Med Lagen som Verktyg

Kampanjen om funktionshinder

Disability Awareness in Action (Kampanjen för medvetenhet om funktionshinder).  1996.  Kampanjen om funktionshinder.
Swedish

 

In English

1. Kampanjens syfte

DAA, Disability Awareness in Action (Kampanjen för medvetenhet om funktionshinder), är en internationell upplysningskampanj riktad mot allmänheten för att främja, stödja och samordna nationella kampanjer för målen i FN:s två program United Nations Decade of Disabled Persons (De funktionshindrades årtionde, 1983-1992) och WPA, World Programme of Action Concerning Disabled Persons (Globala aktionsprogrammet för funktionshindrade).

Misplaced Modifiers: Respectful Language Improves Accuracy

Digh, Patricia.  1999.  Misplaced Modifiers: Respectful Language Improves Accuracy.
English

by Patricia Digh, 1999

 

Imagine how shocking it would be to pick up a newspaper today and read a front-page story about a "colored" or "Negro" politician or businessman. Yet, the print and broadcast media still describe people with disabilities with equally archaic and demeaning phrases such as "handicapped," "differently abled," "challenged" and "special."

Furthermore, while journalists do not include a person's ethnic or racial minority group status in articles unless it is a crime report or pertinent to the story, a disability inevitably gets mentioned regardless of the story's topic.

Here are some guidelines for writing about people with disabilities.

Swaziland National Association of the Disabled

Dhlamini, Phillip.  1992.  Swaziland National Association of the Disabled.
English

 

Report of the CIB Expert Seminar
on Building Non-Handicapping Environments
Harare, Zimbabwe, January 16-18, 1992

 

Phillip Dhlamini, Swaziland

 

The Global Picture and the European Situation Regarding Bioethics and Genetic Engineering

Degener, Dr. Theresia.  1998.  The Global Picture and the European Situation Regarding Bioethics and Genetic Engineering.
English

In: Seminar on Bioethics and Disabled People, 1998 | Panel Discussion - Open Debate

Dr. Theresia Degener, legal adviser to the German Council
of Centres for Self-Determined Living and lecturer
at the Universities of Frankfurt, Mainz and Leipzig

Disability Discrimination in the Workplace

Davidovich, Nathan.  1996.  Disability Discrimination in the Workplace.
English

by Nathan Davidovich
Attorney at Law, Labor and Employment Law
Copyright © January 1996

Speach on the value of human life to The Trustees of the Center for Human Values, Princeton University April 14, 1999

Dart, Justin.  1999.  Speach on the value of human life to The Trustees of the Center for Human Values, Princeton University April 14, 1999.
English

Fact Sheet on Peter Singer from Not Dead Yet!

Other letters protesting the hiring of Peter Singer, by:

 


Dear Colleagues:

Princeton University's Center for Human Values recently employed Dr. Peter Singer as a professor of Bioethics. Dr. Singer states "Killing a disabled infant is not morally equivalent to killing a person. Very often it is not wrong at all."

A socio-physical study towards building barrier-free urban environment in Iran

Daneshpour, Zohereh A, Toumeh Arbel F M.  1991.  A socio-physical study towards building barrier-free urban environment in Iran.
English

CIB logo

Report of the CIB Expert Seminar on Building Non-Handicapping Environments, Budapest 1991

A socio-physical study towards building barrier-free urban environment in Iran

Zohereh A. Daneshpour, DBRE Research Center, Tehran, Iran
Arbel Toumeh F.M., DBRE Research Center Tehran, Iran

 

Contents

 

Issues Arising from Quality of Life

Cunningham-Burley, Dr. Sarah.  1998.  Issues Arising from Quality of Life. Seminar on Bioethics and Disabled people.
English

 

Dr. Sarah Cunningham-Burley
Department of Public Health, University of Edinburgh

 

A summary of the Department of Health (DoH) Figures for Direct Payments Users in the UK in 2002

Hasler, Frances.  2003.  A summary of the Department of Health (DoH) Figures for Direct Payments Users in the UK in 2002.
English

Report to the ENIL Board Meeting
8th March 2003 Southampton

by Frances Hasler, 2003-03

The Department of Health has published monitoring figures for direct payments usage, based on information from September 2002. They show an overall growth in numbers since 2001 from 5423 to 7882. The most dramatic increase in take up is among carers (more than four times as many as previously). Some groups – people with learning difficulties, mental health service users and older people – have roughly doubled their numbers. Growth among people with physical impairment has been smaller – just 30%.

A Personal Journey Into Disability Politics

Finkelstein, Vic.  2001.  A Personal Journey Into Disability Politics.
English

PDF, 60 KB

by Vic Finkelstein (Leeds University Centre for Disability Studies)

 

In this presentation I have tried to provide a background sample of where I came from and the issues that I think we were trying to deal with at the time. I hope, too, that I can introduce you to some of the outstanding problems we face in our struggle for a social interpretation of disability.

Developments in Independent Living and Direct Payments in UK

Evans, John.  2003.  Developments in Independent Living and Direct Payments in UK.
English

Report to the ENIL Board Meeting, 8th March 2003 Southampton

by John Evans, February 2003

There have been a number of developments in Independent Living and Direct Payments in the UK over the last few years. I shall try and highlight a few of the main issues.

In some respects we now have a Government that is committed to expanding Direct Payments considerably. This is actually to the extent that Direct Payments are now being made available to a number of other user groups. Please see the figures attached to this Report to give you an idea about this.

2000 ESCAP HRD Award, Theme: HRD for the Empowerment of People with Disabilities

Economic and Social Commission for Asia and the Pacific, United Nations.  2000.  2000 ESCAP HRD Award, Theme: HRD for the Empowerment of People with Disabilities.
English

Background

The United Nations Economic and Social Commission for Asia and the Pacific (ESCAP) established the ESCAP HRD Award in 1990. The Award is presented annually in recognition of exemplary work in the field of human resources development (HRD).

Press Release: Disabled People to Finally Catch the Bus - Victory for Disabled People on Bus and Coach Directive

Disability Intergroup.  2001.  Press Release: Disabled People to Finally Catch the Bus - Victory for Disabled People on Bus and Coach Directive.
English

Background to the decision below: nine years of fighting by the European disability movement.

DISABILITY INTERGROUP
INTERGROUPE HANDICAPES
INTERGRUPPE BEHINDERTE MENSCHEN

Chair
Richard Howitt MEP (PSE)
Vice Chairs
Bartho Pronk MEP (PPE), Rodi Kratsa MEP (PPE), Dieter Koch MEP (PPE), Jan Andersson MEP (PSE), Carmen Cerdeira MEP (PSE), Liz Lynne MEP (ELDR), Brian Crowley MEP (UEN) Alain Esclopé MEP (EDD), Ilda Figueiredo MEP (GUE), Patricia McKenna MEP (VERT)

Brussels, 16 February 2001

Gaining Entry

Cummings, Betsy.  2000.  Gaining Entry.
English

Got a meeting abroad? How easily will your attendees with disabilities cope with the barriers?

Accessibility for All: The Australian Experience

Corcoran, Maurice.  2000.  Accessibility for All: The Australian Experience.
English

Disability Discrimination Act Standards Project

On October 12, 2000, the Australian Federal Cabinet approved the Draft DDA Transport Standard. The decision requires all intra-city buses to be of low-floor type using boarding aids for wheelchair users in the form of ramps. This article traces the history of the milestone decision as an example and encouragement for the movement for Buses For All in other countries.

ABSTRACT

Valuing Diversity: The Disability Agenda - We've Only Just Begun

Campbell, Jane.  2001.  Valuing Diversity: The Disability Agenda - We've Only Just Begun.
English

 

This paper was presented at the Bristol University Centenary Celebration on 9th November 2001, as part of their series of lectures on ‘Valuing Diversity’.

When Bristol University asked me to give a lecture on Diversity and Disability, I immediately thought of Adolf Ratzka, a seasoned disabled activist from Germany. He had the UK’s disability movement splitting our sides with laughter and wonder when he presented his ‘Crip Utopia’ at one of our gatherings two years ago.

Think Piece - 'Sticks and Stones' But words are hurting!

Campbell, Jane.  2002.  Think Piece - 'Sticks and Stones' But words are hurting!.
English

Compassion, tolerance, care for vulnerable people. “Why do these "feel good" words, mainstays of the New Tory lexicon, make some of us feel so uneasy?”

Partly it is that their synonyms are not so attractive; to think that someone is pitying you or putting up with you and that they are doing this because they see you as weak, is not a good feeling. But this is not the whole reason. It is also because these words are chosen in favour of other words - rights, equality, and services for those who need them.

Building an Independent Living organisation fit for the twenty first century. Underpinning organisational development with empowering principals

Campbell, Jane.  2003.  Building an Independent Living organisation fit for the twenty first century. Underpinning organisational development with empowering principals.
English

STIL SWEDEN
23 May 2003
Jane Campbell


When contemplating the future of Independent Living organisations, we should reflect upon our history, to revisit the principles that have advanced our independence and see if they still hold up today or if it's time to modify them. So let us look for a moment at our rich history of building disabled people's independence.

Imran's Djinn, and Theories of Epilepsy

Miles, Christine.  2007.  Imran's Djinn, and Theories of Epilepsy.
English

After 22 years in UK, Mr Ahmed decided to bring his wife and six of his children to join him from their Asian country of origin. His eldest son was twenty years old, the youngest just three. Two daughters were married, and they remained in their country. He hoped the eldest son would find work in UK, and there would be school education for the others. He did not know what could be done for thirteen year old Imran, though he had heard there were special schools for children like him.

Review - Epileptic Graphic

Miles, M.  2007.  Review - Epileptic Graphic.
English

 

"Epileptic."  by  David B., translated by  K. Thompson.  (2005). London: Jonathan Cape.  366 pages.

Parents of Deaf Afghan Children -- On The Air

Miles, M.  2007.  Parents of Deaf Afghan Children -- On The Air.
English

 

M. Miles,
 

THE DEAF AFGHAN CHILD ‑ I.

Counsellor:  In the past few weeks we have talked about children and young people with different disabilities. First we looked at the fingers on our hand, and saw that one of them is smaller and weaker than all the others. We do not disregard that one simply because it is small and weak. In the same way, one child out of ten, on average, has some kind of disability, and needs some extra help from its family and the local community. We heard from the parents of one such child who is mentally weaker. They were given advice on how to help their child at home. Those parents will be back in a week or two, to report how they have got along with teaching their child.

The Pursuit of Radical Change: Perceptions and Realities of the Americans with Disabilities Act

Brown, Steven E.  2007.  The Pursuit of Radical Change: Perceptions and Realities of the Americans with Disabilities Act.
English

By Steven E. Brown, 2007-05-31
Institute on Disability Culture
Center on Disability Studies
University of Hawai‘i at Manoa
Honolulu, HI USA

Introduction

Thank you for inviting me to share perceptions and realities concerning the Americans with Disabilities Act (ADA). I have been pondering for some months now how I would address these topics. The dilemma I have faced is not only how to describe general facts and personal beliefs about the ADA, but how to discuss them in ways that will make sense in a Swedish context.

'Direct Payments' for Personal Assistants for Disabled People: a key to independent living?

Barnes, Colin.  2007.  'Direct Payments' for Personal Assistants for Disabled People: a key to independent living?
English

Colin Barnes
Centre for Disability Studies
School of Sociology and Social Policy
University of Leeds
LS2 9JT
England

 

Introduction

This presentation will discuss the thinking behind the development of 'direct payment' type schemes for personal assistants (PAs) for disabled people in the UK, and their relationship to the concept of independent living from the perspective of the disabled people's movement.

Attention will then centre on the British Government's policy on direct payments since the 1980s, followed by an examination of the current situation in terms of the distribution, accessibility and support for such schemes at the local level.

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Överklagande av Stockholms läns landstings beslut 2003-10-07 ang avgiftshöjningar för rullstolstaxi

Rydberg(fp), Birgitta, Bexelius(fp) Birgitta, Wallhager(fp) Maria.  2003.  Överklagande av Stockholms läns landstings beslut 2003-10-07 ang avgiftshöjningar för rullstolstaxi.
Swedish

Taxi för alla | Framtidsvision | Faktaruta | Pressarkiv | Taxi site översikt

Härmed yrkar vi att länsrätten upphäver beslut i Stockholms läns landsting 7/10 2003 ang åtgärder för att få färdtjänstbudgeten i balans.

Grunden för att beslutet bör upphävas är följande:

1. Då färdtjänstnämnden behandlade det återremitterade ärendet hade man inte kommunicerat ett korrekt referat om innehållet i fullmäktiges återremiss. I detta yrkande låg krav på en opartisk ekonomisk utvärdering.

Spänningen stiger - vem har rätt angående priset för en rättvis taxiordning

Dr. Adolf Ratzka.  2003.  Spänningen stiger - vem har rätt angående priset för en rättvis taxiordning.
Swedish

Taxi för alla | Faktaruta | Pressarkiv | Taxi site översikt

Inför upphandlingen av resetjänster inom färdtjänstbussområdet står nu återigen ord mot ord. Blir det dyrare eller billigare att låta användarna själva bestämma vem de vill åka med? Att livskvaliteten höjs och att rättviseaspekten talar för ett flexiblare system verkar alla överens om. Men när det gäller att bevisa vilken tes som håller ekonomiskt blir förvirringen total.

Om man jämför det ekonomiska utfallet som Färdtjänsten hänvisar till finner man några intressanta motsägelser. Adolf Ratzka ifrågasätter Färdtjänstens beslutsunderlag:

Delseger för dem som nyttjar rullstolstaxi

Opitz, Caspar.  2003.  Delseger för dem som nyttjar rullstolstaxi.
Swedish

Taxi för alla | Framtidsvision | Faktaruta | Pressarkiv | Taxi site översikt

Dagens Nyheter 2003-09-23

Avgifterna för rullstolstaxi återremitterades. Protesterna hjälpte. Förslaget om att kraftigt höja avgifterna för att åka rullstolstaxi återremitterades av landstingsfullmäktige på tisdagen.

En delseger för de funktionshindrade som flera gånger den senaste tiden hållit sina protestmöten utanför Landstingshuset på Kungsholmen.

Get A Life! - Euthanasia and human value

Campbell, Jane.  2003.  Get A Life! - Euthanasia and human value.
English

by Dr Jane Campbell MBE
STIL Seminar, 26th May 2003


Independent living asserts that every life is worth living; science seeking to eliminate disability is against this principle; science should make disabled life worth living, not prevent or end it.

Executive Order: Community-Based Alternatives for Individuals with Disabilities

Bush, George.  2001.  Executive Order: Community-Based Alternatives for Individuals with Disabilities.
English

By the authority vested in me as President by the Constitution and the laws of the United States of America, and in order to place qualified individuals with disabilities in community settings whenever appropriate, it is hereby ordered as follows:

Section 1. Policy. This order is issued consistent with the following findings and principles:

(a) The United States is committed to community-based alternatives for individuals with disabilities and recognizes that such services advance the best interests of Americans.

(b) The United States seeks to ensure that America's community-based programs effectively foster independence and participation in the community for Americans with disabilities.

Guidelines to promote Personal Assistance at the workplace

Brozek, Dorothea.  2004.  Guidelines to promote Personal Assistance at the workplace.
English

In German

 

Legislative and financial basis

The legislative basis for Personal Assistance at the Workplace (PAW) are the special guidelines to promote Personal Assistance at the Workplace that have been in force since 1st of January 2004. They aim at securing a qualitative as well as a quantitative increase of participation at the general labour market or for completing a vocational training (includes higher education and studying at a University in this context) of those people with disabilities that need personal support to structure their working life resp. their vocational training in an independent and autonomous way.

The Austrian Long-term Care Insurance

Brozek, Dorothea.  2004.  The Austrian Long-term Care Insurance.
English

 

In German

 

Legal and financial basis

The legal basis for the Austrian long-term care benefit is the Federal Act for long-term care benefit that was introduced in 1993. The expressed purpose of this legislation is as follows: “The long-term care benefit aims at compensating additional expenditure due to long-term care in the form of a flat-rate cash benefit to ensure as far as possible necessary attendance and support for persons with need for care and to improve their possibility to live an independent life according to their needs.” (§1)

Personal Assistance in Sweden

Berg, Susanne.  2003.  Personal Assistance in Sweden.
English

 

by Susanne Berg, Independent Living Institute

 

Let me start by thanking you all for inviting me here today.

During the last two decades of my life I have had assistance with almost all of the everyday activities “common man” does without thinking. I have spent months in hospital and rehabilitation units. I have lived in a flat connected to a service central allowing me some modicum of privacy and integrity. I have had the doubtful privilege of meeting the fifty or so personal of the “night patrol” taking turns to visit me. And since 1994 I have had personal assistance through direct payments.

Independent Living and some Italian Experiences

Belli, Raffaello.  2003.  Independent Living and some Italian Experiences.
English

by Raffaello Belli, 2003-03,
Presented at the European Network on Independent Living (ENIL) conference in Southampton, England, 7-9 March 2003

(Another presentation at the conference: Rajkov, Gordana. 2003. "Inependent Living and Yugoslav Experience.")

Negative attitudes

There had been many negative attitudes towards direct payments in Italy. One of the reasons is attributed to the opposition of powerful organizations who run big institutions. Furthermore many people expect the authorities to solve any of their problems.

Disability, the organization of work, and the need for change

Barnes, Colin.  2003.  Disability, the organization of work, and the need for change.
English

Colin Barnes
Professor of Disability Studies
Centre for Disability Studies
Department of Sociology and Social Policy
The University of Leeds
Leeds
LS2 9JT
England


(Statement presented to the Organisation for Economic Co-operation and Development Conference ‘Transforming Disability Into Ability’, March 6th 2003.)

Tenerife Declaration - Promote Independent Living - End Discrimination against Disabled People

1st European Congress on Independent Living.  2003.  Tenerife Declaration - Promote Independent Living - End Discrimination against Disabled People.
English

In Italian | In Spanish

We, four hundred participants from many European countries gathered at the 1st European Congress on Independent Living, held in Tenerife in the framework of the 2003 European Year for Disabled People, urge that the Canary Islands’ and Spanish Governments take the lead in advocating for the implementation of this Declaration in European Union policy, specifically in the work for the upcoming Non Discrimination Directive on Disability, and the European Action Plan on Disability.

Principles of Independent Living

The Rough Guide to Managing Personal Assistants

Vasey, Sean.  2000.  The Rough Guide to Managing Personal Assistants.
English
"Having PAs enabled me to find out who I am and now enables me to be who I am." If you are a disabled person and about to start receiving a Direct Payment to employ your own personal assistants (PAs), this book aims to give you a flavour of what it is like; the joys and the challenges. This book covers recruitment, managing, using PAs in social situations and at work, and dealing with problems. Put together by Sian Vasey with cartoons by David Shenton.

A Healthy Dissension

Stone, Karen.  2000.  A Healthy Dissension.
English

 

by Karen Stone

På svenska

 

photo of K. Stone

Born and raised in San Francisco, Karen Stone, now 53, studied photography, and later obtained a B.A. in Communications from Antioch College. She then worked as a professional photographer for over twelve years in California. Later, upon entering the marketing field, Ms. Stone made use of her photography, writing, and business skills. After relocating to Albuquerque, New Mexico (USA), she worked in marketing architectural/engineering services until slowed down by Multiple Sclerosis.

 

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