Independent Living Institute

Disability Rights Defenders (DRD) / ‘IL Nordic Network’ is a project of Independent Living Institute (ILI)^[1]. This report summarizes the activities, results and outcome of DRD from September 2020 to June 2021.

Material for a study circle concerning human rights in accordance with Article 19 of the Convention on the Rights of Persons with Disabilities By Emil Erdtman, 10/09/2019 Revised by Artikel 19 som verktyg, autumn 2020

The United Nations Convention on the Rights of Persons with Disabilities became legally binding for Sweden in 2009. Article 19 of the Convention concerns the right to a life with self-determination within the community.

Independent Living Institute (ILI) works to promote opportunities for individuals with disabilities for more personal and political power, self-determination, full participation and equality through information, education, lobby and project activities. During 2020, ILI carried out several projects to reach its goals and visions which are described in this document. All the projects have their own webpage, Facebook-page and publish newsletters.

The structure of this annual report is as follows:

Independent Living Institute (ILI) arbetar för att främja möjligheterna för människor med funktions-nedsättning till mer personlig och politisk makt, självbestämmande, full delaktighet och jämlikhet genom information, utbildning, opinionsbildning och projektverksamhet. Under 2020 verkade ILI via flera projekt för att uppnå sina mål och visioner som beskrivs i detta dokument. Alla större projekt har egna webbsidor, facebooksidor och ger ut nyhetsbrev.

2023

• Remissyttrande till lagrådsremiss Vissa skärpta villkor för anhöriginvandring och begränsade möjligheter till uppehållstillstånd av humanitära skäl - Ju2023/00511
• Remissvar - SOU 2023:9 Ett statligt huvudmannaskap för personlig assistans (Diarienummer S2023/00990)

Stiletten var STIL-kooperativets organ som gavs ut i pappersform fram till 2011. 1986 kom dåvarande verksamhetsledaren Bengt Elmén på idéen att samla våra frekventa utskick till medkämparna och medlemmarna och allmänheten i ett nyhetsbrev med detta vassa namn. Stilettens uppgift var att hålla dem informerade om

Interviews with Personal Assistance Users and Independent Living Activists

Master’s Thesis

Abstract 

Article 19 of the UN Convention on the Rights of Persons with Disability (CRPD) states the right for disabled people to live independently and to be included in the community. The article includes the right to personal assistance as a tool for independent living. General Comment Number 5 on Article 19 of the CRPD criticizes the inadequacy of the implementation of this right and gives clear criteria, which define the term personal as-sistance. These criteria have to be fulfilled in order to call a service personal assistance.

Finland (population 5.5 million) has personal assistance. In 2020 there were  28 000 personal assistance clients.

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