Personal Assistance in Sweden

Personal assistance in Sweden is the subject to constant reform and adjustment

Municipalities as personal assistance providers in Sweden

Erdtman, Emil.  2010.  Municipalities as personal assistance providers in Sweden.

Summary of legislation, court interpretations and reports as of October 2010

Individuals granted personal assistance under the Act concerning Support and Service for Persons with Certain Functional Impairments (LSS) may choose whether their local municipality, a private company or cooperative will provide the assistance.

The role of relative helpers in the Swedish personal assistance system

Jaillet, C.  2009.  The role of relative helpers in the Swedish personal assistance system.
In most European countries the most common assistance for people with disabilities is provided by relatives, we can easily understand that this system has weaknesses. The trustful relationship makes it work but : -family members, especially parents, are getting old and can't help eternally their child or relative with disabilities -children that help a parent with disability have to handle with too much important responsibilities and too young -relationship partners can't sacrifice their career for the other and can't fear to sign for a life-long 24hour job -assistance with filial feelings most of the time leads to unequal relation -hiring external assistants is considered as an abandonment if relatives worked before as assistants

25 years of Independent Living in Sweden- Documentation - Susanne Berg on STIL


Panel discussion: Models, milestones and achievements by the Swedish Independent Living organisations, Susanne Berg, November 8 2008.

STIL is the oldest Independent Living organization in Sweden. The organization started the Swedish movement and therefore has worked the longest with the Independent Living model.
At the conference in 1983 the Independent Living movement was presented by Ed Roberts and Judy Heumann among others. It was presented as a movement with two sides, two legs.

IL 25 years Documentation - Bengt Westerberg

Westerberg, Bengt.  2008.  IL 25 years Documentation - Bengt Westerberg.
Speech by Bengt Westerberg, chair of Swedish Red Cross and former Minister of Social Affairs, 2008. 22 years ago I met with Adolf Ratzka for the first time. I was then a politician, the leader of the Liberal party in Sweden, Folkpartiet and had welfare policy for disabled people high on my agenda. Adolf and Bengt Elmén, who also was present when we met in 1986 and who is present here today, told me about the social experiment they had initiated in Stockholm and some other municipalities to substitute the conventional social services provided by the local authorities with personal assistance.

25 år Independent Living - Dokumentation

Independent Living Institute.  2008.  25 år Independent Living - Dokumentation.
Internationell konferensen i november 2008 för att fira 25 år av Independent Living i Sverige. Dokumentation från konferensen: Välkomstanförande, tal av Bengt Westerberg, Adolf Ratzka med mera.

Independent Living movement’s 25 years of existence in Sweden 2008 - Documentation

Independent Living Institute.  2008.  Independent Living movement’s 25 years of existence in Sweden 2008 - Documentation.
Kerstin Nilsson, vice chair person of STIL welcomes the guests. I am honoured to welcome you to this conference to celebrate the Independent Living movement’s 25 years of existence here in Sweden. During these two days we should above all learn from each other, from our different experiences of Independent Living and how we as persons with different disabilities handle the challenges we meet on a daily basis.

"Ge oss makt inte medlidande" är ett radioprogram om STIL och kampen för personlig assistans

Berg, Susanne.  2004.  "Ge oss makt inte medlidande" är ett radioprogram om STIL och kampen för personlig assistans.

 Ge oss makt inte medlidande är ett program/podcast om STIL och kampen för personlig assistans. 2004-04. lyssna Lyssna-MP3 (28:21 minuter, 26,6 MB).

Stockholmskooperativet för Independent Living är resultatet av ett litet antal individers kamp för personlig assistans i mitten på nittonhundraåttiotalet. Personlig assistans är, i motsats till hemtjänst eller boendeservice, en service knuten till den enskilde själv. Den som behöver assistans bestämmer själv vem som ska assisterar med vad; när det ska göras och hur.

Time Magazine Recognizes Adolf Ratzka as European Visionary

[Anonymous].  1998.  Time Magazine Recognizes Adolf Ratzka as European Visionary. Time Magazine.
In 1961, German-born teenager Adolf Ratzka was paralyzed by polio. He seemed destined to spend his life in institutions, but at 22 won a scholarship to study in California. The U.S. was then the only country with Photograph of Dr. Adolf Ratzka together with daughter, Katharina.facilities, such as a personal assistant and a car that could be driven by wheelchair-bound people, enabling severely disabled persons to pursue normal academic study.

Supporting families in keeping disabled family members at home: Swedish policy instruments

Dr. Adolf Ratzka.  1995.  Supporting families in keeping disabled family members at home: Swedish policy instruments.

In most countries the importance of the family as a form of social insurance is declining. As the extended family gradually disappears with industrialization and the labor market's demands on geographical mobility, as divorce rates go up and single parents become increasingly common, the ability of the family to provide mutual aid in everyday life is diminishing. One of the results is that families have fewer resources left for members with special needs such as disabled children or old parents. If there is no place for these groups in the family, where can they turn to?


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