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Barnes, Colin.  2003.  Disability, the organization of work, and the need for change.
Professor Barnes, from the Centre for Disability Studies, University of Leeds, England points out that, "regardless of their role within the 'conventional' labour market, disabled people are both producers and consumers of a vast array of services upon which many non-disabled people depend; they are, therefore, a fundamental component within this equation." Internet publication URL: www.independentliving.org/docs6/barnes20030306.html
Barnes, Colin.  2003.  Rehabilitation for Disabled People: a ‘sick’ joke?
Professor Barnes, from the Centre for Disability Studies, University of Leeds, England argues that the relationship between disability and rehabilitation is best explained in terms of three distinct but related definitions of disability: the orthodox ‘individualistic’ medical definition, the more liberal ‘inter-relational’ account, and the ‘radical‘ socio/political interpretation commonly referred to as the ‘social model of disability’. He concludes with a brief focus on alternative strategies generated by disabled people and their organisations. Internet publication URL: http://www.independentliving.org/docs6/barnes2003a.html
Barnes, Colin.  2007.  'Direct Payments' for Personal Assistants for Disabled People: a key to independent living?
Background notes to a verbal presentation at the Centre for Independent Living, Dublin, Conference 'Independent Living 2007,' Croke Park Conference Centre, Dublin 3, Tuesday, June 5th 2007. Internet publication URL: http://www.independentliving.org/docs7/barnes20070605.html
Barnes, Colin.  2001.  Rethinking Care From the Perspective of Disabled People.
Conference Report and Recommendations (Draft). World Health Organization Disability and Rehabilitation Team. In this report to the United Nations World Health Organization, Professor Barnes, from the Centre for Disability Studies, University of Leeds, England, recommends that member nations adopt a holistic approach that includes the introduction of policies to eliminate poverty and secure equal access to all community based services and facilities. These include medical services, education, employment, housing, transport, public amenities etc. The responsibility of national governments for introducing and financing these developments is also addressed. Internet publication URL: www.independentliving.org/docs6/barnes200106.pdf (PDF, 112 KB).
PDF icon barnes200106.pdf (111.34 KB)
Barnes, Colin.  1998.  Discrimination and the law - the British Experience.
In his presentation at the seminar organized by Independent Living Sweden, Stockholm, and and the Office of the Disability Ombudsman, Professor Colin Barnes of the Disability Research Unit in Leeds, UK, describes the Disability Discrimination Act enacted in 1995 in the UK, why and how the Act came into being, and why the Act is a mistake. He notes that the result of policies in general has been to create dependence for disabled people instead of independence which is what disabled people want and have a right to. Conference on Legislation for Human Rights Stockholm, Sweden, 1998-08-24. Internet publication URL: www.independentliving.org/docs1/hr6.html.
Barnes, Colin.  2003.  Independent Living, Politics and Implications.
Published in the English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish, PDF, 1.46 MB). Parts of the book available in English. Colin Barnes is Professor of Disability Studies and Director of the Centre for Disability Studies in the Department of Sociology and Social Policy at the University of Leeds, England. In this chapter of the book he gives a concise explanation of orthodox thinking on disability and an a different perspective developed by disabled people themselves. He then examines the concept of independent living and its impact on policy development.
Bang, Marian.  1996.  Towards a more helpful society.
Research on assistive devices that make daily tasks easier is seen as a tool for empowering both those with disabilities and their care-givers. Internet publication URL: www.independentliving.org/docs1/bang1996.html
Baker, Jordan.  2000.  Federal Report Recommends Making Technology Access Easier For People With Disabilities (Australia).
This article recommends strategies for helping the elderly and people with disabilities access new information technologies. Internet publication URL: www.independentliving.org/docs1/baker200006.html
Bahn, Erik, Bahn Tina.  1991.  Waste disposal in the household - recycling systems for everyone. Arkitekterne Bahn.
This report, by the architects Erik & Tina Bahn, describes a project their architectural firm carried out for the Danish Building Development Board. The project was to develop and test recycling systems for waste disposal in the home which were as user-friendly and usable for as large a group of the population as possible. In: "Report of the Fourth International Expert Seminar on Building Non-Handicapping Environments: Access Legislation and Design Solutions Budapest, Hungary, September 2-4, 1991" (PDF, 480 KB). Internet publication URL: www.independentliving.org/cib/cibbudapest3.html. In Internet publication URLs: www.independentliving.org/cib/cibbudapest1.html and www.independentliving.org/cib/cibbudapest.pdf.
Baha’i International Community.  1998.  Human Rights and Disability. Statement to the fortieth session of the United Nations Sub-Commission on Prevention of Discrimination and Protection of Minorities Agenda item 7: human rights and disability. Geneva, Switzerland, August 1988.
Internet publication URL: www.independentliving.org/docs6/bic199808.html
Badach, Frédérique.  2010.  Foire aux questions L'assistance personnelle en Suède.
Badach, Frédérique.  2010.  L'assistance personnelle en Suède.
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Atanasova, Gallina.  1991.  Disability in Bulgaria - the necessity of higher social protection during the crisis period and the transition to a market economy.
Gallina Atanassova outlines the effects that half a century of totalitarian socialism has had on the current situation of disabled people in Bulgaria. She describes the work of the Union of Disabled People in Bulgaria, a grass roots organization which advocates for the rights and needs of disabled people in Bulgaria. Third ENIL Seminar, Stockholm, Sweden June 1991. Internet publication URL: www.independentliving.org/docs2/enilstockholmsem2.html. In: Internet publication URL: www.independentliving.org/docs2/enilstockholmsem1.html.
Association for Persons with Severe Handicaps (TASH) - Disability Advocacy Worldwide.  1997.  Resolution Opposing the Legalization of Physician Assisted Suicide.
In their 1997 resolution opposing the legalization of physician assisted suicide, the Association for Persons with Severe Handicaps (TASH) provides a long list of reasons for their opposition to physician assisted suicide, including the negative aspects of allowing physicians to have such power, the insufficiency of proposed safeguards, and dissatisfaction with the implementation of safeguards in conjunction with euthanasia in the Netherlands. Internet publication URL: www.independentliving.org/docs6/tash199712.html
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Aslaksen, Finn, Bergh Steinar, Bringa Olav Rand, Heggem Edel Kristin.  1997.  Universal Design Planning and Design for All.
This report attempts to develop and illustrate the concept of universal design, which opposes, ideologically and politically, all unnecessary and stigmatizing specialized solutions. The principles and definitions of universal design were developed by The Center for Universal Design, USA. The Norwegian State Council on Disability. Internet publication URLs: www.independentliving.org/docs1/nscd1997.html and www.independentliving.org/docs1/nscd1997.pdf (5.26 MB)
Asaka, Junko.  2009.  Disability, women and love.
Junko Asaka speaks candidly about her own experiences of being in love and being a woman with a disability, revealing how she came to terms with her own perceptions of herself. Internet publication URL: www.independentliving.org/toolsforpower/tools25.html
Armeni, Alain.  1991.  Towards general accessibility of the built environment for persons with limited mobility.
In: "Report of the Fourth International Expert Seminar on Building Non-Handicapping Environments: Access Legislation and Design Solutions Budapest, Hungary, September 2-4, 1991" (PDF, 480 KB). Internet publication URL: www.independentliving.org/cib/cibbudapest2.html. In Internet publication URLs: www.independentliving.org/cib/cibbudapest1.html and www.independentliving.org/cib/cibbudapest.pdf
Ansorge, Josef T.  2014.  Global Disability: Reality, Theory, Practice.
The author, a Juris Doctorate student at Yale Law School seeks to show that Global disability needs to be considered in a global justice framework. Medicalizing the issue of disability may occlude the social and political aspects of disability. While the history of political thought and social contract theories are embarrassing in their neglect and treatment of disability, the history of the U.S. Civil Rights struggle offers some interesting parallels.
PDF icon Ansorge_Global_Disability.pdf (575.98 KB)
Annan, Kofi.  1999.  United Nations Secretary General Kofi Annan's Message on the International Day of Disabled Persons.
In his message on the International Day of Disabled Persons, 3 December 1999, Kofi Annan, the Secretary General of the United Nations, spoke about the theme of the day, accessibility, with a reminder that for many people with disabilities, the lack of access to essential services remains a source of discrimination and lost opportunities. Accessibility in the broadest sense of the term is a prerequisite for disabled people to enjoy equal opportunities. Internet publication URL: www.independentliving.org/docs6/annan1999.html.
Andrich, Renzo.  1999.  EUSTAT Study (Empowering Users Through Assistive Technology), Training Manuals.
EUSTAT, a European project carried out within the EU/Telematics Programme, has published educational material specifically addressed towards end-users of Assistive Technology - people with disabilities. Internet publication URL: www.independentliving.org/docs1/eustat99.html
Anderson-Pope, Peter.  2013.  "Personligt om assistans" intervju med Adolf Ratzka av Peter Anderson-Pope för Rekryteringsgruppens tidskrift Kick höst 2013.
Anderberg, Peter.  2007.  Kort om assistansberedningens delbetänkande med Stefan Pelc, egen arbetsgivare för sina assistenter.
Internet publikation URL: www.independentliving.org/docs7/anderberg200710a.html (In Swedish.)
Anderberg, Peter.  2007.  Assistansutredningens delbetänkande - Hårdare tag mot användare av assistans"!.
Internet publikation URL: www.independentliving.org/docs7/anderberg200710b.html (In Swedish.)
Alonso, Vidal Garcia J.  2003.  El Movimiento de Vida Independiente, Experiencias Internacionales.
Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish, PDF, 1.46 MB).
Albert, Bill.  1998.  The New Genetics and Disabled People.
The following paper draws heavily on the British Council of Organisations of Disabled People's (BCODP) discussions on the issue of genetics and disabled people. Please note that this paper is NOT BCODP policy but rather a discussion document intended to encourage debate within the movement. For more information on the issue of genetics and disabled people BCODP please refer to the BCODP web site. Internet publication URL: http://www.independentliving.org/docs1/albert1998.html
Ahuja, Suresh C.  1989.  Role of Disabled Persons & Families in the Equalization of Opportunites.
Disabled persons can be converted from tax consumers to tax payers, from beneficiaries to benefactors, given the opportunity for self-development and provided with equal opportunities for education, vocational training and employment. Presented at the International Meeting on Human Resources in the Field of Disability, Tallin, 14-22 August 1989. Internet publication URL: www.independentliving.org/docs4/ahuja.html.
Agerblad, Annika, Dr. Adolf Ratzka.  1995.  Rätten till föräldraskap.
En konferens arrangerad av Handikappombudsmannen och STIL, med stöd från Allmänna Arvsfonden, Stockholm 28-29 augusti 1995. Internet publication URL: www.independentliving.org/docs3/ratt95.html (In Swedish.)
Dr. Ratzka Adolf.  2017.  Ansökan om stöd ur Allmänna arvsfonden till projektet Disabled Refugees Welcome.
 Ansökan till Arvsfonden, inskickad juli 2016. Det finns mindre revideringar och kompletteringar som gjordes senare. Vi har inte översatt denna till engelska än (There is currently no english translation). 
Adolf, Dr. Ratzka.  2015.  Die Voraussetzungen zur De-institutionalisierung von Menschen mit Behinderungen.
Persönliche Assistenz ist eine hochqualitative und kostengünstige Alternative zu Wohneinrichtungen und ambulanten Diensten, laut Adolf Ratzka - eine Behauptung, die er mit den über 20-jährigen schwedischen Erfahrungen mit persönlicher Assistenz belegt. Den Hauptwiderstand gegen persönliche Assistenz in Deutschland sieht er in den Eigeninteressen der Wohlfahrtsverbände und dem noch weitverbreiteten medizinischen Bild von Behinderung.
Adolf, Dr. Ratzka.  2015.  Self-determination through Direct Payments and Personal Assistance cooperatives.
In his keynote address Adolf Ratzka delineates the origins of STIL, the Stockholm Cooperative for Independent Living owned and mainly run by Personal Assistance user themselves providing services to its members. Personal Assistance is here depicted as an example of demand-driven as opposed to supply-driven services which, according to the text's analysis, would explain the differences between these services in terms of quality and cost efficiency.
Adolf, Dr. Ratzka.  2006.  Is Personal Assistance Relevant for Developing Countries?
Abidi, Javed.  1999.  We (Disabled People) Must Learn to Exert Ourselves. Disability Awareness in Action Newsletter no. 74, July 1999.
According to Abidi, Executive Director, National Centre for Promotion of Employment of Disabled, India, with 60-70 million disabled people in India, disability is clearly a social issue, a socio-economic issue, a development issue. Why then is disability not a national issue? Internet publication URL: http://www.independentliving.org/docs1/abidi.html.
Abidi, Javed.  1999.  Vi måste lära oss att hävda oss. Disability Awareness in Action Newsletter, nummer 74, juli 1999.
According to Abidi, Executive Director, National Centre for Promotion of Employment of Disabled, India, with 60-70 million disabled people in India, disability is clearly a social issue, a socio-economic issue, a development issue. Why then is disability not a national issue? Internet publication URL: http://www.independentliving.org/docs1/abidisv.html.
Abdou, Safaa Issa M.  1992.  Accessible, adaptable low-cost housing in Egypt.
In: "Report of the Fifth International Expert Seminar on Building Non-Handicapping Environments: Access Legislation and Design Solutions, Harare, Zimbabwe, January 16-18, 1992." Internet publication URL: www.independentliving.org/cib/cibharare9.html. In Internet publication URL: www.independentliving.org/cib/cibharare1.html#anchor52685
Abadia, Regine, Sallem Ryadh.  2005.  Hunger Strike for Personal Assistance in France.
Lyssna-MP3-svensk (28:21 minuter, 26,6 MB). Lyssna-MP3-français (29:30 minuter, 27,7 MB). Programmet i text (In English, En français).
Abadia, Regine, Sallem Ryadh.  2005.  L'interview Marcel Nuss.
MP3-français (29:30 minuter, 27,7 MB). Lyssna-MP3-svensk (28:21 minuter, 26,6 MB). Transcript: på svenska, in English, en français). Internet publication URLs: www.independentliving.org/radio/marcel-nuss.mp3, www.independentliving.org/radio/marcel-nuss-fr.mp3, www.independentliving.org/radio/marcel-nuss-sv.html, www.independentliving.org/radio/marcel-nuss-en.html, och www.independentliving.org/radio/marcel-nuss-fr.html
Abadia, Regine, Sallem Ryadh.  2005.  Hungerstrejk för personlig assistans i Frankrike.
Lyssna-MP3-svensk (28:21 minuter, 26,6 MB). Marcel Nuss i Strasbourg i Frankrike behöver assistans dygnet runt. Gaby, hans fru, arbetade i 20 år som hans assistent utan ledighet. Det behövdes ett sprucket äktenskap, hot om hungerstrejk och tillkomsten av en militant organisation av assistansbrukare tills regeringen i Paris kände sig tvungen att komma med en lösning. Lyssna-MP3-français (29:30 minuter, 27,7 MB). Programmet i text (In English, En français).
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1st European Congress on Independent Living.  2003.  Dichiarazione di Tenerife: Promuovere la Vita Indipendente Fine della Discriminazione contro le Persone Disabili.
From the1st European Congress on Independent Living, Tenerife April 24-26, 2003. Internet publication URL: www.independentliving.org/docs6/tenrife20020426it.html
1st European Congress on Independent Living.  2003.  Tenerife Declaration - Promote Independent Living - End Discrimination against Disabled People.
The Tenerife Declaration, signed in Tenerife in April 2003, is a policy document agreed upon by four hundred participants from many European countries and calls for the European Union to implement the policies outlined in the Declaration. The Declaration calls for full and equal participation of disabled people in society through recognizing Independent Living as a fundamental right of all disabled people and implementing policies to facilitate Independent Living. From the1st European Congress on Independent Living, Tenerife April 24-26, 2003. Internet publication URL: www.independentliving.org/docs6/tenrife20020426en.html
1st European Congress on Independent Living.  2003.  Manifiesto de Tenerife - Promovamos la Vida Independiente - Acabemos con la discriminación hacia las personas con discapacidad.
From the1st European Congress on Independent Living, Tenerife April 24-26, 2003. Internet publication URL: www.independentliving.org/docs6/tenrife20020426sp.html (In Spanish.)

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