioner av tre sexupplysande tidskrifter och besöker en kraschad kärleksmiddag. Men framförallt undersöker vi om ett mer avromantiserat synsätt på sex skulle gagna personer med funktionshinder. Hör varför sexologen Carol Queen rekommenderar funktionshindrade att ta efter Sado-masochister och lyssna till Stefan Reitersjös  piskor och tankar kring assistans och bondage. Reporter och producent: Finn Hellman. Medverkar gör även: Susanne Berg, Sebastian Ferrer, Carol Queen och Stefan Reitersjö. (In Swedish.) Internet publication URLs: www.independentliving.org/radio/skit-i-normerna.mp3, www.independentliving.org/radio/skit-i-normerna.ram, www.independentliving.org/radio/skit-i-normerna.rm och www.independentliving.org/radio/skit-i-normerna.html

2005
Sarbib, Jean-Louis.  2005-07.  Development OUTREACH, July 2005.

Internet publication URL: www.independentliving.org/docs7/sarbib200507.html

Ratzka, Adolf.  2005-07.  Independent Living Empowers People with Disabilities.

In: Development Outreach. World Bank. July 2005. Reprinted from www1.worldbank.org/devoutreach/article.asp?id=317. The World Bank's magazine "Development Outreach" in a special edition presents articles from governments and international NGOs, illustrating different perspectives and approaches to facing the challenges of disability, and addressing the connection between disability and poverty. In his article about Independent Living Adolf Ratzka defines the concept and its implications for disability policy. Internet publication URL: www.independentliving.org/docs7/ratzka200507.html

Ratzka, Adolf.  2005-07.  Independent Living émancipe les personnes en situation de handicap.

Development Outreach. World Bank. Juillet 2005. Internet publication URL: www.independentliving.org/docs7/ratzka200507f.html

Ji-young, Kwon.  2005-05-19.  Korea: Disabled Hope for Infrastructure for Support.

The second article in a two-part series examining the problems of disabled people in Korea and possible solutions. Internet publication URL: www.independentliving.org/docs7/ji-young2005019.html

Grunewald, Karl.  2005-05.  Experiences with Successful Policy for Community-Based Services. Europe in Action 2005, Prague May 19 - 21.

Intenet publication URL: www.independentliving.org/docs7/grunewald200505.html

Ruzicic, Mima.  2005-04.  Report from Mima Ruzicic, Novi Sad, Serbia and Montenegro, About the Situation of Personal Assistance Users and Students with Disabilities.

Internet publication URL: www.independentliving.org/docs7/ruzicic200504.html

Abadia, Regine, Sallem Ryadh.  2005.  L'interview Marcel Nuss.

lyssnaMP3-français (29:30 minuter, 27,7 MB). Lyssna-MP3-svensk (28:21 minuter, 26,6 MB). Transcript: på svenska, in English, en français). Internet publication URLs: www.independentliving.org/radio/marcel-nuss.mp3, www.independentliving.org/radio/marcel-nuss-fr.mp3, www.independentliving.org/radio/marcel-nuss-sv.html, www.independentliving.org/radio/marcel-nuss-en.html, och www.independentliving.org/radio/marcel-nuss-fr.html

Abadia, Regine, Sallem Ryadh.  2005.  Hungerstrejk för personlig assistans i Frankrike.

lyssnaLyssna-MP3-svensk (28:21 minuter, 26,6 MB). Marcel Nuss i Strasbourg i Frankrike behöver assistans dygnet runt. Gaby, hans fru, arbetade i 20 år som hans assistent utan ledighet. Det behövdes ett sprucket äktenskap, hot om hungerstrejk och tillkomsten av en militant organisation av assistansbrukare tills regeringen i Paris kände sig tvungen att komma med en lösning. Lyssna-MP3-français (29:30 minuter, 27,7 MB). Programmet i text (In English, En français). Internet publication URLs: www.independentliving.org/radio/marcel-nuss.mp3, www.independentliving.org/radio/marcel-nuss-fr.mp3, www.independentliving.org/radio/marcel-nuss-sv.html, www.independentliving.org/radio/marcel-nuss-en.html, och www.independentliving.org/radio/marcel-nuss-fr.html

Miles, M.  2005.  Martin Luther and Childhood Disability in 16th Century Germany: What did he write? What did he say?

Revised and extended version of a paper that was first published with copyright by The Haworth Press, Inc., Binghampton, NY 13904-1580, in the Journal of Religion, Disability & Health (2001), vol. 5 (4) pp. 5-36, and is here reproduced with permission.

Martin Luther’s ideas and theological writings on deaf or disabled children and adults, and his personal and practical experiences in this field are shown. Textual evidence gives a different picture from what is commonly believed, and is interesting both for Luther’s own times and the modern world. Internet publication URL: www.independentliving.org/docs7/miles2005b.html

Miles, M.  2005.  Deaf People Living and Communicating in African Histories, c. 960s - 1960s.

New, much extended Version 5.01, incorporating an article first published in Disability & Society vol. 19, pp. 531-45; August 2004, titled then "Locating deaf people, gesture and sign in African histories, 1450s-1950s". The latter material is republished with permission of Carfax Publishing, Taylor & Francis.

Visits 100 deaf people in 42 nations, across 1000 years of African history. From servants and schoolchildren to scientists, soldiers and statesmen, using every possible means of communication. Internet publication URL: www.independentliving.org/docs7/miles2005a.html

Berg, Susanne.  2005.  Ensam kan jag bo". Jag kan inte det - bo ihopa - är ett radioprogram om fyra män som köpte det gamla kvarnhuset på Kaptensgatan i Råå och flyttade ut från gruppbostaden.

I början av 1993 köpte fyra män med begåvningshandikapp ett eget hem i en av Helsingborgs förorter. Huset köptes på öppna marknaden, byggdes om och inreddes gemensamt. Det var det första steget ut från ett kollektivt boende för killarna. I dag lever de som egna individer med personlig assistans. Det här är berättelsen om hur det gick till. Lyssna-MP3 (29:56 minuter, 28,1 MB), lyssna-RealAudio, download-RealAudio (14.3 MB). Programmet i text. Deltagare: Per Claésson, Lars Lindström, Martin Linnander, Lars Hempel och assistenter, samt Kent och Patricia Ericsson. Internet publication URLs: www.independentliving.org/radio/ensam-kan-jag-bo.mp3, www.independentliving.org/radio/ensam-kan-jag-bo.ram, www.independentliving.org/radio/ensam-kan-jag-bo.rm och www.independentliving.org/radio/ensam-kan-jag-bo.html.

2004
Ratzka, Adolf(ed.).  2004-10-29.  Een model voor een nationale politiek inzake persoonlijke assistentie.".

Internet publication URL: www.independentliving.org/docs6/ratzka200410a-nl.html

Ratzka, Adolf(Hrsg).  2004-10-29.  Richtlinien für eine beispielhafte nationale Gesetzgebung für persönliche Assistenz.

Die meisten Menschen, die bei alltäglichen Verrichtungen, wie beispielsweise beim Aufstehen, beim Gang zur Toilette oder beim Baden auf Hilfe von anderen angewiesen sind, haben lediglich die Wahl zwischen einem sehr eingeschränkten Leben in einem Wohnheim oder im Elternhaus. Wie muss eine ideale nationale Gesetzgebung aussehen, die es ihnen mit Hilfe von Persönlicher Assistenz ermöglicht, als gleichwertige Bürgerinnen und Bürger vollumfänglich am gesellschaftlichen Leben teilzunehmen und den ihnen zustehenden Platz in der Gesellschaft, d.h. in ihren Familien, ihrer Nachbarschaft, und am Arbeitsplatz einzunehmen?

Das Euro­päische Kompetenzzentrum für Persönliche Assistenz ECEPA ist ein Projekt, das von Menschen geleitet wird, die selbst auf persönliche Assistenz angewiesen sind. Die vorliegenden Gesetzgebungsrichtlinien entstanden aus deren gemeinsamen konkreten Erfahrungen mit den verschiedenen Systemen der persönlichen Assistenz in acht europäischen Ländern. Ein Projekt des Europäischen Kompetenzzentrums für Persönliche Assistenz, European Center for Excellence in Personal Assistance (ECEPA); Internetveröffentlichung: www.independentliving.org/docs6/ratzka200410a-de.html und www.independentliving.org/docs6/ratzka200410a-de.pdf (59 KB). Übersetzung für die deutschsprachige Schweiz durch ZSL Zürich, Mai 2006.

Ratzka, Adolf(ed.).  2004-10-29.  Model National Personal Assistance Policy.

Most people who depend on the help of other persons in the activities of daily living such as getting up in the morning, toileting or bathing face very limited lives in residential institutions or parental homes. How must the ideal national policy for personal assistance look that empowers them to live in the community, as equal and fully participating citizens, taking their rightful place in family, neighborhood and society, with work and families of their own? The European Center for Excellence in Personal Assistance (ECEPA) is a project run by people who themselves depend on personal assistance. This model legislation was formulated using their combined personal experience with personal assistance services in eight European countries. A project of the European Center for Excellence in Personal Assistance (ECEPA). Internet publication URLs: www.independentliving.org/docs6/ratzka200410a.html and www.independentliving.org/docs6/ratzka200410a.pdf

Ratzka, Adolf.  2004-10-14.  The Swedish Personal Assistance Act of 1994.

Presentation in Helsinki, Finland, 2004-10-14. Internet publication URL: www.independentliving.org/docs7/ratzka200410b.html

Brozek, Dorothea.  2004-09.  Guidelines to promote Personal Assistance at the workplace.

Internet publication URL: www.independentliving.org/docs7/brozek200409b.html

Brozek, Dorothea.  2004-09.  Richtlinien zur Förderung der Persönlichen Assistenz am Arbeitsplatz.

Internet Veröffentlichung URL: www.independentliving.org/docs7/brozek200409b-de.html (In German.)

Brozek, Dorothea.  2004-09.  Die Österreichische Pflegevorsorge.

Dokument in Rahmen des ECEPA Projekts. Internet Veröffentlichung URL: www.independentliving.org/docs7/brozek200409a-de.html (In German.)