Independent Living Institute

”Partnerskap – det är snyggt, men svårt” är ett program om möjligheter och svårigheter i biståndsarbete. 2004-04. Lyssna-MP3 (28:57, 27,2 MB). Internet publication URLs: www.independentliving.org/radio/bistand2003.mp3 och www.independentliving.org/radio/bistand2003.html

Sverige ger mindre än en procent av bruttonationalprodukten i internationellt bistånd. En del av detta kanaliseras genom den svenska folkrörelsen. Aktiva handikapporganisationer bedriver biståndsprojekt via SHIA, Svenska Handikapporganisationers Internationella Biståndsförening.

 

”Att göra väl eller välgörenhetsskrammel”. 2004-04, är ett program om insamlingars vara eller inte vara. Vem gagnar de egentligen? Lyssna-MP3 (27 minuter, 25,3 MB). Internet publication URLs: www.independentliving.org/radio/insamlingar2002.mp3 och www.independentliving.org/radio/insamlingar2002.html

 Ge oss makt inte medlidande är ett program/podcast om STIL och kampen för personlig assistans. 2004-04. Lyssna-MP3 (28:21 minuter, 26,6 MB).

Stockholmskooperativet för Independent Living är resultatet av ett litet antal individers kamp för personlig assistans i mitten på nittonhundraåttiotalet. Personlig assistans är, i motsats till hemtjänst eller boendeservice, en service knuten till den enskilde själv. Den som behöver assistans bestämmer själv vem som ska assisterar med vad; när det ska göras och hur.

Motstånd – en plikt! Ett program om politiskt motstånd och civil olydnad. 2004-04. Lyssna-MP3 (26 minuter, 24,4 MB). Internet publication URLs: www.independentliving.org/radio/civilolydnad2002.mp3 och www.independentliving.org/radio/civilolydnad2002.html

According to legislation from 11 February 1980, No. 18, (in Italian: http://pc-belli.idg.fi.cnr.it/vipdn/80N00180.htm) people with severe disabilities may be entitled to "indennità di accompagnamento". This is an allowance of about $475 U.S. a month and the user directly pays the personal assistant(s) of his/her choice. With this money it is possible to have 50-60 hours of personal assistance a month.

The main law regarding people with disabilities in Italy is from 5 February 1992, No. 104 (in Italian: http://pc-belli.idg.fi.cnr.it/vipdn/92N01040.htm):

What is it about disability that makes the media so uneasy? With rare exception, the media use the same shopworn stereotypes to portray people with disabilities - the pitiable cripple; the courageous and inspiring hero; the broken person who'd be better off dead, unless, of course, there's a cure just around the corner.

Why do the media continually use the same ill-fitting and inaccurate phrases such as "wheelchair-bound," "afflicted" and "special needs," that the disability community rejected long ago?

"Disability is still such a negative stereotype," said Bill Stothers, former editor and publisher of the disability magazine Mainstream and a 30-year veteran of newsrooms in Canada and the United States.

Dear Friends: We write to you because we believe certain persons and organizations who claim to speak for persons with disabilities may have seriously misrepresented the views of many of us.

Public attention in recent years has focused on issues surrounding end-of-life care. We believe this is all to the good. Death, like birth, is part of the life process, neither to be feared nor denied. In truth, the end of life can be a time of expressing and sharing love, forgiveness and thankfulness. We believe end-of-life choices are a private matter. Interest groups, legislators, judges, and publicity-seekers have no business interfering with the decision-making autonomy of the dying patient.

In English

Andrew Batavia är Associate Professor vid School of Policy and Management, College of Urban and Public Affairs, Florida International University, North Miami, Florida.

Artikeln, Prospects for a National Personal Assistance Services Program: Enhancing Choice for People with Disabilities, är tidigare publicerad i American Rehabilitation Volym 24, nummer 4 Vintern 1998 Personal Assistance Services del 2 av 2. American Rehabilitation är Rehabilitation Services Adminsitrations (RSA) officiella organ. Adress: 330 C Street S.W Washington D.C. 20202-2531