Care or Personal Assistance around the World Articles

Independent Living movement’s 25 years of existence in Sweden 2008 - Documentation

Independent Living Institute.  2008.  Independent Living movement’s 25 years of existence in Sweden 2008 - Documentation.
English
Kerstin Nilsson, vice chair person of STIL welcomes the guests. I am honoured to welcome you to this conference to celebrate the Independent Living movement’s 25 years of existence here in Sweden. During these two days we should above all learn from each other, from our different experiences of Independent Living and how we as persons with different disabilities handle the challenges we meet on a daily basis.

”Fru Schledermann” (på svenska) - En film om rätten till ett själbestämt liv med personlig assistans

Öhlén, Bo, Rejhed Bengt.  1995.  ”Fru Schledermann” (på svenska) - En film om rätten till ett själbestämt liv med personlig assistans.
Swedish
- En film om rätten till ett själbestämt liv med personlig assistans. Monika har ett funktionshinder och behöver assistans med allt - gå upp, klä på sig, hygien, äta, vara mormor och för fritiden. Hon bor ensam och har kommunal hemtjänst, men kan inte bestämma vilka som ska arbeta för henne. Jämnt kommer nya människor in i huset som hon måste lära upp.

“Mrs Schledermann” - A film about the right to Independent Living with personal assistance (Swedish language, English subtitles)

Öhlén, Bo, Rejhed Bengt.  1995.  “Mrs Schledermann” - A film about the right to Independent Living with personal assistance (Swedish language, English subtitles).
English
“Mrs Schledermann” (Swedish language, English subtitles) - A film about the right to Independent Living with personal assistance produced for STIL, the Stockholm Cooperative for Independent Living, by Bo Öhlén and Bengt Rejhed 1995

"Ge oss makt inte medlidande" är ett radioprogram om STIL och kampen för personlig assistans

Berg, Susanne.  2004.  "Ge oss makt inte medlidande" är ett radioprogram om STIL och kampen för personlig assistans.
Swedish

 Ge oss makt inte medlidande är ett program/podcast om STIL och kampen för personlig assistans. 2004-04. lyssna Lyssna-MP3 (28:21 minuter, 26,6 MB).

Stockholmskooperativet för Independent Living är resultatet av ett litet antal individers kamp för personlig assistans i mitten på nittonhundraåttiotalet. Personlig assistans är, i motsats till hemtjänst eller boendeservice, en service knuten till den enskilde själv. Den som behöver assistans bestämmer själv vem som ska assisterar med vad; när det ska göras och hur.

Latvia: “We want help to start a personal assistance project”

Westberg, Kenneth.  2008.  Latvia: “We want help to start a personal assistance project”.
English
Personal assistance is not available in Latvia. Today the options are help from relatives or living in residential institutions. However, Dace Rodzina, who represents the organization APEIRONS, would like to change the situation by influencing legislation and launching projects with organizations from other countries.

Ireland – ideological shift under way - interview with David Egan

Erdtman, Emil.  2008.  Ireland – ideological shift under way - interview with David Egan.
English
Ireland has the Disability Act of 2005, a demanding building law and two anti-discrimination laws. However, as yet there is no legislation for personal assistance, though various organizations arrange services without government involvement.

Finland: “The new personal assistance law doesn’t quite make it”

Westberg, Kenneth.  2008.  Finland: “The new personal assistance law doesn’t quite make it”.
English
In Finland personal assistance became a right on September 1, 2009. However, dissatisfaction is great because municipalities can still decide how assistance should be provided.

Spain - Spaniards are fighting for more personal assistance

Erdtman, Emil.  2008.  Spain - Spaniards are fighting for more personal assistance.
English
Independent Living—or Vida Independiente, as it will be called in this article—has grown in Spain via the internet and is now running a pilot project with personal assistance in several urban areas.

Greece – Stelios lives “independently” with help from his family

Erdtman, Emil.  2008.  Greece – Stelios lives “independently” with help from his family.
English
In Greece families assume a large responsibility, including for personal assistance. But society is rapidly changing, as can be seen in the streets and squares in recent times.

Iceland – Few have been granted personal assistance payments

Erdtman, Emil.  2008.  Iceland – Few have been granted personal assistance payments.
English
The population of Iceland is less than 300,000. Everyone knows each other in small towns, and even in the city of Reykjavik. Yet for now, the number of people who have assistance can be counted on one hand. Iceland is a Nordic country, but in terms of personal assistance it has not kept up with the region.

Flanders, Belgium - long queue for personal assistance

Bernt, Malin.  2008.  Flanders, Belgium - long queue for personal assistance.
English
“In Flanders, Belgium, 4,000 people are waiting to receive assistance,” says Viviane Sorée, chairperson of Bol Budiv. Viviane Sorée is chairperson of the organization Bol Budiv, which helps individuals who receive assistance. They provide advice and support to 1,350 people with disabilities living in Flanders. Bol Buiv is a two-year old project that is financed by government funding. “We have high hopes to be able to continue our work after the project ends.”

Germany – means-tested personal assistance

Bernt, Malin.  2008.  Germany – means-tested personal assistance.
English
Christian Bayer’s most important issue is means-tested personal assistance. People who have a job and earn money have to pay for their personal assistance themselves. According to German law, people in need of personal assistance can get money from the State for it. Yet, unlike Sweden, the payments depend on your income and property.

Towards an operational definition of Personal Assistance

Dr. Adolf Ratzka.  1992.  Towards an operational definition of Personal Assistance.
English

Persons with extensive disabilities need assistance by other people in their everyday lives with such activities as getting bathed and dressed or going to the toilet; with shopping, preparing meals, cleaning or doing the laundry; with such responsibilities within the family as doing the practical tasks involved in raising small children or assisting one' s aging parents. Assistants help the user at work, about town and on travel. They assist in communicating or in structuring the day, as the case might be. In brief, assistants help with those activities which the user would have done by himself or herself, had it not been for a physical, sensory, mental or intellectual disability.

Personal Assistance: The key to Independent Living

Dr. Adolf Ratzka.  1989.  Personal Assistance: The key to Independent Living.
English

Introduction

logo of European Network on Independent LivingSocial policy is typically not made by the people who are most affected by it. Up to now, we, the users of assistance, have had to accept the decisions handed down to us by other people. Since we are often considered helpless and incapable of taking charge of our own lives, the public and often we ourselves have taken for granted that it is best for us, if others, the professionals make these decisions for us.

Croatians are proud of their disability policy

Erdtman, Emil.  2008.  Croatians are proud of their disability policy.
English
Croatians are proud of their disability policy. A disability ombudsman who has a disability has been appointed and accessibility and legislation are on the right track. A law on personal assistance will take effect in 2010.

Center for Independent Living in Jerusalem

Brafman, Daniela.  2008.  Center for Independent Living in Jerusalem.
English
By Daniela Brafman, Director, Center for Independent Living Jerusalem, January 2008

The Rough Guide to Managing Personal Assistants

Vasey, Sean.  2000.  The Rough Guide to Managing Personal Assistants.
English
"Having PAs enabled me to find out who I am and now enables me to be who I am." If you are a disabled person and about to start receiving a Direct Payment to employ your own personal assistants (PAs), this book aims to give you a flavour of what it is like; the joys and the challenges. This book covers recruitment, managing, using PAs in social situations and at work, and dealing with problems. Put together by Sian Vasey with cartoons by David Shenton.

Is Personal Assistance Relevant for Developing Countries?

Dr. Adolf Ratzka.  2006.  Is Personal Assistance Relevant for Developing Countries?
English

s Personal Assistance Relevant for Developing Countries?

by:Adolf Ratzka, December 2006

Photo of K. Stone.blank spaceSee Curriculum Vitae.

Modelo para una Política Nacional de Asistencia Personal

Dr., Ratzka Adolf;.  2004.  Modelo para una Política Nacional de Asistencia Personal.
Spanish
La política sugerida aquí es diferente, porque está escrita por individuos quienes en sí dependen de la asistencia diaria de otros. El Centro Europeo para la Excelencia en Asistencia Personal (ECEPA) (www.ecepa.org) está formado por ocho organizaciones asociadas 1, en ocho países europeos, que son operadas y controladas por personas con discapacidad y se especializa en brindar y defender los servicios de asistencia personal para personas con discapacidad. Usando nuestra experiencia combinada con las políticas de asistencia personal, se recopiló una lista de características para una política que promueve la autodeterminación y la ciudadanía completa para las personas con discapacidades extensivas.

The Independent Living Movement in the UK

Evans, John.  2003.  The Independent Living Movement in the UK.
English
John Evans was one of the founders of Project 81 that marked the beginning of the Independent Living Movement in the UK. Since 1996 he has been the chair of the European Network on Independent Living (ENIL). In this document he gives an overview of the origin of the Independent Living Movement in the UK, it's development and evolution, as well as the current situation (2003).

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