Med Lagen som Verktyg

Bente Skansgård, ULOBA, Norway: “Municipal procurement threatens assistance users’ self-determination”

English
Westberg, Kenneth.  2011.  Bente Skansgård, ULOBA, Norway: “Municipal procurement threatens assistance users’ self-determination”.
Municipal contracts should be based on the Norwegian Standard and the basic philosophy of user-controlled personal assistance, with the user as supervisor and the freedom to use assistance hours at any time. The upcoming legislation for user-controlled personal assistance (Brukerstyrt personlig assistanse, BPA) should cover everyone regardless of number of hours needed or diagnosis. These are the demands of Bente Skansgård at ULOBA, Norway’s largest assistance cooperative.

Nya taxibilar i New York

Alla taxibilar i New York kommer att kunna ta passagerare som sitter kvar i sina rullstolar under resan. Detta för att bli en av världens tillgängligaste städer. Läs mer

Samarbete Independent Living Institute med Israel och Västbanken

2010-11-28  -  2010-12-12     Independent Living Institute fördjuper samarbetet med Israel och Västbanken. På sin andra resan till regionen deltog ILI:s Adolf Ratzka i konferenser och workshops om Independent Living och socialpolitik, personlig assistans och peer support samt möten där man diskuterade bildning av ett regionalt nätverk för Independent Living och gemensamma projekt för regionen. Se notisen på svenska ambassadens hemsida.

Remissvar på utredningen Bortom fagert tal

Stil, Stiftarna av Independent Living i Sverige, Independent Living Institute och Marschen för tillgänglighet har nu lämnat sitt remissvar på utredningen Bortom fagert tal, som föreslår att otillgänglighet klassas som diskriminering.

Stipendie Rolf Bergfors minne

Stiftelsen Fonden till Rolf Bergfors minne utlyser stipendier för sammanlagt 100 000 kr för projekt som främjar Independent Living rörelsens arbete. Läs mer om stipendiet

Stimulating Entrepreneurship in the Provision of social Services

ILI deltog i utbildning i Galati, Rumänien, från tisdagen den 19 oktober till fredagen den 22 oktober 2010.

Independent Living Institute Verksamhetsberättelse 2010

Swedish
Independent Living Institute.  2011.  Independent Living Institute Verksamhetsberättelse 2010.

Independent Living Institute Verksamhetsberättelse 2010 

 Pågående projekt

Assistanskoll. Projektperioden och därmed Allmänna Arvsfondens finansiella stöd avslutades i juni 2010 men Assistanskoll fortsatte med att utöka tjänstens innehåll och exponering.

Norway: Personal Assistance heading for legislation?

English
Westberg, Kenneth.  2011.  Norway: Personal Assistance heading for legislation?
Interview with Jan Andersen, Lillehammar University College, Norway on November 17, 2011 Norway is discussing whether or not to pass legislation about user-controlled personal assistance. Researcher Jan Andersen at Lillehammer University College, who has conducted research on user-controlled personal assistance since its inception, sees problems because legislation would only apply to users with more than 20 hours/week. He also comments on the changing assistance market, with the entrance of private companies and municipalities contracting out assistance to keep costs down.

Norway: “The upcoming legislation will be a disappointment”

English
Westberg, Kenneth.  2011.  Norway: “The upcoming legislation will be a disappointment”.
In Norway, JAG Assistanse has four users to date, but after gaining approval as a BPA provider (Brukerstyrt Personlig Assistanse or user-controlled personal assistance) from 15 municipalities, operations manager Sidsel Maxwell Grasli expects strong growth. At the same time, she fears that JAG’s target group will be let down by the upcoming Norwegian legislation for user-controlled personal assistance.

Switzerland introducing direct payments for personal assistance

English
Ladstätter, Martin.  2011.  Switzerland introducing direct payments for personal assistance.
Switzerland is on the brink of a breakthrough: it will offer nationwide direct payments for personal assistance beginning in January 2012. Over the next few years, 3,000 people with disabilities are expected to receive this assistance benefit.

Swedish EU parliamentarians urge more personal assistance in Europe

English
[Anonymous].  2011.  Swedish EU parliamentarians urge more personal assistance in Europe. GP.

The October 1  2011 article Dismantle Europe's inhumane institutions in the daily newspaper Göteborgsposten urges European countries to provide people with disabilities with personal assistance and assistive devices, rather than relegating them to institutions.

According to the Swedish Members of the European Parliament at least 1.2 million people live in institutions in the EU and Turkey, which they consider to be contrary to the UN Convention on the Rights of Persons with Disabilities.

A case for non-discrimination on grounds of ethnicity in government disability policy

Dr. Adolf Ratzka.  2011.  A case for non-discrimination on grounds of ethnicity in government disability policy.
English

Briefly about my background. I have lived and worked in Sweden for 37 years.  Prior to that I was living and studying in California for 7 years. I was born in what is today the Czech Republic. After WW II my family, as part of the German minority, was forced to move to Germany. There, at the age of 17 I contracted my disability. Thus, as a person with a disability I have lived in Germany, the United States and Sweden. I might add that in June this year I chose to apply for Swedish citizenship.
 
In my presentation I will talk about double discrimination on the grounds of disability and ethnic background. My comments are based entirely on my own experience as a person with a disability living as an immigrant in another country.
 

Otillgänglighet är diskriminering!

2010 gick tiden ut för Regeringens funktionshinderplan, Stockholm skulle vara världens tillgängligaste huvudstad och ett medborgarskap på lika villkor skulle äntligen vara verklighet för personer med funktionsnedsättningar. Året kom - och gick. Av löftena blev det som vanligt inget.

Läs 2011 - fortfarande inget diskrimineringsförbud..

Remissvar på utredningen Bortom fagert tal – om bristande tillgänglighet som diskriminering (Ds 2010:20).

Swedish
Berg, Susanne.  2010.  Remissvar på utredningen Bortom fagert tal – om bristande tillgänglighet som diskriminering (Ds 2010:20)..

STIL, Stiftarna av Independent Living i Sverige, Independent Living Institute och Marschen för tillgänglighet lämnar här vårt remissvar på utredningen Bortom fagert tal – om bristande tillgänglighet som diskriminering (Ds 2010:20).

Sammanfattning

STIL, Stiftarna av Independent Living i Sverige, Independent Living Institute och Marschen för tillgänglighet, representanter för den svenska Independent Livingrörelsen:

- stödjer utredningens slutsats att det inte behövs någon ändring av de existerande definitionerna av vad som anses med diskriminering enligt olika svenska författningsbestämmelser.

- stödjer förslaget om en rent språklig ändring av funktionshinder till personer med funktionsnedsättning.

Ett år sedan Anti-Apartheidpriset i Sverige 2010 delades ut - fortfarande inget diskrimineringsförbud.

Swedish
Berg, Susanne.  2011.  Ett år sedan Anti-Apartheidpriset i Sverige 2010 delades ut - fortfarande inget diskrimineringsförbud..

Otillgänglighet är diskriminering!

2010 gick tiden ut för Regeringens funktionshinderplan, Stockholm skulle vara världens tillgängligaste huvudstad och ett medborgarskap på lika villkor skulle äntligen vara verklighet för personer med funktionsnedsättningar. I samband med Marschen för tillgänglighet 2010, STIL – Stiftarna av Independent Living i Sverige, Kulturhuset och projektet Ta Plats arrangerade Independent Living Institute konferens, seminarum och mingelkväll i Kulturhuset. Vid evenemanget delade vi ut Anti-Apartheidpriset i Sverige till Mats och Kjell Winberg.

Tillgänglighet och design väger tungt i Barcelona.

Swedish
Erdtman, Emil.  2011.  Tillgänglighet och design väger tungt i Barcelona..

 

Stockholm skulle bli världens mest tillgängliga stad år 2010. En annan stad med hög svansföring i tillgänglighetsfrågor är Barcelona i nordöstra Spanien.

 

Under en tioårsperiod mellan 1996 och 2005 satsades över en halv miljard på att tillgängliggöra i första hand kollektivtrafiken. Mätningen år 1996 visade att bara 27 procent av bussarna och åtta procent av tunnelbanestationerna var tillgängliga. Från 2006 har alla bussar låggolv med påstigningsramp och fyra av fem tunnelbanestationer har hiss.

 

Tveklöst finns en stark vilja inom staden att göra den så tillgänglig som möjligt. Redan 1977 började de första avfasningarna av trottoarkanter att göras. Idag talas stolt om Barcelona-modellen med en bred avfasning utmed hela övergångsstället.

 

Mats Winberg granskar tillgängligheten i Barcelona - reseberättelse

Swedish
Erdtman, Emil.  2011.  Mats Winberg granskar tillgängligheten i Barcelona - reseberättelse.

Vi ses på Arlanda. När jag säger att jag kommer direkt från Furuboda folkhögskola lyser Mats Winberg upp och ler stort. Där har han varit många gånger i sitt snart 50-åriga liv. Mats bor i Ängelholm där han också har sin Citroën Jumpy med nedfällbar ramp för permobilen.

 Mats gillar ordning och reda. Att vår resmånad oktober 2010 har fem fredagar, lördagar och söndagar var ingen nyhet för Mats när jag påpekade detta. Ordning ska det också bli på tillgängligheten i samhället, tycker Mats.

 För sina många anmälningar om otillgänglighet runtom i Skåne och sitt ”juridiska, tekniska och organisatoriska kunnande” fick han tillsammans med sin far Kjell Winberg i maj 2010 ett designat diplom av Independent Living Institute (ILI).

Latvia: “The view of people with disabilities has improved”

English
Westberg, Kenneth.  2010.  Latvia: “The view of people with disabilities has improved”.
In Latvia people with disabilities who do not have their own financial means or cannot get help from relatives usually live in an institution. A small subsidy is available to pay a personal assistant, but it does not go very far. Irina Parhomenko works at APEIRONS, which is dedicated to ensuring that personal assistance legislation becomes reality.

Norway: “Government breaks its promise of legislation for personal assistance”

English
Westberg, Kenneth.  2011.  Norway: “Government breaks its promise of legislation for personal assistance”.
Interview with Bente Skansgård, ULOBA on January 18, 2011. User-controlled personal assistance was implemented in Norway in 2000. The municipality has the monopoly in granting the intervention as required and has a strong influence on how assistance is organized—for example, by determining who can employ the assistants.

Municipalities as personal assistance providers in Sweden

English
Erdtman, Emil.  2010.  Municipalities as personal assistance providers in Sweden.

Summary of legislation, court interpretations and reports as of October 2010

Individuals granted personal assistance under the Act concerning Support and Service for Persons with Certain Functional Impairments (LSS) may choose whether their local municipality, a private company or cooperative will provide the assistance.

Stars of Hope 2010

The 10 most important accomplishments of Stars of Hope 2010

Conferences and workshops on social policy and Independent Living, personal assistance and peer support

November 28  -  December 12   Independent Living Institute deepens its contacts with Israel and the West Bank. On his second trip to the region ILI’s Adolf Ratzka participated in conferences and workshops on social policy and Independent Living, personal assistance and peer support as well as in meetings where the establishment of a regional network on Independent Living and joint regional projects were discussed. See text on the Swedish Embassy’s homepage.

In Flanders all personal care assistants are employed by the people they assist.

English
Westberg, Kenneth.  2010.  In Flanders all personal care assistants are employed by the people they assist..
In Flanders all personal care assistants are employed by the people they assist. 5500 people are queuing to get personal assistance in the Belgian region of Flanders. A little less than 1800 have so far been granted personal budgets to employ their own assistants. There are organizations that provide administrative support and advice for those that want it.

Adolf D. Ratzka, Ph.D. - C.V. (curriculum vitae)

Adolf D. Ratzka, PhD                  Curriculum Vitae

Photo of Adolf Ratzka's face

Born 1943, married, one daughter, user of personal assistance, ventilator and power chair since 1961.

Academic Degrees

University of California, Los Angeles
          Bachelor of Arts in Sociology
          Master of Science in Business Administration
          Ph.D. in Urban Land Economics
University of Stockholm
          fil kand in Psychology

English

The foundation in memory of Rolf Bergfors

English
Nordenfelt, Enar.  2010.  The foundation in memory of Rolf Bergfors.
THE FOUNDATION IN MEMORY OF ROLF BERGFORS
 
About the Foundation
The Foundation in Memory of Rolf Bergfors honors the memory of one of the founder’s of GIL, the Gothenburg Cooperative for Independent Living. Rolf was one of the individuals working to bring about what is now a statutory right to payments for the purchase of personal assistance services.

The Foundation disburses one or several grants in the total amount of up to SEK 100,000 annually for studies, study visits or projects in the spirit of the Independent Living philosophy.
 

Stiftelsen Fonden till Rolf Bergfors minne

Nordenfelt, Enar.  2010.  Stiftelsen Fonden till Rolf Bergfors minne.
Swedish

STIFTELSEN FONDEN TILL ROLF BERGFORS MINNE

Om stiftelsen

Stiftelsen Fonden till Rolf Bergfors minne är en fond upprättad till minne av en av de GIL:are som arbetade med att driva igenom det som idag är lagstadgad rätt till personlig assistans.

Stimulating Entrepreneurship in the Provision of social Services

ILI participated in training session in Galati, Romania from Tuesday October, 19th until Friday October 22nd 2010.

Foire aux questions L'assistance personnelle en Suède

Swedish
Badach, Frédérique.  2010.  Foire aux questions L'assistance personnelle en Suède.

Foire aux questions L'assistance personnelle en Suède

Traduction par Frédérique BADACH

(octobre 2010)

L'assistance personnelle en Suède

French
Badach, Frédérique.  2010.  L'assistance personnelle en Suède.

L'assistance personnelle en Suède

L’objet du présent rapport est de montrer en quoi la réforme de l’assistance personnelle a amélioré la prise en charge des personnes en situation de handicap. Nous étudierons tour à tour l’histoire de la réforme, ses principes généraux, le fonctionnement de l’emploi et du recrutement d’un assistant personnel, et les avantages que cela représente pour l’usager et la société. Ce rapport pourra être complété par certains éléments de la foire aux questions.

Frédérique BADACH 2010-10-20

Amid budget cuts, hundreds of Romanian children have lost their homes this year because their foster parents can no longer afford their upkeep

English
Ciobanu, Claudia.  2010.  Amid budget cuts, hundreds of Romanian children have lost their homes this year because their foster parents can no longer afford their upkeep.

Brasov, Romania

Margareta Reman is one of thousands of foster parents in Romania. Called maternal assistants, they are usually women, often middle-aged, who receive a modest salary from the state to give short-term shelter and care to children abandoned by their families. In practice, most kids end up staying with their foster parents for many years.

Since the summer hundreds of foster parents have given up the profession as the state’s harsh budget cuts begin to bite.

For 50-year-old Reman, a widow who takes care of two girls in her home in Brasov, central Romania, the cut means losing 100 euros monthly, a 25 percent drop.

Spain - Assistance - available in Spain by law, but not in reality

English
Erdtman, Emil.  2010.  Spain - Assistance - available in Spain by law, but not in reality.
Spain has had a law declaring personal assistance to be a right since 2006, but the law is not applied in practice. Instead there are various pilot projects. Catalonia has two such projects, one at the regional level and one operated by the Independent Living movement in the city of Barcelona.

Tough struggle for personal assistance in Iceland

English
Westberg, Kenneth.  2010.  Tough struggle for personal assistance in Iceland.
Only about fifteen people receive personal assistance payments in Iceland, but new legislation is under discussion and interest is rising. According to representatives of the newly formed NPA Center cooperative, however, there is resistance within the disability movement. In addition, the personal assistance agreements may be too miserly because of the economic crisis. Today special housing solutions dominate the scene with common personnel groups, where according to Embla Agustsdottir from NPA Center, it is hard to live an independent life.

Disability Studies Conference at Lancaster University, UK

ILI’s Adolf Ratzka presented a keynote address at the Disability Studies Conference at Lancaster University, UK  September 7-9  2010.

2GoDirect - The experience of two people using a direct payment to employ a Personal Assistant

Egan, David.  2010.  2GoDirect - The experience of two people using a direct payment to employ a Personal Assistant. Center for Independent Living Carmichael House, Dublin, Ireland.
English
The experience of two people using a direct payment to employ a Personal Assistant. ‘Direct Payments’ is a generic term used to describe the provision of funds by the State, directly to people with disabilities, for the purpose of purchasing a range of supports and services. These services typically include personal assistance, therapies, and aids and equipment. Direct payments enable people with disabilities to employ individuals, directly or indirectly, to assist them with their everyday tasks.
File attachments: 

The foundation in memory of Rolf Bergfors

The foundation in memory of Rolf Bergfors allocates grants for 100.000 SEK in total for projects promoting the efforts of the IndependentLiving movement. More information about the grants

Judith E Heumann i amerikanska utrikesdepartementet

Interview with Arthur Klimchenko, 22 years, Kaliningrad - "Personal assistance would certainly be good, but I would be afraid of being dominated"

English
Westberg, Kenneth.  2010.  Interview with Arthur Klimchenko, 22 years, Kaliningrad - "Personal assistance would certainly be good, but I would be afraid of being dominated".
Arthur Klimchenko lives with his parents in the Russian city of Kaliningrad, he would like to leave home, but says that it is not possible because of his finances and his disability. When personal assistance is described for him, he sees the benefits, but he is also afraid that the assistants would decide over him, because of how persons with disabilities are viewed in Russia. He is also afraid that many disabled would stop doing what they are capable of doing and just exist, eating and sleeping.

Attitudes to people with disabilities are negative in Russia - Interview with Sergey Kiselev, Chairman of Apparel

English
Westberg, Kenneth.  2010.  Attitudes to people with disabilities are negative in Russia - Interview with Sergey Kiselev, Chairman of Apparel.
In Kaliningrad there are no home help services, people who need practical help but cannot get help from relatives or friends live in institutions. Sergey Kiselev, Chairman of the Apparel would like to see personal assistance introduced in Russia.

Clone of Välkommen

Välkommen

 

The Independent Living Institute has many more documents in English

Independent Living Institute (ILI) vill vara den svenska och europeiska Independent Living-rörelsens tankesmedja. Vi utvecklar lösningar för självbestämmande, självrespekt och värdighet och försöker påverka socialpolitiken i den riktningen.

 

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