Library

Found 502 results
Filters: Lang is english  [Clear All Filters]
1999
Richter, Linda K, Richter William L.  1999.  Ethics Challenges: Health, Safety and Accessibility in International Travel and Tourism.
William L. Richter and Linda K. Richter explore ethical dimensions of accessible travel for people with disabilities, citing trends, issues, and strategies for public administrators to deal with these concerns. Internet publication URL: www.independentliving.org/docs1/richter.html
Andrich, Renzo.  1999.  EUSTAT Study (Empowering Users Through Assistive Technology), Training Manuals.
EUSTAT, a European project carried out within the EU/Telematics Programme, has published educational material specifically addressed towards end-users of Assistive Technology - people with disabilities. Internet publication URL: www.independentliving.org/docs1/eustat99.html
Clare, Elizabeth.  1999.  Exile and Pride: Disability, Queerness, and Liberation.
This book by Eli Clare, explores the landscape of disability, class, queerness, and child abuse, telling stories that echo with the sounds of an Oregon logging and fishing town, and with the lively political debates of crip crusaders and transgender warriors. Internet publication URL: www.independentliving.org/docs4/clare99.html.
Stephen, Drake, Diane Coleman.  1999.  Fact Sheet on Peter Singer.
Gill, Carol J.  1999.  Facts About Disability and 'Quality of Life'.
If only Kevorkian and others would read the research literature before deciding it is reasonable to want to die when you have an extensive disability! Internet publication URL: www.independentliving.org/docs3/gill99sv.html (In Swedish.)
Krause, Carol.  1999.  Federal Resource Center for Women with Disabilities - Added to the National Women's Health Information Center.
The Office of Women's Health in the Department of Health and Human Services (DHHS) announces the first-ever federal resource center for women with disabilities as part of the expanding National Women's Health Information Center (NWHIC). Internet publication URL: www.independentliving.org/docs5/nwhic.html
Kulkhanchit, Topong.  1999.  First fully accessible city buses in Thailand.
On August 5, 1999 Thailand's first accessible buses will begin accommodating passengers with disabilities on routes in Bangkok. Internet publication URL: www.independentliving.org/docs5/thaibus.html
Batavia, Drew, Gallagher Hugh Gregory.  1999.  Gallagher and Batavia on Physician-assisted Suicide - An Open Letter to People with Disabilities.
Hugh Gallagher and Drew Batavia clarify their position on physician-assisted suicide and people with disabilities, including a declaration of disability rights. Internet publication URL: www.independentliving.org/docs1/gallbat.html.
Waddell, Cynthia D.  1999.  The Growing Digital Divide in Access for People with Disabilities: Overcoming Barriers To Participation In The Digital Economy.
This paper identifies some of the emerging digital economy barriers, current efforts to address these barriers and expresses the author's vision of the long-term policy research agenda. Internet publication URL: www.independentliving.org/docs4/waddell99.html
British Broadcasting Corporation (BBC) News.  1999.  "Health - Euthanasia controls failing.".
Internet publication URL: www.independentliving.org/docs6/bbc990216.html.
Kaplan, Karen.  1999.  High-Tech Dawn for People with Disabilities: Typing by Eye Movement, Non-Visual.
High-tech solutions attract a lot of interest. Whether people with disabilities can actually benefit from them remains to be seen. Internet publication URL: www.independentliving.org/docs5/karenkaplan.html
Independent Living Institute.  1999.  Independent Living Institute (ILI) Annual Report 1998.
Internet publication URL: www.independentliving.org/docs1/ilanrp1998.html
Nakanishi, Yukiko.  1999.  Independent Living movement spreads in Asia.
Yukiko Nakanishi reports on Independent Living seminars, workshops and exchanges that are helping to spread the philosophy across Asia. Internet publication URL: www.independentliving.org/docs1/dpidi299.html
Independent Living Institute.  1999.  Independent Living World Summit.
The first global meeting on Independent Living was convened in Washington, D.C., September 21-25, 1999. Over 100 leaders evaluated the movement's 30 year old history and set the agenda for the future. This publication provides links to conference reports and reflections from participants in their respective languages. Internet publication URL: www.independentliving.org/docs2/ils0.html
Brown, Steven E.  1999.  Institutional Madness: Speaking out against institutionalism.
Dr. Steven E. Brown speaks out on institutionalism: "No one I know who has lived in a nursing home wanted to stay there. Institutions by their very nature constrict freedom; suppress life, liberty, and the pursuit of happiness." Internet publication URL: www.independentliving.org/docs4/brown1.html.
Council of Europe.  1999.  Integration of People with Disabilities: Discrimination.
The Council of Europe recommends disability policy guidelines for Member States. With the knowledge that governments follow different approaches to achieve equal opportunity policies, the Council of Europe established a Working Group in November 1996 to elaborate a collection and comparative analysis of legislation against discrimination of persons with disabilities in member States. The final report will be published in autumn 1999. Internet publication URL: www.independentliving.org/docs3/coedisc.html
Rosen, Fred.  1999.  Is International Travel Accessible for Persons with a Disability?
Fred Rosen outlines travel accessibility policies in 5 countries, including problems and recommendations for improved standards. Includes a list of publications on accessibility in the U.S.A., Canada, Britain, and Australia. Internet publication URL: www.independentliving.org/docs5/fredrosen.html
The National Federation of the Blind of North Carolina.  1999.  Introducing Newsline: Access Technology to Newspapers for the Blind and Visually Impaired.
Internet publication URL: www.independentliving.org/docs4/newsline.html  
Charen, Mona.  1999.  Kevorkian's death crusade finally stopped.
Internet publication URL: www.independentliving.org/docs6/charen19990429.html.
Carleton, Gwen.  1999.  Making Technology Accessible To All.
Universal design in Information Technology is slowly becoming standard in the industry. Internet publication URL: www.independentliving.org/docs5/gwencarleton.html.
Bayha, Betsy.  1999.  Media's crippling coverage misses real story of disability experience.
Why do the media continually use the same ill-fitting and inaccurate phrases such as "wheelchair-bound," "afflicted" and "special needs," that the disability community rejected long ago? Internet publication URL: www.independentliving.org/docs1/bayha1999.html.
Digh, Patricia.  1999.  Misplaced Modifiers: Respectful Language Improves Accuracy.
Print and broadcast media often describe people with disabilities with archaic and demeaning phrases. Patricia Digh provides guidelines for writing about people with disabilities. Internet publication URL: www.independentliving.org/docs4/digh.html
National Council on Disability (NCD).  1999.  NCD Releases Report on Improving the Enforcement of Civil Rights of Air Travelers with Disabilities.
The NCD has released a groundbreaking report documenting ineffective enforcement of the Air Carrier Access Act (ACAA) since the law's passage in 1986. Internet publication URL: www.independentliving.org/docs5/ncd199.html
Longmore, Paul K.  1999.  Paul Longmore's testimony before Assembly Judiciary Committee Protesting Assembly Bill 1592.
A testimony before the Assembly Judiciary Committee against AB 1592 which would legalize physician assisted suicide in California. The committee voted for the bill 8 to 7 - there is a long fight ahead. Internet publication URL: www.independentliving.org/docs5/longmore1592.html
Segalman, Bob.  1999.  People with Speech Disabilities Now Have a Telephone Service.
Dial toll free to reach a patient, trained operator who is familiar with many speech patterns and has acute hearing. This operator makes telephone calls for you and repeats your words exactly. Internet publication URL: www.independentliving.org/docs5/speechphone.html
Rajkov, Gordana.  1999.  A Personal Letter from Belgrade, Serbia - Written during the current NATO bombings in Yugoslavia.
Internet publication URL: www.independentliving.org/docs6/rajkov1999.html  
Godinho, Francisco.  1999.  Portuguese Parliament promotes Web Accessibility.
Portugal became the fourth country in the world to officially promote web accessibility for people with disabilities, after the United States, Australia and Canada. Internet publication URL: www.independentliving.org/docs5/portweb.html
Physical Disability Council of NSW, Inc..  1999.  Position Papers '99, Attendant Care.
Internet publication URL: www.independentliving.org/docs1/pdcnsw99.html  
Harrington, Candy.  1999.  The Problem with Travel Misinformation.
The biggest problem for travelers with disabilities is the alarming increase of misinformation about accessible travel, claims Candy Harrington. Internet publication URL: www.independentliving.org/docs3/ch1999.html
Konczei, Gyorgy.  1999.  Rethinking Disability and Discrimination - A social and economic approach (Comparative Study).
Internet publication URL: www.independentliving.org/docs5/equalisingopps.html and www.independentliving.org/docs5/equalisingopps.pdf
Miles, M, Hossain Farhad.  1999.  Rights and Disabilities in Educational Provisions in Pakistan and Bangladesh: Roots, Rhetoric, Reality.
Educational opportunities for children with disabilities in Pakistan and Bangladesh are seen in the context of the countries' religious, cultural and economic development. The relevance of Western concepts such as "human rights", "inclusion" and "empowerment" is critically examined. Internet publication URL: www.independentliving.org/docs5/mmiles3.html
Wolbring, Gregor.  1999.  Science and Society - Critical Comments on the 1999 World Conference on Science, Budapest, Hungary.
Gregor Wolbring, biochemist and scientific advisor to the Thalidomide Society of Canada, reports on the 1999 World Conference on Science, Budapest, Hungary from the perspective of a person with a disability. Internet publication URL: www.independentliving.org/docs1/wolbrin1.html
Coleman, Diane.  1999.  A serial killer of disabled people, out on the streets - Will Jack Kevorkian be convicted?
The courts of Michigan are preparing to send a worldwide message about the euthanasia of people with disabilities. Will Jack Kevorkian be convicted and imprisoned? Or will he be acquitted once more, never to be charged again? Internet publication URL: www.independentliving.org/docs5/Kevorkian.html.
Connally, Patrick Wm.  1999.  Singer/Crips/Animals.
Patrick William Connally, visionary, (Disability Rights, Enforcement, Education, Services) DREES President and founder, discusses the controversy over the appointment of Peter Singer, author of "Practical Ethics," to a teaching position at Princeton University. According to Connally, Singer seems to support euthanasia for new born babies with disabilities. Connally discusses the morals and values concerning this issue, providing a historical perspective as well as a strong negative to Singer’s ideas. Internet publication URL: www.independentliving.org/column/conn1_00.html.
Dart, Justin.  1999.  Speach on the value of human life to The Trustees of the Center for Human Values, Princeton University April 14, 1999.
Disability activist, Justin Dart, condemns the appointment and ethics of Princeton's Bioethics professor, Dr. Peter Singer. Internet publication URL: www.independentliving.org/docs4/dart99a.html
Kruse, Douglas L, Schriner Kay, Schur Lisa, Shields Todd.  1999.  A Study of the Political Behavior of People with Disabilities - What Determines Voter Turnout, Executive Summary: Empowerment through Civic Participation.
Are people with disabilities as likely as those without disabilities to vote, and to engage in other forms of political and civic participation? If not, why not? Internet publication URL: www.independentliving.org/docs5/disvoters.html
Imparato, Andrew J.  1999.  Toward an Inclusive Definition of Disability.
In reaction to the U.S. Supreme Court's ruling on their interpretation of the definition of "disability," the National Council on Disability (NCD) is submitting this inclusive definition of disability by Andy Imparato. Internet publication URL: www.independentliving.org/docs5/imparato.html
Hurst, Rachel.  1999.  Training Manual for Media and Disability Rights.
Rachel Hurst is the Director of Disability Awareness in Action, London, England. The document is a training manual for organisations of disabled people, as guidance for seminars with the media on disability as a rights issue. It is based on a three-day seminar where media delegates from all over English speaking Africa met in Harare, Zimbabwe in 1998 to share experiences and to work out a way for using the media to get the human rights message across. As well as a suggested programme for a seminar on media and disability rights, organisational guidance and tips for trainers and workshop leaders are provided which should prove useful for any training seminar or workshop that organisations may wish to run on any other subject. ISBN: 1 89037 31 0. Internet publication URL: www.independentliving.org/docs1/hursttm99.html
Annan, Kofi.  1999.  United Nations Secretary General Kofi Annan's Message on the International Day of Disabled Persons.
In his message on the International Day of Disabled Persons, 3 December 1999, Kofi Annan, the Secretary General of the United Nations, spoke about the theme of the day, accessibility, with a reminder that for many people with disabilities, the lack of access to essential services remains a source of discrimination and lost opportunities. Accessibility in the broadest sense of the term is a prerequisite for disabled people to enjoy equal opportunities. Internet publication URL: www.independentliving.org/docs6/annan1999.html.
Abidi, Javed.  1999.  We (Disabled People) Must Learn to Exert Ourselves. Disability Awareness in Action Newsletter no. 74, July 1999.
According to Abidi, Executive Director, National Centre for Promotion of Employment of Disabled, India, with 60-70 million disabled people in India, disability is clearly a social issue, a socio-economic issue, a development issue. Why then is disability not a national issue? Internet publication URL: http://www.independentliving.org/docs1/abidi.html.
1998
Stone, Karen G.  1998.  Awakening to Disability - Nothing About Us Without Us.
Book review from Ability Network magazine. Internet publication URL: www.independentliving.org/docs5/stonereview.html
Mason, Philip.  1998.  Back To Basics - Hampshire Center for Independent Living's Expert Seminar on Independent Living.
Back To Basics: Philip Mason's keynote speech at the expert seminar organized by the Hampshire CIL in Southampton, May 30 -31, 1998.
Russell, Marta.  1998.  Beyond Ramps: Disability at the End of the Social Contract.
Book review courtesy Common Courage Press. Internet publication URL: www.independentliving.org/docs5/RussellReview.html
Hardus, Alwine.  1998.  Boss in your own home: Client Linked Budget.
"Client-linked budget" is a system of direct payments for personal assistance services. This outlines the Dutch service, comparing it with "help in kind." Internet publication URL: www.independentliving.org/docs3/hardus.html
Dr. Adolf Ratzka.  1998.  Brief Description of the Swedish Personal Assistance Act of 1994 (LASS).
For the "International Survey of Personal Assistance Schemes." Internet publication URLs: www.independentliving.org/docs1/ratzka1998lass.html and www.independentliving.org/panetwork/questionnaire.html
Doty, Pamela J.  1998.  The Cash and Counseling Demonstration: An Experiment in Consumer-Directed Personal Assistance Services.
The "Cash and Counseling" Demonstration/Evaluation is a large-scale public policy experiment designed to test the feasibility and assess a consumer-directed approach to the financing and delivery of personal assistance services (PAS). Internet publication URL: www.independentliving.org/docs4/ar398.html
Creurer, Michael.  1998.  Changing Lanes... A guide to help when aging, illness or disability forces us into the Slow Lane - Book Review.
Michael Creurer offers valuable psycho-educational concepts combined with narratives about the author and his disabled peers. Internet publication URL: www.independentliving.org/docs4/rogers.html
Handikappombudsmannen, Independent Living Sverige.  1998.  Conference on Human Rights for Disabled People: Discussion from August 24th, 1998.
This is the transcript of a panel discussion on the topic of constitutional laws and anti-discrimination legislation for persons with disabilities. Internet publication URL: www.independentliving.org/docs1/hr11.html
Handikappombudsmannen, Independent Living Sverige.  1998.  Conference on Legislation for Human Rights.
This introduction to the conference on Legislation for Human Rights held in Stockholm on August 24, 1998 presents links to reports by experts from several countries with anti-discrimination legislation in connection with disability about how the legislation has functioned in their countries and their reflections on the situation of disabled people in their respective countries. Internet publication URL: www.independentliving.org/docs1/hr00.html
Enns, Henry.  1998.  Conflict Situations and Disabled Persons.
Henry Enns, Executive Director of Disabled Peoples’ International discusses the plight of disabled refugees as a human rights issue that needs to be addressed by the UN and member states. Immigration policies in most countries discriminate against disabled refugees considering them as a “burden” and ignoring the significant contributions that disabled persons make to society. Internet publication URL: www.independentliving.org/docs1/dispeopleintldev2.html
Dr. Adolf Ratzka.  1998.  Crip Utopia.
Tongue-in-cheek science fiction. Internet publication URL: www.independentliving.org/docs4/ratzkacu.html (In Swedish.)
Mahoney, K J, Simon-Rusinowitz L, Desmond S M, Shoop D M, Squillace M R, Fay R A.  1998.  Determining Consumers' Preferences for a Cash Option: New York Survey Findings.
The purpose of this article is to present findings from a telephone survey conducted in New York to assess consumers' preliminary interest in the cash option when compared to traditional services. Internet publication URLs: www.independentliving.org/docs4/ar498.html
Dr. Adolf Ratzka.  1998.  Direct Payment Schemes in Slovakia.
In 1997 the Independent Living Institute successfully bid for projects in the Slovak Republic within the European PHARE program: a personal assistance delivery scheme using direct cash payments and a accessible mainstream taxi system with a subsidy scheme for disabled riders. The article discusses some of the difficulties and opportunities that user-initiated and user-run solutions entail in post-communist societies. Internet publication URL: www.independentliving.org/docs3/slovakia.html
Barnes, Colin.  1998.  Discrimination and the law - the British Experience.
In his presentation at the seminar organized by Independent Living Sweden, Stockholm, and and the Office of the Disability Ombudsman, Professor Colin Barnes of the Disability Research Unit in Leeds, UK, describes the Disability Discrimination Act enacted in 1995 in the UK, why and how the Act came into being, and why the Act is a mistake. He notes that the result of policies in general has been to create dependence for disabled people instead of independence which is what disabled people want and have a right to. Conference on Legislation for Human Rights Stockholm, Sweden, 1998-08-24. Internet publication URL: www.independentliving.org/docs1/hr6.html.
Nakanishi, Yukiko.  1998.  Effects of the Economic Downturn in Japan.
The Japanese Government has been trying to promote decentralization for the last 6-7 years. Disabled persons are afraid that some services will be cut due to scarce local resources. Internet publication URL: www.independentliving.org/docs5/JapanEcon.html
Flynn, Padraig.  1998.  An EU response to Disability in the Workplace, SIPTU, DISABILITY, EQUALITY - National Workshop on the Politics of Disability.
Internet publication URL: www.independentliving.org/docs3/flynn98.html
Konczei, Gyorgy.  1998.  Genesis of the Hungarian Anti-Discrimination Legislation.
Hungary is leaving the old fashioned approach to disability, characterised by pity, paternalism, charity and a medical approach, and is taking on a legal approach which acknowledges the rights of disabled citizens. Internet publication URL: www.independentliving.org/docs1/hr9.html
Degener, Dr. Theresia.  1998.  The Global Picture and the European Situation Regarding Bioethics and Genetic Engineering.
This article is an account of a presentation at the 1998 "Seminar on Bioethics and Disabled people" by Dr. Theresia Degener, legal adviser to the German Council of Centres for Self-Determined Living and lecturer at the Universities of Frankfurt, Mainz and Leipzig. In her presentation, Dr. Degener advanced a theory that bioethics is incompatible with human rights philosophy. She also discusses how existing international standards with regard to human rights including The Universal Declaration of Human Rights (1948) and the Nuremberg Code (1947) are undermined by the draft UNESCO Declaration on Bio-ethics and Human Rights and the European Convention on Human Rights and Bio-Medicine, both of which were designed to protect freedom of research. Internet publication URL: www.independentliving.org/docs1/dpibethics.html. In: Disabled Peoples' International (DPI). 1998. "Seminar on Bioethics and Disabled people." Internet publication URL: www.independentliving.org/docs1/dpibethics.html
Department of the Environment, Transport and the Regions, UK.  1998.  Government Consults on Rail Accessibility - Press Notice: 372/ Transport.
Press release (London, England) - Trains and trams entering service after 31 December 1998 will be fully accessible. Internet publication URL: www.independentliving.org/docs5/transnews.html
European Disability Forum.  1998.  Guide to the Amsterdam Treaty.
As a result of extensive campaign work by disability NGOs, disabled people are now visible in the Treaties. The non-discrimination clause, the provisions on social policy, the title on employment, the declaration on internal market legislation will all have practical consequences for disabled people throughout the Union. Internet publication URLs: www.independentliving.org/docs3/edf98.html and www.independentliving.org/docs3/edf98.pdf
Peterson, Dick.  1998.  Hanging In There.
Dick Peterson creates a new hoisting device with an above-the-waist lifting harness, making transfers smoother for people with various physical disabilities. Internet publication URL: www.independentliving.org/docs3/peterson.html
Katz, Ruth.  1998.  The Home and Community-Based Services Work Group, partners with state, consumers, and others to advance the PAS agenda.
This article discusses how the Administration (US Government) balances the goal of providing more flexibility and choice for people with disabilities with the need to ensure that the services are cost effective. Internet publication URL: www.independentliving.org/docs4/ar4985.html
Taylor, Zara Buggs.  1998.  Honest portrayals of disabilities drive popular television show.
People with disabilities are often invisible in movies and television shows, however, Zara Buggs Taylor writes about one television show which is changing audience perceptions about people with disabilities. Internet publication URL: www.independentliving.org/docs1/taylor.html
Nkeli, Jerry.  1998.  How to overcome double discrimination of disabled people in South Africa.
South African Human Rights Commissioner, Jerry Nkeli, outlines the country's history from the point of view of the Disability Rights Movement. Conference on Legislation for Human Rights Arranged by Handikappombudsmannen in cooperation with Independent Living Sverige, Stockholm, Sweden 24 August 1998. Internet publication URL: www.independentliving.org/docs1/hr5.html
Baha’i International Community.  1998.  Human Rights and Disability. Statement to the fortieth session of the United Nations Sub-Commission on Prevention of Discrimination and Protection of Minorities Agenda item 7: human rights and disability. Geneva, Switzerland, August 1988.
Internet publication URL: www.independentliving.org/docs6/bic199808.html
Montero, Federico.  1998.  Human Rights and Organisations of Disabled Persons in Costa Rica.
Despite positive changes in Costa Rica's social policies, disabled people still are denied certain rights to participate in all aspects of society. Internet publication URL: www.independentliving.org/docs1/stlm19980823e.html
Nkeli, Jerry.  1998.  Human Rights Commissioner reflects on achievements obtained by people with disabilities.
In South Africa we have disabled people in leadership-roles and have achieved a lot but we have many problems to face in the field of human rights such as issues dealing with racial intolerance and a diversity of various issues that deal with colonialism. Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Stockholm, Sweden 23 August, 1998. Internet publication URL: www.independentliving.org/docs1/stlm19980823f.html
Majiet, Shanaaz.  1998.  Human Rights from Disabled Peoples' Perspective in Africa.
Shanaaz Majiet speaks on human rights and disability from the perspective of the African continent. Internet publication URL: www.independentliving.org/docs1/stlm19980823d.html
Heumann, Judith E.  1998.  The Implications of ADA for Disabled People.
There is a strong need for civil rights legislation in all countries. To those who continue studying whether or not there is a need for anti-discrimination legislation, it is time to stop studying and to start legislating! Internet publication URL: www.independentliving.org/docs1/hr4.html
Brown, Steven E.  1998.  In Freedom, Frank.
Dr. Steven E. Brown Co-Founder of the Institute on Disability Culture, in the United States, describes the life and work of Frank Moore, a Berkeley, California, USA performance artist with cerebral palsy. First published in Mainstream: Magazine of the Able-Disabled, June/July 1998. Internet publication URL: www.independentliving.org/docs3/brown98b.html.
Wilner, MaryAnn, Wyatt Ann.  1998.  Independence Care System: Managed Care for People with Disabilities.
The goal of Independence Care System is to enable people with disabilities to remain at home or in the least restrictive setting possible by integrating the full range of primary care, acute care, and home and community-based services in a comprehensive, flexible manner. Internet publication URL: www.independentliving.org/docs4/ar3982.html
Nadash, Pamela.  1998.  Independent Choices: Enhancing Consumer Direction for People with Disabilities.
Allowing consumers to manage and direct the long-term services they need acknowledges that they are the best judges of their own needs and the best decision-makers on how these needs get met - an acknowledgment seldom made. Internet publication URL: www.independentliving.org/docs4/ar3983.html
Brichtová, Lydia.  1998.  "Independent Living and proposed Slovak social reforms.".
Lydia Brichtová speaks about the changes adopted in social/disability legislation since 1989. Internet publication URL: www.independentliving.org/docs1/hr8.html.
Independent Living Institute.  1998.  Independent Living Institute (ILI) Annual Report 1997.
Internet publication URL: www.independentliving.org/docs1/ilanrp1997.html
Clarke, Dr. Angus.  1998.  Issues Arising from Genetics - Genetics and Disability.
In his presentation Dr. Angus Clarke, of the Institute of Medical Genetics at the University of Wales College of Medicine, discusses issues raised by genetics in disability, outlines the uses of genetic testing and his concerns about how it is developing, as well as the different uses for genetics in general and with regard to reproductive screening, and the problems surrounding this issue. Internet publication URL: www.independentliving.org/docs1/dpibethics2.html.
Cunningham-Burley, Dr. Sarah.  1998.  Issues Arising from Quality of Life. Seminar on Bioethics and Disabled people.
In her presentation, Dr. Sarah Cunningham-Burley, from the Department of Public Health, University of Edinburgh, looked at the way in which quality of life issues are affecting medical decisions, including decisions about genetic testing, and related this to a study of how the general public views these issues. Internet publication URL: www.independentliving.org/docs1/dpibethics3.html. In: Disabled Peoples' International (DPI). 1998. "Seminar on Bioethics and Disabled people." Internet publication URL: www.independentliving.org/docs1/dpibethics.html
Bracking, Stuart, Cowan Ross.  1998.  It's MY life - An introduction to Independent Living.
Stuart Bracking and Ross Cowan (Gateshead Council on Disability) offer definitions and examples of the concepts independent living, personal assistance, and disability, comparing the medical and social models. Internet publication URL: www.independentliving.org/docs4/bracking1.html.
Enns, Henry.  1998.  Journey to the Middle East.
This account describes the organizational efforts of disabled people encountered by Henry Enns, Executive Director of Disabled Peoples’ International and Marion Stroud, a member of the International Committee on the Mennonite Central Committee (MCC), during their visit to five countries in the Middle East. Their mission was to explore ways that MCC could support the grassroots development of disabled people in these countries. Internet publication URL: www.independentliving.org/enns1998middle_east
Hurst, Rachel.  1998.  Leading Disabled Activist, Awarded Highest U.S. Honour.
In February 1998, disability activist Justin Dart was awarded the Presidential Medal of Freedom - the highest civilian honour in the USA. Internet publication URL: www.independentliving.org/docs4/hurst98a.html
Montero, Federico.  1998.  Legislation on Disability: The Costa Rican Experience.
Despite the country's relative good respect for human rights and our democratic system, disabled people still do not enjoy equal rights and participation in all aspects of society. Among the factors that prevent disabled people from full citizenship are negative attitudes against disability. Internet publication URL: www.independentliving.org/docs1/hr12.html
Albert, Bill.  1998.  The New Genetics and Disabled People.
The following paper draws heavily on the British Council of Organisations of Disabled People's (BCODP) discussions on the issue of genetics and disabled people. Please note that this paper is NOT BCODP policy but rather a discussion document intended to encourage debate within the movement. For more information on the issue of genetics and disabled people BCODP please refer to the BCODP web site. Internet publication URL: http://www.independentliving.org/docs1/albert1998.html
Disabled Peoples' International - European Region.  1998.  Panel Discussion - Open Debate, Seminar on Bioethics and Disabled People (1998).
Internet publication URL: www.independentliving.org/docs1/dpibethics5.html. In: Disabled Peoples' International (DPI). 1998. "Seminar on Bioethics and Disabled people." Internet publication URL: www.independentliving.org/docs1/dpibethics.html
Willig Levy, Chava.  1998.  A People's History of the Independent Living Movement.
Chava Willig Levy relates stories from the IL Movement to create a people's history. This mongraph explores human rather than social forces. It looks at who rather than what shaped the IL movement. Internet publication URL: www.independentliving.org/docs5/ILhistory.html
Belli, Raffaello.  1998.  Personal Assistance Legislation in Italy.
Raffaello Belli reports on various pieces of Italian legislation applying to payment of personal assistance for people with disabilites. Internet publication URL: www.independentliving.org/docs1/belli1998.html.
Litvak, Simi.  1998.  Personal Assistance Service Policy: Where We Have Been and Where We Are Going.
Dr. Simi Litvak examines the current state of Personal Assistance Services (PAS), and how they might be improved in a fiscal, quality, and humanitarian sense. Internet publication URL: http://www.independentliving.org/docs4/ar4984.html
Brown, Steven E.  1998.  Poster Kids No More:' Perspectives About the No-Longer Emerging (In Fact, Vibrant) Disability Culture.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, takes an opportunity to review a decade of investigating and promoting disability culture. This piece quotes liberally from previous Brown publications, and attempts to put into perspective both opinions that challenge the concept of a disability culture and those that support it. In: Disability Studies Quarterly, 18(1) (Winter 1998), 5-19. (PDF, 160 KB.) Internet publication URL: www.independentliving.org/docs3/brown98a.html. In Internet publication URL: www.independentliving.org/docs3/brown98a.pdf.
Könkkölä, Kalle.  1998.  Presentation at the Seminar on Human Rights for Persons with Disabilities from a North and South Perspective Stockholm, Sweden 23 August, 1998.
Kalle Könkkölä discusses the organization's perspective on human rights. Internet publication URL: www.independentliving.org/docs1/stlm19980823b.html
Barnes, Colin.  1998.  Presentation at the Seminar on Human Rights for Persons with Disabilities from a North and South Perspective Stockholm, Sweden, 1998-08-23.
In his presentation at the seminar organized by Independent Living Sweden, Stockholm, Professor Colin Barnes of the Disability Research Unit in Leeds, UK, discusses rights and conditions for disabled persons in the UK and developed countries as compared to those in developing countries. He raises questions concerning the efficacy of legislation, the concept of rights, disability as one of many forms of social oppression, how developed countries’ economic policies are responsible for disability in developing countries, the role of organizations in improving conditions for disabled people, and the importance of the right to life. Internet publication URL: www.independentliving.org/docs1/stlm19980823g.html.
Batavia, Andrew I.  1998.  Prospects for a National Personal Assistance Services Program: Enhancing Choice for People With Disabilities.
Mr. Batavia is Associate Professor, School of Policy and Management, College of Urban and Public Affairs, Florida International University, North Miami, Florida. The article was published in American Rehabilitation, Volume 24, Number 4, Winter 1998, Personal Assistance Services Part 2 of 2. American Rehabilitation is the official publication of the Rehabilitation Services Administration (RSA) 330 C Street S.W. Washington D.C. 20202-2531. Internet publication URL: www.independentliving.org/docs6/batavia1998.html.
European Commision.  1998.  Raising Employment Levels of People with Disabilities - The Common Challenge.
In light of the European Employment Strategy, and drawing on the analysis of some key elements of the 1998 Member States' National Action Plans, this paper seeks to establish a set of fundamental policy issues concerning employment and disability. Internet publication URLs: http://www.independentliving.org/docs3/ec1550.html and http://www.independentliving.org/files/ec1550.pdf
United Nations.  1998.  Report of the United Nations Consultative Expert Group Meeting on International Norms and Standards Relating to Disability.
Experts in international law and disability policy issues review and discuss issues and trends relating to the practical application of international norms and standards to promote the human rights of persons with disabilities. Internet publication URL: www.independentliving.org/docs4/disberk0.html
Rehabilitation Services Administration (RSA).  1998.  Resolutions on Personal Assistance Services.
Passed by Participants of the International Personal Assistance Services Symposium Sponsored by the World Institute on Disability, Convened September 29 to October 1, 1991, Oakland, California. Published in: American Rehabilitation, Volume 24, Number 4, Winter 1998, Personal Assistance Services, Part 2 of 2. American Rehabilitation is the official publication of the Rehabilitation Services Administration (RSA) 330 C Street S.W. Washington D.C. 20202-2531. Internet publication URL: www.independentliving.org/docs6/rsa1998.html
Disabled Peoples' International - European Region.  1998.  Seminar on Bioethics and Disabled People (1998).
Summaries of papers on Genetics & Bioetheics at the DPI Seminar. Presentations given by, Dr. Angus Clarke, Dr. Sarah Cunningham, and Dr. Theresia Degener, followed by an open debate. Internet publication URL: www.independentliving.org/docs1/dpibethics.html
Heumann, Judith E.  1998.  Seminar on Human Rights for Persons with Disabilities from a North and South Perspective.
From her perspective as Assistant Secretary for the Office of Special Education and Rehabilitative Services (USA), Judy Heumann speaks on disability rights. Internet publication URL: www.independentliving.org/docs1/stlm19980823c.html
Dr. Adolf Ratzka.  1998.  Sexuality and people with disabilities: What experts often are not aware of.
For many of us who have extensive disabilities our sexual liberation does not so much depend on sex counselling or mechanical sex aids but on the availability of tax-funded personal assistance services which empower us to take control over our own lives. Internet publication URL: www.independentliving.org/docs5/sexuality.html
European Network on Independent Living (ENIL).  1998.  Shaping Our Futures, A conference on Independent Living.
Facing our futures brought together disabled experts on independent living, to share experience and map out future strategies. The conference set out to consider the social and economic arguments for independent living. Internet publication URLs: www.independentliving.org/docs2/enilfuture.html and www.independentliving.org/docs2/enilfuture.pdf
[Anonymous].  1998.  Time Magazine Recognizes Adolf Ratzka as European Visionary. Time Magazine.
Concrete Change.  1998.  United Kingdom Single Family Access Law.
Internet publication URL: www.independentliving.org/docs6/concrete-change1998.html.
DO-IT.  1998.  The University of Washington, Access To Higher Learning.
This guide outlines universal design principles to develop accessible college and university computer labs. Internet publication URL: www.independentliving.org/docs1/doit1998.html
Iglesias, M, Gil G, Joneken A, Mickler B, Knudsen J S.  1998.  Violence and Disabled Women.
The report describes the situation of women with disabilities who are abused, analyzes various types of violence, describes general policies combatting violence against women with disabilities in Denmark, Germany, Sweden and Spain, and offers policy recommendations. It was carried out under the METIS project, European Unión DAPHNE initiativ. Internet publication URLs: www.independentliving.org/docs1/iglesiasetal1998.html (In English) and and www.independentliving.org/docs1/iglesiasetal1998sp.html (In Spanish).

Pages