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1999
Abidi J.  1999.  We (Disabled People) Must Learn to Exert Ourselves. Disability Awareness in Action Newsletter no. 74, July 1999.
According to Abidi, Executive Director, National Centre for Promotion of Employment of Disabled, India, with 60-70 million disabled people in India, disability is clearly a social issue, a socio-economic issue, a development issue. Why then is disability not a national issue? Internet publication URL: http://www.independentliving.org/docs1/abidi.html.
1998
Stone KG.  1998.  Awakening to Disability - Nothing About Us Without Us.
Book review from Ability Network magazine. Internet publication URL: www.independentliving.org/docs5/stonereview.html
Mason P.  1998.  Back To Basics - Hampshire Center for Independent Living's Expert Seminar on Independent Living.
Back To Basics: Philip Mason's keynote speech at the expert seminar organized by the Hampshire CIL in Southampton, May 30 -31, 1998. Internet publication URL: www.independentliving.org/docs5/Mason80530.html
Russell M.  1998.  Beyond Ramps: Disability at the End of the Social Contract.
Book review courtesy Common Courage Press. Internet publication URL: www.independentliving.org/docs5/RussellReview.html
Hardus A.  1998.  Boss in your own home: Client Linked Budget.
"Client-linked budget" is a system of direct payments for personal assistance services. This outlines the Dutch service, comparing it with "help in kind." Internet publication URL: www.independentliving.org/docs3/hardus.html
Ratzka A.  1998.  Brief Description of the Swedish Personal Assistance Act of 1994 (LASS).
For the "International Survey of Personal Assistance Schemes." Internet publication URLs: www.independentliving.org/docs1/ratzka1998lass.html and www.independentliving.org/panetwork/questionnaire.html
Doty PJ.  1998.  The Cash and Counseling Demonstration: An Experiment in Consumer-Directed Personal Assistance Services.
The "Cash and Counseling" Demonstration/Evaluation is a large-scale public policy experiment designed to test the feasibility and assess a consumer-directed approach to the financing and delivery of personal assistance services (PAS). Internet publication URL: www.independentliving.org/docs4/ar398.html
Creurer M.  1998.  Changing Lanes... A guide to help when aging, illness or disability forces us into the Slow Lane - Book Review.
Michael Creurer offers valuable psycho-educational concepts combined with narratives about the author and his disabled peers. Internet publication URL: www.independentliving.org/docs4/rogers.html
Handikappombudsmannen, Independent Living Sverige.  1998.  Conference on Human Rights for Disabled People: Discussion from August 24th, 1998.
This is the transcript of a panel discussion on the topic of constitutional laws and anti-discrimination legislation for persons with disabilities. Internet publication URL: www.independentliving.org/docs1/hr11.html
Handikappombudsmannen, Independent Living Sverige.  1998.  Conference on Legislation for Human Rights.
This introduction to the conference on Legislation for Human Rights held in Stockholm on August 24, 1998 presents links to reports by experts from several countries with anti-discrimination legislation in connection with disability about how the legislation has functioned in their countries and their reflections on the situation of disabled people in their respective countries. Internet publication URL: www.independentliving.org/docs1/hr00.html
Enns H.  1998.  Conflict Situations and Disabled Persons.
Henry Enns, Executive Director of Disabled Peoples’ International discusses the plight of disabled refugees as a human rights issue that needs to be addressed by the UN and member states. Immigration policies in most countries discriminate against disabled refugees considering them as a “burden” and ignoring the significant contributions that disabled persons make to society. Internet publication URL: www.independentliving.org/docs1/dispeopleintldev2.html
Ratzka A.  1998.  Crip Utopia.
Tongue-in-cheek science fiction. Internet publication URL: www.independentliving.org/docs4/ratzkacu.html (In Swedish.)
Mahoney KJ, Simon-Rusinowitz L, Desmond SM, Shoop DM, Squillace MR, Fay RA.  1998.  Determining Consumers' Preferences for a Cash Option: New York Survey Findings.
The purpose of this article is to present findings from a telephone survey conducted in New York to assess consumers' preliminary interest in the cash option when compared to traditional services. Internet publication URLs: www.independentliving.org/docs4/ar498.html
Ratzka A.  1998.  Direct Payment Schemes in Slovakia.
In 1997 the Independent Living Institute successfully bid for projects in the Slovak Republic within the European PHARE program: a personal assistance delivery scheme using direct cash payments and a accessible mainstream taxi system with a subsidy scheme for disabled riders. The article discusses some of the difficulties and opportunities that user-initiated and user-run solutions entail in post-communist societies. Internet publication URL: www.independentliving.org/docs3/slovakia.html
Barnes C.  1998.  Discrimination and the law - the British Experience.
In his presentation at the seminar organized by Independent Living Sweden, Stockholm, and and the Office of the Disability Ombudsman, Professor Colin Barnes of the Disability Research Unit in Leeds, UK, describes the Disability Discrimination Act enacted in 1995 in the UK, why and how the Act came into being, and why the Act is a mistake. He notes that the result of policies in general has been to create dependence for disabled people instead of independence which is what disabled people want and have a right to. Conference on Legislation for Human Rights Stockholm, Sweden, 1998-08-24. Internet publication URL: www.independentliving.org/docs1/hr6.html.
Nakanishi Y.  1998.  Effects of the Economic Downturn in Japan.
The Japanese Government has been trying to promote decentralization for the last 6-7 years. Disabled persons are afraid that some services will be cut due to scarce local resources. Internet publication URL: www.independentliving.org/docs5/JapanEcon.html
Flynn P.  1998.  An EU response to Disability in the Workplace, SIPTU, DISABILITY, EQUALITY - National Workshop on the Politics of Disability.
Internet publication URL: www.independentliving.org/docs3/flynn98.html
Konczei G.  1998.  Genesis of the Hungarian Anti-Discrimination Legislation.
Hungary is leaving the old fashioned approach to disability, characterised by pity, paternalism, charity and a medical approach, and is taking on a legal approach which acknowledges the rights of disabled citizens. Internet publication URL: www.independentliving.org/docs1/hr9.html
Degener D. T.  1998.  The Global Picture and the European Situation Regarding Bioethics and Genetic Engineering.
This article is an account of a presentation at the 1998 "Seminar on Bioethics and Disabled people" by Dr. Theresia Degener, legal adviser to the German Council of Centres for Self-Determined Living and lecturer at the Universities of Frankfurt, Mainz and Leipzig. In her presentation, Dr. Degener advanced a theory that bioethics is incompatible with human rights philosophy. She also discusses how existing international standards with regard to human rights including The Universal Declaration of Human Rights (1948) and the Nuremberg Code (1947) are undermined by the draft UNESCO Declaration on Bio-ethics and Human Rights and the European Convention on Human Rights and Bio-Medicine, both of which were designed to protect freedom of research. Internet publication URL: www.independentliving.org/docs1/dpibethics.html. In: Disabled Peoples' International (DPI). 1998. "Seminar on Bioethics and Disabled people." Internet publication URL: www.independentliving.org/docs1/dpibethics.html
Department of the Environment, Transport and the Regions, UK.  1998.  Government Consults on Rail Accessibility - Press Notice: 372/ Transport.
Press release (London, England) - Trains and trams entering service after 31 December 1998 will be fully accessible. Internet publication URL: www.independentliving.org/docs5/transnews.html
European Disability Forum.  1998.  Guide to the Amsterdam Treaty.
As a result of extensive campaign work by disability NGOs, disabled people are now visible in the Treaties. The non-discrimination clause, the provisions on social policy, the title on employment, the declaration on internal market legislation will all have practical consequences for disabled people throughout the Union. Internet publication URLs: www.independentliving.org/docs3/edf98.html and www.independentliving.org/docs3/edf98.pdf
Peterson D.  1998.  Hanging In There.
Dick Peterson creates a new hoisting device with an above-the-waist lifting harness, making transfers smoother for people with various physical disabilities. Internet publication URL: www.independentliving.org/docs3/peterson.html
Katz R.  1998.  The Home and Community-Based Services Work Group, partners with state, consumers, and others to advance the PAS agenda.
This article discusses how the Administration (US Government) balances the goal of providing more flexibility and choice for people with disabilities with the need to ensure that the services are cost effective. Internet publication URL: www.independentliving.org/docs4/ar4985.html
Taylor Z B.  1998.  Honest portrayals of disabilities drive popular television show.
People with disabilities are often invisible in movies and television shows, however, Zara Buggs Taylor writes about one television show which is changing audience perceptions about people with disabilities. Internet publication URL: www.independentliving.org/docs1/taylor.html
Nkeli J.  1998.  How to overcome double discrimination of disabled people in South Africa.
South African Human Rights Commissioner, Jerry Nkeli, outlines the country's history from the point of view of the Disability Rights Movement. Conference on Legislation for Human Rights Arranged by Handikappombudsmannen in cooperation with Independent Living Sverige, Stockholm, Sweden 24 August 1998. Internet publication URL: www.independentliving.org/docs1/hr5.html
Baha’i International Community.  1998.  Human Rights and Disability. Statement to the fortieth session of the United Nations Sub-Commission on Prevention of Discrimination and Protection of Minorities Agenda item 7: human rights and disability. Geneva, Switzerland, August 1988.
Internet publication URL: www.independentliving.org/docs6/bic199808.html
Montero F.  1998.  Human Rights and Organisations of Disabled Persons in Costa Rica.
Despite positive changes in Costa Rica's social policies, disabled people still are denied certain rights to participate in all aspects of society. Internet publication URL: www.independentliving.org/docs1/stlm19980823e.html
Nkeli J.  1998.  Human Rights Commissioner reflects on achievements obtained by people with disabilities.
In South Africa we have disabled people in leadership-roles and have achieved a lot but we have many problems to face in the field of human rights such as issues dealing with racial intolerance and a diversity of various issues that deal with colonialism. Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Stockholm, Sweden 23 August, 1998. Internet publication URL: www.independentliving.org/docs1/stlm19980823f.html
Majiet S.  1998.  Human Rights from Disabled Peoples' Perspective in Africa.
Shanaaz Majiet speaks on human rights and disability from the perspective of the African continent. Internet publication URL: www.independentliving.org/docs1/stlm19980823d.html
Heumann JE.  1998.  The Implications of ADA for Disabled People.
There is a strong need for civil rights legislation in all countries. To those who continue studying whether or not there is a need for anti-discrimination legislation, it is time to stop studying and to start legislating! Internet publication URL: www.independentliving.org/docs1/hr4.html
Brown SE.  1998.  In Freedom, Frank.
Dr. Steven E. Brown Co-Founder of the Institute on Disability Culture, in the United States, describes the life and work of Frank Moore, a Berkeley, California, USA performance artist with cerebral palsy. First published in Mainstream: Magazine of the Able-Disabled, June/July 1998. Internet publication URL: www.independentliving.org/docs3/brown98b.html.
Wilner MA, Wyatt A.  1998.  Independence Care System: Managed Care for People with Disabilities.
The goal of Independence Care System is to enable people with disabilities to remain at home or in the least restrictive setting possible by integrating the full range of primary care, acute care, and home and community-based services in a comprehensive, flexible manner. Internet publication URL: www.independentliving.org/docs4/ar3982.html
Nadash P.  1998.  Independent Choices: Enhancing Consumer Direction for People with Disabilities.
Allowing consumers to manage and direct the long-term services they need acknowledges that they are the best judges of their own needs and the best decision-makers on how these needs get met - an acknowledgment seldom made. Internet publication URL: www.independentliving.org/docs4/ar3983.html
Brichtová L.  1998.  "Independent Living and proposed Slovak social reforms.".
Lydia Brichtová speaks about the changes adopted in social/disability legislation since 1989. Internet publication URL: www.independentliving.org/docs1/hr8.html.
Independent Living Institute.  1998.  Independent Living Institute (ILI) Annual Report 1997.
Internet publication URL: www.independentliving.org/docs1/ilanrp1997.html
Clarke D. A.  1998.  Issues Arising from Genetics - Genetics and Disability.
In his presentation Dr. Angus Clarke, of the Institute of Medical Genetics at the University of Wales College of Medicine, discusses issues raised by genetics in disability, outlines the uses of genetic testing and his concerns about how it is developing, as well as the different uses for genetics in general and with regard to reproductive screening, and the problems surrounding this issue. Internet publication URL: www.independentliving.org/docs1/dpibethics2.html.
Cunningham-Burley D. S.  1998.  Issues Arising from Quality of Life. Seminar on Bioethics and Disabled people.
In her presentation, Dr. Sarah Cunningham-Burley, from the Department of Public Health, University of Edinburgh, looked at the way in which quality of life issues are affecting medical decisions, including decisions about genetic testing, and related this to a study of how the general public views these issues. Internet publication URL: www.independentliving.org/docs1/dpibethics3.html. In: Disabled Peoples' International (DPI). 1998. "Seminar on Bioethics and Disabled people." Internet publication URL: www.independentliving.org/docs1/dpibethics.html
Bracking S, Cowan R.  1998.  It's MY life - An introduction to Independent Living.
Stuart Bracking and Ross Cowan (Gateshead Council on Disability) offer definitions and examples of the concepts independent living, personal assistance, and disability, comparing the medical and social models. Internet publication URL: www.independentliving.org/docs4/bracking1.html.
Enns H.  1998.  Journey to the Middle East.
This account describes the organizational efforts of disabled people encountered by Henry Enns, Executive Director of Disabled Peoples’ International and Marion Stroud, a member of the International Committee on the Mennonite Central Committee (MCC), during their visit to five countries in the Middle East. Their mission was to explore ways that MCC could support the grassroots development of disabled people in these countries. Internet publication URL: www.independentliving.org/enns1998middle_east
Hurst R.  1998.  Leading Disabled Activist, Awarded Highest U.S. Honour.
In February 1998, disability activist Justin Dart was awarded the Presidential Medal of Freedom - the highest civilian honour in the USA. Internet publication URL: www.independentliving.org/docs4/hurst98a.html
Montero F.  1998.  Legislation on Disability: The Costa Rican Experience.
Despite the country's relative good respect for human rights and our democratic system, disabled people still do not enjoy equal rights and participation in all aspects of society. Among the factors that prevent disabled people from full citizenship are negative attitudes against disability. Internet publication URL: www.independentliving.org/docs1/hr12.html
Albert B.  1998.  The New Genetics and Disabled People.
The following paper draws heavily on the British Council of Organisations of Disabled People's (BCODP) discussions on the issue of genetics and disabled people. Please note that this paper is NOT BCODP policy but rather a discussion document intended to encourage debate within the movement. For more information on the issue of genetics and disabled people BCODP please refer to the BCODP web site. Internet publication URL: http://www.independentliving.org/docs1/albert1998.html
Disabled Peoples' International - European Region.  1998.  Panel Discussion - Open Debate, Seminar on Bioethics and Disabled People (1998).
Internet publication URL: www.independentliving.org/docs1/dpibethics5.html. In: Disabled Peoples' International (DPI). 1998. "Seminar on Bioethics and Disabled people." Internet publication URL: www.independentliving.org/docs1/dpibethics.html
Willig Levy C.  1998.  A People's History of the Independent Living Movement.
Chava Willig Levy relates stories from the IL Movement to create a people's history. This mongraph explores human rather than social forces. It looks at who rather than what shaped the IL movement. Internet publication URL: www.independentliving.org/docs5/ILhistory.html
Belli R.  1998.  Personal Assistance Legislation in Italy.
Raffaello Belli reports on various pieces of Italian legislation applying to payment of personal assistance for people with disabilites. Internet publication URL: www.independentliving.org/docs1/belli1998.html.
Litvak S.  1998.  Personal Assistance Service Policy: Where We Have Been and Where We Are Going.
Dr. Simi Litvak examines the current state of Personal Assistance Services (PAS), and how they might be improved in a fiscal, quality, and humanitarian sense. Internet publication URL: http://www.independentliving.org/docs4/ar4984.html
Brown SE.  1998.  Poster Kids No More:' Perspectives About the No-Longer Emerging (In Fact, Vibrant) Disability Culture.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, takes an opportunity to review a decade of investigating and promoting disability culture. This piece quotes liberally from previous Brown publications, and attempts to put into perspective both opinions that challenge the concept of a disability culture and those that support it. In: Disability Studies Quarterly, 18(1) (Winter 1998), 5-19. (PDF, 160 KB.) Internet publication URL: www.independentliving.org/docs3/brown98a.html. In Internet publication URL: www.independentliving.org/docs3/brown98a.pdf.
Könkkölä K.  1998.  Presentation at the Seminar on Human Rights for Persons with Disabilities from a North and South Perspective Stockholm, Sweden 23 August, 1998.
Kalle Könkkölä discusses the organization's perspective on human rights. Internet publication URL: www.independentliving.org/docs1/stlm19980823b.html
Barnes C.  1998.  Presentation at the Seminar on Human Rights for Persons with Disabilities from a North and South Perspective Stockholm, Sweden, 1998-08-23.
In his presentation at the seminar organized by Independent Living Sweden, Stockholm, Professor Colin Barnes of the Disability Research Unit in Leeds, UK, discusses rights and conditions for disabled persons in the UK and developed countries as compared to those in developing countries. He raises questions concerning the efficacy of legislation, the concept of rights, disability as one of many forms of social oppression, how developed countries’ economic policies are responsible for disability in developing countries, the role of organizations in improving conditions for disabled people, and the importance of the right to life. Internet publication URL: www.independentliving.org/docs1/stlm19980823g.html.
Batavia AI.  1998.  Prospects for a National Personal Assistance Services Program: Enhancing Choice for People With Disabilities.
Mr. Batavia is Associate Professor, School of Policy and Management, College of Urban and Public Affairs, Florida International University, North Miami, Florida. The article was published in American Rehabilitation, Volume 24, Number 4, Winter 1998, Personal Assistance Services Part 2 of 2. American Rehabilitation is the official publication of the Rehabilitation Services Administration (RSA) 330 C Street S.W. Washington D.C. 20202-2531. Internet publication URL: www.independentliving.org/docs6/batavia1998.html.
European Commision.  1998.  Raising Employment Levels of People with Disabilities - The Common Challenge.
In light of the European Employment Strategy, and drawing on the analysis of some key elements of the 1998 Member States' National Action Plans, this paper seeks to establish a set of fundamental policy issues concerning employment and disability. Internet publication URLs: http://www.independentliving.org/docs3/ec1550.html and http://www.independentliving.org/files/ec1550.pdf
United Nations.  1998.  Report of the United Nations Consultative Expert Group Meeting on International Norms and Standards Relating to Disability.
Experts in international law and disability policy issues review and discuss issues and trends relating to the practical application of international norms and standards to promote the human rights of persons with disabilities. Internet publication URL: www.independentliving.org/docs4/disberk0.html
Rehabilitation Services Administration (RSA).  1998.  Resolutions on Personal Assistance Services.
Passed by Participants of the International Personal Assistance Services Symposium Sponsored by the World Institute on Disability, Convened September 29 to October 1, 1991, Oakland, California. Published in: American Rehabilitation, Volume 24, Number 4, Winter 1998, Personal Assistance Services, Part 2 of 2. American Rehabilitation is the official publication of the Rehabilitation Services Administration (RSA) 330 C Street S.W. Washington D.C. 20202-2531. Internet publication URL: www.independentliving.org/docs6/rsa1998.html
Disabled Peoples' International - European Region.  1998.  Seminar on Bioethics and Disabled People (1998).
Summaries of papers on Genetics & Bioetheics at the DPI Seminar. Presentations given by, Dr. Angus Clarke, Dr. Sarah Cunningham, and Dr. Theresia Degener, followed by an open debate. Internet publication URL: www.independentliving.org/docs1/dpibethics.html
Heumann JE.  1998.  Seminar on Human Rights for Persons with Disabilities from a North and South Perspective.
From her perspective as Assistant Secretary for the Office of Special Education and Rehabilitative Services (USA), Judy Heumann speaks on disability rights. Internet publication URL: www.independentliving.org/docs1/stlm19980823c.html
Ratzka A.  1998.  Sexuality and people with disabilities: What experts often are not aware of.
For many of us who have extensive disabilities our sexual liberation does not so much depend on sex counselling or mechanical sex aids but on the availability of tax-funded personal assistance services which empower us to take control over our own lives. Internet publication URL: www.independentliving.org/docs5/sexuality.html
European Network on Independent Living (ENIL).  1998.  Shaping Our Futures, A conference on Independent Living.
Facing our futures brought together disabled experts on independent living, to share experience and map out future strategies. The conference set out to consider the social and economic arguments for independent living. Internet publication URLs: www.independentliving.org/docs2/enilfuture.html and www.independentliving.org/docs2/enilfuture.pdf
Concrete Change.  1998.  United Kingdom Single Family Access Law.
Internet publication URL: www.independentliving.org/docs6/concrete-change1998.html.
DO-IT.  1998.  The University of Washington, Access To Higher Learning.
This guide outlines universal design principles to develop accessible college and university computer labs. Internet publication URL: www.independentliving.org/docs1/doit1998.html
Iglesias M, Gil G, Joneken A, Mickler B, Knudsen JS.  1998.  Violence and Disabled Women.
The report describes the situation of women with disabilities who are abused, analyzes various types of violence, describes general policies combatting violence against women with disabilities in Denmark, Germany, Sweden and Spain, and offers policy recommendations. It was carried out under the METIS project, European Unión DAPHNE initiativ. Internet publication URLs: www.independentliving.org/docs1/iglesiasetal1998.html (In English) and and www.independentliving.org/docs1/iglesiasetal1998sp.html (In Spanish).
Beatty P, Adams M, O´Day B.  1998.  Virginia's Consumer-Directed Personal Assistance Services Program: A History and Evaluation.
Brown SE.  1998.  What Happened To Architectural Accessibility?
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, discusses the issue of architectural accessibility and wonders why this so-called easy aspect of accessibility can still be so difficult to find and why more people aren’t talking about and taking action to increase architectural accessibility. Internet publication URL: www.independentliving.org/column/brown1_00.html.
Wolbring G.  1998.  Why Disability Rights Movements Do Not Support Euthanasia: Safeguards Broken Beyond Repair.
We believe that euthanasia is another technique to free society of disabled people and another expression of the ableism in western societies. Internet publication URL: www.independentliving.org/docs5/Wolbringeuthanasia.html
1997
Dunn PA.  1997.  A Comparative Analysis of Barrier-Free Housing: Policies for Elderly People in the United States and Canada.
This paper identifies policy issues in creating barrier free housing for elderly people with disabilities in the United States and Canada. The strengths and weaknesses of a variety of policy approaches are contrasted. The approach in the United States which emphasizes individual housing rights is compared to the more social welfare approach used in Canada. Internet publication URL: www.independentliving.org/docs5/dunn1997b.html
Council of the European Union.  1997.  Directive 2000/ /EC of the European Parliament and of the Council of the European Union.
Internet publication URL: Internet publication URL: www.independentliving.org/docs4/eu97bus.html
Lagadien F.  1997.  Disabled Women and the Media - Presentation for National Women's Day.
Fadila Lagadien considers how media communicates images of the estimated 13 per cent of disabled South Africans, especially women with disabilities. Internet publication URL: www.independentliving.org/docs1/fadila97.html
Brown SE.  1997.  Dis-ing Definitions.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, attempted to reframe how people think the language and status of disability. First published in Mainstream: Magazine of The Able-Disabled, August 1997. Internet publication URL: www.independentliving.org/docs3/brown97b.html.
Ratzka A.  1997.  Eradication of "deviants": the dark side of the Swedish Model.".
Sweden's policy of forced sterilization of disabled people and others shocked the world. Dr. Adolf Ratzka comments on the news. Internet publication URL: www.independentliving.org/docs5/Sterilization.html
Michailakis D.  1997.  Government Action on Disability Policy, A Global Survey.
Internet publication URL: www.independentliving.org/standardrules/UN_Answers/UN.pdf
Michailakis D.  1997.  Government Implementation of the Standard Rules As Seen By Member Organizations of World Federation of the Deaf - WFD.
Internet publication URL: www.independentliving.org/standardrules/WFD_Answers/WFD.pdf
Michailakis D.  1997.  Government Implementation of the Standard Rules As Seen By Member Organizations of Inclusion International (ILSMH).
Internet publication URL: www.independentliving.org/standardrules/InclInt_answers/ILSMH.pdf
Michailakis D.  1997.  Government Implementation of the Standard Rules As Seen By Member Organizations of Rehabilitation International - RI.
Internet publication URL: www.independentliving.org/standardrules/RI_Answers/RI.pdf
Michailakis D.  1997.  Government Implementation of the Standard Rules As Seen By Member Organizations of World Blind Union - WBU.
Internet publication URL: www.independentliving.org/standardrules/WBU_Answers/WBU.pdf
Michailakis D.  1997.  Government Implementation of the Standard Rules As Seen By Member Organizations of Disabled Peoples' International - DPI.
Internet publication URL: www.independentliving.org/standardrules/DPI_Answers/DPI.pdf
Miles M.  1997.  Home Visiting with Mama Kitenge, Community Based Rehabilitation Fieldworker, Tanzania.
A morning in the poorer parts of Dar es Salaam is described, during which Mama Kitenge visits families with children having mental and other disabilities and works with these childen and their caregivers. Internet publication URL: www.independentliving.org/docs3/milesm1997a.html
Ratzka A.  1997.  Independent Living and Our Organizations: A Definition.
We are the last minority to fight for our rights and we will not go away. Even with the most sophisticated prevention, early detection and rehabilitation services there will always be people with disabilities and we have to build our societies in such a way that everybody can live in them with dignity and self-respect. Presentation at the conference "Our Common World" organized by Disability Rights Advocates Hungary in Siofok, Hungary, May 9-11, 1997. Internet publication URL: www.independentliving.org/toolsforpower/tools7.html
Independent Living Institute.  1997.  Independent Living Institute (ILI) Annual Report 1996.
Internet publication URL: www.independentliving.org/docs1/ilanrp1996.html
Office on the Status of Disabled Persons, South Africa.  1997.  Integrated National Disability Strategy- White Paper.
White Paper from the Office of the President, South Africa. Disabled people should not be seen as objects of pity but as capable individuals who are contributing immensely to the development of society. Internet publication URL: www.independentliving.org/docs5/SANatlDisStrat.html
Brown SE.  1997.  Movie Stars and Sensuous Scars.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, discusses love and sexuality in an autobiographical article. First published in Mainstream: Magazine of the Able-Disabled, February 1997. Internet publication URL: www.independentliving.org/docs3/brown97a.html.
Handi Cap Evasion.  1997.  Peru 1997.
See how travelling with a disability just got easier with the Joëlette in action on a trip to Peru, where even the toughest terrain can be conquered with this wonderful invention! Internet publication URL: www.independentliving.org/docs5/Peru1997.html
South African Human Rights Commission.  1997.  Policy Paper from the South African Human Rights Commission 1997 # 5 : Disability.
Internet publication URL: www.independentliving.org/docs6/sahr1977.html  
Leone J.  1997.  Power, Control, Confidence, and Courage.
Becoming an active participant in what happens to you requires that you feel empowered, exercise self-control, feel self-confident and have courage. Internet publication URL: www.independentliving.org/docs5/Leone97.html
Association for Persons with Severe Handicaps (TASH) - Disability Advocacy Worldwide.  1997.  Resolution Opposing the Legalization of Physician Assisted Suicide.
In their 1997 resolution opposing the legalization of physician assisted suicide, the Association for Persons with Severe Handicaps (TASH) provides a long list of reasons for their opposition to physician assisted suicide, including the negative aspects of allowing physicians to have such power, the insufficiency of proposed safeguards, and dissatisfaction with the implementation of safeguards in conjunction with euthanasia in the Netherlands. Internet publication URL: www.independentliving.org/docs6/tash199712.html
Wallace M.  1997.  Symposium on Disability and Human Rights.
Closing address by Ms. Mary Wallace, T.D., Minister of State at the Department of Justice, Equality and Law Reform. Internet publication URL: www.independentliving.org/docs2/enilirishspeech9711.html
Aslaksen F, Bergh S, Bringa O R, Heggem E K.  1997.  Universal Design Planning and Design for All.
This report attempts to develop and illustrate the concept of universal design, which opposes, ideologically and politically, all unnecessary and stigmatizing specialized solutions. The principles and definitions of universal design were developed by The Center for Universal Design, USA. The Norwegian State Council on Disability. Internet publication URLs: www.independentliving.org/docs1/nscd1997.html and www.independentliving.org/docs1/nscd1997.pdf (5.26 MB)
Cowan R, Watson B.  1997.  What do I want to do? a DIY guide to self-assessment for Disabled people
This Gateshead Personal Assistance Pilot Project quide provides information and advice to disabled people who wish to live independently by using personal assistance. The Guide focusses on assessing your needs. Internet publication URLs: www.independentliving.org/docs4/gateshead1.html and www.independentliving.org/docs4/gateshead1.pdf
Handi Cap Evasion.  1997.  What is a Joëlette?
Read about how one parent's invention made travelling easier and more pleasant for his son, despite the latter's disability. The Handi Cap Evasion Website is at www.hce.asso.fr/eng/ (in English and French). Internet publication URL: www.independentliving.org/docs1/joelette.html
Traustadottir R.  1997.  Women with Disabilities: Issues, Resources, Connections Revised.
The materials in this information packet were compiled for anyone interested in learning about the lives of women and girls with disabilities. The packet is made up of five parts: PART I. Overview Article: Obstacles to Equality: The Double Discrimination of Women with Disabilities. PART II. Annotated Bibliography: Articles, journals, books, and other resources on women with disabilities. PART III. Teaching Others: An annotated listing of resource and teaching materials about women and girls with disabilities. PART IV. Building Connections: Where to find further resources for and about women with disabilities. Including services, support groups, organizations, and periodicals. PART V. World Wide Web Pages: This section provides web sites about and by women with disabilities and covers a variety of topics. Internet publication URL: www.independentliving.org/docs3/chp1997.html
1996
Disability Awareness in Action (DAA).  1996.  About Disability Awareness in Action.
Disability Awareness in Action (DAA) is an international public education campaign to promote, support and coordinate national action to further the objectives of the United Nations Decade of Disabled Persons (1983-1992) and the World Programme of Action Concerning Disabled Persons (WPA). DAA is a partnership between the following organizations: Disabled Peoples' International (DPI), IMPACT, International League of Societies of Persons with Mental Handicap (ILSMH), Rehabilitation International (RI), and World Federation of the Deaf (WFD). Internet publication URL: www.independentliving.org/docs2/daa-about.html
Brown SE.  1996.  Book Review - Deviants, Invalids, and Anthropologists: Cross-Cultural Perspectives on Conditions of Disability in One Academic Discipline: A Review of Disability and Culture.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, critically reviewed the book Disability and Culture, edited by Benedicte Ingstad and Susan Reynolds Whyte. Disability and Rehabilitation: An international, multidisciplinary journal, First published in May 1996. Internet publication URL: www.independentliving.org/docs3/brown96d.html.
European Council.  1996.  Community legislation in force: Resolution of the Council AND of the representatives of the governments of the member states meeting within the Council of 20 December 1996 on equality of opportunity for people with disabilities.
This European Council resolution affirms human rights as a fundamental value of the Member States whereas the principle of equality of opportunity for all, including people with disabilities, represents a core value. All disabled persons, whatever the origin and nature of their disability, must be entitled to concrete measures aimed at improving their social and professional integration. Internet publication URL: www.independentliving.org/docs3/ec9612.html
Osterwitz I.  1996.  Comunita Progetto Sud and Cooperativa at Lamezia Terme - Report from the study visit of working group one, sector social integration, 28 March - 31 March 1996.
Internet publication URL: www.independentliving.org/docs6/osterwitz1996.html
Center for Independent Living, Tokyo, Japan.  1996.  Demand for Social Security Measures by Independent Living Association in Japan.
Internet publication URL: www.independentliving.org/docs6/cil-japan199606.html.
Evans J, Hasler F.  1996.  Direct Payments Campaign in the U.K..
The IL movement believes that Direct Payment schemes should be a right, and thus a change in the legislation has high priority in the issues of disabled people after comprehensive civil rights legislation. Internet publication URL: www.independentliving.org/docs2/enildirectpayment.html
Disability Awareness in Action (DAA).  1996.  Disability Awareness in Action Resource Kit No. 1, Media Information.
DAA's Media Information Resource Kit helps to change the structures of society and attitudes, and to support your cause through traditional media. Internet publication URLs: www.independentliving.org/docs2/daakit1.html and www.independentliving.org/docs2/daa1.pdf
Disability Awareness in Action (DAA).  1996.  Disability Awareness in Action Resource Kit No. 2, Consultation and Influence.
DAA's Consultation and Influence Resource Kit helps to unite organisations as advocates for their own rights to influence decision-makers in governments and all sectors of society. Internet publication URLs: www.independentliving.org/docs2/daakit21.html and www.independentliving.org/docs2/daa2.pdf (146 KB)
Disability Awareness in Action (DAA).  1996.  Disability Awareness in Action Resource Kit No. 3, Campaigns.
DAA's Campaigns Resource Kit offers ideas for campaigns, things to be considered if you are to run a successful campaign and some real-life examples. Internet publication URLs: www.independentliving.org/docs2/daakit31.html and www.independentliving.org/docs2/daa3.pdf (103 KB)
Disability Awareness in Action (DAA).  1996.  Disability Awareness in Action Resource Kit No. 4, Organisation Building.
DAA's Organisation Building Resource Kit looks at how organisations of disabled people can improve their structures and the way they work. nternet publication URLs: www.independentliving.org/docs2/daakit41.html and www.independentliving.org/docs2/daa4.pdf
Disability Awareness in Action (DAA).  1996.  Disability Awareness in Action Resource Kit No. 5, Fund-Raising.
DAA's Fund-Raising Resource Kit gives ideas about your disability organisation's funding strategy - how to raise and use money effectively. Internet publication URLs: www.independentliving.org/docs2/daakit51.html and www.independentliving.org/docs2/daa5.pdf (65 KB)
Disability Awareness in Action (DAA).  1996.  Disability Awareness in Action Resource Kit No. 6, Disabled Women.
DAA's Disabled Women Resource Kit focuses on the social status of disabled women, comments on representation and empowerment, and looks at the women's movement in the context of disabled women's issues. Internet publication URLs: www.independentliving.org/docs2/daakit61.html and www.independentliving.org/docs2/daa6.pdf (61 KB)

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