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Dr. Adolf Ratzka.  2011.  A case for non-discrimination on grounds of ethnicity in government disability policy.
Presentation at National Conference, Commission for Equal Rights of Persons with Disabilities, Beer Sheba, Israel, December 1 2010
PDF icon 2010-12_Beer_Sheba_A_case_for_non-dicrimination_on_the_grounds_of_ethnicity_in_social_insurance.pdf (69.16 KB)
Dr. Adolf Ratzka.  2003.  The prerequisites for de-institutionalization.
Paper presented at the European Congress on Independent Living, Tenerife April 24-26, 2003. Internet publication URL: www.independentliving.org/docs6/ratzka200304.html.
Dr. Adolf Ratzka.  2017.  Ansökan om stöd ur Allmänna arvsfonden till projektet Disabled Refugees Welcome.
 Ansökan till Arvsfonden, inskickad juli 2016. Det finns mindre revideringar och kompletteringar som gjordes senare. Vi har inte översatt denna till engelska än (There is currently no english translation). 
Dr. Adolf Ratzka.  2012.  Personal Assistance and the Crisis: Now is the time to promote Direct Payments for Personal Assistance.
Against the backdrop of the impact of the current economic crisis on persons who depend on practical assistance by other persons with the activities of daily living the author outlines arguments for direct payments for Personmal Assistance services. These services are demand driven, superior in quality and cost-efficiiency to supply driven services such as residential institutions and support the United Nations Convention Article 19 "living independently and being included in the community".
Dr. Adolf Ratzka.  1984.  Costs and Benefits of Accessible Environments: A Case Study.
Internet publication URL: www.independentliving.org/cib/cibsthlm4.html
Dr. Adolf Ratzka.  2003.  Spänningen stiger - vem har rätt angående priset för en rättvis taxiordning.
Internet publication URL: www.independentliving.org/taxi/ratzka20030526.html (In Swedish.)
Dr. Adolf Ratzka.  2008.  Vem sparar i LSS-kommitténs förslag?
Internet publication URL:http://www.independentliving.org/ratzka20081001
Dr. Adolf Ratzka.  1998.  Independent Living in der Slowakei.".
1997 wann das Institut für Independent Living Projektverträge in der Slovakischen Republik im Rahmen des EU PHARE Programms für die Einführung eines Models für Persönliche Assistenz mit Bargeldleistungen an die Assistenznehmer sowie eines Models für ein rollstuhlgerechtes, der Öffentlichkeit zugängliches, Taxisystem mit Subventionierung der behinderten Reisenden. Der Artikel diskutiert die besonderen Schwierigkeiten und Möglichkeiten von benutzer-initierten und benutzer-betriebenen Lösungen in post-kommunistischen Gesellschaften. Internet publication URL: www.independentliving.org/docs3/slovakiade.html (In German.)
Dr. Adolf Ratzka.  1996.  Introduction to direct payments for personal assistance.
For persons with extensive disabilities there are two key requirements: personal assistance and accessibility in the built environment including accessible housing. Internet publication URL: www.independentliving.org/docs4/directpay.html
Dr. Adolf Ratzka.  1993.  Independent Living och dagens socialpolitik.
I: Institutet för Independent Living. 1993. "Hemtjänst i omdaning - möjligheter och decentraliseringens och privatiseringens tid, Dokumentation av STIL-hearing Stockholm 1993." Internet publication URL: www.independentliving.org/docs3/stil1993.html#1 (In Swedish.)
Dr. Adolf Ratzka.  1994.  Independent Living and the family: The context of Costa Rica and Sweden.".
In the context of the family, Independent Living implies participation in all areas of human life, especially loving relationships, sexuality and parenthood. Internet publication URL: www.independentliving.org/docs5/FamilyCRSweden.html
Dr. Adolf Ratzka.  2004.  The Swedish Personal Assistance Act of 1994.
Adolf Ratzka (Director of the Independent Living Institute), personal assistance and ventilator user for over 40 years, describes the features of the Swedish Personal Assistance Act of 1994 using his personal example as an illustration for the possibilities the policy opens up for people with extensive disabilities. Keynote address, Japanese Ventilator Users’ Network Symposium, Tokyo, 2004-06-23. Internet publication URL: www.independentliving.org/docs6/ratzka20040623.html. Japanese version (PDF, 209 KB), Internet publication URL: www.independentliving.org/docs6/ratzka20040623-japanese.pdf.
Dr. Adolf Ratzka.  2015.  Accessible cities consist of barrier-free housing.
In this presentation Dr. Adolf Ratzka emphasizes that city and housing planners still do not pay sufficient attention to barrier-free housing for people with disabilities and proposes the goal of general accessibility in the housing stock, in both new construction an renovation. Drawing on Swedish experience he claims that general residential accessibility would also imply savings to society in the form of lower costs due to fewer residential accidents particularly in the older population.
Dr. Adolf Ratzka.  1996.  Introduction to direct payments for personal assistance.
Dr. Adolf Ratzka.  1990.  Gustav Möller (s) och STIL.
STIL-modellen - maximalt självbestämmande men offentlig finansiering - knyter an till gammal socialdemokratisk tradition. Gustav Möller var svensk socialminister på 40-talet och förordnade den s k kontantlinjen. Internet publication URL: www.independentliving.org/docs3/ar1990a.html (In Swedish.)
Dr. Adolf Ratzka.  1988.  Aufstand der Betreuten - Selbstrespekt als Richtschnur.
Internet publication URL: www.independentliving.org/docs4/ratzka88a.html (in German.)
Dr. Adolf Ratzka.  2009.  Interview with Kalle Könkkölä November 2008.
Internet publication URL: https://www.independentliving.org/kalle_konkkola200811
PDF icon kalle_konkkola200811.pdf (31.76 KB)
Dr. Adolf Ratzka.  2012.  Personal assistance policy features for Independent Living:.
What are the important features of a national policy on personal assistance that is to promote "living independently and being included in the community" "with choices equal to others" and to enable persons with disabilities to fulfill their duties and to enjoy their rights as citizens? The presentation identifies the elements of the Swedish Personal Assistance Act of 1994 that have contributed most to the outcome of this widely acclaimed legislation.
Microsoft Office document icon 2012_01_Wien_PPP_Word.doc (47 KB)
Dr. Adolf Ratzka.  2002.  IT and disabled people's employment: opportunities and limits, The example of the Independent Living Institute.
Ratzka, Director, Independent Living Institute, describes some of the features of the Institute's Website and shows some of the possibilities offered by the internet to individuals with disabilities and their organizations. Pointing out the qualifications that working in this environment requires he concludes that IT cannot materially improve disabled people's employment situation as long as they do not have equal access to education, housing and transportation services. Internet publication URL: www.independentliving.org/docs4/ratzka20020201.html
Dr. Adolf Ratzka.  2017.  Adolf Ratzka awarded ULOBAs 2017 Pride Award.
Dr. Adolf Ratzka.  2013.  Independent Living for people with disabilities: from patient to citizen to customer.
Dr. Adolf Ratzka.  2012.  Independent Living-rörelsen banade vägen.
Dr. Adolf Ratzka.  1986.  Den lilla skillnaden - Apropå vår omslagsbild.
Från "Stiletten" nr. 4/86, oktober 1986. Internet publication URL: www.independentliving.org/docs3/ar198610.html (In Swedish.)
Rajkov, Gordana.  1991.  The role of the Muscular Dystrophy Association in the creation of a barrier-free environment.
Internet publication URL: www.independentliving.org/cib/cibbudapest27.html  
Rajkov, Gordana.  2003.  Inependent Living and Yugoslav Experience.
The report presented on behalf Centre for Independent Living of Serbia, at the Europena Network on Independent Living (ENIL) Conference in Southampton, England, 7-9 March 2003. Gordana R. is a founding member of CIL in Serbia, and in the report she is explaining the current situation of disabled people in Serbia in the light of economic, social and political context, and CIL’s efforts to promote the idea of Independent Living Phylosophy in Serbia, particularly the PA Service, through pilot projects and research. Internet publication URL: www.independentliving.org/docs6/rajkov200303.html
Rajkov, Gordana.  1999.  A Personal Letter from Belgrade, Serbia - Written during the current NATO bombings in Yugoslavia.
Internet publication URL: www.independentliving.org/docs6/rajkov1999.html  
Rajah, Zorah.  1992.  Legislation of mobility facilities for disabled persons as backup to existing goodwill.
Internet publication URL: www.independentliving.org/cib/cibharare16.html  
Racino, Julie Ann.  1991.  Centrum för Independent Living (CIL), Berkeley, California: Funktionshindrade visar vägen till fullvärdigt medborgarskap.
The Berkeley CIL, the "first organization of its type in the world," is a visible symbol of the Independent Living movement, the international civil rights movement of disabled people. Internet publication URL: www.independentliving.org/docs4/racino91sv.html (In Swedish.)
Racino, Julie Ann.  1991.  Center for Independent Living (CIL): Disabled People Take the Lead for Full Community Lives.
The Berkeley CIL, the "first organization of its type in the world," is a visible symbol of the Independent Living movement, the international civil rights movement of disabled people. Internet publication URL: www.independentliving.org/docs4/racino91.html
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Purhonen, Sanni.  2023.  Personal Assistance: What's the current situation in Finland?
Polinszky, Tibor.  1991.  Regulation of the non-handicapping environment in Hungary.
Internet publication URL: www.independentliving.org/cib/cibbudapest26.html  
Physical Disability Council of NSW, Inc..  1999.  Position Papers '99, Attendant Care.
Internet publication URL: www.independentliving.org/docs1/pdcnsw99.html  
Philippen, D P.  1991.  Access legislation.
Internet publication URL: www.independentliving.org/cib/cibbudapest25.html
Pfeiffer, David.  1994.  Eugenics and Disability Discrimination.
David Pfeiffer presents and discusses the many statutory ways in which the civil rights of disabled people were, and still are, violated through state and local government laws in the United States. Internet publication URL: www.independentliving.org/docs1/pfeiffe1.html
Pfeiffer, David.  1988.  Divisions in the disability community.
Within the community of disabled persons in this country there is a division between those concerned with civil rights and those concerned with service delivery. Internet publication URL: www.independentliving.org/toolsforpower/tools3b.html
Pfeiffer, David.  1995.  The Disability Movement and its History.
Pfeiffer, resident scholar in the Center on Disability Studies at the University of Hawaii at Manoa, past president of the Society for Disability Studies, present editor of Disability Studies Quarterly and an early leader of the U.S. disability rights movement while a full time faculty member at Suffolk University in Boston, explores the history of the American disability rights movements through some of its most classic texts. First published as "Hip Crip 101." Mainstream: Magazine of the Able-Disabled, Dec.-Jan. 1994-95. Internet publication URL: www.independentliving.org/docs3/pfeiffer95.html
Peterson, Dick.  1998.  Hanging In There.
Dick Peterson creates a new hoisting device with an above-the-waist lifting harness, making transfers smoother for people with various physical disabilities. Internet publication URL: www.independentliving.org/docs3/peterson.html
Persson, Ann, Palmgren Nils.  2003.  Fel siffra orsakade rabalder i färdtjänstdebatt.
Dagens Nyheter. Internet publikation URL: www.independentliving.org/taxi/dn20031003.html (In Swedish.)  
Persson, Ann.  2003.  Protester mot höjd avgift för rullstolstaxi.
Dagens Nyhter. Internet publikation URL: www.independentliving.org/taxi/dn20031007.html (In Swedish).  
Paul Lappalainen, Erdtman, Emil.  2017.  CONFERENCE VIDEOS 24-25 NOV 2016: Strategic litigation and human rights enforcement.
Park, Walter.  1991.  Creating and maintaining access to housing: Implementing access at the local level.
Internet publication URL: www.independentliving.org/cib/cibbudapest24.html
Parakattel, Paul.  1991.  Creating accessibility in developing countries.
Internet publication URL: www.independentliving.org/cib/cibbudapest23.html  
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Opitz, Caspar.  2003.  Delseger för dem som nyttjar rullstolstaxi.
Internet publication URL: www.independentliving.org/taxi/dn20030923.html (In Swedish.)
Oliver, Mike.  1999.  Disabled people and the inclusive society: or the times they really are changing.
Mike Oliver looks at semantics and use of words in addressing disability issues, and refers to Bob Dylan's "The times they are a-changing" to make his point about exclusion and discrimination. Internet publication URL: www.independentliving.org/docs4/oliver.html
Oldenkamp, I.  1995.  Tricycle Production Manual - Vehicle design for people with disabilites in developing countries.
The tricycle is designed primarily for disabled people in Asia, since the result is a joint effort between four Asian organizations. The Tricycle Production Manual has been developed for basically skilled and equipped workshops in developing countries. Internet publication URL: www.independentliving.org/docs5/tricycle.html
Oka, Yukiko.  1988.  Self-reliance in interdependent communities: Independent living of disabled persons in the Asia-Pacific region.
Yukiko Oka analyses the results of an ESCAP questionnaire which covers institutionalization, community-based rehabilitation, and the rights of people with disabilities. Internet publication URL: www.independentliving.org/docs4/oka.html
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Office on the Status of Disabled Persons, South Africa.  1997.  Integrated National Disability Strategy- White Paper.
White Paper from the Office of the President, South Africa. Disabled people should not be seen as objects of pity but as capable individuals who are contributing immensely to the development of society. Internet publication URL: www.independentliving.org/docs5/SANatlDisStrat.html
O'brien, John, O'brien Connie Lyle.  2003.  Publications by John O'brien and Connie Lyle O'brien.
Internet publication URL: www.independentliving.org/docs6/obrien20031011.html  
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Nzioki, Nicky, Maganjo Agnes, Kariuki Catherine.  1992.  A review of current accessibility legislation in Kenya.
Internet publication URL: www.independentliving.org/cib/cibharare15.html
Nyhetsbyrån ikapp.  2003.  Populärt byta färdtjänstbuss mot taxi.
Internet publication URL: www.independentliving.org/taxi/ikapp20030327.html (In Swedish).  
Nybom, Martin, Pettersson Jens.  2008.  Personlig assistans - en billig och effektiv form av valfrihet, egenmakt och integritet - En jämförelse mellan kostnaderna för personlig assistans och kommunal hemtjänst.
Internet publication URL: http://www.independentliving.org/lsskostnad/ (In Swedish.)
Ntsika Enterprise Promotion Agency.  2000.  Innovative Disabled Entrepreneur Award Scheme (IDEAS) - Calling All Entrepreneurs With Disabilities.
Promoting entrepreneurship of persons with disabilities through competition and awards: an example from South Africa. Internet publication URL: www.independentliving.org/docs5/Innovative-Disabled-Entrepreneur-Award-Scheme.html
Novikov, Yuri.  1991.  Accessibility legislation in Byelorussia and the Byelorussian Society of the Disabled.
Internet publication URL: www.independentliving.org/cib/cibbudapest21.html  
Nordenfelt, Enar.  2010.  The foundation in memory of Rolf Bergfors.
Nordenfelt, Enar.  2010.  Stiftelsen Fonden till Rolf Bergfors minne. PDF icon gil-stiftelsen-information-202103.pdf (103.8 KB)PDF icon gil-stiftelsen-ansokningblankett-202103-w.pdf (145.5 KB)
Nolan, Ann, Regan Colm.  2003.  Direct Payments Schemes for People with Disabilities - A Summary Guide, A new and innovative policy approach to providing services to disabled people in Ireland.
This information leaflet is based on the research project, "Direct Payments Schemes for People with Disabilities," carried out by the Bray Partnership in 2002 (see above). The aim of the leaflet is to provide information and create awareness about the concept of direct payments, as well as to commence a lobbying process for the introduction of a direct payments pilot programme. As such, the leaflet fulfills part of the recommendations of the research project relating to dissemination of information and increasing awareness. Bray Partnership, Ireland, Website: www.braypartnership.ie. Internet publication URL: www.independentliving.org/docs6/bray200305-sum.pdf (155 KB). See also the main document, Internet publication URL:www.independentliving.org/docs6/bray200305.pdf (357 KB)
Nkeli, Jerry.  1998.  How to overcome double discrimination of disabled people in South Africa.
South African Human Rights Commissioner, Jerry Nkeli, outlines the country's history from the point of view of the Disability Rights Movement. Conference on Legislation for Human Rights Arranged by Handikappombudsmannen in cooperation with Independent Living Sverige, Stockholm, Sweden 24 August 1998. Internet publication URL: www.independentliving.org/docs1/hr5.html
Nkeli, Jerry.  1998.  Human Rights Commissioner reflects on achievements obtained by people with disabilities.
In South Africa we have disabled people in leadership-roles and have achieved a lot but we have many problems to face in the field of human rights such as issues dealing with racial intolerance and a diversity of various issues that deal with colonialism. Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Stockholm, Sweden 23 August, 1998. Internet publication URL: www.independentliving.org/docs1/stlm19980823f.html
Nikolov, Mitko.  2023.  The history of the adoption of the Personal Assistance Law in Bulgaria and its subsequent controversial effect - 2009-2023.
Newman, Gertrude.  1992.  Promotion of access legislation in Ghana.
Internet publication URL: www.independentliving.org/cib/cibharare13.html  
Nee, Pauline.  1991.  Anti-discrimination legislation as a basis for barrier-free design: How could the Americans with Disabilities Act be adapted for the U.K.?
Internet publication URL: www.independentliving.org/cib/cibbudapest20.html  
National Council on Disability (NCD).  1999.  NCD Releases Report on Improving the Enforcement of Civil Rights of Air Travelers with Disabilities.
The NCD has released a groundbreaking report documenting ineffective enforcement of the Air Carrier Access Act (ACAA) since the law's passage in 1986. Internet publication URL: www.independentliving.org/docs5/ncd199.html
National Council on Disability (NCD).  1999.  Ny rapport från NCD om förbättringar i tillämpningen av rättigheter för flygresenärer med funktionsnedsättgning.
The NCD has released a groundbreaking report documenting ineffective enforcement of the Air Carrier Access Act (ACAA) since the law's passage in 1986. Internet publication URL: www.independentliving.org/docs5/ncd1999sv.html
Nakanishi, Yukiko.  1999.  IL-rörelsen breder ut sig i Asien.
Yukiko Nakanishi reports on Independent Living seminars, workshops and exchanges that are helping to spread the philosophy across Asia. Internet publication URL: www.independentliving.org/docs1/dpidi299sv.html (In Swedish.)
Nakanishi, Yukiko.  1999.  Independent Living movement spreads in Asia.
Yukiko Nakanishi reports on Independent Living seminars, workshops and exchanges that are helping to spread the philosophy across Asia. Internet publication URL: www.independentliving.org/docs1/dpidi299.html
Nakanishi, Yukiko.  1998.  Effects of the Economic Downturn in Japan.
The Japanese Government has been trying to promote decentralization for the last 6-7 years. Disabled persons are afraid that some services will be cut due to scarce local resources. Internet publication URL: www.independentliving.org/docs5/JapanEcon.html
Nakanishi, Yukiko.  2002.  Development and Self-Help Movement of Women with Disabilities.
This article focuses on development assistance models and philosophies for women with disabilities who struggle to achieve independence in Asia, first from the viewpoint of a development program organizer and then from the viewpoint of a witness of empowered self-help movements. Internet publication URL: www.independentliving.org/docs5/nakanishi.html
Nadash, Pamela.  1998.  Independent Choices: Enhancing Consumer Direction for People with Disabilities.
Allowing consumers to manage and direct the long-term services they need acknowledges that they are the best judges of their own needs and the best decision-makers on how these needs get met - an acknowledgment seldom made. Internet publication URL: www.independentliving.org/docs4/ar3983.html
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Montero, Federico.  1998.  Legislation on Disability: The Costa Rican Experience.
Despite the country's relative good respect for human rights and our democratic system, disabled people still do not enjoy equal rights and participation in all aspects of society. Among the factors that prevent disabled people from full citizenship are negative attitudes against disability. Internet publication URL: www.independentliving.org/docs1/hr12.html
Montero, Federico.  1998.  Human Rights and Organisations of Disabled Persons in Costa Rica.
Despite positive changes in Costa Rica's social policies, disabled people still are denied certain rights to participate in all aspects of society. Internet publication URL: www.independentliving.org/docs1/stlm19980823e.html
Mohit, Anuradha, Rungta S K.  2000.  Preliminary ideas and procedures for ensuring systematic international collection of information.
In: "Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000." Pre-paper 7. Internet publication URL: www.independentliving.org/docs2/mohit00.pdf. In Internet publication URLs: www.independentliving.org/docs2/rioux00.pdf and www.independentliving.org/docs2/rioux00.doc
Mladenov, Teodor, Elder-Woodward Jim, Siilsalu Mari, Cojocariu Ines Bulic, Hadad Nadia, Angelova-Mladenova Lilia.  2022.  Comparison between personal assistance and home care work.
Mladenov, Teodor.  2023.  Personal Assistance - What should personal assistance look like?
Ministry of Social Affairs, Sweden.  1993.  Gesetz zum Assistenzbudget.
("Assistansersättning" - "Compensation for Assistance.") Ursprünglicher Gesetzestext von 1993, der einen bestimmten Personenkreis zu Geldleistungen für persönliche Assistenz von der schwedischen Sozialversicherung berechtigt.Das Gesetz wurde seit seinem Inkrafttreten am 1.1. 1994 mehrmals abeändert, was Einschränkungen aber auch vereinzelte Verbesserungen für Assistenznehmer mit sich führte. (Für die Qualität der Ü bersetzung ist das schwedische Sozialministerium und nicht das Independent Living Institute verantwortlich.) Internet publication URL: www.independentliving.org/docs6/schweden199311.html (In German.)
Milner, Joanne, Urquhart Dennis, Cox David.  1991.  Universal design and designer awareness: The constraints of architectural education.
Internet publication URL: www.independentliving.org/cib/cibbudapest19.html  
Miles-Paul, Ottmar, Frehse Uwe.  1991.  Creating a political alliance for anti-discrimination legislation in Germany.
Internet publication URL: www.independentliving.org/cib/cibbudapest18.html  
Miles, M.  2005.  Martin Luther and Childhood Disability in 16th Century Germany: What did he write? What did he say?
Revised and extended version of a paper that was first published with copyright by The Haworth Press, Inc., Binghampton, NY 13904-1580, in the Journal of Religion, Disability & Health (2001), vol. 5 (4) pp. 5-36, and is here reproduced with permission. Martin Luther’s ideas and theological writings on deaf or disabled children and adults, and his personal and practical experiences in this field are shown. Textual evidence gives a different picture from what is commonly believed, and is interesting both for Luther’s own times and the modern world. Internet publication URL: www.independentliving.org/docs7/miles2005b.html
Miles, M.  2000.  Blind People Handling Their Own Fate.
Accounts of earlier social responses to blind people particularly in Japan, and to some extent in China, indicate a measure of both group and individual autonomy within reserved and valued occupations, ostensibly reflecting a status model more 'normal' than blind people enjoyed in much of European history. (Excerpt From: M. Miles (2000) Disability on a Different Model: Glimpses of an Asian Heritage.) Internet publication URL: www.independentliving.org/docs5/mmiles1.html
Miles, M.  2006.  Children with spina bifida and hydrocephalus in Africa: can medical, family and community resources improve the life chances?
This much extended and revised article incorporates material from: M. Miles (2002) Children with hydrocephalus and spina bifida in East Africa: can family and community resources improve the odds? Disability & Society 17: 643-658, Carfax Publishing, Taylor & Francis. (The latter material is republished with permission.) The revised article concerns social responses to children with hydrocephalus and spina bifida in African countries, and the historical development of ways in which various resources have been used to improve their life chances, and overcome the disabling effects of these conditions. Internet publication URLs: www.independentliving.org/docs7/miles200609.html and www.independentliving.org/docs7/miles200609.pdf (239 KB).
PDF icon miles200609.pdf (238.41 KB)
Miles, M.  2008.  HITTITE DEAF MEN IN THE 13th CENTURY BC: introductory notes with annotated bibliography.
The article introduces bibliographical evidence on deaf men working in palaces and temples of the Hittite Kingdom in Anatolia (now Turkey) during the 13th century BC, with further notes on signing and deaf people's activities in the ancient and medieval Middle East. With some additions and revision September 2009. Internet publication URLs: www.independentliving.org/docs7/miles200809.html and www.independentliving.org/files/miles200809.pdf.
PDF icon miles200809.pdf (107.78 KB)PDF icon HITTITE_DEAF_MEN_IN_THE_13th_CENTURY_BC_traduction_francaise_4.pdf (637.26 KB)
Miles, M.  2007.  Disability and Deafness, in the context of Religion, Spirituality, Belief and Morality, in Middle Eastern, South Asian and East Asian Histories and Cultures: annotated bibliography.
The bibliography introduces and annotates materials pertinent to disability, mental disorders and deafness, in the context of religious belief and practice in the Middle East, South Asia and East Asia. Internet publication URLs: www.independentliving.org/docs7/miles200707.html and www.independentliving.org/docs7/miles200707.pdf
Miles, M.  1988.  The Blind Afghan Child.
A young Afghan who was born blind in a remote village tells of his childhood and how he gained the skills to take part in community life and later to earn his living in a town. Internet publication URL: www.independentliving.org/docs3/milesm1988a.html
Miles, M.  2005.  Deaf People Living and Communicating in African Histories, c. 960s - 1960s.
New, much extended Version 5.01, incorporating an article first published in Disability & Society vol. 19, pp. 531-45; August 2004, titled then "Locating deaf people, gesture and sign in African histories, 1450s-1950s". The latter material is republished with permission of Carfax Publishing, Taylor & Francis. Visits 100 deaf people in 42 nations, across 1000 years of African history. From servants and schoolchildren to scientists, soldiers and statesmen, using every possible means of communication. Internet publication URL: www.independentliving.org/docs7/miles2005a.html
Miles, M.  2001.  Models of Rehabilitation and Evidence of Their Effectiveness: Production & Movements of Disability Knowledge, Skill & Design Within the Cultures and Concepts of Southern Africa.
Starting with a disabled person in Mozambique in the 1590s, and a projection of future disability services when knowledge and skills are widely disseminated and rehabilitation professionals are no longer needed, this paper looks more closely at the knowledge and skills available among disabled people and their families and communities in Southern Africa. These factors need to be pooled, refined and tested so that services become rooted in African cultures and respond more appropriately to people's self-perceived needs. Internet publication URLs: www.independentliving.org/docs2/milesm200104.html and www.independentliving.org/docs2/milesm200104.pdf
Miles, M.  2007.  International Strategies for Disability-related Work in Developing Countries: historical, modern and critical reflections.
Revised version of a paper first published in the Zeitschrift Behinderung und Dritte Welt, 3/2003, pp. 96-106, and here reproduced with permission. International strategies concerned with disability in developing and transitional countries (DTC) are scrutinised critically, with an historical focus on beneficial traditions and practices in Asia and Africa, attesting the variety and complexity of social responses to disability. Internet publication URLs: www.independentliving.org/docs7/miles200701.html and www.independentliving.org/docs7/miles200701.pdf (112 KB).
PDF icon miles200701.pdf (111.63 KB)
Miles, Christine.  2007.  Imran's Djinn, and Theories of Epilepsy.
This article and the review comment were first published in “EPICADEC News” (from the Foundation Epilepsy Care Developing Countries, Leiden), October 2000, pp. 9-10, titled “Imran’s Djinn”. They are here reproduced with permission, after slight revision. The article concerns an Asian boy living in UK. His family had trouble using the health services, because of different concepts of Imran’s illness. One of Imran’s teachers met the family half way, respecting their beliefs and giving them time to digest a different approach to epilepsy and its treatment. A scientific reviewer comments on the story. Internet publication URL: www.independentliving.org/docs7/miles-christine2000.html
Miles, M.  2018.  DISABILITY IN AFRICA: RELIGIOUS, ETHICAL & HEALING RESPONSES, to and by People with Disabilities, Deafness, or Mental Debility: a bibliography through four millennia, with introduction and partial annotation.. PDF icon pdf format (2.52 MB)File epub format (808.68 KB)File mobi format (1.04 MB)
Miles, M.  2007.  Disability and Deafness in East Asia: Social and Educational Responses, from Antiquity to Recent Times. A bibliography of European-language materials with introduction and some annotation. Revised Version 4.0, August 2007.
The bibliography introduces and lists 900 articles, chapters and books connected with social and educational responses to disability, deafness and mental disorders in China, Korea and Japan, from antiquity to 2007, some with annotation. (This work revises and greatly extends an earlier bibliography on the former History of Education website at the Catholic University of Nijmegen). Internet publication URLs: independentliving.org/docs7/miles200708.html and independentliving.org/docs7/miles200708.pdf
Miles, M.  1994.  What is Community Based Rehabilitation (CBR)?
This paper tells why CBR is needed, and why there are many different views about what CBR is and how it should be done. It was written for the International League of Societies for Persons with Mental Handicap (now "Inclusion International"). It uses language that is easy to read. Internet publication URL: www.independentliving.org/docs2/milesm1994.html
Miles, M.  2008.  Glimpses of Disability in the Literature and Cultures of East Asia, South Asia, the Middle East & Africa. A modern and historical bibliography, with some annotation.
This annotated bibliography lists a selection of 130 novels, short stories, biographies, autobiographies, materials from philosophy, anthropology and folklore, and literary criticism, in which disability, deafness or mental disorders play some significant part, from East Asia, South Asia, the Middle East and Africa, available mostly in English or French. Internet publication URLs: independentliving.org/docs7/miles200807.html and independentliving.org/docs7/miles200807.pdf
Miles, M.  2002.  Community and Individual Responses to Disablement in South Asian Histories: Old Traditions, New Myths?
Documented histories of South Asian societies provide evidence that disabled people played various roles in their families and communities, sometimes with a good deal of independence. The commonest responses have been top-down, charitable or restrictive; yet some evidence challenges the stereotypes and suggests that disablement historically evoked a wider range of responses and initiative. Internet publication URL: www.independentliving.org/docs3/miles2002a.html
Miles, M.  2007.  Review - Epileptic Graphic.
Review of “Epileptic” by “David B.”, a remarkably frank account, in graphics and cartoon strip, of childhood and adulthood with an older brother having epilepsy, and a family doing the tour of cures in France of the 1960s and 1970s. Internet publication URL: www.independentliving.org/docs7/miles200704.html

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