Library
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2012. Personal Assistance and the Crisis: Now is the time to promote Direct Payments for Personal Assistance.
Against the backdrop of the impact of the current economic crisis on persons who depend on practical assistance by other persons with the activities of daily living the author outlines arguments for direct payments for Personmal Assistance services. These services are demand driven, superior in quality and cost-efficiiency to supply driven services such as residential institutions and support the United Nations Convention Article 19 "living independently and being included in the community".
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2012. Personal Assistance empowers persons with disabilities and benefits the national economy.
Direct Payments for Personal Assistance make demand-driven services possible that promote freedom of choice and quality. Supply-driven services, on the other hand, are often monopolistic in-kind services that force users to adapt their lives to the needs of the service provider. The Swedish Personal Assistance Act of 1994 is an example of a Direct Payments policy. Its outcome is discussed as well as its implications for the national economy in times of economic crisis.
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2012. Personal Assistance in Sweden.
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2012. Personal Assistance: Key to Independent Living as illustrated by the Swedish Personal Assistance Act.
United Nations Human Rights, Office of the High Commissioner, Europe Regional Office convened a meeting in Brussels on May 7 2012 "CRPD and EU Structural Funds: The way ahead for Independent Living" to raise awareness about the violation of CRPD Article 19 "Living independently and being included in the community" by using EU Structural Funds for the construction and maintenance of residential institutions. The paper shows how demand-driven direct payments for Personal Assistance services, not only achieve far superior quality of services than residential institutions resulting in higher quality of life for service users at lower costs but also affect a country's economy more favorably. Thus, violating Article 19 of the CRPD is not only illegal but also wasteful in terms of human and monetary capital.
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2012. Personal assistance policy features for Independent Living:.
What are the important features of a national policy on personal assistance that is to promote "living independently and being included in the community" "with choices equal to others" and to enable persons with disabilities to fulfill their duties and to enjoy their rights as citizens?
The presentation identifies the elements of the Swedish Personal Assistance Act of 1994 that have contributed most to the outcome of this widely acclaimed legislation.
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2012. Projektansökan Assistanstips.
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2011. Personal responsibility as precondition for personal and social change.
Adolf Ratzka, Independent Living Institute, presented at the Second International Conference on Personal Responsibility on the Way to Social Change organized by Jerusalem Center for Independent Living December 2, 2010
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2010. Provision of Videophones and Video Interpreting for the Deaf and Hard of Hearing, A Comparative Study of Video Interpreting (IV) Systems in the US, Norway and Sweden. Fafo Institute for Labour and Social Research, Norway.
Internet publication URL: www.independentliving.org/haualand20100924video-interpreting-systems
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2008. Personlig assistans - en billig och effektiv form av valfrihet, egenmakt och integritet - En jämförelse mellan kostnaderna för personlig assistans och kommunal hemtjänst.
Internet publication URL: http://www.independentliving.org/lsskostnad/ (In Swedish.)
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2008. Post-election violence and disabled people in Kenya; issues for reflection and action.
Internet publication URL: www.independentliving.org/docs7/masakhwe20080124.html
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2007. Parents of Deaf Afghan Children -- On The Air.
In these short scripts from a radio series, Afghan parents and a counsellor discuss issues of raising their deaf child in a rural area of Afghanistan, and several ways in which they can assist her in learning to communicate. An explanatory note follows, on the origin and purpose of the radio series. [Earlier versions of these scripts were circulated in 1984, 1986 and 1988, from the Mental Health Centre Peshawar, Pakistan.] Internet publication URL: www.independentliving.org/docs7/miles200705.html
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2007. The Pursuit of Radical Change: Perceptions and Realities of the Americans with Disabilities Act.
The author was invited to address an audience in Stockholm, Sweden, in June 2007, regarding the Americans with Disabilities Act and how it might relate to the implementation of an anti-discrimination law in Sweden. This paper is an attempt to shed light on the ADA in that context. Discussions include 1) how American laws are made, 2) historical background relating to the development of the ADA, 3) a discussion of the Act itself, 4) enforcement mechanisms, 5) impact of the ADA, and 6) future directions. Internet publication URL: www.independentliving.org/docs7/brown20070531.html
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2004. ”Partnerskap – det är snyggt, men svårt” är ett radioprogram om möjligheter och svårigheter i biståndsarbete.
Sverige ger mindre än en procent av bruttonationalprodukten i internationellt bistånd. En del av detta kanaliseras genom den svenska folkrörelsen. Aktiva handikapporganisationer bedriver biståndsprojekt via SHIA, Svenska Handikapporganisationers Internationella Biståndsförening. Lyssna-MP3 (28:57, 27,2 MB). Programmet i text. Deltagare: Malin Ekman Aldén, Stefan Sundquist, Annika Åkerberg. Internet publication URLs: www.independentliving.org/radio/bistand2003.mp3 och www.independentliving.org/radio/bistand2003.html.
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2003. Personal Assistance in Sweden.
From the perspective of a personal assistance user, the author describes the background and development of the legislation in Sweden dealing with personal assistance through direct payment. The power issues surrounding establishment of the Stockholm Independent Living Cooperative (STIL) are also addressed. Plenary presentation at: Personal Assistance in Practice - A Conference Organised by the Swiss Association for Social Policy (Persönliche Assistenz in der Praxis - Eine Informationstagung der Schweizerischen Vereinigung für Sozialpolitik), Hotel Bern, Bern, Switzerland, 2003-05-20. Internet publication URL: www.independentliving.org/docs6/berg20030520.html
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2003. Philosophy of Independent Living.
The author summarises the philosophy of independent living by quoting Philip Mason, John Evans, Adolf Ratzka, Martin McNaughton, and others. Included is a summary of the seven “basic needs†of independent living identified by Derbyshire CIL. Internet publication URL: www.independentliving.org/docs6/hasler2003.html
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2003. Populärt byta färdtjänstbuss mot taxi.
Internet publication URL: www.independentliving.org/taxi/ikapp20030327.html (In Swedish).
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2003. The prerequisites for de-institutionalization.
Paper presented at the European Congress on Independent Living, Tenerife April 24-26, 2003. Internet publication URL: www.independentliving.org/docs6/ratzka200304.html.
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2003. Protester mot höjd avgift för rullstolstaxi.
Dagens Nyhter. Internet publikation URL: www.independentliving.org/taxi/dn20031007.html (In Swedish).
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2003. Protokoll § 281, Handlingsplan med förslag till åtgärder för att få färdtjänstbudgeten i balans (förslag 68).
Internet publikation URL: www.independentliving.org/taxi/stklms-lan20031007.html (In Swedish.)
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2003. Publications by John O'brien and Connie Lyle O'brien.
Internet publication URL: www.independentliving.org/docs6/obrien20031011.html
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2002. Projektet ‘Taxi för Alla’ (PDF, 60 KB).
Nollåtta. DHR Stockholmavdelning. No. 6, dec. 2002, s. 14. Internet publikation URL: www.independentliving.org/taxi/nollatta200212s14.pdf (PDF, 60 KB).
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2001. A Personal Journey Into Disability Politics.
Finkelstein reviews the development of radical British disability organizations and his own personal history and thought in their evolution. Finkelstein, a psychologist by training, was tutor in Disability Studies at the Open University and is now Visiting Senior Research Fellow in the Centre for Disability Studies, Leeds University. Finkelstein has a disability. Internet publication URLs: www.independentliving.org/docs3/finkelstein01a.html and www.independentliving.org/docs3/finkelstein01a.pdf
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2001. Pioneering Personal Assistance in Slovenia: An Evaluation of the YHD Pilot Project on Personal Assistance in Slovenia.
YHD-Association for Theory and Culture of Disability, an organization run by and for people with disabilities and subscribing to the Independent Living philosophy, started a pilot project in Ljubljana with personal assistance for deinstitutionalization and equal opportunities of assistance users. Internet publication URLs: http://www.independentliving.org/docs3/duve2001.html and http://www.independentliving.org/files/duve2001.pdf.
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2001. Press Release: Disabled People to Finally Catch the Bus - Victory for Disabled People on Bus and Coach Directive.
All newly purchased buses throughout the European Union must be fully accessible to people with disabilities according to the Directive. This was the result of nine years of campaigning by disabled people, together with the Disability Intergroup of the European Parliament. Internet publication URL: www.independentliving.org/docs1/pr20010216.html
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2001. Pressmeddelande 2001-09-17, Taxi för alla - rärlighet åt personer med omfattande funktionshinder.
Internet publication URL: www.independentliving.org/taxi/taxi010917.html (in Swedish).
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2000. Preliminary ideas and procedures for ensuring systematic international collection of information.
In: "Let the World Know - Report of a Seminar on Human Rights and Disability Held at Almåsa Conference Centre, Stockholm, Sweden, November 5-9, 2000." Pre-paper 7. Internet publication URL: www.independentliving.org/docs2/mohit00.pdf. In Internet publication URLs: www.independentliving.org/docs2/rioux00.pdf and www.independentliving.org/docs2/rioux00.doc
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1999. Paul Longmore's testimony before Assembly Judiciary Committee Protesting Assembly Bill 1592.
A testimony before the Assembly Judiciary Committee against AB 1592 which would legalize physician assisted suicide in California. The committee voted for the bill 8 to 7 - there is a long fight ahead. Internet publication URL: www.independentliving.org/docs5/longmore1592.html
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1999. People with Speech Disabilities Now Have a Telephone Service.
Dial toll free to reach a patient, trained operator who is familiar with many speech patterns and has acute hearing. This operator makes telephone calls for you and repeats your words exactly. Internet publication URL: www.independentliving.org/docs5/speechphone.html
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1999. A Personal Letter from Belgrade, Serbia - Written during the current NATO bombings in Yugoslavia.
Internet publication URL: www.independentliving.org/docs6/rajkov1999.html
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1999. Perspectivas Globales Sobre Vida Independiente Para El Proximo Milenio. Washington, D.C. 21-25 de setiembre de 1999.
Internet publication URL: www.independentliving.org/docs2/ils99sp.html
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1999. Portuguese Parliament promotes Web Accessibility.
Portugal became the fourth country in the world to officially promote web accessibility for people with disabilities, after the United States, Australia and Canada. Internet publication URL: www.independentliving.org/docs5/portweb.html
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1999. Position Papers '99, Attendant Care.
Internet publication URL: www.independentliving.org/docs1/pdcnsw99.html
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1999. The Problem with Travel Misinformation.
The biggest problem for travelers with disabilities is the alarming increase of misinformation about accessible travel, claims Candy Harrington. Internet publication URL: www.independentliving.org/docs3/ch1999.html
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1999. Problemet med desinformation.
The biggest problem for travelers with disabilities is the alarming increase of misinformation about accessible travel, claims Candy Harrington. Internet publication URL: www.independentliving.org/docs3/ch1999sv.html (In Swedish.)
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1998. Panel Discussion - Open Debate, Seminar on Bioethics and Disabled People (1998).
Internet publication URL: www.independentliving.org/docs1/dpibethics5.html. In: Disabled Peoples' International (DPI). 1998. "Seminar on Bioethics and Disabled people." Internet publication URL: www.independentliving.org/docs1/dpibethics.html
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1998. A People's History of the Independent Living Movement.
Chava Willig Levy relates stories from the IL Movement to create a people's history. This mongraph explores human rather than social forces. It looks at who rather than what shaped the IL movement. Internet publication URL: www.independentliving.org/docs5/ILhistory.html
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1998. Personal Assistance Legislation in Italy.
Raffaello Belli reports on various pieces of Italian legislation applying to payment of personal assistance for people with disabilites. Internet publication URL: www.independentliving.org/docs1/belli1998.html.
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1998. Personal Assistance Service Policy: Where We Have Been and Where We Are Going.
Dr. Simi Litvak examines the current state of Personal Assistance Services (PAS), and how they might be improved in a fiscal, quality, and humanitarian sense. Internet publication URL: http://www.independentliving.org/docs4/ar4984.html
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1998. Poster Kids No More:' Perspectives About the No-Longer Emerging (In Fact, Vibrant) Disability Culture.
Dr. Steven E. Brown, Co-Founder of the Institute on Disability Culture, in the United States, takes an opportunity to review a decade of investigating and promoting disability culture. This piece quotes liberally from previous Brown publications, and attempts to put into perspective both opinions that challenge the concept of a disability culture and those that support it. In: Disability Studies Quarterly, 18(1) (Winter 1998), 5-19. (PDF, 160 KB.) Internet publication URL: www.independentliving.org/docs3/brown98a.html. In Internet publication URL: www.independentliving.org/docs3/brown98a.pdf.
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1998. Presentation at the Seminar on Human Rights for Persons with Disabilities from a North and South Perspective Stockholm, Sweden, 1998-08-23.
In his presentation at the seminar organized by Independent Living Sweden, Stockholm, Professor Colin Barnes of the Disability Research Unit in Leeds, UK, discusses rights and conditions for disabled persons in the UK and developed countries as compared to those in developing countries. He raises questions concerning the efficacy of legislation, the concept of rights, disability as one of many forms of social oppression, how developed countries’ economic policies are responsible for disability in developing countries, the role of organizations in improving conditions for disabled people, and the importance of the right to life. Internet publication URL: www.independentliving.org/docs1/stlm19980823g.html.
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1998. Presentation at the Seminar on Human Rights for Persons with Disabilities from a North and South Perspective Stockholm, Sweden 23 August, 1998.
Kalle Könkkölä discusses the organization's perspective on human rights. Internet publication URL: www.independentliving.org/docs1/stlm19980823b.html
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1998. Presentation vid Seminarium om mänskliga rättigheter för personer med funktionsnedsättning ur ett nord- och sydperspektiv Stockholm, Sverige 23 augusti 1998.
Internet publication URL: www.independentliving.org/docs1/stlm19980823bsv.html (In Swedish.)
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1998. Prospects for a National Personal Assistance Services Program: Enhancing Choice for People With Disabilities.
Mr. Batavia is Associate Professor, School of Policy and Management, College of Urban and Public Affairs, Florida International University, North Miami, Florida. The article was published in American Rehabilitation, Volume 24, Number 4, Winter 1998, Personal Assistance Services Part 2 of 2. American Rehabilitation is the official publication of the Rehabilitation Services Administration (RSA) 330 C Street S.W. Washington D.C. 20202-2531. Internet publication URL: www.independentliving.org/docs6/batavia1998.html.
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1997. Peru 1997.
See how travelling with a disability just got easier with the Joëlette in action on a trip to Peru, where even the toughest terrain can be conquered with this wonderful invention! Internet publication URL: www.independentliving.org/docs5/Peru1997.html
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1997. Policy Paper from the South African Human Rights Commission 1997 # 5 : Disability.
Internet publication URL: www.independentliving.org/docs6/sahr1977.html
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1997. Power, Control, Confidence, and Courage.
Becoming an active participant in what happens to you requires that you feel empowered, exercise self-control, feel self-confident and have courage. Internet publication URL: www.independentliving.org/docs5/Leone97.html
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1997. Presentation för nationella kvinnodagen 1997 Telekom - firande inför kvinnodagen.
Fadila Lagadien considers how media communicates images of the estimated 13 per cent of disabled South Africans, especially women with disabilities. Internet publication URL: www.independentliving.org/docs1/fadila97sv.html (In Swedish.)
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1996. Persönliche Assistenz in Schweden.
Independent Living oder Selbsbestimmt Leben ist eine weltweite Bewegung von Menschen mit Behinderungen, die gegen Aussonderung, Bevormundung und Diskriminierung arbeiten und für volle Bürgerrechte, Selbstbestimmung und Selbstrespekt kämpfen. Internet publication URL: www.independentliving.org/docs5/PersAssistenzinSchweden.html (in German).
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1995. Personal Assistance for Independent Living Programme (PAIL), Republic of South Africa.
The immediate objective of the PAIL Programme is that by the end of the project period a minimum of five hundred severely disabled people per year per operational region will have achieved greater independence than in 1995 in South Africa. Internet publication URL: www.independentliving.org/docs5/ProposlPASouthAfrica.html
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1995. Promotion of Non-Handicapping Physical Environments for Disabled Persons: Guidelines.
As part of a series of regional initiatives to translate into action the goals and objectives of the Asian and Pacific Decade of Disabled Persons, ESCAP in 1993 embarked on a project to promote non-handicapping environments for persons with disabilities and elderly persons in the Asian and Pacific region. This publication of comprehensive guidelines for the promotion of non-handicapping environments is an activity under the project. Internet publication URL: www.independentliving.org/docs2/escap1995.html
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1993. Peer Support - En sjöman ber inte om medvind - han lär sig segla.
Internet publication URL: www.independentliving.org/docs5/peersupport.html (In Swedish.)
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1993. Personal Assistance and Disability Pride.
Adolf Ratzka reflects on disability pride through personal experiences, and the neccessity of personal assistance services to achieve independence and pride. Internet publication URL: www.independentliving.org/docs4/pride93.html
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1993. Personlig assistans och Disability Pride.
Adolf Ratzka pratar om "disability pride" genom hans egna erfarenheter och behovet av personlig assistans för att kunna känna sig oberoende och stolt. Internet publication URL: www.independentliving.org/docs4/pride93b.html (In Swedish.)
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1993. The Power of Potential of People with Disabilities.
Fadila Lagadien looks at the social, attitudinal and physical barriers that handicap a person with a disability, resulting in their unacknowledged and unused potential. Internet publication URL: www.independentliving.org/docs4/lagadien.html
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1992. Peer counseling: an overview.
Internet publication URL: www.independentliving.org/toolsforpower/tools22.html
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1992. Personlig Assistans: Ett försök till en operationell definition.
"Personlig" assistans betyder att man som brukare utövar maximal kontroll över hur servicen organiseras och skräddarsyr den enligt sina individuella behov, sin förmåga, livssituation och sina strävanden. Internet publication URL: www.independentliving.org/toolsforpower/tools15b.html (In Swedish.)
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1992. Persons with Disabilities, International Day of Disabled Persons, 3 December 1992.
Internet publication URL: www.independentliving.org/docs6/un19921014.html
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1992. Promotion of access legislation in Ghana.
Internet publication URL: www.independentliving.org/cib/cibharare13.html
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1991. Presentation of the "European Manual for an Accessible Built Environment.
Internet publication URL: www.independentliving.org/cib/cibbudapest34.html
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1989. Personal Assistance: The key to Independent Living.
Keynote address at the conference on personal assistance in Strasbourg, France.
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1980. Policy Issues in Independent Living Rehabilitation.
Internet publication URL: www.independentliving.org/docs6/galvin198006.html
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