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Dr. Adolf Ratzka.  2011.  Independent Living for People with Disabilities of All Ages.
Given the increasing number of older persons relative to the working age population, record level taxes and baby boomers’ demands for self-determination and quality of life, which changes might the Scandinavian welfare model have to undergo in order to deliver long term care to all who need it? In Sweden, direct payments for personal assistance are paid to mainly younger persons with extensive disabilities. In terms of perceived quality and cost per hour of service, direct payments have been found to be more efficient than traditional local government services. But would this favorable experience hold for all persons in need of assistance with the activities of daily living – regardless of age, diagnosis and minimum needs? What would be such a policy’s cost and effects on the labor market? How could it be financed? Would it threaten younger disabled persons’ relative favorable present situation? Today’s Swedish policy of cash payments for the purchase of personal assistance services might be of interest as a long term care solution for tomorrow’s older persons.
Dr. Adolf Ratzka.  2007.  Independent Living for people with disabilities: from patient to citizen and customer.
Keynote at the conference in Barcelona 22 October 2007 organized by the Catalan Party Convergéncia i Unió in commemoration of the 25th anniversary of The Spanish Law for Persons with Disabilities of 1982. Internet publication URL: www.independentliving.org/docs7/ratzka20071022.html
Dr. Adolf Ratzka.  2012.  Projektansökan Assistanstips. PDF icon Ansokan_Assistanstips_ursprungliga_bilaga.pdf (313.64 KB)
Dr. Adolf Ratzka.  1998.  Direct Payment Schemes in Slovakia.
In 1997 the Independent Living Institute successfully bid for projects in the Slovak Republic within the European PHARE program: a personal assistance delivery scheme using direct cash payments and a accessible mainstream taxi system with a subsidy scheme for disabled riders. The article discusses some of the difficulties and opportunities that user-initiated and user-run solutions entail in post-communist societies. Internet publication URL: www.independentliving.org/docs3/slovakia.html
Dr. Adolf Ratzka.  2018.  Access to Justice.
Open mic event on the Rights of Persons with Disabilities ”Human Rights: a reality for all persons with disabilities?” European United Left/Nordic Green Left European Parliamentary Group European Parliament, Brussels October 17, 2018
Dr. Adolf Ratzka.  1993.  Personlig assistans och Disability Pride.
Adolf Ratzka pratar om "disability pride" genom hans egna erfarenheter och behovet av personlig assistans för att kunna känna sig oberoende och stolt. Internet publication URL: www.independentliving.org/docs4/pride93b.html (In Swedish.)
Dr. Adolf Ratzka.  2003.  Angående Färdtjänstförvaltningens svar på min anmälan om diskriminering - Anmälan hos Handikappombudsmannen.".
Ärende Dnr 2003/990. Internet publication URLs: www.independentliving.org/taxi/ratzka20030911.html och www.independentliving.org/taxi/ratzka20030911.pdf (6 KB). (In Swedish.)
Dr. Adolf Ratzka.  2003.  Funktionshindrade protesterar, Dagens Nyheter 2003-06-15 (PDF, 357 KB).
Internet publikation URL: www.independentliving.org/taxi/dn20030615.pdf (PDF, 357 KB). (In Swedish.)
Dr. Adolf Ratzka.  2015.  Die Voraussetzungen zur De-institutionalisierung von Menschen mit Behinderungen.
Persönliche Assistenz ist eine hochqualitative und kostengünstige Alternative zu Wohneinrichtungen und ambulanten Diensten, laut Adolf Ratzka - eine Behauptung, die er mit den über 20-jährigen schwedischen Erfahrungen mit persönlicher Assistenz belegt. Den Hauptwiderstand gegen persönliche Assistenz in Deutschland sieht er in den Eigeninteressen der Wohlfahrtsverbände und dem noch weitverbreiteten medizinischen Bild von Behinderung.
Dr. Adolf Ratzka.  1995.  Institutioner eller Personlig Assistans: Ett exempel från Costa Rica.
Är institutioner verkligen bästa platsen för äldre att tillbringa sina sista år? Är det verkligen den bästa uppväxten för barn? Internet publication URL: www.independentliving.org/docs5/InstitutionsCostaRicaSv.html (In Swedish.)
Dr. Adolf Ratzka.  2011.  A case for non-discrimination on grounds of ethnicity in government disability policy.
Presentation at National Conference, Commission for Equal Rights of Persons with Disabilities, Beer Sheba, Israel, December 1 2010
PDF icon 2010-12_Beer_Sheba_A_case_for_non-dicrimination_on_the_grounds_of_ethnicity_in_social_insurance.pdf (69.16 KB)
Dr. Adolf Ratzka.  2002.  User control over services as a precondition for self-determination.
Plenary presentation at Danish EU Presidency Seminar on "Quality of Life and Quality in Services for People with Disabilities," Copenhagen, October 31-November 1, 2002. Internet publication URL: www.independentliving.org/docs4/ar200210.html
Dr. Adolf Ratzka.  2017.  Ansökan om stöd ur Allmänna arvsfonden till projektet Disabled Refugees Welcome.
 Ansökan till Arvsfonden, inskickad juli 2016. Det finns mindre revideringar och kompletteringar som gjordes senare. Vi har inte översatt denna till engelska än (There is currently no english translation). 
Dr. Adolf Ratzka.  2012.  Personal Assistance and the Crisis: Now is the time to promote Direct Payments for Personal Assistance.
Against the backdrop of the impact of the current economic crisis on persons who depend on practical assistance by other persons with the activities of daily living the author outlines arguments for direct payments for Personmal Assistance services. These services are demand driven, superior in quality and cost-efficiiency to supply driven services such as residential institutions and support the United Nations Convention Article 19 "living independently and being included in the community".
Dr. Adolf Ratzka.  2003.  Den svarta tisdagen, 17 juni 2003.
Internet publikation URL: www.independentliving.org/taxi/ratzka20030618.html (In Swedish).
Dr. Adolf Ratzka.  1998.  I kläm mellan laissez faire och den sociala ingenjörskonsten.
Skillnaderna mellan hemtjänst och personlig assistans - en diskussion med en granskning av de olika socialpolitiska instrument som finns på vårt område. Internet publication URL: www.independentliving.org/docs5/i_klam.html (In Swedish.)
Dr. Adolf Ratzka.  2005.  Independent Living émancipe les personnes en situation de handicap.
Development Outreach. World Bank. Juillet 2005. Internet publication URL: www.independentliving.org/docs7/ratzka200507f.html
Dr. Adolf Ratzka.  1996.  Schweden: Betreuung oder Selbstbestimmung - zur Lage von Menschen mit Behinderungen.
Schweden mit seinen 8,5 Millionen Einwohnern erfreut sich des Rufs eines fortschrittlichen Sozialstaats, in dem Menschen mit Behinderungen unter besseren Lebensbedingungen als in den meisten anderen Ländern leben. Internet publication URL: www.independentliving.org/docs4/ratzka96a.html (in German)
Dr. Adolf Ratzka.  1993.  Independent Living och dagens socialpolitik.
I: Institutet för Independent Living. 1993. "Hemtjänst i omdaning - möjligheter och decentraliseringens och privatiseringens tid, Dokumentation av STIL-hearing Stockholm 1993." Internet publication URL: www.independentliving.org/docs3/stil1993.html#1 (In Swedish.)
Dr. Adolf Ratzka.  2003.  Independent Living in Sweden.
Account of the emergence of the Independent Living movement in Sweden, the social policy climate at the time, its struggles, achievements and challenges from the perspective of the person who introduced the independent living concept to Sweden. Internet publication URL: www.independentliving.org/docs6/ratzka200302b.html. In the forthcoming English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish, PDF, 1.46 MB).
Dr. Adolf Ratzka.  2015.  Accessible cities consist of barrier-free housing.
In this presentation Dr. Adolf Ratzka emphasizes that city and housing planners still do not pay sufficient attention to barrier-free housing for people with disabilities and proposes the goal of general accessibility in the housing stock, in both new construction an renovation. Drawing on Swedish experience he claims that general residential accessibility would also imply savings to society in the form of lower costs due to fewer residential accidents particularly in the older population.
Dr. Adolf Ratzka.  2009.  Report from Independent Living seminar in Stockholm 2009: Networks on Personal Assistance and Public Transport Access.
Dr. Adolf Ratzka.  1996.  Introduction to direct payments for personal assistance.
Rajkov, Gordana.  1991.  The role of the Muscular Dystrophy Association in the creation of a barrier-free environment.
Internet publication URL: www.independentliving.org/cib/cibbudapest27.html  
Rajkov, Gordana.  2003.  Inependent Living and Yugoslav Experience.
The report presented on behalf Centre for Independent Living of Serbia, at the Europena Network on Independent Living (ENIL) Conference in Southampton, England, 7-9 March 2003. Gordana R. is a founding member of CIL in Serbia, and in the report she is explaining the current situation of disabled people in Serbia in the light of economic, social and political context, and CIL’s efforts to promote the idea of Independent Living Phylosophy in Serbia, particularly the PA Service, through pilot projects and research. Internet publication URL: www.independentliving.org/docs6/rajkov200303.html
Rajkov, Gordana.  1999.  A Personal Letter from Belgrade, Serbia - Written during the current NATO bombings in Yugoslavia.
Internet publication URL: www.independentliving.org/docs6/rajkov1999.html  
Rajah, Zorah.  1992.  Legislation of mobility facilities for disabled persons as backup to existing goodwill.
Internet publication URL: www.independentliving.org/cib/cibharare16.html  
Racino, Julie Ann.  1991.  Centrum för Independent Living (CIL), Berkeley, California: Funktionshindrade visar vägen till fullvärdigt medborgarskap.
The Berkeley CIL, the "first organization of its type in the world," is a visible symbol of the Independent Living movement, the international civil rights movement of disabled people. Internet publication URL: www.independentliving.org/docs4/racino91sv.html (In Swedish.)
Racino, Julie Ann.  1991.  Center for Independent Living (CIL): Disabled People Take the Lead for Full Community Lives.
The Berkeley CIL, the "first organization of its type in the world," is a visible symbol of the Independent Living movement, the international civil rights movement of disabled people. Internet publication URL: www.independentliving.org/docs4/racino91.html
P
Purhonen, Sanni.  2023.  Personal Assistance: What's the current situation in Finland?
Polinszky, Tibor.  1991.  Regulation of the non-handicapping environment in Hungary.
Internet publication URL: www.independentliving.org/cib/cibbudapest26.html  
Physical Disability Council of NSW, Inc..  1999.  Position Papers '99, Attendant Care.
Internet publication URL: www.independentliving.org/docs1/pdcnsw99.html  
Philippen, D P.  1991.  Access legislation.
Internet publication URL: www.independentliving.org/cib/cibbudapest25.html
Pfeiffer, David.  1995.  The Disability Movement and its History.
Pfeiffer, resident scholar in the Center on Disability Studies at the University of Hawaii at Manoa, past president of the Society for Disability Studies, present editor of Disability Studies Quarterly and an early leader of the U.S. disability rights movement while a full time faculty member at Suffolk University in Boston, explores the history of the American disability rights movements through some of its most classic texts. First published as "Hip Crip 101." Mainstream: Magazine of the Able-Disabled, Dec.-Jan. 1994-95. Internet publication URL: www.independentliving.org/docs3/pfeiffer95.html
Pfeiffer, David.  1994.  Eugenics and Disability Discrimination.
David Pfeiffer presents and discusses the many statutory ways in which the civil rights of disabled people were, and still are, violated through state and local government laws in the United States. Internet publication URL: www.independentliving.org/docs1/pfeiffe1.html
Pfeiffer, David.  1988.  Divisions in the disability community.
Within the community of disabled persons in this country there is a division between those concerned with civil rights and those concerned with service delivery. Internet publication URL: www.independentliving.org/toolsforpower/tools3b.html
Peterson, Dick.  1998.  Hanging In There.
Dick Peterson creates a new hoisting device with an above-the-waist lifting harness, making transfers smoother for people with various physical disabilities. Internet publication URL: www.independentliving.org/docs3/peterson.html
Persson, Ann, Palmgren Nils.  2003.  Fel siffra orsakade rabalder i färdtjänstdebatt.
Dagens Nyheter. Internet publikation URL: www.independentliving.org/taxi/dn20031003.html (In Swedish.)  
Persson, Ann.  2003.  Protester mot höjd avgift för rullstolstaxi.
Dagens Nyhter. Internet publikation URL: www.independentliving.org/taxi/dn20031007.html (In Swedish).  
Paul Lappalainen, Erdtman, Emil.  2017.  CONFERENCE VIDEOS 24-25 NOV 2016: Strategic litigation and human rights enforcement.
Park, Walter.  1991.  Creating and maintaining access to housing: Implementing access at the local level.
Internet publication URL: www.independentliving.org/cib/cibbudapest24.html
Parakattel, Paul.  1991.  Creating accessibility in developing countries.
Internet publication URL: www.independentliving.org/cib/cibbudapest23.html  
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Opitz, Caspar.  2003.  Delseger för dem som nyttjar rullstolstaxi.
Internet publication URL: www.independentliving.org/taxi/dn20030923.html (In Swedish.)
Oliver, Mike.  1999.  Disabled people and the inclusive society: or the times they really are changing.
Mike Oliver looks at semantics and use of words in addressing disability issues, and refers to Bob Dylan's "The times they are a-changing" to make his point about exclusion and discrimination. Internet publication URL: www.independentliving.org/docs4/oliver.html
Oldenkamp, I.  1995.  Tricycle Production Manual - Vehicle design for people with disabilites in developing countries.
The tricycle is designed primarily for disabled people in Asia, since the result is a joint effort between four Asian organizations. The Tricycle Production Manual has been developed for basically skilled and equipped workshops in developing countries. Internet publication URL: www.independentliving.org/docs5/tricycle.html
Oka, Yukiko.  1988.  Self-reliance in interdependent communities: Independent living of disabled persons in the Asia-Pacific region.
Yukiko Oka analyses the results of an ESCAP questionnaire which covers institutionalization, community-based rehabilitation, and the rights of people with disabilities. Internet publication URL: www.independentliving.org/docs4/oka.html
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Office on the Status of Disabled Persons, South Africa.  1997.  Integrated National Disability Strategy- White Paper.
White Paper from the Office of the President, South Africa. Disabled people should not be seen as objects of pity but as capable individuals who are contributing immensely to the development of society. Internet publication URL: www.independentliving.org/docs5/SANatlDisStrat.html
O'brien, John, O'brien Connie Lyle.  2003.  Publications by John O'brien and Connie Lyle O'brien.
Internet publication URL: www.independentliving.org/docs6/obrien20031011.html  
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Nzioki, Nicky, Maganjo Agnes, Kariuki Catherine.  1992.  A review of current accessibility legislation in Kenya.
Internet publication URL: www.independentliving.org/cib/cibharare15.html
Nyhetsbyrån ikapp.  2003.  Populärt byta färdtjänstbuss mot taxi.
Internet publication URL: www.independentliving.org/taxi/ikapp20030327.html (In Swedish).  
Nybom, Martin, Pettersson Jens.  2008.  Personlig assistans - en billig och effektiv form av valfrihet, egenmakt och integritet - En jämförelse mellan kostnaderna för personlig assistans och kommunal hemtjänst.
Internet publication URL: http://www.independentliving.org/lsskostnad/ (In Swedish.)
Ntsika Enterprise Promotion Agency.  2000.  Innovative Disabled Entrepreneur Award Scheme (IDEAS) - Calling All Entrepreneurs With Disabilities.
Promoting entrepreneurship of persons with disabilities through competition and awards: an example from South Africa. Internet publication URL: www.independentliving.org/docs5/Innovative-Disabled-Entrepreneur-Award-Scheme.html
Novikov, Yuri.  1991.  Accessibility legislation in Byelorussia and the Byelorussian Society of the Disabled.
Internet publication URL: www.independentliving.org/cib/cibbudapest21.html  
Nordenfelt, Enar.  2010.  The foundation in memory of Rolf Bergfors.
Nordenfelt, Enar.  2010.  Stiftelsen Fonden till Rolf Bergfors minne. PDF icon gil-stiftelsen-information-202103.pdf (103.8 KB)PDF icon gil-stiftelsen-ansokningblankett-202103-w.pdf (145.5 KB)
Nolan, Ann, Regan Colm.  2003.  Direct Payments Schemes for People with Disabilities - A Summary Guide, A new and innovative policy approach to providing services to disabled people in Ireland.
This information leaflet is based on the research project, "Direct Payments Schemes for People with Disabilities," carried out by the Bray Partnership in 2002 (see above). The aim of the leaflet is to provide information and create awareness about the concept of direct payments, as well as to commence a lobbying process for the introduction of a direct payments pilot programme. As such, the leaflet fulfills part of the recommendations of the research project relating to dissemination of information and increasing awareness. Bray Partnership, Ireland, Website: www.braypartnership.ie. Internet publication URL: www.independentliving.org/docs6/bray200305-sum.pdf (155 KB). See also the main document, Internet publication URL:www.independentliving.org/docs6/bray200305.pdf (357 KB)
Nkeli, Jerry.  1998.  How to overcome double discrimination of disabled people in South Africa.
South African Human Rights Commissioner, Jerry Nkeli, outlines the country's history from the point of view of the Disability Rights Movement. Conference on Legislation for Human Rights Arranged by Handikappombudsmannen in cooperation with Independent Living Sverige, Stockholm, Sweden 24 August 1998. Internet publication URL: www.independentliving.org/docs1/hr5.html
Nkeli, Jerry.  1998.  Human Rights Commissioner reflects on achievements obtained by people with disabilities.
In South Africa we have disabled people in leadership-roles and have achieved a lot but we have many problems to face in the field of human rights such as issues dealing with racial intolerance and a diversity of various issues that deal with colonialism. Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Seminar on Human Rights for Persons with Disabilities from a North and South Perspective, Stockholm, Sweden 23 August, 1998. Internet publication URL: www.independentliving.org/docs1/stlm19980823f.html
Nikolov, Mitko.  2023.  The history of the adoption of the Personal Assistance Law in Bulgaria and its subsequent controversial effect - 2009-2023.
Newman, Gertrude.  1992.  Promotion of access legislation in Ghana.
Internet publication URL: www.independentliving.org/cib/cibharare13.html  
Nee, Pauline.  1991.  Anti-discrimination legislation as a basis for barrier-free design: How could the Americans with Disabilities Act be adapted for the U.K.?
Internet publication URL: www.independentliving.org/cib/cibbudapest20.html  
National Council on Disability (NCD).  1999.  Ny rapport från NCD om förbättringar i tillämpningen av rättigheter för flygresenärer med funktionsnedsättgning.
The NCD has released a groundbreaking report documenting ineffective enforcement of the Air Carrier Access Act (ACAA) since the law's passage in 1986. Internet publication URL: www.independentliving.org/docs5/ncd1999sv.html
National Council on Disability (NCD).  1999.  NCD Releases Report on Improving the Enforcement of Civil Rights of Air Travelers with Disabilities.
The NCD has released a groundbreaking report documenting ineffective enforcement of the Air Carrier Access Act (ACAA) since the law's passage in 1986. Internet publication URL: www.independentliving.org/docs5/ncd199.html
Nakanishi, Yukiko.  2002.  Development and Self-Help Movement of Women with Disabilities.
This article focuses on development assistance models and philosophies for women with disabilities who struggle to achieve independence in Asia, first from the viewpoint of a development program organizer and then from the viewpoint of a witness of empowered self-help movements. Internet publication URL: www.independentliving.org/docs5/nakanishi.html
Nakanishi, Yukiko.  1999.  IL-rörelsen breder ut sig i Asien.
Yukiko Nakanishi reports on Independent Living seminars, workshops and exchanges that are helping to spread the philosophy across Asia. Internet publication URL: www.independentliving.org/docs1/dpidi299sv.html (In Swedish.)
Nakanishi, Yukiko.  1999.  Independent Living movement spreads in Asia.
Yukiko Nakanishi reports on Independent Living seminars, workshops and exchanges that are helping to spread the philosophy across Asia. Internet publication URL: www.independentliving.org/docs1/dpidi299.html
Nakanishi, Yukiko.  1998.  Effects of the Economic Downturn in Japan.
The Japanese Government has been trying to promote decentralization for the last 6-7 years. Disabled persons are afraid that some services will be cut due to scarce local resources. Internet publication URL: www.independentliving.org/docs5/JapanEcon.html
Nadash, Pamela.  1998.  Independent Choices: Enhancing Consumer Direction for People with Disabilities.
Allowing consumers to manage and direct the long-term services they need acknowledges that they are the best judges of their own needs and the best decision-makers on how these needs get met - an acknowledgment seldom made. Internet publication URL: www.independentliving.org/docs4/ar3983.html
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Montero, Federico.  1998.  Legislation on Disability: The Costa Rican Experience.
Despite the country's relative good respect for human rights and our democratic system, disabled people still do not enjoy equal rights and participation in all aspects of society. Among the factors that prevent disabled people from full citizenship are negative attitudes against disability. Internet publication URL: www.independentliving.org/docs1/hr12.html
Montero, Federico.  1998.  Human Rights and Organisations of Disabled Persons in Costa Rica.
Despite positive changes in Costa Rica's social policies, disabled people still are denied certain rights to participate in all aspects of society. Internet publication URL: www.independentliving.org/docs1/stlm19980823e.html
Mohit, Anuradha, Rungta S K.  2000.  Preliminary ideas and procedures for ensuring systematic international collection of information.
In: "Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000." Pre-paper 7. Internet publication URL: www.independentliving.org/docs2/mohit00.pdf. In Internet publication URLs: www.independentliving.org/docs2/rioux00.pdf and www.independentliving.org/docs2/rioux00.doc
Mladenov, Teodor, Elder-Woodward Jim, Siilsalu Mari, Cojocariu Ines Bulic, Hadad Nadia, Angelova-Mladenova Lilia.  2022.  Comparison between personal assistance and home care work.
Mladenov, Teodor.  2023.  Personal Assistance - What should personal assistance look like?
Ministry of Social Affairs, Sweden.  1993.  Gesetz zum Assistenzbudget.
("Assistansersättning" - "Compensation for Assistance.") Ursprünglicher Gesetzestext von 1993, der einen bestimmten Personenkreis zu Geldleistungen für persönliche Assistenz von der schwedischen Sozialversicherung berechtigt.Das Gesetz wurde seit seinem Inkrafttreten am 1.1. 1994 mehrmals abeändert, was Einschränkungen aber auch vereinzelte Verbesserungen für Assistenznehmer mit sich führte. (Für die Qualität der Ü bersetzung ist das schwedische Sozialministerium und nicht das Independent Living Institute verantwortlich.) Internet publication URL: www.independentliving.org/docs6/schweden199311.html (In German.)
Milner, Joanne, Urquhart Dennis, Cox David.  1991.  Universal design and designer awareness: The constraints of architectural education.
Internet publication URL: www.independentliving.org/cib/cibbudapest19.html  
Miles-Paul, Ottmar, Frehse Uwe.  1991.  Creating a political alliance for anti-discrimination legislation in Germany.
Internet publication URL: www.independentliving.org/cib/cibbudapest18.html  
Miles, M.  1987.  Vocational Rehabilitation: Barefoot Realities in North West Pakistan.
A project was developed at Peshawar, Pakistan, for learning the components and processes of making cheap, basic items of everyday life and offering these to disabled young people as small-scale crafts to practise at home and to sell locally. The crafts are economically marginal, with earnings insufficient for self-support, yet they can make a financial contribution to the family budget. This changes the disabled person's role and can lift self-esteem and initiate improved attitudes, while remaining within local capacities and ecology. An earlier version of this paper appeared in the African Rehabilitation Journal (1987) Vol. 2 (10) 13-14. Internet publication URL: www.independentliving.org/docs3/milesm1987a.html
Miles, M.  1997.  Home Visiting with Mama Kitenge, Community Based Rehabilitation Fieldworker, Tanzania.
A morning in the poorer parts of Dar es Salaam is described, during which Mama Kitenge visits families with children having mental and other disabilities and works with these childen and their caregivers. Internet publication URL: www.independentliving.org/docs3/milesm1997a.html
Miles, M.  2009.  DEAF PEOPLE, SIGN LANGUAGE & COMMUNICATION, IN OTTOMAN & MODERN TURKEY: Observations and Excerpts from 1300 to 2009. From sources in English, French, German, Greek, Italian, Latin and Turkish, with introduction and some annotation.
Internet publication URL: https://www.independentliving.org/miles200907.html
PDF icon miles200907.pdf (494.75 KB)
Miles, M.  2006.  Social Responses to Disability & Poverty in Economically Weaker Countries. Research, Trends, Critique, and Lessons Usually Not Learnt. Annotated bibliography of modern and historical material.
The author introduces 250 articles and books showing social responses to disability and poverty in two-thirds of the world now and in history, with critical notes. He commends some intelligent approaches in the face of complexity and challenges simplistic slogans and official blah-blah. [An earlier version of the “Modern Materials” section first appeared in DisabilityWorld (Dec.05 - Jan.06), and is reproduced by kind permission, with revision and extension.] Internet publication URL: www.independentliving.org/docs7/miles200603.html
Miles, M.  2005.  Martin Luther and Childhood Disability in 16th Century Germany: What did he write? What did he say?
Revised and extended version of a paper that was first published with copyright by The Haworth Press, Inc., Binghampton, NY 13904-1580, in the Journal of Religion, Disability & Health (2001), vol. 5 (4) pp. 5-36, and is here reproduced with permission. Martin Luther’s ideas and theological writings on deaf or disabled children and adults, and his personal and practical experiences in this field are shown. Textual evidence gives a different picture from what is commonly believed, and is interesting both for Luther’s own times and the modern world. Internet publication URL: www.independentliving.org/docs7/miles2005b.html
Miles, M.  1982.  Why Asia Rejects Western Disability Advice.
This paper reviews psycho-social and religious factors, professional motivations and political inequalities, that have prevented any widespread adoption of "community-based rehabilitation" by Asian governments. Internet publication URL: www.independentliving.org/miles_m1982why_asia_rejects_western_disability_advice
Miles, M.  2000.  Signing in the Seraglio: mutes, dwarfs and jestures at the Ottoman Court 1500 - 1700.
Deaf people, known as 'mutes', worked in the Turkish Ottoman court from the fifteenth to the twentieth century in various roles along with dwarfs and other entertainers. Their signing system became popular, was used regularly by hearing people including successive Sultans, and was reportedly capable of expressing ideas of whatever complexity. Internet publication URL: www.independentliving.org/docs5/mmiles2.html
Miles, M, Hossain Farhad.  1999.  Rights and Disabilities in Educational Provisions in Pakistan and Bangladesh: Roots, Rhetoric, Reality.
Educational opportunities for children with disabilities in Pakistan and Bangladesh are seen in the context of the countries' religious, cultural and economic development. The relevance of Western concepts such as "human rights", "inclusion" and "empowerment" is critically examined. Internet publication URL: www.independentliving.org/docs5/mmiles3.html
Miles, M.  2006.  Children with spina bifida and hydrocephalus in Africa: can medical, family and community resources improve the life chances?
This much extended and revised article incorporates material from: M. Miles (2002) Children with hydrocephalus and spina bifida in East Africa: can family and community resources improve the odds? Disability & Society 17: 643-658, Carfax Publishing, Taylor & Francis. (The latter material is republished with permission.) The revised article concerns social responses to children with hydrocephalus and spina bifida in African countries, and the historical development of ways in which various resources have been used to improve their life chances, and overcome the disabling effects of these conditions. Internet publication URLs: www.independentliving.org/docs7/miles200609.html and www.independentliving.org/docs7/miles200609.pdf (239 KB).
PDF icon miles200609.pdf (238.41 KB)
Miles, M.  1982.  Anledningen till varför Asien avvisar råd gällande funktionsnedsättning från väst.
Internet publication URL: www.independentliving.org/miles1982asien_avvisar
Miles, M.  2006.  Signs of Development in Deaf South & South-West Asia: histories, cultural identities, resistance to cultural imperialism.
First published in 2001, this revised article extended and updated 2006-04 offers evidence and hypotheses for a short cultural history of deaf people, culture and sign language in South Asia and South West Asia, using documents from antiquity through 2005. A new appendix shows 110 items on deafness and sign language in the Arab countries of the Eastern Mediterranean and South West Asia. This is a further revised, extended and updated version of a chapter first published in: Alison Callaway (ed) Deafness and Development, University of Bristol, Centre for Deaf Studies, 2001. It is here republished with kind permission. Internet publication URL: www.independentliving.org/docs7/miles200604.html
Miles, M.  2005.  Deaf People Living and Communicating in African Histories, c. 960s - 1960s.
New, much extended Version 5.01, incorporating an article first published in Disability & Society vol. 19, pp. 531-45; August 2004, titled then "Locating deaf people, gesture and sign in African histories, 1450s-1950s". The latter material is republished with permission of Carfax Publishing, Taylor & Francis. Visits 100 deaf people in 42 nations, across 1000 years of African history. From servants and schoolchildren to scientists, soldiers and statesmen, using every possible means of communication. Internet publication URL: www.independentliving.org/docs7/miles2005a.html
Miles, M.  2000.  Blind People Handling Their Own Fate.
Accounts of earlier social responses to blind people particularly in Japan, and to some extent in China, indicate a measure of both group and individual autonomy within reserved and valued occupations, ostensibly reflecting a status model more 'normal' than blind people enjoyed in much of European history. (Excerpt From: M. Miles (2000) Disability on a Different Model: Glimpses of an Asian Heritage.) Internet publication URL: www.independentliving.org/docs5/mmiles1.html
Miles, M.  2018.  DISABILITY IN AFRICA: RELIGIOUS, ETHICAL & HEALING RESPONSES, to and by People with Disabilities, Deafness, or Mental Debility: a bibliography through four millennia, with introduction and partial annotation.. PDF icon pdf format (2.52 MB)File epub format (808.68 KB)File mobi format (1.04 MB)
Miles, M.  2007.  International Strategies for Disability-related Work in Developing Countries: historical, modern and critical reflections.
Revised version of a paper first published in the Zeitschrift Behinderung und Dritte Welt, 3/2003, pp. 96-106, and here reproduced with permission. International strategies concerned with disability in developing and transitional countries (DTC) are scrutinised critically, with an historical focus on beneficial traditions and practices in Asia and Africa, attesting the variety and complexity of social responses to disability. Internet publication URLs: www.independentliving.org/docs7/miles200701.html and www.independentliving.org/docs7/miles200701.pdf (112 KB).
PDF icon miles200701.pdf (111.63 KB)
Miles, Christine.  2007.  Imran's Djinn, and Theories of Epilepsy.
This article and the review comment were first published in “EPICADEC News” (from the Foundation Epilepsy Care Developing Countries, Leiden), October 2000, pp. 9-10, titled “Imran’s Djinn”. They are here reproduced with permission, after slight revision. The article concerns an Asian boy living in UK. His family had trouble using the health services, because of different concepts of Imran’s illness. One of Imran’s teachers met the family half way, respecting their beliefs and giving them time to digest a different approach to epilepsy and its treatment. A scientific reviewer comments on the story. Internet publication URL: www.independentliving.org/docs7/miles-christine2000.html

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