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Wilner, MaryAnn, Wyatt Ann.  1998.  Independence Care System: Managed Care for People with Disabilities.
The goal of Independence Care System is to enable people with disabilities to remain at home or in the least restrictive setting possible by integrating the full range of primary care, acute care, and home and community-based services in a comprehensive, flexible manner. Internet publication URL: www.independentliving.org/docs4/ar3982.html
Wilner, MaryAnn, Wyatt Ann.  1998.  Independence Care System: Managed Care for People with Disabilities.
Målet för Independence Care System är att underlätta för folk med funktionsnedsättning att bo kvar i sina hem, eller åtminstone i en så fri miljö som möjligt, genom att integrera primära, akuta, hem- och samhällsbaserade vårdtjänster på ett utförligt och flexibelt sätt. Internet publication URL: www.independentliving.org/docs4/ar3982b.html (In Swedish.)
Westerberg, Bengt.  2008.  IL 25 years Documentation - Bengt Westerberg.
Westberg, Kenneth.  2010.  In Flanders all personal care assistants are employed by the people they assist..
Westberg, Kenneth.  2010.  Interview with Arthur Klimchenko, 22 years, Kaliningrad - "Personal assistance would certainly be good, but I would be afraid of being dominated".
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Siilsalu, Mari, McGrath Monica Klasén.  2023.  Implementation of the state party obligations under ICERD for migrants with disabilities in Sweden.
Seifu, Michael.  2004.  International cooperation - but how?
The author, a trained economist with a disability living and working in Ethiopia, describes the experience of disability in the context of a developing country. Internet publication URL: www.independentliving.org/column/seifu200405.html
R
Rosenthal, Eric.  2000.  International human rights protections for institutionalised persons with disabilities: an agenda for international action.
In: "Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000." Pre-paper 4. Internet publication URLs: www.independentliving.org/docs2/rioux00.html, www.independentliving.org/docs2/rioux00.doc, www.independentliving.org/docs2/rioux00.pdf
Rosen, Fred.  1999.  Is International Travel Accessible for Persons with a Disability?
Fred Rosen outlines travel accessibility policies in 5 countries, including problems and recommendations for improved standards. Includes a list of publications on accessibility in the U.S.A., Canada, Britain, and Australia. Internet publication URL: www.independentliving.org/docs5/fredrosen.html
Dr. Adolf Ratzka.  2003.  Independent Living in Sweden.
Account of the emergence of the Independent Living movement in Sweden, the social policy climate at the time, its struggles, achievements and challenges from the perspective of the person who introduced the independent living concept to Sweden. Internet publication URL: www.independentliving.org/docs6/ratzka200302b.html. In the forthcoming English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish, PDF, 1.46 MB).
Dr. Adolf Ratzka.  1995.  Institutioner eller Personlig Assistans: Ett exempel från Costa Rica.
Är institutioner verkligen bästa platsen för äldre att tillbringa sina sista år? Är det verkligen den bästa uppväxten för barn? Internet publication URL: www.independentliving.org/docs5/InstitutionsCostaRicaSv.html (In Swedish.)
Dr. Adolf Ratzka.  1996.  Introduction to direct payments for personal assistance.
Dr. Adolf Ratzka.  1996.  Independent Living and Attendant care in Sweden: A Consumer Perspective.
Internet publication URL: http://www.independentliving.org/docs1/ar1986spr.html
PDF icon ar1986spr.pdf (111.55 KB)
Dr. Adolf Ratzka.  1993.  Independent Living och dagens socialpolitik.
I: Institutet för Independent Living. 1993. "Hemtjänst i omdaning - möjligheter och decentraliseringens och privatiseringens tid, Dokumentation av STIL-hearing Stockholm 1993." Internet publication URL: www.independentliving.org/docs3/stil1993.html#1 (In Swedish.)
Dr. Adolf Ratzka.  1998.  Independent Living in der Slowakei.".
1997 wann das Institut für Independent Living Projektverträge in der Slovakischen Republik im Rahmen des EU PHARE Programms für die Einführung eines Models für Persönliche Assistenz mit Bargeldleistungen an die Assistenznehmer sowie eines Models für ein rollstuhlgerechtes, der Öffentlichkeit zugängliches, Taxisystem mit Subventionierung der behinderten Reisenden. Der Artikel diskutiert die besonderen Schwierigkeiten und Möglichkeiten von benutzer-initierten und benutzer-betriebenen Lösungen in post-kommunistischen Gesellschaften. Internet publication URL: www.independentliving.org/docs3/slovakiade.html (In German.)
Dr. Adolf Ratzka.  2012.  Independent Living-rörelsen banade vägen.
Dr. Adolf Ratzka.  2012.  The Independent Living movement paved the way: Origins of personal assistance in Sweden. Perspectives on personal assistance.
Dr. Adolf Ratzka.  2005.  Independent Living Empowers People with Disabilities.
In: Development Outreach. World Bank. July 2005. Reprinted from www1.worldbank.org/devoutreach/article.asp?id=317. The World Bank's magazine "Development Outreach" in a special edition presents articles from governments and international NGOs, illustrating different perspectives and approaches to facing the challenges of disability, and addressing the connection between disability and poverty. In his article about Independent Living Adolf Ratzka defines the concept and its implications for disability policy. Internet publication URL: www.independentliving.org/docs7/ratzka200507.html
Dr. Adolf Ratzka.  1996.  Introduction to direct payments for personal assistance.
For persons with extensive disabilities there are two key requirements: personal assistance and accessibility in the built environment including accessible housing. Internet publication URL: www.independentliving.org/docs4/directpay.html
Dr. Adolf Ratzka.  2009.  Interview with Kalle Könkkölä November 2008.
Internet publication URL: https://www.independentliving.org/kalle_konkkola200811
PDF icon kalle_konkkola200811.pdf (31.76 KB)
Dr. Adolf Ratzka.  1998.  Inledning på Konferensen om Lagstiftning för Mänskliga Rättigheter, Stockholm, Sweden, 24 augusti 1998.
Internet publication URL: www.independentliving.org/docs1/hr2.html (In Swedish.)
Dr. Adolf Ratzka.  2011.  Independent Living for People with Disabilities of All Ages.
Given the increasing number of older persons relative to the working age population, record level taxes and baby boomers’ demands for self-determination and quality of life, which changes might the Scandinavian welfare model have to undergo in order to deliver long term care to all who need it? In Sweden, direct payments for personal assistance are paid to mainly younger persons with extensive disabilities. In terms of perceived quality and cost per hour of service, direct payments have been found to be more efficient than traditional local government services. But would this favorable experience hold for all persons in need of assistance with the activities of daily living – regardless of age, diagnosis and minimum needs? What would be such a policy’s cost and effects on the labor market? How could it be financed? Would it threaten younger disabled persons’ relative favorable present situation? Today’s Swedish policy of cash payments for the purchase of personal assistance services might be of interest as a long term care solution for tomorrow’s older persons.
Dr. Adolf Ratzka.  1994.  Independent Living and the family: The context of Costa Rica and Sweden.".
In the context of the family, Independent Living implies participation in all areas of human life, especially loving relationships, sexuality and parenthood. Internet publication URL: www.independentliving.org/docs5/FamilyCRSweden.html
Dr. Adolf Ratzka.  2005.  Independent Living émancipe les personnes en situation de handicap.
Development Outreach. World Bank. Juillet 2005. Internet publication URL: www.independentliving.org/docs7/ratzka200507f.html
Dr. Adolf Ratzka.  1996.  Introduktion till direktutbetalningar för personlig assistans.
För personer med omfattande funktionshinder finns två principiella förutsättningar: personlig assistans och tillgänglighet i den omgivande bebyggelsen, i vilket ingår tillgänglighet i bostaden. Internet publication URL: www.independentliving.org/docs4/directpay2.html (In Swedish.)
Dr. Adolf Ratzka.  1994.  Independent Living och familjen: ur Costa Ricanskt och Svenskt perspektiv." .
För begreppet familjen innebär konceptet om Independent Living deltagande i ett av de viktigaste områdena i livet; nämnligen kärleksrelationen, sexuallivet och föräldraskapet. Internet publication URL: www.independentliving.org/docs5/FamilyCRSwedenSv.html (In Swedish.)
Dr. Adolf Ratzka.  2007.  Independent Living for people with disabilities: from patient to citizen and customer.
Keynote at the conference in Barcelona 22 October 2007 organized by the Catalan Party Convergéncia i Unió in commemoration of the 25th anniversary of The Spanish Law for Persons with Disabilities of 1982. Internet publication URL: www.independentliving.org/docs7/ratzka20071022.html
Dr. Adolf Ratzka.  1997.  Independent Living and Our Organizations.
Internet publication URL: www.independentliving.org/toolsforpower/tools7gr.html (In Greek).
Dr. Adolf Ratzka.  2002.  IT and disabled people's employment: opportunities and limits, The example of the Independent Living Institute.
Ratzka, Director, Independent Living Institute, describes some of the features of the Institute's Website and shows some of the possibilities offered by the internet to individuals with disabilities and their organizations. Pointing out the qualifications that working in this environment requires he concludes that IT cannot materially improve disabled people's employment situation as long as they do not have equal access to education, housing and transportation services. Internet publication URL: www.independentliving.org/docs4/ratzka20020201.html
Dr. Adolf Ratzka.  1998.  I kläm mellan laissez faire och den sociala ingenjörskonsten.
Skillnaderna mellan hemtjänst och personlig assistans - en diskussion med en granskning av de olika socialpolitiska instrument som finns på vårt område. Internet publication URL: www.independentliving.org/docs5/i_klam.html (In Swedish.)
Dr. Adolf Ratzka.  2013.  Independent Living for people with disabilities: from patient to citizen to customer.
Dr. Adolf Ratzka.  1997.  Independent Living and Our Organizations: A Definition.
We are the last minority to fight for our rights and we will not go away. Even with the most sophisticated prevention, early detection and rehabilitation services there will always be people with disabilities and we have to build our societies in such a way that everybody can live in them with dignity and self-respect. Presentation at the conference "Our Common World" organized by Disability Rights Advocates Hungary in Siofok, Hungary, May 9-11, 1997.
Rajkov, Gordana.  2003.  Inependent Living and Yugoslav Experience.
The report presented on behalf Centre for Independent Living of Serbia, at the Europena Network on Independent Living (ENIL) Conference in Southampton, England, 7-9 March 2003. Gordana R. is a founding member of CIL in Serbia, and in the report she is explaining the current situation of disabled people in Serbia in the light of economic, social and political context, and CIL’s efforts to promote the idea of Independent Living Phylosophy in Serbia, particularly the PA Service, through pilot projects and research. Internet publication URL: www.independentliving.org/docs6/rajkov200303.html
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Office on the Status of Disabled Persons, South Africa.  1997.  Integrated National Disability Strategy- White Paper.
White Paper from the Office of the President, South Africa. Disabled people should not be seen as objects of pity but as capable individuals who are contributing immensely to the development of society. Internet publication URL: www.independentliving.org/docs5/SANatlDisStrat.html
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Ntsika Enterprise Promotion Agency.  2000.  Innovative Disabled Entrepreneur Award Scheme (IDEAS) - Calling All Entrepreneurs With Disabilities.
Promoting entrepreneurship of persons with disabilities through competition and awards: an example from South Africa. Internet publication URL: www.independentliving.org/docs5/Innovative-Disabled-Entrepreneur-Award-Scheme.html
Nakanishi, Yukiko.  1999.  IL-rörelsen breder ut sig i Asien.
Yukiko Nakanishi reports on Independent Living seminars, workshops and exchanges that are helping to spread the philosophy across Asia. Internet publication URL: www.independentliving.org/docs1/dpidi299sv.html (In Swedish.)
Nakanishi, Yukiko.  1999.  Independent Living movement spreads in Asia.
Yukiko Nakanishi reports on Independent Living seminars, workshops and exchanges that are helping to spread the philosophy across Asia. Internet publication URL: www.independentliving.org/docs1/dpidi299.html
Nadash, Pamela.  1998.  Independent Choices: Enhancing Consumer Direction for People with Disabilities.
Allowing consumers to manage and direct the long-term services they need acknowledges that they are the best judges of their own needs and the best decision-makers on how these needs get met - an acknowledgment seldom made. Internet publication URL: www.independentliving.org/docs4/ar3983.html
M
Miles, Christine.  2007.  Imran's Djinn, and Theories of Epilepsy.
This article and the review comment were first published in “EPICADEC News” (from the Foundation Epilepsy Care Developing Countries, Leiden), October 2000, pp. 9-10, titled “Imran’s Djinn”. They are here reproduced with permission, after slight revision. The article concerns an Asian boy living in UK. His family had trouble using the health services, because of different concepts of Imran’s illness. One of Imran’s teachers met the family half way, respecting their beliefs and giving them time to digest a different approach to epilepsy and its treatment. A scientific reviewer comments on the story. Internet publication URL: www.independentliving.org/docs7/miles-christine2000.html
Miles, M.  2007.  International Strategies for Disability-related Work in Developing Countries: historical, modern and critical reflections.
Revised version of a paper first published in the Zeitschrift Behinderung und Dritte Welt, 3/2003, pp. 96-106, and here reproduced with permission. International strategies concerned with disability in developing and transitional countries (DTC) are scrutinised critically, with an historical focus on beneficial traditions and practices in Asia and Africa, attesting the variety and complexity of social responses to disability. Internet publication URLs: www.independentliving.org/docs7/miles200701.html and www.independentliving.org/docs7/miles200701.pdf (112 KB).
PDF icon miles200701.pdf (111.63 KB)
Martinez, Kathy.  2003.  Independent Living in the U.S. & Canada.
Kathy Martinez is International Director and Deputy Director of the World Institute on Disability, Oakland, USA. She gives an overview of events in the U.S. and Canada that made the independent living movement possible. She also covers the basic philosophy of the U.S. IL movement, as well as emerging issues and trends that challenge the IL movement. Internet publication URL: www.independentliving.org/docs6/martinez2003.html. In the forthcoming English version of: Alonso, J. Vidal Garcia. 2003. "El Movimiento de Vida Independiente, Experiencias Internacionales." ("The Independent Living Movement: International Experiences.") Internet publication URL: www.independentliving.org/docs6/alonso2003.pdf (In Spanish).
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Ishikawa, Jun, Nagase Osamu(eds.).  1998.  "Invitation to Disability Studies" New book on disability studies in Japanese.
A collection of texts and resources by persons with disabilities for disabled people. (in Japanese.) Internet publication URL: www.independentliving.org/docs5/nagase.html
Internet Industry Association of Australia.  2000.  IIA Warns SOGOC: Disability Web Decision Puts Businesses on Notice.
In the wake of the court decision against the Sydney Olympics organizers, Australian businesses and authorities oversee their websites' access. Internet publication URL: www.independentliving.org/docs5/sydney-olympics-blind-accessibility-decision-press-release.html
Indpendent Living Institute.  2022.  Independent Living Institute Verksamhetsberättelse 2021. PDF icon Arsberattelse-ILI-2021.pdf (690.96 KB)
Independent Living Institute.  1998.  Independent Living Institute Verksamhetsberättelse 1997.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1997.html
Independent Living Institute.  2008.  Independent Living Institute (ILI) Annual Report 2007.
Internet publication URL: www.independentliving.org/docs1/ilanrp2007.html
Independent Living Institute.  2001.  Independent Living Institute (ILI) Annual Report 2000.
Internet publication URL: www.independentliving.org/docs1/ilanrp2000.html
Independent Living Institute.  2003.  Independent Living Institute Verksamhetsberättelse 2002.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2002.html
Independent Living Institute.  2015.  Independent Living Institute Verksamhetsberättelse 2014. PDF icon Verksamhetsberättelse 2014 (361.24 KB)
Independent Living Institute.  2019.  Independent Living Institute Annual Report 2018.
Independent Living Institute.  2022.  Independent Living Institute Annual Report 2021. PDF icon AnnualReport2020-Independent-Living-Institute.pdf (815.1 KB)
Independent Living Institute.  2006.  Independent Living Institute (ILI) Annual Report 2005.
Internet publication URL: www.independentliving.org/docs1/ilanrp2005.html
Independent Living Institute.  1997.  Independent Living Institute (ILI) Annual Report 1996.
Internet publication URL: www.independentliving.org/docs1/ilanrp1996.html
Independent Living Institute.  2010.  Independent Living Institute Verksamhetsberättelse 2009.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2009.html
Independent Living Institute.  1999.  Independent Living Institute Verksamhetsberättelse 1998.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1998.html
Independent Living Institute.  2017.  Independent Living Institute Verksamhetsberättelse 2016. PDF icon Independent Living Institute Verksamhetsberättelse 2015 (375.59 KB)
Independent Living Institute.  2021.  Independent Living Institute Annual Report 2020. PDF icon AnnualReport2020-Independent-Living-Institute.pdf (871.27 KB)
Independent Living Institute.  2002.  Independent Living Institute (ILI) Annual Report 2001.
Internet publication URL: www.independentliving.org/docs1/ilanrp2001.html
Independent Living Institute.  2013.  Independent Living Institute Verksamhetsberättelse 2012. PDF icon Arsberattelse 2012.pdf (403.62 KB)
Independent Living Institute.  2004.  Independent Living Institute Verksamhetsberättelse 2003.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2003.html
Independent Living Institute.  2015.  Independent Living Institute Annual Report 2014. PDF icon Annual Report 2014 (419.49 KB)
Independent Living Institute.  2019.  Independent Living Institute Verksamhetsberättelse 2018. PDF icon Arsberattelse 2018_Independent_Living_Institute.pdf (951.62 KB)
Independent Living Institute.  2007.  Independent Living Institute (ILI) Annual Report 2006.
Internet publication URL: www.independentliving.org/docs1/ilanrp2006.html
Independent Living Institute.  1998.  Independent Living Institute (ILI) Annual Report 1997.
Internet publication URL: www.independentliving.org/docs1/ilanrp1997.html
Independent Living Institute.  2008.  Independent Living movement’s 25 years of existence in Sweden 2008 - Documentation.
Independent Living Institute.  2010.  Independent Living Institute Annual Report 2009.
Internet publication URL: www.independentliving.org/docs1/ilanrp2009.html
Independent Living Institute.  2000.  Independent Living Institute Verksamhetsberättelse 1999.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1999.html
Independent Living Institute.  2017.  Independent Living Institute Annual Report 2016. PDF icon Annual Report ILI 2016.pdf (537.81 KB)
Independent Living Institute.  2021.  Independent Living Institute Verksamhetsberättelse 2020. PDF icon Arsberattelse2020IndependentLivingInstitute.pdf (847.52 KB)
Independent Living Institute.  2003.  Independent Living Institute (ILI) Annual Report 2002.
Internet publication URL: www.independentliving.org/docs1/ilanrp2002.html
Independent Living Institute.  2013.  Independent Living Institute Annual Report 2012. PDF icon Annual Report 2012.pdf (491.76 KB)
Independent Living Institute.  2005.  Independent Living Institute Verksamhetsberättelse 2004.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2004.html
Independent Living Institute.  2014.  Independent Living Institute Annual Report 2013. PDF icon AnnualReport2013.pdf (438.49 KB)
Independent Living Institute.  2009.  Independent Living Institute (ILI) Annual Report 2008.
Internet publication URL: www.independentliving.org/docs1/ilanrp2008.html
Independent Living Institute.  2018.  Independent Living Institute Annual Report 2017. PDF icon English_version_Arsberattelse_ILI_2017.pdf (574.98 KB)
Independent Living Institute.  2008.  Independent Living Institute Verksamhetsberättelse 2007.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2007.html
Independent Living Institute.  2011.  Independent Living Institute Verksamhetsberättelse 2010.
Independent Living Institute.  1999.  Independent Living Institute (ILI) Annual Report 1998.
Internet publication URL: www.independentliving.org/docs1/ilanrp1998.html
Independent Living Institute.  2001.  Independent Living Institute Verksamhetsberättelse 2000.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2000.html
Independent Living Institute.  2016.  Independent Living Institute Annual Report 2015. PDF icon Independent Living Institute Annual Report 2015 (357.41 KB)
Independent Living Institute.  1999.  Independent Living World Summit.
The first global meeting on Independent Living was convened in Washington, D.C., September 21-25, 1999. Over 100 leaders evaluated the movement's 30 year old history and set the agenda for the future. This publication provides links to conference reports and reflections from participants in their respective languages. Internet publication URL: www.independentliving.org/docs2/ils0.html
Independent Living Institute.  2020.  Independent Living Institute Annual Report 2019. PDF icon Annual-report-2019-ILI.pdf (735.5 KB)
Independent Living Institute.  2023.  Independent Living Institute Annual Report 2022. PDF icon Annual report 2022 (247.09 KB)
Independent Living Institute.  2004.  Independent Living Institute (ILI) Annual Report 2003.
Internet publication URL: www.independentliving.org/docs1/ilanrp2003.html
Independent Living Institute.  2013.  Independent Living Institute Verksamhetsberättelse 2011. PDF icon Årsberattelse 2011.pdf (404.37 KB)PDF icon Annual Report 2011.pdf (413.91 KB)
Independent Living Institute.  2006.  Independent Living Institute Verksamhetsberättelse 2005.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2005.html
Independent Living Institute.  2014.  Independent Living Institute Verksamhetsberättelse 2013. PDF icon Arsberattelse2013.pdf (343.32 KB)
Independent Living Institute.  1997.  Independent Living Institute Verksamhetsberättelse 1996.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls1996.html
Independent Living Institute.  2018.  Independent Living Institute Verksamhetsberättelse 2017. PDF icon Arsberattelse_ILI_2017.pdf (491.57 KB)
Independent Living Institute.  2009.  Independent Living Institute Verksamhetsberättelse 2008.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2008.html
Independent Living Institute.  2011.  Independent Living Institute Annual Report 2010.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2009.html
Independent Living Institute.  2000.  Independent Living Institute (ILI) Annual Report 1999.
Internet publication URL: www.independentliving.org/docs1/ilanrp1999.html
Independent Living Institute.  2002.  Independent Living Institute Verksamhetsberättelse 2001.
Internet publication URL: www.independentliving.org/docs1/ilarsbrtls2001.html
Independent Living Institute.  2016.  Independent Living Institute Verksamhetsberättelse 2015. PDF icon Independent Living Institute Verksamhetsberättelse 2015 (356.89 KB)
Independent Living Institute.  2020.  Independent Living Institute Verksamhetsberättelse 2019. PDF icon Arsberattelse-ILI-2019.pdf (674.33 KB)
Independent Living Institute.  2023.  Independent Living Institute Verksamhetsberättelse 2022. PDF icon Årsberättelse 2022 (205.31 KB)

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