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A
Agerblad, Annika, Dr. Adolf Ratzka.  1995.  Rätten till föräldraskap.
En konferens arrangerad av Handikappombudsmannen och STIL, med stöd från Allmänna Arvsfonden, Stockholm 28-29 augusti 1995. Internet publication URL: www.independentliving.org/docs3/ratt95.html (In Swedish.)
Ahuja, Suresh C.  1989.  Role of Disabled Persons & Families in the Equalization of Opportunites.
Disabled persons can be converted from tax consumers to tax payers, from beneficiaries to benefactors, given the opportunity for self-development and provided with equal opportunities for education, vocational training and employment. Presented at the International Meeting on Human Resources in the Field of Disability, Tallin, 14-22 August 1989. Internet publication URL: www.independentliving.org/docs4/ahuja.html.
Association for Persons with Severe Handicaps (TASH) - Disability Advocacy Worldwide.  1997.  Resolution Opposing the Legalization of Physician Assisted Suicide.
In their 1997 resolution opposing the legalization of physician assisted suicide, the Association for Persons with Severe Handicaps (TASH) provides a long list of reasons for their opposition to physician assisted suicide, including the negative aspects of allowing physicians to have such power, the insufficiency of proposed safeguards, and dissatisfaction with the implementation of safeguards in conjunction with euthanasia in the Netherlands. Internet publication URL: www.independentliving.org/docs6/tash199712.html
B
Barnes, Colin.  2003.  Rehabilitation for Disabled People: a ‘sick’ joke?
Professor Barnes, from the Centre for Disability Studies, University of Leeds, England argues that the relationship between disability and rehabilitation is best explained in terms of three distinct but related definitions of disability: the orthodox ‘individualistic’ medical definition, the more liberal ‘inter-relational’ account, and the ‘radical‘ socio/political interpretation commonly referred to as the ‘social model of disability’. He concludes with a brief focus on alternative strategies generated by disabled people and their organisations. Internet publication URL: http://www.independentliving.org/docs6/barnes2003a.html
Barnes, Colin.  2001.  Rethinking Care From the Perspective of Disabled People.
Conference Report and Recommendations (Draft). World Health Organization Disability and Rehabilitation Team. In this report to the United Nations World Health Organization, Professor Barnes, from the Centre for Disability Studies, University of Leeds, England, recommends that member nations adopt a holistic approach that includes the introduction of policies to eliminate poverty and secure equal access to all community based services and facilities. These include medical services, education, employment, housing, transport, public amenities etc. The responsibility of national governments for introducing and financing these developments is also addressed. Internet publication URL: www.independentliving.org/docs6/barnes200106.pdf (PDF, 112 KB).
PDF icon barnes200106.pdf (111.34 KB)
Berg, Susanne.  2010.  Remissvar på utredningen Bortom fagert tal – om bristande tillgänglighet som diskriminering (Ds 2010:20)..
Berg, Susanne.  2013.  Rapport från förstudien - Lagen som Verktyg. PDF icon Rapport-forstudie-AA-LSVerktyg.pdf (69.19 KB)
Berrol, Sheldon.  1979.  "The Role of the Able-Bodied Professional.".
Sheldon Berrol notes that the success of the independent living movement, in contrast to a rehabilitation or medical approach to disability, is due to the creation and nurturing of the movement by the disabled community. The role of the able bodied professional working with disabled people is to provide services, be active advocates, share skills, and provide training while allowing the direction of the Independent Living Program to come from within the disabled community. Internet publication URL: www.independentliving.org/docs1/berrol.html.
Brozek, Dorothea.  2004.  Richtlinien zur Förderung der Persönlichen Assistenz am Arbeitsplatz.
Internet Veröffentlichung URL: www.independentliving.org/docs7/brozek200409b-de.html (In German.)
C
CIB (International Council for Building Research).  1992.  Report of the Fifth International Expert Seminar on Building Non-Handicapping Environments: Access Legislation and Design Solutions, Harare, Zimbabwe, January 16-18, 1992.
This portion of the report from the Fifth International Expert Seminar on Building Non-Handicapping Environments: Access Legislation and Design Solutions, held in Harare, Zimbabwe, includes a table of contents with links to papers and discussions, a presentation of the organizers, and opening addresses by the Hon. F.L. Chitauro, Dep. Minister of Labour, Manpower Planning and Social Welfare, Zimbabwe, by Mr. Alexander Phiri, Chairperson, Zimbabwe Federation of Disabled, and by Professor Sven Thiberg, CIB W84 Coordinator, Royal Institute of Technology, Sweden. Internet publication URL: www.independentliving.org/cib/cibharare1.html
CIB (International Council for Building Research).  1988.  Report of the Third International Expert Seminar on Building Non-Handicapping Environments: Accessibility Issues in Developing Countries, Tokyo.
This portion of the report of the Third International Expert Seminar on Building Non-Handicapping Environments: Accessibility Issues in Developing Countries held in Tokyo in 1988, includes: a table of contents with links to individual presentations; a preface by the editor of the report, Adolf D. Ratzka, Ph.D., outlining the concepts of accessibility and Independent Living; a presentation of the organizers of the seminar; and opening statements by Dr. Yasumi Yoshitake, Chairman of the Executive Committee, Architectural Institute of Japan, by Professor Sven Thiberg, the CIB W84 Coordinator, and by Dr. Mickey Milner, Immediate Past Chairman of ICTA, International Commission on Technical Aids, Building and Transportation. Internet publication URL: www.independentliving.org/cib/cibtokyo1.html
CIB (International Council for Building Research).  1987.  Report of the Second International Expert Seminar on Building Non-Handicapping Environments: Renewal of Inner Cities, Prague.
This portion of the report of the Second International Expert Seminar on Building Non-Handicapping Environments: Renewal of Inner Cities held in Prague in 1987, includes: a table of contents with links to individual presentations; an introduction of the history and future directions of CIB W84 (the working commission) by Sven Thiberg the seminar Coordinator and Adolf D. Ratzka, the Associate Coordinator; a note on language used; the opening address by Dr. Rudolf Hegenbart; and an introduction to the themes of the seminar by Adolf D. Ratzka. Internet publication URL: www.independentliving.org/cib/cibprague1.html
CIB (International Council for Building Research).  1984.  Report of the International Expert Seminar Building Concept for the Handicapped Stockholm, Sweden, April 10-12, 1984.
CIB is the abbreviation of the French title of the International council for Building Research, Studies and Documentation. This portion of the report of the International Expert Seminar on Building Concept for the Handicapped in Stockholm in 1984 includes: a table of contents with links to individual presentations; and presentations by Mr. Bengt Lindqvist, Member of the Swedish Parliament, Chairman of the Central Committee of Organizations of the Disabled in Sweden, and by Professor Sven Thiberg, coordinating chairman of CIB/W 84 (the working commission). Internet publication URL: www.independentliving.org/cib/cibsthlm1.html
Council of Europe.  1996.  Recommendation No. R(96)5 of the Committee of Ministers to Member States on Reconciling Work and Family Life.
The Council of Europe recommends disability policy guidelines for Member States in such areas as: education, vocational training, employment, social integration, etc. This recommendation was adopted by the Committee of Ministers on 19 June 1996 at the 569th meeting of the Ministers' Deputies. Internet publication URL: www.independentliving.org/docs3/coe96r5.html
Council of Europe.  1992.  Recommendation No. R(92)6 of the Committee of Ministers to Member States on a Coherent policy for people with disabilities.
The Council of Europe recommends disability policy guidelines for Member States in such areas as: education, vocational training, employment, social integration, etc. This recommendation was adopted by the Committee of Ministers on 9 April 1992 at the 474th meeting of the Ministers' Deputies. Internet publication URLs: www.independentliving.org/docs3/coe92r6.html and www.independentliving.org/docs3/coe92r6.pdf
D
Disabled Peoples International Europe,.  2000.  Rätten att leva och att vara annorlunda.
Internet publication URL: www.independentliving.org/docs1/dpi022000sv.html (In Swedish.)
Disabled Peoples' International (DPI) Europe.  2000.  The Right to Live and be Different.
In February 2000, 130 disabled people in twenty-seven countries discussed bioethics and human rights, and it is with pride that we make the following declaration. Internet publication URL: www.independentliving.org/docs1/dpi022000.html
Dr., Ratzka Adolf;.  2014.  Remissvar på betänkandet Förändrad assistansersättning – en översyn av ersättningssystemet (SOU 2014:9). PDF icon Remissvar på betänkandet Förändrad assistansersättning – en översyn av ersättningssystemet (SOU 2014:9)  (20.62 KB)
E
Enns, Henry.  1998.  Resa till Mellanöstern.
Internet publication URL: www.independentliving.org/enns1998mellanostern
European Commision.  1998.  Raising Employment Levels of People with Disabilities - The Common Challenge.
In light of the European Employment Strategy, and drawing on the analysis of some key elements of the 1998 Member States' National Action Plans, this paper seeks to establish a set of fundamental policy issues concerning employment and disability. Internet publication URLs: http://www.independentliving.org/docs3/ec1550.html and http://www.independentliving.org/files/ec1550.pdf
PDF icon ec1550.pdf (38.37 KB)
G
Ghaem, Gisoo.  1991.  Research on urban planning and architecture for disabled persons in Iran - Establishing design criteria.
Internet publication URL: www.independentliving.org/cib/cibbudapest10.html
Gill, Carol J.  1995.  Research on urban planning and architecture for disabled persons in Iran - Establishing design criteria.
Dr. Carol J. Gill, Ph.D., Assistant Professor of Human Development and Director of the Chicago Center for Disability Research, Department of Disability and Human Development at the University of Illinois at Chicago, provides an excellent perspective of why the need for a culture, what it is, and what it means for those of us who feel the need to be categorized in it. Internet publication URL: http://www.independentliving.org/docs3/gill1995.html
H
Harrison, James D.  1991.  Recent advances in accessibility legislation and incentives in Singapore.
This paper, by James D. Harrison from the School of Architecture, National University of Singapore, Singapore, describes the situation for disabled persons in Singapore, and the background leading up to proposals on accessibility which called for the introduction of a mandatory Accessibility Code for all buildings (including existing ones). Internet publication URL: www.independentliving.org/cib/cibbudapest12.html
I
Independent Living Institute, Berg Susanne, Hellman Finn.  2006.  Radio Independent Living.
Independent Living Institute, Sweden.  2021.  Remissvar över betänkandet SOU 2021:37 Stärkt rätt till personlig assistans. PDF icon Independent-Living-Institute-remissvar-SOU-2021_37-Starkt-rett-till-personlig-assistans.pdf (100.2 KB)
International Labour Organisation.  1983.  R168 Vocational Rehabilitation and Employment (Disabled Persons) Recommendation, 1983.
This document is a Recommendation adopted by The General Conference of the International Labour Organisation in Geneva in 1983 and supplements the C159 Convention. The document seeks to set forth new international standards concerning the need to ensure equality of opportunity and treatment to all categories of disabled persons, in both rural and urban areas, for employment and integration into the community. Internet publication URL: www.independentliving.org/docs4/ilo-conv-r168.html
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King, Audrey.  2003.  Remarkable Teachers – Mr. Winter.
This is an account by Audrey King, M.A., an internationally known writer, speaker, and advocate on disability issues, about Mr. Winter, a high school teacher who made a difference by making sure that Ms. King, in a wheelchair because of polio, was included in the school community in every way. Internet publication URL: www.independentliving.org/column/king20030724.html
Konczei, Gyorgy.  1999.  Rethinking Disability and Discrimination - A social and economic approach (Comparative Study).
Internet publication URL: www.independentliving.org/docs5/equalisingopps.html and www.independentliving.org/docs5/equalisingopps.pdf
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Lagadien, Fadila.  1996.  Remove Barriers in Employment for Disabled People.
Fadila Lagadien challenges the existing perception that disabled people cannot engage in gainful or meaningful employment as they are believed to be sick, and sick people belong in hospital. Internet publication URL: www.independentliving.org/docs4/fadila96.html
Light, Richard.  2000.  Recording human rights abuses against persons with disabilities: practical issues revealed by the Disability Awareness in Action Human Rights Project.
In: "Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000." Pre-paper 2. Internet publication URL: www.independentliving.org/docs2/docs2/light00.pdf. In Internet publication URLs: www.independentliving.org/docs2/rioux00.pdf and www.independentliving.org/docs2/rioux00.doc
M
Martinez, Kathy, Duncan Barbara.  2003.  The Road to Independent Living in the USA: an historical perspective and contemporary challenges.
The authors (Kathleen Martinez, US National Council on Disability member and Deputy Director, World Institute on Disability, and Barbara Duncan, former Rehabilitation International information officer, DisabilityWorld co-editor) highlight the events and leaders that made the birth of the independent living movement possible. Also included are some basic philosophical tenets and assumptions that have guided the U.S. IL movement, as well as some observations regarding emerging issues and trends. Reprinted form "Disability World, A bimonthly web-zine of international disability news and views," Issue no. 20 September-October 2003. Internet publication URLs: www.disabilityworld.org/09-10_03/il/ilhistory.shtml and www.independentliving.org/docs6/martinez200309.html
Miles, M.  2007.  Review - Epileptic Graphic.
Review of “Epileptic” by “David B.”, a remarkably frank account, in graphics and cartoon strip, of childhood and adulthood with an older brother having epilepsy, and a family doing the tour of cures in France of the 1960s and 1970s. Internet publication URL: www.independentliving.org/docs7/miles200704.html
Miles, M, Hossain Farhad.  1999.  Rights and Disabilities in Educational Provisions in Pakistan and Bangladesh: Roots, Rhetoric, Reality.
Educational opportunities for children with disabilities in Pakistan and Bangladesh are seen in the context of the countries' religious, cultural and economic development. The relevance of Western concepts such as "human rights", "inclusion" and "empowerment" is critically examined. Internet publication URL: www.independentliving.org/docs5/mmiles3.html
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Nzioki, Nicky, Maganjo Agnes, Kariuki Catherine.  1992.  A review of current accessibility legislation in Kenya.
Internet publication URL: www.independentliving.org/cib/cibharare15.html
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Polinszky, Tibor.  1991.  Regulation of the non-handicapping environment in Hungary.
Internet publication URL: www.independentliving.org/cib/cibbudapest26.html  
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Rajkov, Gordana.  1991.  The role of the Muscular Dystrophy Association in the creation of a barrier-free environment.
Internet publication URL: www.independentliving.org/cib/cibbudapest27.html  
Dr. Adolf Ratzka.  2009.  Report from Independent Living seminar in Stockholm 2009: Networks on Personal Assistance and Public Transport Access.
Dr. Adolf Ratzka.  2004.  Richtlinien für eine beispielhafte nationale Gesetzgebung für persönliche Assistenz.
Die meisten Menschen, die bei alltäglichen Verrichtungen, wie beispielsweise beim Aufstehen, beim Gang zur Toilette oder beim Baden auf Hilfe von anderen angewiesen sind, haben lediglich die Wahl zwischen einem sehr eingeschränkten Leben in einem Wohnheim oder im Elternhaus. Wie muss eine ideale nationale Gesetzgebung aussehen, die es ihnen mit Hilfe von Persönlicher Assistenz ermöglicht, als gleichwertige Bürgerinnen und Bürger vollumfänglich am gesellschaftlichen Leben teilzunehmen und den ihnen zustehenden Platz in der Gesellschaft, d.h. in ihren Familien, ihrer Nachbarschaft, und am Arbeitsplatz einzunehmen? Das Euro­päische Kompetenzzentrum für Persönliche Assistenz ECEPA ist ein Projekt, das von Menschen geleitet wird, die selbst auf persönliche Assistenz angewiesen sind. Die vorliegenden Gesetzgebungsrichtlinien entstanden aus deren gemeinsamen konkreten Erfahrungen mit den verschiedenen Systemen der persönlichen Assistenz in acht europäischen Ländern. Ein Projekt des Europäischen Kompetenzzentrums für Persönliche Assistenz, European Center for Excellence in Personal Assistance (ECEPA); Internetveröffentlichung: www.independentliving.org/docs6/ratzka200410a-de.html und www.independentliving.org/docs6/ratzka200410a-de.pdf (59 KB). Übersetzung für die deutschsprachige Schweiz durch ZSL Zürich, Mai 2006.
Rehabilitation Services Administration (RSA).  1998.  Resolution om Personlig assistans.
Antagen av deltagarna på International Personal Assistance Services Symposium, sponsrat av World Institute on Disability. Symposiet ägde rum i Oakland, Kalifornien, den 29 september till den 1 oktober 1991. Artikeln är tidigare publicerad i American Rehabilitation Volym 24, nummer 4, Vintern 1998 Personal Assistance Services del 2 av 2. American Rehabilitaion är Rehabilitation Services Administrations (RSA) officiella publikation. Adress: 330 C Street S.W Washington D.C. 20202-2531. Internet publication URL: www.independentliving.org/docs6/rsa1998sv.html (In Swedish.)
Rehabilitation Services Administration (RSA).  1998.  Resolutions on Personal Assistance Services.
Passed by Participants of the International Personal Assistance Services Symposium Sponsored by the World Institute on Disability, Convened September 29 to October 1, 1991, Oakland, California. Published in: American Rehabilitation, Volume 24, Number 4, Winter 1998, Personal Assistance Services, Part 2 of 2. American Rehabilitation is the official publication of the Rehabilitation Services Administration (RSA) 330 C Street S.W. Washington D.C. 20202-2531. Internet publication URL: www.independentliving.org/docs6/rsa1998.html
Ruzicic, Mima.  2005.  Report from Mima Ruzicic, Novi Sad, Serbia and Montenegro, About the Situation of Personal Assistance Users and Students with Disabilities.
Internet publication URL: www.independentliving.org/docs7/ruzicic200504.html
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The Pan Africa Wheelchair Builders Association (PAWBA) and The Tanzanian Training Centre for Orthopaedic Technologists (TATCOT).  2007.  Report of 4th All Africa Wheelchair Congress, 17TH – 21ST September 2007, Uhuru Hotel, Moshi, Tanzania.
Internet publication URLs: www.independentliving.org/docs7/pawba-tatcot200709.html and www.independentliving.org/docs7/pawba-tatcot200709.pdf  
Thiberg, Sven.  1984.  Research Profiles and Strategies.
Internet publication URL: www.independentliving.org/cib/cibsthlm5.html  
U
United Nations.  1998.  Report of the United Nations Consultative Expert Group Meeting on International Norms and Standards Relating to Disability.
Experts in international law and disability policy issues review and discuss issues and trends relating to the practical application of international norms and standards to promote the human rights of persons with disabilities. Internet publication URL: www.independentliving.org/docs4/disberk0.html
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Vasey, Sean.  2000.  The Rough Guide to Managing Personal Assistants.
"Having PAs enabled me to find out who I am and now enables me to be who I am." If you are a disabled person and about to start receiving a Direct Payment to employ your own personal assistants (PAs), this book aims to give you a flavour of what it is like; the joys and the challenges. The book covers recruitment, managing, using PAs in social situations and at work, and dealing with problems. Put together by Sian Vasey with cartoons by David Shenton.
de Vylder, Stefan.  2003.  Rullstolstaxi – bättre och billigare.
Internet publication URL: www.independentliving.org/taxi/vylder20030616.html (In Swedish).
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Werner, David.  1990.  Resa till Angola - ett land där människor lemlästas som en strategi i lågintensiv krigföring.
Internet publication URL: www.independentliving.org/werner1990rese_till_angola