|Disability Radio Worldwide|
Affiliated with Disability Radio Worldwide is Radio for Peace International, a Global Community Radio dedicated to Peace broadcasting worldwide on shortwave from the United Nations University for Peace in Costa Rica.
Cassette copies of past Disability Radio Worldwide programs are available, inquire about a program list or regular subscription. For more information or to order program tapes contact Disability Radio Worldwide using the contact information below.
Annotated Program Catalog
The following is a list of programs which have been broadcast on Disability Radio Worldwide--with program notes. Almost all of the guests on Disability Radio Worldwide are people with disabilities discussing a wide variety of topics related to advancing the human rights of people with disabilities around the world. Cassette tapes of programs listed below can be ordered for $10 per tape which includes two 30-minute programs. All checks should be made payable to Empowerment Productions and are tax deductible to the fullest extent of the law. Additional financial contributions are always welcome.
For more information or to place an order, contact:
Disability Radio Worldwide
P.O. Box 200567
Denver, Colorado 80220, USA
Phone: 303-355 9935
Fax: 303-316 7789 e-mail: firstname.lastname@example.org
Message from Jean Parker 22 September 2004 regarding e-mail communication
Thank you for your interest in Disability Radio Worldwide.
It has come to my attention that people have sent emails to me at the address given on this web site. Although this address is still valid, I have not received some emails that have been sent to it. Because of an increase in firewalls, filters and other security measures, some email messages do not reach their intended destinations. Also, although I respond to all emails I get I know that some have not been received. So for now, just keep trying and I will establish an alternative email address in the near future. Meanwhile, the program itself is undergoing some transition. We have an additional producer and plan to be back in regular production as soon as possible. In the future Disability Radio Worldwide will be produced as a limited series instead of a regular show.
We appreciate your interest and we will up-date this web site accordingly when production is resumed.
Producer and Host Disability Radio Worldwide
1. Hugh Gallagher--Franklin Roosevelt was the President of the United States as well as a person with a disability. In this interview, Gallagher, who is the author of "FDR's Splendid Deception," discusses FDR as a person with a severe disability and the role his polio played in his Presidency.
2. Paul K. Longmore--A historian at San Francisco State University, Longmore teaches courses on the history of people with disabilities. In this interview, Longmore discusses his research into the historic factors and circumstances which influence modern life for people with disabilities.
3. Diane Coleman--Coleman has just founded a new organization called Not Dead Yet. The group's purpose is to directly confront the rise in medically assisted suicide of people with disabilities and expose the prejudiced views of those attempting to place monetary value on our lives.
4. Fred Fay--Fred Fay is the Chair of the Disability Outreach Committee for the Democratic National Committee. He discusses the important issues in the 1996 Presidential and Congressional election which will greatly affect the lives of people with disabilities and how the U.S. political parties are finally realizing the importance of the disability vote.
5. Henry Enns--The Executive Director of Disabled Peoples' International discusses the many and varied contributions that have been made by people with disabilities to the worldwide peace movement. People with disabilities have held important leadership positions in many places in grassroots and political work bringing a disability perspective to what it means to have peace on earth.
6. Gary Handschumauker--This long time disability rights activist and parent of three children with disabilities works with a Nicaraguan/American collaborative organization providing education, training and direct relief to kids with disabilities in Nicaragua. He discusses the urgent needs of the kids and their families, accomplishments and success stories and the devastating role of U.S. policies in Nicaragua and how these policies have directly affected these kids with disabilities.
7. Abdul Rahman Sahak--Sahak talks about his founding of the Afghanistan Society of Disabled People and how they are trying to rebuild their country so it meets the needs of all who live there. He describes the lack of resources, the extreme difficulties caused by the presence of millions of unexploded land mines and how Afghanistan's political situation affects its disabled population.
8. Lou McIntosh--When Lou and his wife couldn't find adequate support and information when they became the parents of a child with a severe disability, Lou conceived the idea of using low cost easy-to-use community-based electronic bulletin boards to bring people with disabilities and family members together. This concept has grown and developed into a network of "meeting places," computer bulletin boards providing information, strategies, connections and a means of community organizing in isolated locations throughout the disability community.
9. Ric Durity--In this interview, Ric candidly discusses his personal experiences as a person with HIV. His personal journey through shock, anger, betrayal and adjustment is instructive as well as his analysis and views on the politics of AIDS.
10. Homer Page--The Executive Director of the Colorado Center for the Blind talks about his experience with two opposing theories of how people with disabilities and non-disabled people interact. He is a theologian, politician, former University professor and disability rights activist and he has a clear sense of how people with disabilities can take power and use it effectively in both personal and collective challenges.
11. Paul Stuart--Paul Stuart was shot in an armed robbery and became paralyzed. He discusses his transformation from a "self-centered" construction worker without a care, to a compliant guy in a wheelchair to an effective and impassioned disability rights activist.
12. Dr. Elizabeth Browne--Many people with disabilities have become connected with the major religions of the world, but many others have found the symbolism and metaphors contained in religious doctrines to be offensive and inconsistent with their personal experiences of life. Dr. Elizabeth Browne is a Professor of Theology at Loyola University in Chicago, Illinois. Her new book is called "The Disabled Disciple," and it's all about people with disabilities and their relationship to the church. How can churches be more inclusive of people with disabilities and how can we find positive images and symbols that affirm who we are as people with disabilities and make sense to us as proud, independent people?
13. Carol Patterson and Aliscia Niles--Carol and Aliscia are Program Coordinators at Mobility International USA. They facilitate overseas cultural and educational exchange programs for people with disabilities and non-disabled allies. Their curriculum combines cultural exchange and personal interaction between delegates with disabilities from many diverse countries and incorporates concepts of disability rights activism.
14. Steve Brown--Brown is the Founder and Director of the Institute on Disability Culture. He implements a research program to discover what makes disability culture happen. This interview combines theory, research findings and poetry to illustrate the Institute's work.
15. Barbara Brent--Brent consults with organizations and communities in the U.S. and Europe on how to meaningfully include and integrate people with disabilities coming out of institutions. She discusses the desire of people who are in nursing homes and other institutions to have choices about their lives and how service providers are resistant to the concept of inclusion.
16. Henry Enns--The Executive Director of Disabled Peoples' International informs the audience about DPIs work organizing people with disabilities around the world. DPI has five regional offices on every continent promoting economic development, human rights and empowerment of people with disabilities.
17. Hani Khoury--Hani tells us about growing up with a severe disability on the West Bank under Israeli occupation. How he survived and obtained an education is a story of creativity and determination. He immigrated to the United States to attend Syracuse University and now works as a professor at Mercer University in the School of Education where he integrates his experiences as a person with a disability into his academic curriculum.
18. Hugh Gallagher--One of the little known facts about the Nazi Holocaust is that over 200,000 people with disabilities were killed in the Nazi euthanasia program. Gallagher, who has just released his new book entitled "By Trust Betrayed," describes the beliefs, political climate and physician practices during the Nazi era that resulted in these deaths. He also discusses his views on the health care trends of the 1990s and warns against "inappropriate" and dangerous decision making.
19. Scott Marshall--Marshall is the Associate Director of Governmental Affairs at the American Foundation for the Blind. The 104th Congress has been an extremely difficult and frightening time for disability rights proponents and he illustrates why the legislation, policies and regulatory changes proposed and implemented by the 104th, together with disability policy setbacks, will result in more poverty, less education and fewer civil rights for Americans with disabilities.
20. Barbara Waxman--Access to reproductive health care for women with disabilities is a major problem affecting millions of women around the world. Barbara Waxman is training family planning and other health care workers in how to better provide reproductive health services to women who have disabilities. This project, funded by the U.S. Office of Populations, is creating standards in this area of health care and opening the door for women with disabilities to get the care and information they need and prevent life-threatening consequences of the denial of women's health care.
21. Kathy Martinez--Kathy is the Director of International Programs at the World Institute on Disability. Recently, she visited and conducted training for a group of disabled women in Siberia assisting them to strategize to advance their civil rights in the context of the former Soviet Union. She describes the challenges they face and the creative solutions of Siberian women with disabilities.
22. Justin Dart--This well-known disability rights activist and long-time international leader discusses his personal story of radicalization and how he made the decision to dedicate his time and resources to the fight for disability rights around the world. He gives his views on current political situations as well as what the future might hold without attention to the contributions of people who have disabilities.
23. Jean Stewart--Her new book graphically illustrates the conditions of prisoners who have disabilities and how they are denied their basic human rights. What is being done to protect the right of a disabled prisoner to have a wheelchair, to have access to food, and be protected from the abuse of guards and other prisoners? In this interview, Jean discusses this little-known aspect of disability rights and the current attempts at legal recourse.
24. Judy Rogers--In her book, "Mother To Be," Judy talks about what it is like to be a parent with a disability in a society that believes people with disabilities don't have children. Her organization called Through the Looking Glass has developed informational resources and specialized equipment to enhance the experience of parenthood for people with disabilities.
25A & B. Laura Hershey--Women with disabilities were present and visible at the NGO Forum on Women in Beijing. What did they go through to get there? What were the barriers for them at the conference and how did the disabled women attending the meeting representing many countries organize and demand their right to participate? Laura Hershey is a writer and disability rights activist who attended the NGO Forum on Women as part of a delegation from North America comprised of disabled women and their allies. In the first of this two-part interview she discusses the above questions as well as her own experience in Beijing. The second part of the interview, Laura Hershey explores the issues the women with disabilities discussed during the NGO Forum on Women in Beijing. What does inclusion mean around the world, how can girls and women with disabilities acquire an education, how do women with disabilities organize to eliminate violence and exploitation and many other vital questions. She also talks about today's disabled women leaders and their experiences in organizing and activism.
27. Geri Rader and Pauline Winter--What are the best ways for people with disabilities to become employed? This program is a visit with two people working in different settings but with the same goal of doing everything they can so their constituents can make a living and be self-sufficient. Geri Rader runs an independent living program in Covington, Kentucky in the central part of the United States. Her experience is unusual because she worked for many years in a sheltered workshop on the assembly line. What did this experience teach her about helping others find employment? Pauline Winter is the Executive Director of the Workbridge Program, an employment and training center in New Zealand. Many of the people she assists to find work are not only disabled but are also Mauri, the indigenous people of New Zealand. Her approach must take into consideration cultural values and traditions.
28. Jana Schroeder--Jana is employed as the Director of the Criminal Justice program in the state of Ohio for the American Friends Service Committee. In this interview, she discusses her experiences working in an organization with progressive politics as a person with a disability. Why do politically progressive movements working on all kinds of civil and human rights issues consistently refuse to include disability issues in their agendas? Why are few people with disabilities working in these movements? Why are our contributions and perspectives ignored by groups working for the rights of women, for people who are gay and lesbian, and for people of color; for the environment; and for international demilitarization?
29. Sharon Hickman and Karla Parry--Domestic violence in the general population is between 50 and 60 percent but among women with disabilities it rises to an astonishing 85 percent. Sharon Hickman and Karla Parry run the Domestic Violence Initiative for Women with Disabilities where they provide services to and advocate for women with disabilities who are experiencing domestic abuse. In this interview, they talk about their work, why it is necessary for battered women's shelters and programs to be accessible for women with disabilities and the progress that has been made to make it possible for disabled women to successfully utilize the court system. They also discuss how far there is to go in eliminating the abuse of disabled women and children and difficulties they have encountered trying to educate women's programs, judges, advocates and the general public about this urgent issue.
30. Julie Reiskin--Julie is the Executive Director of the Colorado Cross-Disability Coalition working on policy development on the issue of in-home personal assistance services for people with disabilities. She discusses why it is important to get people with disabilities out of institutions and to develop policies that will keep them in their homes and receive community-based home health services at home. Cost benefits, quality of care, societal economic benefit and the empowerment of people with disabilities all factor into her analysis.
31. Rachel Parker--Is there a disability culture? Many people with disabilities believe that we are a distinct minority group with a distinct culture and common experiences within a larger dominant culture. How is this cultural experience defined and what are the values that are expressed as disability culture? Rachel Parker trains parents of children with disabilities how to advocate for and demand their rights.
32. Jim Hudson--Jim is the Publications Coordinator of the Agent Orange Class Assistance program. The program which provides direct services to veterans of the Vietnam War who live with the effects of Agent Orange, was funded by a class-action lawsuit filed by vets who sustained permanent disabling conditions due to the use of Agent Orange. The unique approach to building relationships with the vets in the process of getting them much needed counseling and equipment is a model for other programs to follow for a successful service and advocacy program.
33. Carolyn Reed--Carolyn is the mother of Darcy who has autism. In this interview, she talks about her fight to get Darcy an education in her local public school. She talks about the laws mandating "a free and appropriate education in the least restrictive environment" and how this concept is ignored by educators.
34. Mitch Pomerantz--Mitch is the Americans with Disabilities Act Coordinator for the City of Los Angeles. In this capacity he conducts personnel and human resources trainings on hiring people with disabilities and what the law requires for promotion and retention of disabled employees. He discusses political aspects of the Americans with Disabilities Act's employment provisions and why it is that six years after the passage of the ADA the unemployment rate of people with disabilities has increased.
35. Veasna Yi--Veasna Yi is the Treasurer of the Cambodian Disabled People's Organization. He talks about life for people with disabilities in Cambodia, the relationship of the disability community with the Cambodian government and the effects of war and poverty challenging the potential of disabled people. He also relates his own experiences and how he survived the "reign of terror" in the 1970s, a time of massive killing, starvation and oppression in Cambodia.
36. Jean Stewart--This presentation by Jean Stewart was conducted at the First Annual Forum on the health care needs of women with disabilities held in Chicago in April of 1996. In her remarks, she emphasizes the necessity for universal health care if we are to come close to meeting the health care needs of women who have disabilities. She also uses storytelling including her own experiences to demonstrate the harsh realities of how women who have disabilities are treated, or not treated by today's health care industry.
37. Eleanor Smith--Eleanor believes that how people with disabilities are valued in society is directly correlated with our economic contribution to society. In this interview, she discusses the economic realities of people with disabilities from a political and feminist perspective and how our contributions are overlooked as irrelevant. She suggests some models for demonstrating how the gluttony of a few negatively affects the economic survival of the most impoverished people in society and therefore, the perceived value of those people to their communities.
38. Lolly Lijewski--In 1986, Lolly began an organization called Candle in the Window whose purpose was to serve as a support network for blind people with no political or activist agenda. During the ten years of the organization's existence, it has transformed into an exploration of the culture, community and pride of blind people and uses this as a tool for community building, empowerment and strength.
39. Carol Gill--This well-known author and speaker in the disability arena discusses her research on the socialization differences between non-disabled women and women who have disabilities. What are the differences in society's unspoken and blatant expectations for career, sexuality, parenthood, life-styles, behavior, response to oppression and aging? This interview brings to light many aspects of why it is so difficult for women with disabilities to become self-actualized and discusses how disabled women around the world aren't buying it anymore.
40. Jane Tolino--Jane is one of the founding members of the Disabled Student Cultural Center on the campus of the University of Minnesota. She describes the controversy that began when University students with disabilities wanted a cultural center much like those of African-American, Asian or Latino students. She discusses the importance of a cultural center in campus life for students with disabilities and the activist role it plays as well as providing a forum for cultural and artistic expression.
41. Helen Kutz--Often, human rights movements are accused of having no sense of humor. In this interview, Helen Kutz, a long-time disability and women's rights activist gives some examples of disability humor and why it makes non-disabled people so uncomfortable when we laugh at ourselves.
42. Omar Talaveri--Wheelchairs that are donated by North American and European organizations to people in developing countries often are not adequate for the terrain, living conditions and daily realities of people with disabilities in these environments. The Whirlwind Project based at San Francisco State University has developed a wheelchair specifically for use in developing countries. In this conversation, Omar Talaveri, who is originally from Nicaragua, tells us about how this chair was developed, how it is being used and how the project has served as an important empowerment and economic tool in the disability community of the developing world.
43. Tiina Nummi-Sodergren--Sweden provides a substantial amount of foreign aid specifically to groups of people with disabilities in developing countries through the Swedish International Handicapped Aid Foundation. What are the foundation's priorities, how do groups get funding, what types of programs have been funded and how did the program come into existence?
44. Dr. William Rowland--This disability rights activist from South Africa discusses the status of people with disabilities in relation to the United Nations Standard Rules for the world's governments on disability policy. Using recent political advances for people with disabilities in South Africa, Rowland discusses how far the movement has come and what the next steps are in the quest for true equality.
45. Joshua Malinga--The Immediate Past Chair of Disabled Peoples' International talks about his experiences coming from Zimbabwe and his life as a child with a disability in a country with no resources, as a disability rights activist, and as a politician. He discusses DPI's role in the grassroots organizing of disability groups around the world to reach economic and social equality, and how people with all types of disabilities can work together to make change.
46. Mary Wareham--Representing the Vietnam Veterans of America Foundation, Mary Wareham works on the campaign to stop the manufacture and distribution of land mines around the world. She describes in detail what land mines look like, what they do and how they are disposed of. In this unusual interview Wareham discusses the elimination of land mines as a key link between the disability rights movement and movements to advance peace, justice and human rights.
47. Jerry White--Jerry White is the Founder and Co-Director of the Landmine Survivors Network. This organization works on an international basis to increase awareness about the living conditions of people who have become disabled from encounters with landmines. The network also advocates for an end to the sale and manufacture of landmines and provides some direct assistance to landmine survivors. In this interview, White describes his own experience since he stepped on a landmine while a tourist in Israel, and the work of his organization.
48. Judy Heumann--Heumann now serves in the Clinton Administration as the Assistant Secretary of the Office of Special Education and Rehabilitative Services but her roots are in disability activism. She discusses how she evolved as an activist out of childhood experiences of discrimination and exclusion and the changes she has seen over the years in disability policy.
49. Bengt Lindqvist--Lindqvist was appointed by former United Nations Secretary General Butros Butros-Ghali to investigate the political and social conditions of people with disabilities around the world and draft a document for passage in the UN General Assembly to advance disability rights. In this program, Lindqvist discusses the UN Standard Rules on the Equalization of Opportunities for Persons with Disabilities and the potential impact on national disability rights struggles around the world. He also discusses the process by which the document was adopted by the UN and strategies for its implementation.
50. Helena Shehadeh--Shehadeh serves as the Executive Director of the National Association of the Visually Handicapped in Palestine. She discusses the effect of the ongoing political tensions in the Middle East on the ability of blind people, especially women, to organize and fight for their human rights. She describes how she obtained an education as a blind woman amid the violence and chaos on the West Bank.
51. Kicki Nordstrom--Nordstrom now serves as First Vice President of the World Blind Union and is the first woman to hold an officer position in that organization. For many years prior to this position, Nordstrom documented the experiences of blind women around the world and brought attention to the economic and social disparities between the genders among blind people. She formed the WBU's Committee on the Status of Blind Women and established the first worldwide Forum on the Status of Blind Women which took place in Toronto, Canada in 1996.
52. Anuradha Mohit--Anuradha Mohit is the executive director of the Association for the Blind in New Delhi, India. She eloquently describes the lives of disabled women in India and how the focus on militarism by governments of developing countries has diverted vital economic resources away from support and actualization of people with disabilities.
53. Dr. Heinrich Scholler--In this interview, Dr. Scholler, who is a law professor at the University of Munich, discusses how Braille literacy for blind people is a political issue of power and not just a luxury. He talks about his experiences teaching Braille to blind beggars in Ethiopia and the appalling social conditions that had an impact on this endeavor.
54. Gertrude Foforme--Ms. Foforme is the Public Relations Director for the largest disability rights organization in Ghana. She describes the conditions under which people with disabilities live in Ghana and the progress which has been made toward independence and equal rights.
55. Defining Human Rights--This two part program features presentations by Dr. William Rowland and Diane Coleman. From 1992 until 1996, Dr. Rowland served as Chair of the Human Rights Committee of the World Blind Union. This presentation consists of his report to the 4th General Assembly of the WBU describing the reality of the human rights of blind people around the world and the progress the committee has made in advancing human rights protection and participating in the development of the UN Standard Rules on the Equalization of Opportunities for Persons with Disabilities. Diane Coleman is one of the leaders of a group calling itself Not Dead Yet. In this speech given at a rally outside the U.S. Supreme Court she condemns the legalization of physician assisted suicide as the ultimate human rights violation for people with disabilities.
56. Mary Jane Owen--Ms. Owen runs the disability office of the United States National Catholic Bishops' Conference where she educates Catholic church leaders and members about including people with disabilities in all aspects of religious activity. In this interview Owen discusses the difficulty she has had convincing church leaders that inclusion is necessary. She also discusses the problematic issues that arise around disability and religion and the difference between "cure" and "healing."
57. World Blind Union Forum on the Status of Blind Women--This program consists of three presentations delivered to forum delegates by the regional representatives from the Middle East, Asia and Africa regions. They describe their efforts to organize blind women under extremely difficult conditions and the progress that has been made in each part of the world toward advancing the rights of blind women.
58. David Lepofsky--Mr. Lepofsky was the founder of the Canadian Association of Visually Impaired Lawyers and is a prominent figure in Canada's disability rights movement. Currently, he serves as Council to the Crown Office of the Ontario Attorney General where he specializes in human rights law as it affects people with disabilities. In this presentation he discusses the Canadian experience of defining equality and implementing disability rights law.
59. Tony Coelho--Tony Coelho is a former Congressional Representative from the State of California and one of the primary authors and advocates of the Americans with Disabilities Act. He currently serves as Chair of the President's Committee on Employment of People with Disabilities. He also has epilepsy and in this interview he candidly discusses the process of accepting his disability and how he became elected to Congress. He also talks about how the ADA was passed and the importance mentors have been in his life and career.
60. Paul K. Longmore--The complex and difficult issue of the legalization of physician assisted suicide is Dr. Longmore's topic in this interview. He talks about the history of the issue, how it becomes a political concern for people with disabilities and how the disability community is mobilizing to prevent its legalization in the United States. He also discusses the difference between the movement to ban the legalization of assisted suicide and the pro-life movement.
61. Mon Min--Mr. Min is employed at the Association for the Rehabilitation of Paralyzed People in Bangladesh where he assists people with disabilities to gain employment. In this interview he discusses the challenges disabled people face in this largely agricultural society and talks about the specific problems of women who become disabled and are abandoned by their husbands.
62. Bonnie O'Day--As a member of the National Council on Disability in the United States, O'Day has been a central figure in formulating recommendations to the U.S. Congress on employment policy reform and people with disabilities. She contends that the charity model of providing services to people with disabilities is one of the main reasons there is so much unemployment in the disability community. Her remarks are supplemented by those of Paul Bilzi in a presentation on alternative work Strategies of People with Disabilities, held at the 3rd Paralympic Congress in Atlanta, in 1996.
63. Charlie Smith--Most of us know Christopher Reeve as the actor who played Superman in the movies. After becoming a quadriplegic as the result of a riding accident, Reeve became outspoken about the need to raise money to look for a cure for spinal cord injury. Charlie Smith is one of many disability rights leaders who believe this appeal is misdirected and even harmful to the progress already made by the movement. When Reeve made a recent appearance in the city where Smith lives and edits the Access Press, he and others protested the event.
64. Rosemarie Thompson--Thompson received her Ph.D. from Brandeis University and currently works as an Assistant Professor in the English Department at Howard University, one of America's historic black colleges. In her application for a tenured position at Howard she has discovered that the administration is not as supportive of her teaching about how people with disabilities are represented in literature as she thought they were. Her application for tenure has been denied based solely on her field of study, which is disability studies. An active member of the Society for Disability Studies, Thompson discusses her personal situation as well as the difficulties other disability studies scholars have in gaining credibility from academic administrators and colleagues.
65. Simi Linton--Dr. Linton teaches in the Department of Education at Hunter College in New York City. As a part of her work, she teaches a course in Disability Studies and is a leader in the Society for Disability Studies. In this interview, Linton discusses the components of a disability studies curriculum and her experience gaining acceptance for the study of disability theory on the graduate and post-graduate level in universities.
66. Adrienne Asch--Adrienne Asch is a Henry R. Luce Professor at Wellesley College just outside Boston where she teaches biology, ethics and the politics of human reproduction. Her writing is focused on issues like cloning, surrogate motherhood and prenatal testing. In this program she discusses the crucial and difficult bio-ethics issues which affect people with disabilities such as genetic testing and diagnosis and physician assisted suicide. She is one of the few disabled people working in this field and has unique perspectives on the future implications of the legal and ethical decisions our society is making today.
67. Rachael Hurst--Rachael Hurst is one of the most well-known disability rights activists in Great Britain and around the world. She is a member of the World Council of Disabled People International and the director of Disability Awareness in Action, a direct action disability rights group in the U.K. In this interview, she discusses the future of disability policy under the new British government as well as her own philosophy about adjustment to disability.
68. Laura Hershey--This interview focuses on the ways in which large, wealthy disability organizations conduct fund raising, often at the expense of the very people they claim to help. Specifically, Hershey discusses her experience with the Jerry Lewis Muscular Dystrophy Association telethon and the destructive message it sends to the public about disability. Hershey, and others, believe that promotion of these negative" pitiful" images of people with disabilities is contributing to the continuation of barriers in employment, education and social integration. How are disability rights groups countering those inaccurate, negative images and what are people with disabilities doing to "set the record straight?" Find out by listening to this program and discover how to make good choices about where you donate your hard-earned dollars.
69. Maria Rantho--Maria Rantho is a leader in the African National Congress, a disability rights activist in South Africa and a member of South Africa's newly elected Parliament. She is also a woman with a disability with many years of experience living and working under South Africa's former Apartheid policies. In this interview, Rantho tells both her own story as well as that of the South African disability rights movement and how the recent extraordinary developments have affected both.
70. Marsha Saxton--Dr. Marsha Saxton is the foremost authority on genetic counseling and testing as they affect people with disabilities. Currently, she is an Ed Roberts Fellow working with the World Institute on Disability and the University of California at Berkeley as a researcher in this field. What happens when prospective parents discover their fetus has a disability? What information do they receive and what information should they receive about what life might be like for their child and themselves in the future? Dr. Saxton discusses her views on this subject and talks about efforts to educate prospective parents and genetic counseling professionals to try and eliminate prejudiced, biased decision making.
71. Rosemarie Thomson--Have you ever thought about where our ideas about disability come from? Dr. Rosemarie Thomson believes one source is are the books we read every day as children and adults. Dr. Thomson is a Professor of English at Howard University in Washington, D.C., where her work is focused on review of popular and historic literature from a disability perspective. In this interview, Thomson discusses how the characters in our literature have shaped societal views about disability and also gives some examples of positive images of disability found in contemporary and past novels.
72. Leilah Atchan--What is it like to work in the West Bank as a woman with a disability? Leilah Atchan is blind and works as a trainer and psychotherapist providing technical assistance to organizations working for change in this volatile, dangerous part of the world. In this interview, Atchan talks about her personal experience growing up and working in the West Bank and gives us a rare perspective on the political situation there and its affect on disabled people.
73. Update on Landmines--This program focuses on the progress made by the International Campaign to Ban Landmines and what it means for the U.S. to refuse to sign the Ottawa Landmine Ban Treaty. Jerry White, Director of the Landmine Survivors Network, explains what has happened in the past year of organizing and the impact Princess Diana had on bringing this issue to the forefront. The International Campaign to Ban Landmines is the recipient of the 1997 Nobel Peace Prize.
74. Toni Eames--Have you ever wondered how guide dogs and other assistance dogs do their work? Toni Eames is the co-author of Partners in Independence, a book written about how assistance dogs work with people who have disabilities. In this program, Eames discusses training techniques, advantages to working with a service dog, access and the formation of the International Association of Assistance Dog Partners.
75. Geri Jewell--Geri Jewell is probably best known for her appearances on the 1980s television sitcom "Facts of Life," where she was the first disabled actress to play a character with a disability in prime time. Her comedy routines are well known for their honest approach to the disability experience. Find out more about Geri Jewell in this interview.
76. Arts and Media--The first part of this program is an interview with Shuncho Hanada, a disabled Japanese historian who lectures on the role of people with disabilities in Japan as the artistic and cultural carriers of Japanese society. The second half of the program are comments by Suzanne Levine, photographer and disability rights activist. Levine shares her experience compiling a picture book on independent living in Mexico and gives advice to media representatives on respectfully and creatively depicting the lives of people with disabilities.
77. Venus Ilagan and Mary O'Hagen--This program is another in the series about the International Leadership Forum for Women with Disabilities. Venus Ilagan is the President of the National Association of Disabled Persons in the Philippines. Her Association is an umbrella organization with 204 cross-disability self-help groups around the country and six rehabilitation centers for disabled children. Mary O'Hagen is a well-known activist and organizer of psychiatric survivors in New Zealand. In her remarks to the conference attendees she describes her experiences and philosophy of empowerment.
78. McClaine Musheka--This program examines the problem of violence and sexual assault of deaf women in Southern Africa. McClaine Musheka helped organize the first pan-African conference of deaf people and discusses this important meeting as well as her own story as a deaf African woman. Her remarks follow those of United States Secretary of State Madeline Albright on U.S. Government policy and violence against women with disabilities.
79. Lizzie Longsho--Lizzie Longsho is the Coordinator of women's groups for the National Council of Persons with Disabilities of Zimbabwe. In this capacity, Longsho has first-hand experiences with the conditions of disabled women in Zimbabwe and other parts of Southern Africa. In this interview she discusses the everyday lives of her constituents and emphasizes the need for reproductive health education and choice for women with disabilities.
80. Dr. Fred Schroeder and Dan Kaiser--Dr. Schroeder is one of the most articulate philosophers and practitioners of integrating blind people into education and employment settings. As Commissioner of the Rehabilitation Services Administration in the United States he is a key policy figure both here and abroad. Dan Kaiser is the System Operator of the Global Blind Exchange, a computer network specifically for blind people. His experiences with graphical user interface software has lead him to conclude that recent advances in computer technology are contributors to the 70 percent unemployment rate of people who are blind. Theory of integration and the reality of every day are the themes for this program.
81. John Lancaster--In his capacity as Executive Director of the President's Committee on Employment of People with Disabilities, John Lancaster has a leadership role in policy making in the area of employment of people with disabilities, and is in a good position to share both the successes and mistakes of U.S. employment policy. Over the past 18 months, Lancaster has made three trips to Vietnam to assist the Vietnamese government and disability advocacy groups to develop their own policies on the employment of people with disabilities. In this interview, Lancaster discusses his recent visits to Vietnam to provide technical assistance in this area as well as what it was like to return to the country where he was shot and acquired his disability.
82. Dr. Robert Meyer--Dr. Robert Meyer is a physician specializing in rehabilitation and the fitting of prosthetic devices. As a part of a group sponsored by the International Rescue Committee, he visited Bosnia to fit prosthetic arms for people injured in the war but also to plant the seeds of collaboration between doctors and their disabled customers. In this interview, Meyer describes the conditions under which people with disabilities are living and attempts that are being made to get them the basic rehabilitation services amid an array of frustrating and bureaucratic government obstacles.
83. Carol Randall--Travel and people with disabilities is the primary focus of Carol Randall's life. As the founder of Access Travel Resources, Randall provides information and helpful advice to people with disabilities traveling to all parts of the world. Her organization maintains a large database on the Internet containing a massive information bank of resources and ideas for the disabled or elderly person who travels either for business or pleasure. This interview gives some helpful tips for travelers with disabilities and outlines some of the challenges and triumphs of traveling as a person with a disability.
84. Venus Ilagan--Venus Ilagan is the President of the National Federation of Persons with Disabilities of the Philippines. This organization is an umbrella group supporting and providing technical assistance to several hundred self-help groups around the country. In addition to discussing the work of the Federation, Ilagan also talks about the contributions of women leaders to the disability rights movement in the Philippines.
85. John Kemp--Very Special Arts, (VSA), is a worldwide organization facilitating the artistic expression of people with disabilities. It was founded by Jean Kennedy Smith to enhance the education of young people with disabilities and give them opportunities as professional artists and performers in the visual arts, sculpture, multi-media, dance, music, theater, film, poetry, indeed, all things creative. VSA and its Executive Director John D. Kemp are using education and the arts to change what it means to be disabled.
86. Leye Chrzanowski--The images about disability we see in the local newspaper have drawn a lot of criticism from disability rights advocates who say that the journalists who write these stories ask the reader to either feel sorry for people with disabilities or to believe they are unusual or courageous for doing ordinary things. The Disability News Service and its Founder Leye Chrzanowski provide a service to newspaper editors by making hard news and feature stories available to them that are written by journalists with disabilities and give accurate portrayals of the disability experience. She says newspaper editors are reluctant to pick up the service because they believe they don't need any help covering disability issues. Disability rights advocates say quite the opposite.
87. Mira Katalonich--What do you remember hearing about the war in the Former Yugoslavia? Many people, including those with disabilities, lost their lives, families, homes and everything they had. But amid the chaos and death, some people were surviving. In fact, one group of blind people demonstrated that the fight for their independence took precedent over everything.
Until recently, most blind people in Eastern Europe were not independently mobile. Many still are not, but the notion of blind people who could get about on their own using a white cane or a guide dog was virtually unheard of. In 1990, a guide dog training program was started by a group of blind and sighted people who wanted to change what it meant to be blind in, what at that time, was the country of Yugoslavia. Against seemingly insurmountable obstacles they are succeeding. Mira Katalonich is the President of the Croatian Guide Dog and Mobility Association and kept it running during the war. She described some of the experiences of people with disabilities during the war and the challenges of continuing the guide dog associations work. This program also includes an interview with Sawat Pramoonsilp, a blind woman who is one of Thailand's most well-known radio personalities.
88. Foluke Ideau--People with disabilities in Africa face many of the same barriers to full participation as their counterparts in other parts of the world. However, life in this part of the world is made much more complicated for people with disabilities because of war, poverty and ineffective governments. Foluke Ideau is the Program Director of an independent living program in Nigeria providing direct services and promoting the human rights of people with disabilities.
89. Yukiko Nakanishi and Steve Wright and Heidi Johnson-Wright--This program is about disability rights in Japan and the challenges of travel with a disability. Yukiko Nakanishi is the Founding President of the Asia Disability Institute providing exchange opportunities for people with disabilities throughout Asia. She describes the concepts of independent living practiced in Japan and how they have been adapted to the environment and culture of Japan. In the second part of the program Steve Wright and Heidi Johnson-Wright describe their experiences with travel and disability. They are a husband and wife team of travel writers with articles appearing in the Chicago Tribune, San Francisco Examiner and the Disability News Service.
90. Glen Young--Learning disabilities are some of the most misunderstood conditions included in the Americans with Disabilities Act's definition of disability. Damage in strategic parts of the brain has been found to cause specific difficulties with reading, math, writing, word retrieval and other basic functions of daily life. Glen Young is a trainer with the National Institute on Literacy, an agency of the U.S. Department of Health and Human Services. His current work focuses on learning disability in low income communities. He has a learning disability and has learned to accommodate his condition and now holds a professional level position in the federal government. However, Young had to seek and finance three years of intensive literacy training costing him about $12,000. He was lucky because his health insurance company paid for his diagnostic testing. But most people are unable to afford the necessary testing to determine learning disability and qualify for services and legal protection.
91. Kenneth Jernigan--Kenneth Jernigan died in October of 1998 at the age of 71. From 1968 until 1986 he served as President of the National Federation of the Blind in the United States and was also President of the North America/ Caribbean Region of the World Blind Union. He was known around the world as one of the most outspoken advocates for the rights of blind people. This program is a tribute to his work and legacy featuring one of his last major international speeches given at the 4th General Assembly of the World Blind Union in Toronto, Canada.
92. Van Gogh--Van Gogh is a rock band based in Atlanta, Georgia. Three of the band's members use wheelchairs including the founders Robby and Ricky Heisner. Van Gogh has shared the stages with the Atlanta Rhythm Section, Edgar Winter and 38 Special. In this program Robby Heisner describes what's different about the band as a result of their disabilities and, what isn't.
93A & B. Sid Wolinsky--Sid Wolinsky is the Director of Litigation and International Programs for Disability Rights Advocates, a group based in California and working worldwide. This is a two part program describing the details of what happened to people with disabilities before and during the Nazi Holocaust years in Germany and the occupied countries. Disability Rights Advocates has conducted extensive research to expose the details of this important and horrifying chapter in the history of people with disabilities. They are demanding compensation from the German government and have begun an educational campaign establishing an annual "Day of Remembrance."
94. Aul Pedajas--the economic chaos in Russia and the Former Soviet states has been catastrophic for the people living there. For people with disabilities, the transition to a free market economy has meant drastic change and not all of it has been positive. This program features two perspectives on the situation. First, the personal story of one man's defiance of the Estonian governments refusal to provide the support services he needs to live independently. The second part of the program is an interview with Tamara Zolitzava, Vice Chairman of the All-Russian Society of Disabled People, who explains the political situation of people with disabilities living in Russia today.
95. Lucy Wong-Hernandez--What's behind the images of the Kosovo war you see on CNN? The thousands of refugees we see streaming out of Kosovo, include people with a variety of disabling conditions. This is also the case in every humanitarian crisis, and international disability rights advocates are increasingly concerned about people with disabilities who are refugees. Lucy Wong-Hernandez is the Executive Director of Disabled Peoples' International, a worldwide, grassroots disability rights organization. In this interview she describes DPI's work highlighting disability and refugee issues.
96. Ken Myer--what does it take to have a successful career? For many years, Ken Myer had a successful career in broadcasting. In the 1970s and 1980s, his was a familiar voice on WBZ Radio in Boston, a clear channel station with 50 thousand watts of power. Myer is also blind, and recently we discussed his career, education and how radio has changed.
97. Iliana Chacon and Patrick Young--Guide dogs and other service dogs that assist people with disabilities are seen widely in North America and Western Europe. But they are not often seen in other parts of the world. This program is a discussion with one of the first guide dog users in Costa Rica, the challenges and barriers she is facing and how using a guide dog has made a difference in her ability to travel independently. Also, Patrick Young has been transporting donated wheelchairs and other mobility equipment to Mexico and Central America for the last 15 years. Getting these essential items through customs has always been a challenge but when he began transporting this equipment to the militarized Chiapas region of Mexico, the Mexican government has become obstructive and uncooperative at the expense of its own citizens with disabilities who desperately need this equipment.
98. David Martin--In 1993, 12 year old Tracy Latimer was killed by her father, Robert Latimer, because he believed that she did not have any quality of life. Tracy had cerebral Palsy and was nonverbal. Robert Latimer admitted to killing his daughter and the public response has been to excuse his behavior because of his daughter's disability. David Martin is the Provincial Coordinator of the Manitoba League for Persons with Disabilities and his group is outraged at the public support of Latimer's actions. They plan to build a monument in honor of Tracy Latimer. This interview concludes with a lively exchange about employment issues. The unemployment rate of people with disabilities in the United States is estimated to be 66 percent and is higher in other countries. Michael Haaren and Chris Durst of Staffcentrix have possibly found a way to decrease that figure helping people utilize the skills they already have using a "virtual environment" to accomplish their work.
99. Kevin Williams--The Americans with Disabilities Act (ADA), was signed into law on July 26, 1990. So, how are we doing? Kevin Williams is General Council for the Colorado Cross-Disability Coalition and he has been closely following the ADA cases going before the U.S. Supreme Court. Several fundamental issues will be effected by the Supreme Court's up-coming decisions.
100. Jacki Leyden--Best known for her award-winning journalism with National Public Radio in the United States, Jacki Leyden has written a book about her mother, and her mother's mental illness. Entitled "The Daughter of the Queen of Sheba," this book is the personal story of Jacki Leyden, her mother and their relationship. In this interview, Leyden explains what it was like to grow up with a mentally disabled mother and how that experience prepared her for a career in radio reporting.
101A & B. Marianne Holtz--Land mines kill and disable at least 25 thousand people each year. Most of the deaths and injuries are those of civilians and many are children. The 1997 Land Mine treaty calls for the cessation of manufacture, sale, transport use and stockpiling of land mines. But the United States refuses to sign it, claiming that an alternative to land mines must be found first. Many Americans believe that land mines have nothing to do with them. However, Marianne Holtz thinks otherwise. Holtz is an American nurse who worked in Central Africa with Rwandan refugees. The car in which she was riding hit a land mine and she is now severely disabled. This two-part program explores both the personal and political side of land mines.
102. Akiko Ito--Every day the United Nations has contact with unknown numbers of people with disabilities. Akiko Ito works in the Office for Social Policy and Development inside the UN. Her office is responsible for educating UN workers and NGO representatives about how best to provide services to people with disabilities in conflict and crisis situations.
103. Eric Rosenthal--In the early 1990s the worlds attention was drawn to the countries of the Former Soviet Union. The most disturbing thing about this renewed contact was the amount of images and stories about hundreds of thousands of children and adults with disabilities incarcerated in massive institutions in deplorable conditions. Eric Rosenthal is the Executive Director of Mental Disability Rights International, a group doing research in several parts of the world on people with mental disabilities who have been institutionalized and how the conditions inside the institutions contribute to further disablement of these individuals.
104. Eileen Giron--Eileen Giron has polio, uses a wheelchair and is one of el Salvador's most effective disability rights leaders. She is the Executive Director of a work co-op of people with disabilities producing and selling pottery and providing some basic services to disabled people outside the co-op. El Salvador, is currently in reconstruction after a bloody civil war, and Giron describes the experiences of those with disabilities during and after the war and how she acquired a disability consciousness and developed her organization amid difficult conditions.
105. Nawaf Kabbara and Yang Jia--The first part of this program is an interview with Dr. Nawaf Kabbara, one of Lebanon's longtime disability rights leaders and an active member of Disabled Peoples' International. He describes the unusual beginnings of the movement in Lebanon and how people with disabilities were the first to call for peace during the extreme violence and killing in the 1980s. In the second part of the program Yang Jia, Vice President of the China Association of the Blind describes China's recent celebrations of disability rights and progress.
106A & B. Tom Shakespeare--Romance and disability are seldom discussed together. Tom Shakespeare's new book "The Sexual Politics of Disability: Untold Desires," has broken new ground in our understanding of disability and sexuality. His research was done from a disability rights perspective and he contends that if disability itself is a social construct, then the barriers encountered by people with disabilities in seeking social and sexual opportunities are also socially constructed. This is a two-part academic lecture delivered by Dr. Shakespeare at the University of California at Berkeley.
107. Tanis Doe--In the process of coming together either to promote justice and equality or celebrate a victory, people with disabilities tend to organize themselves according to their particular disability. But what happens when a person has several disabilities, each with a variety of access requirements? People with multiple disabilities sometimes find themselves without an affinity group. Dr. Tanis Doe is a person with several different disabilities and discusses her experiences trying to fit in.
108. Gary Karp--Karp is the author of Life on Wheels: For The Active Wheelchair User. Choosing a wheelchair becomes more complex every day and Gary Karp has sound advice based on research and his own experience. In this interview, Karp discusses staying healthy if you use a wheelchair, home access, politics, resources and a lot more.
109. Dominic Davies--Sex, love and relationships are topics rarely, if ever discussed in the rehabilitation process after a person becomes disabled. The disability rights movement doesn't talk about it either believing that access to housing and employment take priority. But not everyone agrees. Dominic Davies co-authored the book The Sexual Politics of Disability: Untold Desires in which sexuality and disability are discussed from a disability empowerment point of view.
110. Judy Heumann/Marca Bristo--This program is about US Leadership from a disabled woman's perspective. At the 1997 International Leadership Forum for Women with Disabilities, Judy Heumann, Assistant Secretary of Education, Office of Special Education and Rehabilitative Services, and Marca Bristo Chair of the United States National Council on Disability, addressed the delegates at the forum. Their remarks contain both personal stories and political strategy. (
111. Patrick Tice and Jerry Kuns--This program is about traveling the world, literally, and figuratively. People with all types of disabilities have been involved in radio as broadcasters and ham operators. Radio has been used as a primary means of communication by many people with disabilities in remote parts of the world to acquire and distribute information. Patrick Tice is the manager of HANDI-HAM Systems, a program that trains people with disabilities to become ham radio operators and get on the air. In the second half of the program we'll take a look, and a listen to an accessible talking globe.
112. Florita Maiki--For many years women have been encouraged to perform monthly breast self examinations to detect breast cancer. But what about women who have disabilities that make it impossible for them to do their own self examinations or to get information about how to do them properly? Women with disabilities in the San Francisco Bay Area identified inaccessibility to breast health care and information as a serious problem with deadly consequences. Florita Maiki is the director of the Breast Health Access for Women with Disabilities program which has begun to address these unrecognized accessibility barriers.
113. Son Song Hak--Cambodia is full of unexploded land mines. Much of the injury and death has been to civilians many of whom were humanitarian aid workers. 1 in 245 Cambodians is an amputee as a result of an encounter with a land mine. It is estimated that there are between 4 and 6 million land mines left buried in the ground and Although the Land Mine Ban Treaty has been signed by 138 countries, the United States is not among them. Son Song Hak is a land mine survivor and a leader in Cambodia's land mine ban movement.
114. Tim Hendel--Is integration always the right answer? Many segregated schools for children with disabilities had lower academic standards than their integrated counterparts. However, this was not necessarily the case in some of the residential schools for the blind. Is it always an advantage to be educated in an integrated setting? Tim Hendel who was educated in a residential school for the blind contends that the purely integrationist philosophy of education is missing something very important about people with disabilities.
115. Robert Watson--The need for social contact is a human response that has nothing to do with disability. But social isolation is a huge problem among people with disabilities and many find the dating scene difficult to navigate. Robert Watson is the executive director of Dateable International, a dating service for people with disabilities. In this interview he discusses the reasons why some disabled people choose this option.
116. Charlie Crawford--Things are changing for pedestrians and since many people with disabilities don't drive these changes have a high impact on the disability community. Everything, employment, housing, child care and medical care, is governed by how well and quickly one can get around in the community. The presence of increasing amounts of traffic, more complicated intersections and more complex traffic signals are all playing a role in making pedestrian life for people with disabilities a real challenge. Charlie Crawford is the executive director of the American Council of the Blind and he has been working with a coalition of disability, environmental and safety groups to get the attention of city planners and to design new technology to appropriately respond to the changing conditions.
117. Richard Light--Human rights violations of people with disabilities around the world have gone virtually unrecognized by human rights reporting organizations. Many believe it is time for the United Nations to adopt a Convention on the Rights of People with Disabilities which would legally bind nations to standards of policy and behavior with regard to disability and create a mechanism for sanctioning governments who violate the human rights of disabled people. Richard Light is the editor of the Disability Tribune which is published in London and has a worldwide readership. Light and his colleagues have begun a grassroots campaign urging the UN to accelerate the process of passing such a Convention.
118. Jeff Heath--Jeff Heath is a long-time disability rights activist in Australia and the editor of Link Magazine. In this interview he discusses the erosion of disability rights as part of an overall swing to the right in Australian politics. He describes how the disability rights movement is trying to hold on to the gains they made in the 1980s and how they have included other marginalized groups in their organizing strategies.
119. Buna Dahal--Why should a person who has a disability have to leave their country of origin just to have a productive life? Buna Dahal who is from Nepal, realized early on that being blind and female in her country would make it virtually impossible for her to realize her potential. She came to the United States, obtained a college education and employment and has been successful and productive. But she knows that if she returned to Nepal to live her prospects would be very limited. This is her personal story.
120A & B. Douglas Bloch--In this two-part program, Douglas Bloch discusses clinical depression, considered to be the 4th most disabling condition in the entire world and second in the United States, only behind heart disease. The cost to the economy is somewhere between 70 and 80 billion dollars a year in lost productivity, medical costs and death by suicide. The stigma associated with mental illness keeps many people from seeking help. Douglas Bloch is a therapist, teacher and writer who has had three separate depressive episodes in his life. He has written a book called "When Going Through Hell Don't Stop: A Survivors Guide to Overcoming Anxiety and Clinical Depression." In this book, Douglas Bloch tells his own story of recovery from major depression to illustrate how strategies can be utilized for optimum wellness during a depressive episode and how the reader can have the best chance of recovery.
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