Care or Personal Assistance around the World Articles

Richtlinien für eine beispielhafte nationale Gesetzgebung für persönliche Assistenz

German
Dr. Adolf Ratzka.  2004.  Richtlinien für eine beispielhafte nationale Gesetzgebung für persönliche Assistenz.
Der hier vorgeschlagene Ansatz geht andere Wege, weil er von Personen erarbeitet wurde, die selber im täglichen Leben auf die Unterstützung anderer angewiesen sind. Im Europäischen Kompetenzzentrum für Persönliche Assistenz, ECEPA (www.ecepa.org), sind acht Partnerorganisationen (1) aus acht europäischen Ländern zusammen geschlossen. Diese Organisationen werden von Menschen mit Behinderungen geführt und sind darauf spezialisiert, Assistenzdienstleistungen für Menschen mit erheblichen Behinderungen durchzusetzen und anzubieten.

Model National Personal Assistance Policy

English
Dr. Adolf Ratzka.  2004.  Model National Personal Assistance Policy.
Using our combined personal experience with personal assistance policies a list of features was compiled for a policy that is to promote self-determination and full citizenship for persons with extensive disabilities. The suggested policy is designed to:
  • establish the right to direct payments of assistance services for as many assistance users as possible,
  • enable as many assistance users as possible to exercise the degree of control over their services which they prefer at any given situation in their lives

La place des aidants familiaux dans le système d'assistance personnelle suédoise

French
Jaillet, C.  2009.  La place des aidants familiaux dans le système d'assistance personnelle suédoise.
Si dans la plupart des pays européens, la forme la plus répandue d'assistance est fournie par les proches de la personne en situation de handicap, on peut aisément comprendre les limites de ce système. La relation de confiance fait que ce système peut fonctionner, et pourtant : - les membres de la famille de la personne en situation de handicap à haut degré de dépendance, les parents notamment, vieillissent et ne peuvent pas indéfiniment être les assistants de leur enfant-adulte,

The Economics of Independent Living

English
Zarb, Gerry.  2003.  The Economics of Independent Living.
Gerry Zarb is a Policy Analyst at the Disability Rights Commission in the UK. He was formerly Disability Programme Director at the Policy Studies Institute. He has extensive research and consultancy experience on a range of disability issues, with a particular interest in independent living.

25 years of Independent Living in Sweden- Documentation - Susanne Berg on STIL

English

Panel discussion: Models, milestones and achievements by the Swedish Independent Living organisations, Susanne Berg, November 8 2008.

STIL is the oldest Independent Living organization in Sweden. The organization started the Swedish movement and therefore has worked the longest with the Independent Living model.
 
At the conference in 1983 the Independent Living movement was presented by Ed Roberts and Judy Heumann among others. It was presented as a movement with two sides, two legs.

IL 25 years Documentation - Bengt Westerberg

English
Westerberg, Bengt.  2008.  IL 25 years Documentation - Bengt Westerberg.
Speech by Bengt Westerberg, chair of Swedish Red Cross and former Minister of Social Affairs, 2008. 22 years ago I met with Adolf Ratzka for the first time. I was then a politician, the leader of the Liberal party in Sweden, Folkpartiet and had welfare policy for disabled people high on my agenda. Adolf and Bengt Elmén, who also was present when we met in 1986 and who is present here today, told me about the social experiment they had initiated in Stockholm and some other municipalities to substitute the conventional social services provided by the local authorities with personal assistance.

25 år Independent Living - Dokumentation

Swedish
Independent Living Institute.  2008.  25 år Independent Living - Dokumentation.
Internationell konferensen i november 2008 för att fira 25 år av Independent Living i Sverige. Dokumentation från konferensen: Välkomstanförande, tal av Bengt Westerberg, Adolf Ratzka med mera.

Independent Living movement’s 25 years of existence in Sweden 2008 - Documentation

English
Independent Living Institute.  2008.  Independent Living movement’s 25 years of existence in Sweden 2008 - Documentation.
Kerstin Nilsson, vice chair person of STIL welcomes the guests. I am honoured to welcome you to this conference to celebrate the Independent Living movement’s 25 years of existence here in Sweden. During these two days we should above all learn from each other, from our different experiences of Independent Living and how we as persons with different disabilities handle the challenges we meet on a daily basis.

”Fru Schledermann” (på svenska) - En film om rätten till ett själbestämt liv med personlig assistans

Swedish
Öhlén, Bo, Rejhed Bengt.  1995.  ”Fru Schledermann” (på svenska) - En film om rätten till ett själbestämt liv med personlig assistans.
- En film om rätten till ett själbestämt liv med personlig assistans. Monika har ett funktionshinder och behöver assistans med allt - gå upp, klä på sig, hygien, äta, vara mormor och för fritiden. Hon bor ensam och har kommunal hemtjänst, men kan inte bestämma vilka som ska arbeta för henne. Jämnt kommer nya människor in i huset som hon måste lära upp.

“Mrs Schledermann” - A film about the right to Independent Living with personal assistance (Swedish language, English subtitles)

English
Öhlén, Bo, Rejhed Bengt.  1995.  “Mrs Schledermann” - A film about the right to Independent Living with personal assistance (Swedish language, English subtitles).
“Mrs Schledermann” (Swedish language, English subtitles) - A film about the right to Independent Living with personal assistance produced for STIL, the Stockholm Cooperative for Independent Living, by Bo Öhlén and Bengt Rejhed 1995

"Ge oss makt inte medlidande" är ett radioprogram om STIL och kampen för personlig assistans

Swedish
Berg, Susanne.  2004.  "Ge oss makt inte medlidande" är ett radioprogram om STIL och kampen för personlig assistans.

 Ge oss makt inte medlidande är ett program/podcast om STIL och kampen för personlig assistans. 2004-04. lyssna Lyssna-MP3 (28:21 minuter, 26,6 MB).

Stockholmskooperativet för Independent Living är resultatet av ett litet antal individers kamp för personlig assistans i mitten på nittonhundraåttiotalet. Personlig assistans är, i motsats till hemtjänst eller boendeservice, en service knuten till den enskilde själv. Den som behöver assistans bestämmer själv vem som ska assisterar med vad; när det ska göras och hur.

Ireland – ideological shift under way - interview with David Egan

English
Erdtman, Emil.  2008.  Ireland – ideological shift under way - interview with David Egan.
Ireland has the Disability Act of 2005, a demanding building law and two anti-discrimination laws. However, as yet there is no legislation for personal assistance, though various organizations arrange services without government involvement.

Latvia: “We want help to start a personal assistance project”

English
Westberg, Kenneth.  2008.  Latvia: “We want help to start a personal assistance project”.
Personal assistance is not available in Latvia. Today the options are help from relatives or living in residential institutions. However, Dace Rodzina, who represents the organization APEIRONS, would like to change the situation by influencing legislation and launching projects with organizations from other countries.

Finland: “The new personal assistance law doesn’t quite make it”

English
Westberg, Kenneth.  2008.  Finland: “The new personal assistance law doesn’t quite make it”.
In Finland personal assistance became a right on September 1, 2009. However, dissatisfaction is great because municipalities can still decide how assistance should be provided.

Spain - Spaniards are fighting for more personal assistance

English
Erdtman, Emil.  2008.  Spain - Spaniards are fighting for more personal assistance.
Independent Living—or Vida Independiente, as it will be called in this article—has grown in Spain via the internet and is now running a pilot project with personal assistance in several urban areas.

Flanders, Belgium - long queue for personal assistance

English
Bernt, Malin.  2008.  Flanders, Belgium - long queue for personal assistance.
“In Flanders, Belgium, 4,000 people are waiting to receive assistance,” says Viviane Sorée, chairperson of Bol Budiv. Viviane Sorée is chairperson of the organization Bol Budiv, which helps individuals who receive assistance. They provide advice and support to 1,350 people with disabilities living in Flanders. Bol Buiv is a two-year old project that is financed by government funding. “We have high hopes to be able to continue our work after the project ends.”

Iceland – Few have been granted personal assistance payments

English
Erdtman, Emil.  2008.  Iceland – Few have been granted personal assistance payments.
The population of Iceland is less than 300,000. Everyone knows each other in small towns, and even in the city of Reykjavik. Yet for now, the number of people who have assistance can be counted on one hand. Iceland is a Nordic country, but in terms of personal assistance it has not kept up with the region.

Greece – Stelios lives “independently” with help from his family

English
Erdtman, Emil.  2008.  Greece – Stelios lives “independently” with help from his family.
In Greece families assume a large responsibility, including for personal assistance. But society is rapidly changing, as can be seen in the streets and squares in recent times.

Germany – means-tested personal assistance

English
Bernt, Malin.  2008.  Germany – means-tested personal assistance.
Christian Bayer’s most important issue is means-tested personal assistance. People who have a job and earn money have to pay for their personal assistance themselves. According to German law, people in need of personal assistance can get money from the State for it. Yet, unlike Sweden, the payments depend on your income and property.

Towards an operational definition of Personal Assistance

English
Dr. Adolf Ratzka.  1992.  Towards an operational definition of Personal Assistance.

Persons with extensive disabilities need assistance by other people in their everyday lives with such activities as getting bathed and dressed or going to the toilet; with shopping, preparing meals, cleaning or doing the laundry; with such responsibilities within the family as doing the practical tasks involved in raising small children or assisting one' s aging parents. Assistants help the user at work, about town and on travel. They assist in communicating or in structuring the day, as the case might be. In brief, assistants help with those activities which the user would have done by himself or herself, had it not been for a physical, sensory, mental or intellectual disability.

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